Dificuldades e estratégias na integração ao cuidado da pessoa em situação crítica: uma scoping review

Introduction: The nurses’ integration in specialized care provision to critically ill patients is an increasing concern in the context of hiring and mobilizing nursing professionals. An adequate integration is crucial for the nurses’ success and adaptation to the new service, as well as to ensure the quality and safety of the provided care. Objective: To map the existing knowledge on the difficulties experienced by nurses, as well as on the strategies that facilitate their integration in specialized care provision to the critically ill. Method: A scoping review was conducted, following the method proposed in the Joanna Briggs Institute Reviewers’ Manual 2015. The following were used as inclusion criteria: Population - nurses; Concept - the experienced difficulties and the strategies employed to facilitate the nurses’ integration; Context - the provision of care to the critically ill. A total of 13 articles, published until May 2020, were included. Results: The following difficulties were reported: communication issues with the team, as well as with the patients and/or their relatives; overall stress; dealing with complex health conditions, as well as with intricate procedures and/or techniques; work overload; high staff turnover rate between services; dealing with a patient’s death and/or with organ donation planning. The following were pointed out as facilitating strategies: simulated practice; performing teamwork; assignment of a nursing supervisor/tutor; receiving feedback; developing resilience mechanisms. Conclusion: As regards care provision, the nurses’ integration process requires planning and the inclusion of facilitating strategies is crucial. Simulated practice leads to the acquisition of fundamental skills, as does the assignment of a nursing supervisor/tutor and receiving feedback on the conducted tasks. In addition to overcoming the difficulties experienced, these strategies also allow developing resilience and coping mechanisms, which help prevent burnout and the adverse effects caused by the high staff turnover rate between services.Introdução: A integração do enfermeiro no cuidado à pessoa em situação crítica constitui uma preocupação cada vez maior devido à mobilização e contratação de profissionais de enfermagem. Uma integração adequada é crucial para o sucesso e adaptação do enfermeiro ao novo serviço, garantindo a qualidade e segurança do cuidado. Objetivo: Mapear o conhecimento relativamente às dificuldades sentidas pelo enfermeiro e estratégias que podem facilitar a sua integração no cuidado à pessoa em situação crítica. Método: Foi realizada uma Scoping Review, com base no Joanna Briggs Institute. Critérios de inclusão: População - enfermeiro; Conceito - dificuldades sentidas e as estratégias facilitadoras na integração; Contexto - cuidado à pessoa em situação crítica. Foram incluídos 13 artigos, publicados até maio de 2020. Resultados: Dificuldades sentidas pelos enfermeiros: comunicação com a equipa, pessoa em situação crítica e/ou familiares; stress; complexidade da situação de saúde, técnicas e/ou procedimentos realizados; sobrecarga de trabalho; rotatividade de enfermeiros entre serviços; lidar com a morte e/ou a doação de órgãos. Estratégias facilitadoras: simulação de situações reais; trabalho em equipa; enfermeiro de referência/tutor; transmissão de feedback; estratégias de resiliência. Conclusão: O processo de integração requer planeamento, sendo crucial o desenvolvimento de estratégias que o facilitem. O treino através da simulação de práticas leva à aquisição de competências fundamentais para o cuidado, tal como a atribuição de um enfermeiro tutor e feedback sobre o trabalho desenvolvido. Isto permite colmatar as dificuldades sentidas através da construção da resiliência e estratégias de coping, prevenindo o burnout e a rotatividade dos profissionais entre serviços.info:eu-repo/semantics/publishedVersio

Reconhecimento do outro para o trabalho efetivo do enfermeiro de reabilitação: referencial de Axel Honneth

Objective: to reflect on the potential of the Theory of Recognition for the professional practice of rehabilitation nurses. Method: reflective theoretical study based on the framework of Axel Honneth and the specific skills of rehabilitation nurses. Results: two analysis topics emerged - the theoretical framework of Axel Hornet; and the contribution of Axel Honneth's theoretical framework to the professional practice of rehabilitation nurses. Discussion: the support of professional practice in theoretical frameworks has been deeply defended in the last decade, and in this context, Axel Honneth makes a significant contribution to the intentional and systematic performance of the rehabilitation nurse. Conclusion: during the rehabilitation process, in addition to the importance of recognizing the person, it was clear that in the context of the therapeutic relationship, the rehabilitation nurse must attend to the three pillars presented by Honneth, love, right and solidarity, so that the person be completely respected.Objetivo: reflexionar sobre el potencial de la Teoría del reconocimiento para la práctica profesional de las enfermeras de rehabilitación. Método: estudio teórico reflexivo basado en el marco de Axel Honneth y las habilidades específicas de las enfermeras de rehabilitación. Resultados: surgieron dos temas de análisis: el marco teórico de Axel Honneth; y la contribución del marco teórico de Axel Honneth a la práctica profesional de las enfermeras de rehabilitación. Discusión: el apoyo de la práctica profesional en los marcos teóricos se ha defendido profundamente en la última década, y en este contexto, Axel Honneth hace una contribución significativa al desempeño intencional y sistemático de la enfermera de rehabilitación. Conclusión: durante el proceso de rehabilitación, además de la importancia de reconocer a la persona, estaba claro que en el contexto de la relación terapéutica, la enfermera de rehabilitación debe atender los tres pilares presentados por Honneth, el amor, el derecho y la solidaridad, para que la persona sea respetada en su totalidad.Objetivo: refletir sobre as potencialidades da Teoria do Reconhecimento para a prática profissional dos enfermeiros de reabilitação. Método: estudo teórico reflexivo fundamentado no referencial de Axel Honneth e nas competências específicas dos enfermeiros de reabilitação. Resultados: emergiram dois tópicos de análise – o referencial teórico de Axel Honneth; e o contributo do referencial teórico de Axel Honneth para o exercício profissional dos enfermeiros de reabilitação. Discussão: a sustentação da prática profissional em referenciais teóricos tem vindo a ser profundamente defendida na última década, sendo que neste contexto, Axel Honneth traz um contributo significativo para uma atuação intencional e sistematizada do enfermeiro de reabilitação. Conclusão: aquando do processo de reabilitação, além da importância do reconhecimento da pessoa, ficou claro que no âmbito da relação terapêutica, o enfermeiro de reabilitação deve atender aos três pilares apresentados por Honneth, amor, direito e solidariedade, de modo a que a pessoa seja respeitada na sua globalidade

