174 research outputs found

    A qualitative systematic review of service user and service provider perspectives on the acceptability, relative benefits, and potential harms of art therapy for people with non-psychotic mental health disorders.

    Get PDF
    PURPOSE: This systematic review aimed to synthesize qualitative evidence relating to user and service provider perspective on the acceptability and relative benefits and potential harms of art therapy for people with non-psychotic mental disorders. METHODS: A comprehensive literature search was conducted in 13 major bibliographic databases from May to July 2013. A qualitative evidence synthesis was conducted using thematic framework synthesis. RESULTS: The searches identified 10,270 citations from which 12 studies were included. Ten studies included data from 183 service users, and two studies included data from 16 service providers. The evidence demonstrated that art therapy was an acceptable treatment. The benefits associated with art therapy included the following: the development of relationships with the therapist and other group members; understanding the self/own illness/the future; gaining perspective; distraction; personal achievement; expression; relaxation; and empowerment. Small numbers of patients reported varying reasons for not wanting to take part, and some highlighted potentially negative effects of art therapy which included the evoking of feelings which could not be resolved. CONCLUSIONS: The findings suggest that for the majority of respondents art therapy was an acceptable intervention, although this was not the case for all respondents. Therefore, attention should be focussed on both identifying those who are most likely to benefit from art therapy and ensuring any potential harms are minimized. The findings provide evidence to commissioners and providers of mental health services about the value of future art therapy services. PRACTITIONER POINTS: Art therapy was reported to be an acceptable treatment for the majority of respondents. Art therapy may not be a preferred treatment option for a small number of patients, emphasizing the importance of considering patient preference in choice of treatment, and selection of the most suitable patients for art therapy. Consideration should be made of adjustments to make art therapy inclusive, particularly for those with physical illnesses. Ensuring the competence of the deliverer, providing patients with additional support, such as other therapies if required, and ensuring continuity of care should be key considerations in service provision

    Do-not-attempt-cardiopulmonary-resuscitation decisions : an evidence synthesis

    Get PDF
    Background: Cardiac arrest is the final common step in the dying process. In the right context, resuscitation can reverse the dying process, yet success rates are low. However, cardiopulmonary resuscitation (CPR) is a highly invasive medical treatment, which, if applied in the wrong setting, can deprive the patient of dignified death. Do-not-attempt-cardiopulmonary-resuscitation (DNACPR) decisions provide a mechanism to withhold CPR. Recent scientific and lay press reports suggest that the implementation of DNACPR decisions in NHS practice is problematic. Aims and objectives: This project sought to identify reasons why conflict and complaints arise, identify inconsistencies in NHS trusts’ implementation of national guidelines, understand health professionals’ experience in relation to DNACPR, its process and ethical challenges, and explore the literature for evidence to improve DNACPR policy and practice. Methods: A systematic review synthesised evidence of processes, barriers and facilitators related to DNACPR decision-making and implementation. Reports from NHS trusts, the National Reporting and Learning System, the Parliamentary and Health Service Ombudsman, the Office of the Chief Coroner, trust resuscitation policies and telephone calls to a patient information line were reviewed. Multiple focus groups explored service-provider perspectives on DNACPR decisions. A stakeholder group discussed the research findings and identified priorities for future research. Results: The literature review found evidence that structured discussions at admission to hospital or following deterioration improved patient involvement and decision-making. Linking DNACPR to overall treatment plans improved clarity about goals of care, aided communication and reduced harms. Standardised documentation improved the frequency and quality of recording decisions. Approximately 1500 DNACPR incidents are reported annually. One-third of these report harms, including some instances of death. Problems with communication and variation in trusts’ implementation of national guidelines were common. Members of the public were concerned that their wishes with regard to resuscitation would not be respected. Clinicians felt that DNACPR decisions should be considered within the overall care of individual patients. Some clinicians avoid raising discussions about CPR for fear of conflict or complaint. A key theme across all focus groups, and reinforced by the literature review, was the negative impact on overall patient care of having a DNACPR decision and the conflation of ‘do not resuscitate’ with ‘do not provide active treatment’. Limitations: The variable quality of some data sources allows potential overstatement or understatement of findings. However, data source triangulation identified common issues. Conclusion: There is evidence of variation and suboptimal practice in relation to DNACPR decisions across health-care settings. There were deficiencies in considering, discussing and implementing the decision, as well as unintended consequences of DNACPR decisions being made on other aspects of patient care. Future work: Recommendations supported by the stakeholder group are standardising NHS policies and forms, ensuring cross-boundary recognition of DNACPR decisions, integrating decisions with overall treatment plans and developing tools and training strategies to support clinician and patient decision-making, including improving communication. Study registration: This study is registered as PROSPERO CRD42012002669. Funding: The National Institute for Health Research Health Services and Delivery Research programme

