10 research outputs found
Causes of stigma and discrimination associated with tuberculosis in Nepal: a qualitative study
<p>Abstract</p> <p>Background</p> <p>Tuberculosis (TB) is a major cause of death. The condition is highly stigmatised, with considerable discrimination towards sufferers. Although there have been several studies assessing the extent of such discrimination, there is little published research explicitly investigating the causes of the stigma and discrimination associated with TB. The objectives of our research were therefore to take the first steps towards determining the causes of discrimination associated with TB.</p> <p>Methods</p> <p>Data collection was performed in Kathmandu, Nepal. Thirty four in-depth interviews were performed with TB patients, family members of patients, and members of the community.</p> <p>Results</p> <p>Causes of self-discrimination identified included fear of transmitting TB, and avoiding gossip and potential discrimination. Causes of discrimination by members of the general public included: fear of a perceived risk of infection; perceived links between TB and other causes of discrimination, particularly poverty and low caste; perceived links between TB and disreputable behaviour; and perceptions that TB was a divine punishment. Furthermore, some patients felt they were discriminated against by health workers</p> <p>Conclusion</p> <p>A comprehensive package of interventions, tailored to the local context, will be needed to address the multiple causes of discrimination identified: basic population-wide health education is unlikely to be effective.</p
Adding two culture-specific âbolt-onâ dimensions on the Thai version of EQ-5D-5L: an exploratory study in patients with diabetes
The 'Choice and Autonomy Framework' : implications for occupational therapy practice
Introduction
This paper presents findings from a PhD study exploring
autonomy of adults with physical disability. The plethora
of descriptions of autonomy in psychological, occupational
therapy and rehabilitation literature (e.g. Ryan and Deci 2000,
Rogers 1982, Cardol et al 2002) detracts from the centrality
of autonomy and results in difficulty incorporating it into
occupational therapy practice. This paper presents a framework
providing an integrated, clinically useful approach to autonomy.
Methods
Sixteen people were recruited, based on age, gender,
impairment and living circumstances (community/residential
settings). All have significant physical disability, use a wheelchair
and require personal assistance for some/all self-care activities.
Qualitative methods were used for data collection, including
life-history narrative, diary information and extensive interview.
An integrated method of analysis was used, including content
analysis and bracketing.
Results
The âChoice and Autonomy Frameworkâ consists of five strands,
including:
⢠the meaning of autonomy
⢠whether or not autonomy is a goal or value
⢠the experience of autonomy
⢠personality factors that impact autonomy
⢠environmental features that enhance or negate autonomy.
This paper will describe each strand, as derived from the
research. The results suggest that, contrary to common wisdom (Hmel and Pincus 2002), autonomy is not necessarily a universal
goal for people with physical disability; an understanding of the
personâs own perspective will enhance person-centred practice
and enable therapists to further recognise individuality of clients.
It will argue that the concept of autonomy needs to be further
understood and incorporated into occupational therapy practice