1,063 research outputs found

    Detecting Mobility Patterns in Mobile Phone Data from the Ivory Coast

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    This paper investigates the Data for Development (D4D) challenge [3], an open challenge set by the French mobile phone company, Orange, who have provided anonymized records of their customers in the Ivory Coast. This data spans a 5 month (150 day) horizon spread across 4 different sets containing antenna-to-antenna traffic, trace data for 50,000 customers at varying spatial resolution, and social graphs for 5,000 customers. By leveraging cloud-based and open-source analytics infrastructure to (1) merge the D4D datasets with Geographic Information System (GIS) data and (2) apply data mining algorithms, this paper presents a number of techniques for detecting mobility patterns of Orange customers in the Ivory Coast. By applying a k-medoid clustering algorithm to the antenna locations and their average distance to nearby antennas, we show how the high spatial resolution mobile phone dataset reveals a number of daily mobility patterns and properties, including trends in week-day versus weekend, public holiday mobility behavior, and distributional properties of daily trip distances across each cluster. With a view towards providing tools to assist with transport infrastructure planning, we combine the high spatial resolution D4D dataset with GIS data for transport infrastructure and demonstrate an approach for detecting whether a mobile phone user is traveling on a segment of transport infrastructure. This work culminates in a preliminary cloud-based GIS tool for visualizing mobility traces

    Patient perspectives on sharing anonymised personal health data using a digital system for dynamic consent and research feedback: a qualitative study

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    Background: Electronic health records are widely acknowledged to provide an important opportunity to anonymize patient-level health care data and collate across populations to support research. Nonetheless, in the wake of public and policy concerns about security and inappropriate use of data, conventional approaches toward data governance may no longer be sufficient to respect and protect individual privacy. One proposed solution to improve transparency and public trust is known as Dynamic Consent, which uses information technology to facilitate a more explicit and accessible opportunity to opt out. In this case, patients can tailor preferences about whom they share their data with and can change their preferences reliably at any time. Furthermore, electronic systems provide opportunities for informing patients about data recipients and the results of research to which their data have contributed. Objective: To explore patient perspectives on the use of anonymized health care data for research purposes. To evaluate patient perceptions of a Dynamic Consent model and electronic system to enable and implement ongoing communication and collaboration between patients and researchers. Methods: A total of 26 qualitative interviews and three focus groups were conducted that included a video presentation explaining the reuse of anonymized electronic patient records for research. Slides and tablet devices were used to introduce the Dynamic Consent system for discussion. A total of 35 patients with chronic rheumatic disease with varying levels of illness and social deprivation were recruited from a rheumatology outpatient clinic; 5 participants were recruited from a patient and public involvement health research network. Results: Patients were supportive of sharing their anonymized electronic patient record for research, but noted a lack of transparency and awareness around the use of data, making it difficult to secure public trust. While there were general concerns about detrimental consequences of data falling into the wrong hands, such as insurance companies, 39 out of 40 (98%) participants generally considered that the altruistic benefits of sharing health care data outweighed the risks. Views were mostly positive about the use of an electronic interface to enable greater control over consent choices, although some patients were happy to share their data without further engagement. Participants were particularly enthusiastic about the system as a means of enabling feedback regarding data recipients and associated research results, noting that this would improve trust and public engagement in research. This underlines the importance of patient and public involvement and engagement throughout the research process, including the reuse of anonymized health care data for research. More than half of patients found the touch screen interface easy to use, although a significant minority, especially those with limited access to technology, expressed some trepidation and felt they may need support to use the system. Conclusions: Patients from a range of socioeconomic backgrounds viewed a digital system for Dynamic Consent positively, in particular, feedback about data recipients and research results. Implementation of a digital Dynamic Consent system would require careful interface design and would need to be located within a robust data infrastructure; it has the potential to improve trust and engagement in electronic medical record research

    ‘Trying to pin down jelly’ - exploring intuitive processes in quality assessment for meta-ethnography

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    Background: Studies that systematically search for and synthesise qualitative research are becoming more evident in health care, and they can make an important contribution to patient care. However, there is still no agreement as to whether, or how we should appraise studies for inclusion. We aimed to explore the intuitive processes that determined the ‘quality’ of qualitative research for inclusion in qualitative research syntheses. We were particularly interested to explore the way that knowledge was constructed. Methods: We used qualitative methods to explore the process of quality appraisal within a team of seven qualitative researchers funded to undertake a meta-ethnography of chronic non-malignant musculoskeletal pain. Team discussions took place monthly between October 2010 and June 2012 and were recorded and transcribed. Data was coded and organised using constant comparative method. The development of our conceptual analysis was both iterative and collaborative. The strength of this team approach to quality came from open and honest discussion, where team members felt free to agree, disagree, or change their position within the safety of the group. Results: We suggest two core facets of quality for inclusion in meta-ethnography - (1) Conceptual clarity; how clearly has the author articulated a concept that facilitates theoretical insight. (2) Interpretive rigour; fundamentally, can the interpretation ‘be trusted?’ Our findings showed that three important categories help the reader to judge interpretive rigour: (ii) What is the context of the interpretation? (ii) How inductive is the interpretation? (iii) Has the researcher challenged their interpretation? Conclusions: We highlight that methods alone do not determine the quality of research for inclusion into a meta-ethnography. The strength of a concept and its capacity to facilitate theoretical insight is integral to meta-ethnography, and arguably to the quality of research. However, we suggest that to be judged ‘good enough’ there also needs to be some assurance that qualitative findings are more than simply anecdotal. Although our conceptual model was developed specifically for meta-ethnography, it may be transferable to other research methodologies

    Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research

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    With one million people treated every 36 hours, routinely collected UK National Health Service (NHS) health data has huge potential for medical research. Advances in data acquisition from electronic patient records (EPRs) means such data are increasingly digital and can be anonymised for research purposes. NHS England’s care.data initiative recently sought to increase the amount and availability of such data. However, controversy and uncertainty following the care.data public awareness campaign led to a delay in rollout, indicating that the success of EPR data for medical research may be threatened by a loss of patient and public trust. The sharing of sensitive health care data can only be done through maintaining such trust in a constantly evolving ethicolegal and political landscape. We propose that a dynamic consent model, whereby patients can electronically control consent through time and receive information about the uses of their data, provides a transparent, flexible, and user-friendly means to maintain public trust. This could leverage the huge potential of the EPR for medical research and, ultimately, patient and societal benefit

    Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research

    Get PDF
    With one million people treated every 36 hours, routinely collected UK National Health Service (NHS) health data has huge potential for medical research. Advances in data acquisition from electronic patient records (EPRs) means such data are increasingly digital and can be anonymised for research purposes. NHS England’s care.data initiative recently sought to increase the amount and availability of such data. However, controversy and uncertainty following the care.data public awareness campaign led to a delay in rollout, indicating that the success of EPR data for medical research may be threatened by a loss of patient and public trust. The sharing of sensitive health care data can only be done through maintaining such trust in a constantly evolving ethicolegal and political landscape. We propose that a dynamic consent model, whereby patients can electronically control consent through time and receive information about the uses of their data, provides a transparent, flexible, and user-friendly means to maintain public trust. This could leverage the huge potential of the EPR for medical research and, ultimately, patient and societal benefit

    Measurement of fisheries compliance outcomes : a preliminary national study : FRDC final report

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    This report presents the results of a project undertaken by a group of Australia and United States based fishery compliance experts to assess and compare methods for measuring fisheries compliance outcomes that can be used to assess and compare the effectiveness of fishery enforcement and compliance assistance activities. This eight month project was requested in 2013 by Australia’s National Fisheries Compliance Committee (NFCC) as a way to provide fisheries compliance groups with improved methods for measuring and tracking the effectiveness of their activities and for justifying and managing their budgets

    Advowsons and private patronage

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    This article focuses on the role of private patronage within the Church of England. Private patrons own advowsons. These property rights can no longer be traded but may still be bequeathed or transferred without value. When there is a vacancy in a benefice a patron has the right to nominate a new incumbent in accordance with the Patronage (Benefices) Measure 1986. This article uses contemporary and historical records to define private patronage and analyse the current role of the four broad categories of private patrons; private individuals, educational bodies, guilds and patronage societies. Whilst acknowledging the benefits that patronage can bring, this article advocates substantive reform for the future including a sunset rule for private individual patronage. This article suggests that reform of the law of private patronage will make a positive contribution to other contemporary issues before the Church by promoting diversity in vocations, facilitating necessary pastoral reorganisation and adding to the dialogue about the future of the parish system

    New kinematic models for Pacific‐North America Motion from 3 Ma to Present, II: Evidence for a “Baja California Shear Zone”

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    We use new models for present‐day Pacific‐North America motion to evaluate the tectonics of offshore regions west of the Californias. Vandenburg in coastal Alta California moves at the Pacific plate velocity within uncertainties (∼1 mm/yr) after correcting for strain accumulation on the San Andreas and San Gregorio‐Hosgri faults with a model that includes a viscoelastic lower crust. Modeled and measured velocities at coastal sites in Baja California south of the Agua Blanca fault, a region that most previous models consider Pacific plate, differ by 3–8 mm/yr, with coastal sites moving slower that the Pacific plate. We interpret these discrepancies in terms of strain accumulation on known on‐shore faults, combined with right lateral slip at a rate of 3–4 mm/yr on additional faults offshore peninsular Baja California in the Pacific. Offshore seismicity, offset Quaternary features along the west coast of Baja California, and a discrepancy between the magnetically determined spreading rate in the Gulf Rise and the total plate rate from a geological model provide independent evidence for a “Baja California shear zone.

    Interracial Public-Police Contact: Relationships with Police Officers’ Racial and Work-Related Attitudes and Behavior

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    In a sample of Flemish police officers (N = 172), we examined whether interracial public-police contact is associated with police officers’ racial and workrelated attitudes and self-reported behavior. Complementing previous studies, it was revealed that interracial contact (both positive and negative) is related to prejudiced behavior toward immigrants via the mediating role of racial attitudes. Moreover, intergroup contact was also shown to be related to police officers’ organizational citizenship behavior toward colleagues and superiors via their perceptions of organizational fairness. In the discussion section we elaborate on the severe impact of negative contact as well as the applied consequences of our findings within police organizations
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