    Integration of oncology and palliative care : a Lancet Oncology Commission

    Get PDF
    Full integration of oncology and palliative care relies on the specific knowledge and skills of two modes of care: the tumour-directed approach, the main focus of which is on treating the disease; and the host-directed approach, which focuses on the patient with the disease. This Commission addresses how to combine these two paradigms to achieve the best outcome of patient care. Randomised clinical trials on integration of oncology and palliative care point to health gains: improved survival and symptom control, less anxiety and depression, reduced use of futile chemotherapy at the end of life, improved family satisfaction and quality of life, and improved use of health-care resources. Early delivery of patient-directed care by specialist palliative care teams alongside tumour-directed treatment promotes patient-centred care. Systematic assessment and use of patient-reported outcomes and active patient involvement in the decisions about cancer care result in better symptom control, improved physical and mental health, and better use of health-care resources. The absence of international agreements on the content and standards of the organisation, education, and research of palliative care in oncology are major barriers to successful integration. Other barriers include the common misconception that palliative care is end-of-life care only, stigmatisation of death and dying, and insufficient infrastructure and funding. The absence of established priorities might also hinder integration more widely. This Commission proposes the use of standardised care pathways and multidisciplinary teams to promote integration of oncology and palliative care, and calls for changes at the system level to coordinate the activities of professionals, and for the development and implementation of new and improved education programmes, with the overall goal of improving patient care. Integration raises new research questions, all of which contribute to improved clinical care. When and how should palliative care be delivered? What is the optimal model for integrated care? What is the biological and clinical effect of living with advanced cancer for years after diagnosis? Successful integration must challenge the dualistic perspective of either the tumour or the host, and instead focus on a merged approach that places the patient's perspective at the centre. To succeed, integration must be anchored by management and policy makers at all levels of health care, followed by adequate resource allocation, a willingness to prioritise goals and needs, and sustained enthusiasm to help generate support for better integration. This integrated model must be reflected in international and national cancer plans, and be followed by developments of new care models, education and research programmes, all of which should be adapted to the specific cultural contexts within which they are situated. Patient-centred care should be an integrated part of oncology care independent of patient prognosis and treatment intention. To achieve this goal it must be based on changes in professional cultures and priorities in health care

    Consideration of depression in oncology : the scenes of research

    No full text
    Ce travail s'est intĂ©resser aux difficultĂ©s de la prise en charge de la dĂ©pression en explorant plusieurs niveaux de reprĂ©sentations : celui des soignants, des patients, de leur famille. La dĂ©pression est une pathologie frĂ©quente en oncologie avec une prĂ©valence d’environ 15% qui augmente avec l'aggravation de la maladie cancĂ©reuse. Elle aggrave les autres symptĂŽmes tels que la douleur, la fatigue, l'anxiĂ©tĂ© et retentit sur la qualitĂ© de vie et la survie des patients. La prise en charge spĂ©cifique du cancer est plus difficile chez les patients dĂ©primĂ©s. Les diffĂ©rents objectifs de cette recherche sont de dĂ©terminer les freins de la prise en charge de la pathologie dĂ©pressive en oncologie et de sensibiliser les soignants Ă  cette problĂ©matique en proposant une rĂ©flexion sur les modalitĂ©s de prise en charge. AprĂšs une avoir effectuĂ© une revue de la littĂ©rature, nous avons dĂ©butĂ© un travail de traduction et validation d’une Ă©chelle de dĂ©pistage de la dĂ©pression qui semblait adaptĂ© Ă  notre population et aux modalitĂ©s de prise en charge. Cette Ă©chelle a ensuite Ă©tĂ© proposĂ©e et utilisĂ©e en routine dans diffĂ©rents lieux de prise en charge. Elle a permis de confirmer les rĂ©sultats retrouvĂ©s dans la littĂ©rature internationale quant Ă  la frĂ©quence de la dĂ©pression et son association avec d’autres symptĂŽmes. Ce travail a Ă©tĂ© complĂ©tĂ© par une Ă©valuation de la concordance entre l’évaluation par le patient, le mĂ©decin et l’infirmier de la symptomatologie dĂ©pressive. Les niveaux de concordance retrouvĂ©s Ă©taient faibles. Des rĂ©sultats similaires ont Ă©tĂ© retrouvĂ©s lorsque l’on s’est intĂ©ressĂ© Ă  l’utilisation de diffĂ©rentes mĂ©thodes pour Ă©valuer la dĂ©pression chez la personne ĂągĂ©e atteinte d’un cancer en phase avancĂ©e. Nous avons complĂ©tĂ© ce travail par une Ă©tude rĂ©trospective ayant pour objectif d’évaluer l’impact de l’intervention d’une Ă©quipe de soins de support sur la sĂ©vĂ©ritĂ© de la dĂ©pression des patients atteints d’un cancer en phase avancĂ©e avec des rĂ©sultats positifs, ainsi qu’une synthĂšse de la littĂ©rature quant aux traitements pharmacologiques existants pour la dĂ©pression.La derniĂšre partie a utilisĂ© une autre approche de la dĂ©pression avec pour objectif d’évaluer les reprĂ©sentations sociales de la dĂ©pression dans plusieurs groupes (soignants et famille de patients. AprĂšs une discussion gĂ©nĂ©rale de ce travail ainsi que la prĂ©sentation des limites, nous conclurons par les perspectives quant Ă  la prise en charge de la dĂ©pression en oncologie.This work is exploring the associated issues with the management of depression among cancer patients by exploring several levels of representations: health care professionals, patients and patients’ families. Depression is a common disease in oncology with a prevalence of 15%, which increases with the worsening of the cancer disease. It worsens other symptoms such as pain, fatigue, anxiety and impacts patients’ quality of life and survival. Furthermore, cancer specific management is more difficult among depressed patients. The different objectives of this research were to explore the barriers to depression management in oncology and to make health care porfessional aware of this disease by proposing a reflection on the modalities of care.After having conducted a literature review, we started a study to translate and validate a depression screening scale that seemed suited to our population and modalities of care. This scale was then proposed and used routinely in different places of care. Our results were consistent with the international literature regarding the prevalence of depression and its association with other symptoms. We have then explored correlation between depression assessment by the patient, the physician and the nurse. The levels of agreement were found weak. Similar results were found in another study exploring the use of different methods to assess depression in elderly patients with advanced cancer.After these studies, we conducted a retrospective study aiming to evaluate the impact of the intervention of a supportive care team on the severity of depression in advanced cancer patients with positive results and a summary of the existing literature on depression pharmacological treatments.The last part used a different approach to depression study with the goal to assess social representations of depression in several groups (health care professionals, patients and their family). After a general discussion of this work and the presentation of limitations, we conclude with the prospects for the management of depression in oncology

