9,240 research outputs found

    Parent Reactions To Individualized Education Program (Iep) Meeting Vignettes: The Effect Of Jargon And Labels On Emotional Reactivity And Feelings Of Collaboration

    Get PDF
    This study focused on the emotional responses of parents of school-aged children who read a vignette describing an Individualized Education Program (IEP) meeting. The vignette used either specific or generic language to label the participants’ relationship to the child who meets the eligibility criteria for Specific Learning Disability. The label used was either a specific “Your Child” description or a generic description of “A Child.” Further, the vignettes were presented either with or without technical professional jargon commonly used in an IEP setting. In a pilot study, parents provided emotional response ratings for the 13 Individuals with Disabilities Education Act (IDEA) eligibility categories. Eligibility categories were rated more negatively in the Your Child condition compared to the Control condition, demonstrating the impact of label on parents’ perception of IEP categories. Specific Learning Disability (SLD) was chosen as the IDEA eligibility category for use in Study 2 vignette because it is common in schools and it was not rated as emotionally negative as other eligibility categories, thus allowing a realistic but not overly negative context within which to examine the effects of label type and professional jargon on emotional reactivity and feelings of collaboration. In Study 2, four vignettes describing a child with a SLD in reading (i.e., dyslexia) were created by manipulating Label (“Your Child” vs. “A Child”) and Jargon (Yes vs. No) and were divided into five blocks: (1) Identifying Concerns, outlining the reading concerns; (2) Labeling the Problem, using the name of the suspected disorder, dyslexia; (3) Assessment Methods, either specific validated and normed copywritten assessment methods in the jargon condition vs. nonspecific generic methods in the no jargon condition; (4) Qualifying for IEP, stating eligibility for an IEP because of SLD; and (5) Accommodations Proposed, describing the help to be provided. Participants rated their emotional response after each block. Participants then rated their feelings of collaboration with school personnel using a 12-item scale developed for this study. I hypothesized that parents in the “Your Child” group would report more negative emotions and lower feelings of cooperation compared to those in the “A Child” group. Further, I hypothesized that the presence of Jargon would have an impact on both emotional reactivity and feelings of cooperation relative to an IEP meeting described using everyday language. The Jargon and Label manipulations had different effects depending on the type of information in the vignette. When considering Assessment Methods, parents’ emotional responses were more positive when Jargon was used compared to everyday language. The effects of jargon were evident with respect to feelings of collaboration. Parents who read vignettes without jargon reported greater feelings of collaboration than those who read vignettes with jargon. Parent reactions were also influence by whether or not they already had a child with an IEP or 504 Plan. Those with an IEP/504 Plan background reported more negative emotions and lower feelings of collaboration when presented with jargon. Participants who reported they had an immediate family history of dyslexia also responded more negatively to jargon and reported lower feelings of collaboration. Implications for practice are outlined. KEYWORDS: emotional response; cooperation; collaboration; Individualized Education Progra

    A narrative synthesis of research evidence for tinnitus-related complaints as reported by patients and their significant others

    Get PDF
    Background: There are a large number of assessment tools for tinnitus, with little consensus on what it is important to measure and no preference for a minimum reporting standard. The item content of tinnitus assessment tools should seek to capture relevant impacts of tinnitus on everyday life, but no-one has yet synthesised information about the range of tinnitus complaints. This review is thus the first comprehensive and authoritative collection and synthesis of what adults with tinnitus and their significant others report as problems in their everyday lives caused by tinnitus. Methods: Electronic searches were conducted in PubMed, Embase, CINAHL, as well as grey literature sources to identify publications from January 1980 to June 2015 in which participants were enrolled because tinnitus was their primary complaint. A manual search of seven relevant journals updated the search to December 2017. Of the 3,699 titles identified overall, 84 records (reporting 86 studies) met our inclusion criteria and were taken through to data collection. Coders collated generic and tinnitus specific complaints reported by people with tinnitus. All relevant data items were then analyzed using an iterative approach to narrative synthesis to form domain groupings representing complaints of tinnitus, which were compared patients and significant others. Results: From the 86 studies analyzed using data collected from 16,381 patients, 42 discrete complaints were identified spanning physical and psychological health, quality of life and negative attributes of the tinnitus sound. This diversity was not captured by any individual study alone. There was good convergence between complaints collected using open- and closed-format questions, with the exception of general moods and perceptual attributes of tinnitus (location, loudness, pitch and unpleasantness); reported only using closed questions. Just two studies addressed data from the perspective of significant others (n=79), but there was substantial correspondence with the patient framework, especially regarding relationships and social life. Conclusions: Our findings contribute fundamental new knowledge and a unique resource that enables investigators to appreciate the broad impacts of tinnitus on an individual. Our findings can also be used to guide questions during diagnostic assessment, to evaluate existing tinnitus-specific HR-QoL questionnaires and develop new ones, where necessary

    Cognitive networks detect structural patterns and emotional complexity in suicide notes

