„Wir müssen unser Gesundheitssystem mutig reformieren“

„Das System der GKV ist elementar auf die Versorgungsforschung angewiesen“, erklärt Klaus Holetschek, Staatsminister im Bayerischen Staatsministerium für Gesundheit und Pflege, im Interview mit „Monitor Versorgungsforschung“. Sie sei ein wichtiger Baustein für die Fortschreibung des GKV-Leistungskataloges und – so Holetschek – „natürlich ist es wichtig, dass die entwickelten Versorgungsformen auch in naher Zukunft umgesetzt werden“. Für diese, von der Versorgungsforschung zu leistende Arbeit seien Daten unerlässlich und konkrete Forderungen für ein kommendes Gesundheitsdatennutzungsgesetz zu präzisieren. Der Bayerische Gesundheitsminister: „Nun gilt es aus meiner Sicht, dass das vieldiskutierte Gesundheitsdatennutzungsgesetz in Deutschland möglichst rasch auf den Weg gebracht wird.

Freier Zugang zu den Informationen der Artenvielfalt - Wie werde ich Teil der Global Biodiversity Information Facility (GBIF)?

Die Global Biodiversity Information Facility ist ein internationaler Zusammenschluss von Staaten und Organisationen mit dem Ziel, die weltweit vorhandenen Primärdaten zur Artenvielfalt über das Internet frei verfügbar zu machen. Dieser Artikel gibt einen kurzen Überblick über die Ziele und den Aufbau von GBIF sowie die zugrunde liegenden Prinzipien, erläutert Architektur und Datenströme im Netzwerk und geht auf die verwendeten Standards, Protokolle, Datenschemata und deren Implementierung ein. Im Abschluss werden die notwendigen Schritte zur Anbindung einer bestehenden Sammlungsdatenbank an das GBIF-Netzwerk aufgezeigt sowie die Möglichkeiten einer Hilfestellung durch GBIF-Deutschland.StichwörterBiodiversity, GBIF, GBIF-D, database, network, collection, specimens, observations, XML, ABCD schema, provider software, Python wrapper, BioCASe protocol, mapping, search portal.The Global Biodiversity Information Facility is an international initiative of countries and organizations that aims at providing free access over the internet to the world's existing primary data on biodiversity. This article gives a short review of the goals and the organization of GBIF and its basic principles, illustrates the architecture and data flows within the network and illuminates the standards, protocols and schemas used for these purposes and their implementation. It describes the required steps for connecting an existing collection database to the GBIF network and the potential support by the GBIF helpdesk.KeywordsBiodiversity, GBIF, GBIF-D, database, network, collection, specimens, observations, XML, ABCD schema, provider software, Python wrapper, BioCASe protocol, mapping, search portal

NGC 6994 - clearly not a physical stellar ensemble

The sparse stellar ensemble NGC 6994 = M73 has recently been discussed as a possible remnant of an old open cluster. In order to solve the controversy on the nature of this object we have taken high-resolution spectra of the six brightest stars within 6' angular distance of its nominal position. These stars are the only obvious member candidates for an eventual cluster or cluster remnant since fainter stars do not show any significant concentration in the plane of the sky. The radial velocities, atmospheric parameters, and absolute magnitudes derived from the spectra reveal that the six candidates do not share the same kinematics and lie at different distances from the Sun. The proper motions provided by the Tycho-2 catalogue show that there is also a large spread in the tangential motions of these stars, in agreement with the spectroscopic results. This leads to the conclusion that the few bright stars that constitute NGC 6994 are not a physical system (cluster, cluster remnant, or group). They must instead be understood as a projective chance alignment of physically unrelated field stars.Comment: 9 pages, 4 figures, accepted for publication in A&

A botanical demonstration of the potential of linking data using unique identifiers for people

Natural history collection data available digitally on the web have so far only made limited use of the potential of semantic links among themselves and with cross-disciplinary resources. In a pilot study, botanical collections of the Consortium of European Taxonomic Facilities (CETAF) have therefore begun to semantically annotate their collection data, starting with data on people, and to link them via a central index system. As a result, it is now possible to query data on collectors across different collections and automatically link them to a variety of external resources. The system is being continuously developed and is already in production use in an international collection portal

Access to Marine Genetic Resources (MGR): Raising Awareness of Best-Practice Through a New Agreement for Biodiversity Beyond National Jurisdiction (BBNJ)