    Les pratiques des entretiens familles en Unité de Soins Palliatifs en France

    No full text
    La dĂ©finition des soins palliatifs inclus l'accompagnement des familles. L'entretien famille permet de replacer la famille au centre du projet de soin et du projet dĂ©cisionnel, ainsi que lui donner un temps de rĂ©flexion et un espace d'expression. En France, il n'existe pas de protocole pour la conduite de ces entretiens et il n'existe pas de dĂ©finition formelle. Le but de notre Ă©tude Ă©tait de dĂ©crire les pratiques actuelles des entretiens familles dans toutes les USP de France. Nous avons envoyĂ©s 452 questionnaires soit 4 questionnaires par USP, (un pour le mĂ©decin rĂ©fĂ©rent, un pour un infirmier, un pour l'assistante sociale et un pour la psychologue). Ce questionnaire Ă©tait constituĂ© de 5 parties (donnĂ©es sociodĂ©mographiques ; pratiques actuelles de l'entretien de famille; objectifs principaux des entretiens familles; indications de l'entretien famille; commentaires libres). Nous avons obtenu un taux de rĂ©ponse de 61%. Nous avons retrouvĂ© des pratiques diffĂ©rentes d'une USP Ă  l'autre, probablement accentuĂ©es par l'absence d'une dĂ©finition commune de l'entretien famille. Notre Ă©tude montre qu'il existe une variabilitĂ© importante entre les diffĂ©rentes professions (mĂ©decins et infirmiers versus psychologues et assistantes sociales) en termes de dĂ©lai de rĂ©alisation des entretiens et d'utilisation d'un protocole pour l'organisation et la conduite de l'entretien. Les objectifs principaux des entretiens sont d'identifier les membres de la famille, d'expliquer les objectifs des soins palliatifs, de permettre Ă  la famille d'exprimer ses Ă©motions, et de discuter du projet de soins. Les principales indications Ă  rĂ©aliser des entretiens sont l'existence d'un clivage au sein de l'Ă©quipe, une phase palliative terminale, et Ă  la demande de la famille. L'analyse qualitative confirme les diffĂ©rences de pratique, certains soignants regrettent qu'il n'y ait pas de protocole mais beaucoup de commentaires ont Ă©tĂ© fait sur la difficultĂ© probable d'Ă©laborer un protocole standard. Notre travail retrouve donc des pratiques trĂšs diffĂ©rentes d'une USP Ă  l'autre et d'une profession Ă  l'autre. Ces Ă©lĂ©ments s'accordent avec la littĂ©rature existante. Mais il n'existe pas de travaux Ă©quivalents ayant explorĂ© les pratiques Ă  l'Ă©chelle nationale. Avant les annĂ©es 1980, il n'existait que peu d'Ă©chelles pour Ă©valuer la douleur et celles-ci Ă©taient peu utilisĂ©es. L'argument des soignants Ă©tait que cette Ă©valuation Ă©tait complexe et ne pouvait passer par l'utilisation d'un outil car chaque douleur est diffĂ©rente et subjective. L'entretien famille gĂ©nĂšre le mĂȘme type de rĂ©ticence chez les soignants. A l'issue de ce travail, nous avons proposĂ© une dĂ©finition des entretiens familles ainsi qu'un protocole standardisĂ© pour aider Ă  la conduite de ces entretiens. Les prochains travaux devront Ă©tudier l'impact d'entretiens familles conduits avec ou sans ce protocole standardisĂ©.NANTES-BU MĂ©decine pharmacie (441092101) / SudocSudocFranceF
    • 

    corecore