    Get PDF
    Communicating one's mindset means transmitting complex relationships between concepts and emotions. Using network science and word co-occurrences, we reconstruct conceptual associations as communicated in 139 genuine suicide notes, i.e., notes left by individuals who took their lives. We find that, despite their negative context, suicide notes are surprisingly positively valenced. Through emotional profiling, their ending statements are found to be markedly more emotional than their main body: The ending sentences in suicide notes elicit deeper fear/sadness but also stronger joy/trust and anticipation than the main body. Furthermore, by using data from the Emotional Recall Task, we model emotional transitions within these notes as co-occurrence networks and compare their structure against emotional recalls from mentally healthy individuals. Supported by psychological literature, we introduce emotional complexity as an affective analog of structural balance theory, measuring how elementary cycles (closed triads) of emotion co-occurrences mix positive, negative and neutral states in narratives and recollections. At the group level, authors of suicide narratives display a higher complexity than healthy individuals, i.e., lower levels of coherently valenced emotional states in triads. An entropy measure identified a similar tendency for suicide notes to shift more frequently between contrasting emotional states. Both the groups of authors of suicide notes and healthy individuals exhibit less complexity than random expectation. Our results demonstrate that suicide notes possess highly structured and contrastive narratives of emotions, more complex than expected by null models and healthy populations

    Towards objective and reproducible study of patient-doctor interaction : automatic text analysis based VR-CoDES annotation of consultation transcripts

    Get PDF
    While increasingly appreciated for its importance,the interaction between health care professionals (HCP) and patients is notoriously difficult to study, with both methodological and practical challenges. The former has been addressed by the so-called Verona coding definitions of emotional sequences (VRCoDES)– a system for identifying and coding patient emotions and the corresponding HCP responses – shown to be reliable and informative in a number of independent studies in different health care delivery contexts. In the present work we focus on the practical challenge of the scalability of this coding system,namely on making it easily usable more widely and on applying it on larger patient cohorts. In particular, VR-CoDES is inherently complex and training is required to ensure consistent annotation of audio recordings or textual transcripts of consultations.Following up on our previous pilot investigation, in the present paper we describe the first automatic, computer based algorithm capable of providing coarse level coding of textual transcripts. We investigate different representations of patient utterances and classification methodologies, and label each utterance as either containing an explicit expression of emotional distress (a ‘concern’), an implicit one (a ‘cue’),or neither. Using a data corpus comprising 200 consultations between radiotherapists and adult female breast cancer patients we demonstrate excellent labelling performance.Postprin

    Articulating the new normal(s) : mental disability, medical discourse, and rhetorical action.

    Get PDF
    “Articulating the New Normal(s): Mental Disability, Medical Discourse, and Rhetorical Action” studies the writing of people diagnosed with autism and post- traumatic stress disorder within online discussion boards related to mental health and outlines their unique rhetorical strategies for interacting with biomedical ideologies of psychiatry and activist discourses. The opening chapter situates this dissertation in relation to previous scholarship in Rhetoric, Disability Studies, and other fields. I also provide a summary of the set of mixed methods I use to gather and analyze my data, including rhetorical analysis, corpus analysis, and qualitative interviews. In Chapter 2, “Medical Terminology and Discourse Features of Online Discussions of Mental Health,” I explore the ways in which medical discourse appears in discussions of mental disability through medical terms that writers and speakers use when discussing a diagnosis. Using methods borrowed from linguistics, I demonstrate that the writers in my study make different linguistic choices than the general public, and that the most prominent differences are related to the social construction of mental health and medicine. In Chapter 3, “Inhabiting Biological Primacy with Chiasmic Rhetoric in Mental Health Forums,” I describe and analyze a variety of common topics in online conversations that connect mental health and expert knowledge of the brain. I argue that this connection of mental experience and brain science constitutes a chiasmic rhetoric. The writers foregrounded in this chapter acknowledge and accept much of the claims of medicine and neuroscience regarding the brain but, uniquely, work to divide that knowledge from the path of normativity and optimization. Chapter 4, “Classified Conversations: Psychiatry and Technical Communication in Online Spaces,” examines the practices of participants in online mental health discussion forums conversations as they interpret technical documents. I detail four salient forms of the manipulation of medical discourse in online communities. At the close of this chapter, I explain how these insights can inform academic study of writing in mental health contexts and transform the content and application of medical and technical texts. In Chapter 5, “Re-Forming Mental Health: Rhetorical Innovation and the Language of Advocacy,” I summarize and synthesize the core arguments of earlier chapters, with an extended caveat regarding the ethical dilemmas of this study. Finally, I offer a set of practical recommendations for different communities with which my research has been conversant, the fields of Rhetoric and Rhetoric of Health and Medicine, Disability Studies, and activism related to mental disabilities

    Neurocognitive Informatics Manifesto.

    Get PDF
    Informatics studies all aspects of the structure of natural and artificial information systems. Theoretical and abstract approaches to information have made great advances, but human information processing is still unmatched in many areas, including information management, representation and understanding. Neurocognitive informatics is a new, emerging field that should help to improve the matching of artificial and natural systems, and inspire better computational algorithms to solve problems that are still beyond the reach of machines. In this position paper examples of neurocognitive inspirations and promising directions in this area are given
    • 

    corecore