Better scientific knowledge of the poorly-known deep sea and areas beyond national jurisdiction (ABNJ) is key to its conservation, an urgent need in light of increasing environmental pressures. Access to marine genetic resources (MGR) for the biodiversity research community is essential to allow these environments to be better characterised. Negotiations have commenced under the auspices of the United Nations Convention on the Law of the Sea (UNCLOS) to develop a new treaty to further the conservation and sustainable use of marine biological diversity in ABNJ. It is timely to consider the relevant issues with the development of the treaty underway. Currently uncertainties surround the legal definition of MGR and scope of related benefit-sharing, against a background of regional and global governance gaps in ABNJ. These complications are mirrored in science, with recent major advances in the field of genomics, but variability in handling of the resulting increasing volumes of data. Here, we attempt to define the concept of MGR from a scientific perspective, review current practices for the generation of and access to MGR from ABNJ in the context of relevant regulations, and illustrate the utility of best-practice with a case study. We contribute recommendations with a view to strengthen best-practice in accessibility of MGR, including: funder recognition of the central importance of taxonomy/biodiversity research; support of museums/collections for long-term sample curation; open access to data; usage and further development of globally recognised data standards and platforms; publishing of datasets via open-access, quality controlled and standardised data systems and open access journals; commitment to best-practice workflows; a global registry of cruises; and lastly development of a clearing house to further centralised access to the above. We argue that commitment to best-practice would allow greater sharing of MGR for research and extensive secondary use including conservation and environmental monitoring, and provide an exemplar for access and benefit-sharing (ABS) to inform the biodiversity beyond national jurisdiction (BBNJ) process.Copyright © 2019 Rabone, Harden-Davies, Collins, Zajderman, Appeltans, Droege, Brandt, Pardo-Lopez, Dahlgren, Glover and Horton. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms

The Global Genome Biodiversity Network (GGBN) Data Standard specification

© The Author(s) 2016. Published by Oxford University Press. Page 1 of 11 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. The article attached is the publisher's pdf

Recommendations for interoperability among infrastructures

The BiCIKL project is born from a vision that biodiversity data are most useful if they are presented as a network of data that can be integrated and viewed from different starting points. BiCIKL’s goal is to realise that vision by linking biodiversity data infrastructures, particularly for literature, molecular sequences, specimens, nomenclature and analytics. To make those links we need to better understand the existing infrastructures, their limitations, the nature of the data they hold, the services they provide and particularly how they can interoperate. In light of those aims, in the autumn of 2021, 74 people from the biodiversity data community engaged in a total of twelve hackathon topics with the aim to assess the current state of interoperability between infrastructures holding biodiversity data. These topics examined interoperability from several angles. Some were research subjects that required interoperability to get results, some examined modalities of access and the use and implementation of standards, while others tested technologies and workflows to improve linkage of different data types.These topics and the issues in regard to interoperability uncovered by the hackathon participants inspired the formulation of the following recommendations for infrastructures related to (1) the use of data brokers, (2) building communities and trust, (3) cloud computing as a collaborative tool, (4) standards and (5) multiple modalities of access:If direct linking cannot be supported between infrastructures, explore using data brokers to store linksCooperate with open linkage brokers to provide a simple way to allow two-way links between infrastructures, without having to co-organize between many different organisationsFacilitate and encourage the external reporting of issues related to their infrastructure and its interoperability.Facilitate and encourage requests for new features related to their infrastructure and its interoperability.Provide development roadmaps openlyProvide a mechanism for anyone to ask for helpDiscuss issues in an open forumProvide cloud-based environments to allow external participants to contribute and test changes to featuresConsider the opportunities that cloud computing brings as a means to enable shared management of the infrastructure.Promote the sharing of knowledge around big data technologies amongst partners, using cloud computing as a training environmentInvest in standards compliance and work with standards organisations to develop new, and extend existing standardsReport on and review standards compliance within an infrastructure with metrics that give credit for work on standard compliance and developmentProvide as many different modalities of access as possibleAvoid requiring personal contacts to download dataProvide a full description of an API and the data it servesFinally, the hackathons were an ideal meeting opportunity to build, diversify and extend the BiCIKL community further, and to ensure the alignment of the community with a common vision on how best to link data from specimens, samples, sequences, taxonomic names and taxonomic literature