5 research outputs found
Manifestation and parental assessment of childrenâs cancer pain at home: an exploratory mixed methods study
Aims and objectives
To describe pain manifestation in children with cancer at home and understand how parents assess this pain.
Background
Pain is experienced by children with cancer throughout their cancer journey. Shortâterm, and into survivorship, pain has negative physical and psychological consequences. Changes in treatment location mean children with cancer spend more time at home. Little is known about pain experienced by children at home or how parents assess this pain.
Design
A mixed methods convergent parallel study was reported using STROBE.
Method
Parents of children with cancer on active treatment were recruited from one tertiary cancer centre. Parental attitudes towards pain expression were assessed using surveys. Parents recorded their childâs pain manifestation in pain diaries kept for one month. Interviews captured a deeper understanding of pain manifestation and how parents assess this pain at home. Integration occurred after each data collection method was analysed separately.
Results
Predominantly children were not in pain at home. However, most children experienced at least one episode of problematic pain over the pain diary period. Surveys showed parents held misconceptions regarding childrenâs pain expression. Interviews diverge from surveys and suggest parents used a range of information sources to assess pain.
Conclusion
Children with cancer may differ from one another in the manifestation of pain at home resulting in multiple pain trajectories. Parents of children with cancer are able to adequately assess their childâs pain using information from multiple source
Additional file 3 of PredictCBC-2.0: a contralateral breast cancer risk prediction model developed and validated in ~ 200,000 patients
Additional file 1: Table S3. Patient and primary breast cancer characteristics per study
Additional file 2 of PredictCBC-2.0: a contralateral breast cancer risk prediction model developed and validated in ~ 200,000 patients
Additional file 2: Table S1. Description of the studies included in the analyses