131 research outputs found

    Human cloning laws, human dignity and the poverty of the policy making dialogue

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    BACKGROUND: The regulation of human cloning continues to be a significant national and international policy issue. Despite years of intense academic and public debate, there is little clarity as to the philosophical foundations for many of the emerging policy choices. The notion of "human dignity" is commonly used to justify cloning laws. The basis for this justification is that reproductive human cloning necessarily infringes notions of human dignity. DISCUSSION: The author critiques one of the most commonly used ethical justifications for cloning laws – the idea that reproductive cloning necessarily infringes notions of human dignity. He points out that there is, in fact, little consensus on point and that the counter arguments are rarely reflected in formal policy. Rarely do domestic or international instruments provide an operational definition of human dignity and there is rarely an explanation of how, exactly, dignity is infringed in the context reproductive cloning. SUMMARY: It is the author's position that the lack of thoughtful analysis of the role of human dignity hurts the broader public debate about reproductive cloning, trivializes the value of human dignity as a normative principle and makes it nearly impossible to critique the actual justifications behind many of the proposed policies

    How do we know that research ethics committees are really working? The neglected role of outcomes assessment in research ethics review

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    <p>Abstract</p> <p>Background</p> <p>Countries are increasingly devoting significant resources to creating or strengthening research ethics committees, but there has been insufficient attention to assessing whether these committees are actually improving the protection of human research participants.</p> <p>Discussion</p> <p>Research ethics committees face numerous obstacles to achieving their goal of improving research participant protection. These include the inherently amorphous nature of ethics review, the tendency of regulatory systems to encourage a focus on form over substance, financial and resource constraints, and conflicts of interest. Auditing and accreditation programs can improve the quality of ethics review by encouraging the development of standardized policies and procedures, promoting a common base of knowledge, and enhancing the status of research ethics committees within their own institutions. However, these mechanisms focus largely on questions of structure and process and are therefore incapable of answering many critical questions about ethics committees' actual impact on research practices.</p> <p>The first step in determining whether research ethics committees are achieving their intended function is to identify what prospective research participants and their communities hope to get out of the ethics review process. Answers to this question can help guide the development of effective outcomes assessment measures. It is also important to determine whether research ethics committees' guidance to investigators is actually being followed. Finally, the information developed through outcomes assessment must be disseminated to key decision-makers and incorporated into practice. This article offers concrete suggestions for achieving these goals.</p> <p>Conclusion</p> <p>Outcomes assessment of research ethics committees should address the following questions: First, does research ethics committee review improve participants' understanding of the risks and potential benefits of studies? Second, does the process affect prospective participants' decisions about whether to participate in research? Third, does it change participants' subjective experiences in studies or their attitudes about research? Fourth, does it reduce the riskiness of research? Fifth, does it result in more research responsive to the local community's self-identified needs? Sixth, is research ethics committees' guidance to researchers actually being followed?</p

    A prospective model for aligning educational quality and student experience in international higher education

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    The aim of this paper is to develop a model that addresses and bridges the gap between quality management and student experience. The model incorporates the most commonly occurring systems, namely: quality control; quality assurance; quality audit; quality assessment; quality enhancement; and quality management. The paper highlights the key elements of these approaches and constructs a model that provides a more comprehensive tool for accurately implementing and measuring quality in international higher education. The model, as a proposed conceptual framework, can be used by managers in Transnational Education (TNE), both at home and host institutions, to facilitate improvements in the TNE student experience while at the same time meet wider institutional objectives about educational quality

    Ethics and images of suffering bodies in humanitarian medicine

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    Media representations of suffering bodies from medical humanitarian organisations raise ethical questions, which deserve critical attention for at least three reasons. Firstly, there is a normative vacuum at the intersection of medical ethics, humanitarian ethics and the ethics of photojournalism. Secondly, the perpetuation of stereotypes of illness, famine or disasters, and their political derivations are a source of moral criticism, to which humanitarian medicine is not immune. Thirdly, accidental encounters between members of the health professions and members of the press in the humanitarian arena can result in misunderstandings and moral tension. From an ethics perspective the problem can be specified and better understood through two successive stages of reasoning. Firstly, by applying criteria of medical ethics to the concrete example of an advertising poster from a medical humanitarian organisation, I observe that media representations of suffering bodies would generally not meet ethical standards commonly applied in medical practice. Secondly, I try to identify what overriding humanitarian imperatives could outweigh such reservations. The possibility of action and the expression of moral outrage are two relevant humanitarian values which can further be spelt out through a semantic analysis of 'témoignage' (testimony). While the exact balance between the opposing sets of considerations (medical ethics and humanitarian perspectives) is difficult to appraise, awareness of all values at stake is an important initial standpoint for ethical deliberations of media representations of suffering bodies. Future pragmatic approaches to the issue should include: exploring ethical values endorsed by photojournalism, questioning current social norms about the display of suffering, collecting empirical data from past or potential victims of disasters in diverse cultural settings, and developing new canons with more creative or less problematic representations of suffering bodies than the currently accepted stereotypes

    After Mining: contrived dereliction, dualistic time and the moment of rupture in the presentation of mining heritage.

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    Since the early twentieth century, attempts have been made to promote sites relating to mining as industrial heritage. Since the rise of the heritage industry in the 1980s, the number and size of the mining sites being managed and promoted as heritage destinations has dramatically increased across the West. This paper will examine how the strategies for interpreting such sites rely on different temporal constructions. As well as outlining the ‘technological development’ approach and its association with linear time, the paper will unpack the key features of the less understood strategy of ‘contrived dereliction’ and the dualistic temporal framework that it relies on. This argument will reference a range of mining heritage sites visited and researched by the author: Kennecott, Skagway and Dyea in Alaska, Bodie in California and Geevor in Cornwall. The paper will also identify how curators have used the moment of rupture that can feature in dualistic temporal constructions to promote a specific political viewpoint and consider the social consequences of accepting the dualistic temporal construction that underpins contrived dereliction

    Civic Participation and Other Interventions That Promote Children\u2019s Tolerance of Migrants

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    In this chapter, we begin by providing a definition of \u2018tolerance\u2019, illustrating the wide range of attributes associated with the concept in the literature. Second, we identify some key paths through which tolerance can develop at different stages of an individual\u2019s development. Through a literature review, we will track some of the factors that can increase tolerance toward migrants during early and late stages development. Finally, we will conclude by presenting an overview of methodological approaches that practitioners have at their disposal to promote tolerance toward migrants

    From landscape resources to landscape commons: focussing on the non-utility values of landscape

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    Landscape is increasingly conceptualized as a resource. We argue that although a resource-based approach may be positive in terms of conservation outcomes, focusing on use value does not do sufficient justice to the many complex facets of landscape. Reiterating the Florence Declaration on Landscape, which considers that “landscape is a common good”, we suggest that the conceptualization of landscape as a commons will resolve the discrepancy. However, a conceptual shift towards a more holistic commons-based approach requires a detailed understanding of the different values of landscape. Based on a phenomenological conceptualization of the landscape, this article explores the theoretical roots of the definition of the different values of landscape. It distinguishes between use, existence (e.g. aesthetic) and intrinsic values. This exercise is not an end in itself, but is intended to establish a theoretical framework promoting a dialogue between these values and show how they complement each other. A precise understanding of the different landscape values contributes not only to the conceptualization of landscape as a commons, but also to a better understanding of real-life landscape conflicts. Drawing on the empirical example of the Lavaux UNESCO World Heritage Site in Switzerland, the article demonstrates that, in practice, landscape conservation projects that avoid deadlock succeed in striking a balance between the three conceptions of landscape value
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