Patient-physician discordance in assessment of adherence to inhaled controller medication: a cross-sectional analysis of two cohorts

We aimed to compare patient's and physician's ratings of inhaled medication adherence and to identify predictors of patient-physician discordance.(SFRH/BPD/115169/2016) funded by Fundação para a Ciência e Tecnologia (FCT); ERDF (European Regional Development Fund) through the operations: POCI-01-0145-FEDER-029130 ('mINSPIRERS—mHealth to measure and improve adherence to medication in chronic obstructive respiratory diseases—generalisation and evaluation of gamification, peer support and advanced image processing technologies') cofunded by the COMPETE2020 (Programa Operacional Competitividade e Internacionalização), Portugal 2020 and by Portuguese Funds through FCT (Fundação para a Ciência e a Tecnologia).info:eu-repo/semantics/publishedVersio

Mucopolysaccharidosis in the pediatric population: results of an early diagnosis approach in the scope of the FIND project

As Mucopolissacaridoses (MPSs), constituem um subgrupo das Doenças Lisossomais de Sobrecarga, causadas por deficiências em enzimas lisos somais, que catalisam a degradação dos glicosaminoglicanos. As MPSs têm apresentação multissistémica, heterogénea e consequentemente de diagnóstico difícil. O projeto FIND tem como objetivo alertar os clínicos para sinais e sintomas de risco ao mesmo tempo que disponibiliza uma ferramenta de diagnóstico. Este estudo pretende descrever uma abordagem desenvolvida no âmbito do projeto FIND para identificar doentes com mucopolissacaridoses (MPSs) em idade pediátrica, antes do aparecimento dos sintomas mais graves. A identificação atempada permitirá uma intervenção terapêutica precoce, assim como oferecer aconselhamento genético às famílias afetadas. O projeto FIND permitiu a identificação de 12 doentes de MPSs e a sua refe renciação para os respetivos centros de tratamento. Este estudo, para além da sua vertente educativa, coloca à disposição dos clínicos um ótimo meio para a identificação e caraterização de casos sinto máticos de MPS em idade pediátrica.Mucopolysaccharidoses are a subgroup of Lysosomal Storage Disorders characterized by the accumulation of glycosaminoglycans in cells, tissues, and organs due to specific enzyme deficiencies. In early disease stages, diagnosis can be postponed for years or even missed in late onset forms. This study aims to describe an approach developed within the scope of the FIND project to identify patients with mucopolysaccharidoses (MPSs) a in pediatric age, before the appearance of the most severe symptoms, allowing early therapeutic intervention, as well as offering genetic counseling to affected families. The FIND project was designed to claim awareness to the red flags of MPS at pediatric age and to provide a tool for physicians to diagnose these pathologies, since most of them are amenable to enzyme replacement therapy. The clinical suspicion was addressed by performing seven distinct enzymatic assays in dried blood spots. In the cases of a deficiency, the quantification and identification of the glycosaminoglycans were performed and the genetic study carried out. In the first eight years of the project, we have identified twelve patients among the 385 samples received. FIND project allows an early identifica tion and characterization of symptomatic MPSs patient, as well as other related pathologies at pediatric age.info:eu-repo/semantics/publishedVersio

Identification of clusters of asthma control: A preliminary analysis of the inspirers studies

This work was funded by ERDF (European Regional Development Fund) through the operations: POCI- -01-0145-FEDER-029130 (“mINSPIRERS—mHealth to measure and improve adherence to medication in chronic obstructive respiratory diseases - generalisation and evaluation of gamification, peer support and advanced image processing technologies”) co-funded by the COMPETE2020 (Programa Operacional Competitividade e Internacionalização), Portugal 2020 and by Portuguese Funds through FCT (Fundação para a Ciência e a Tecnologia).© 2020, Sociedade Portuguesa de Alergologia e Imunologia Clinica. All rights reserved. Aims: To identify distinct asthma control clusters based on Control of Allergic Rhinitis and Asthma Test (CARAT) and to compare patients’ characteristics among these clusters. Methods: Adults and adolescents (≥13 years) with persistent asthma were recruited at 29 Portuguese hospital outpatient clinics, in the context of two observational studies of the INSPIRERS project. Demographic and clinical characteristics, adherence to inhaled medication, beliefs about inhaled medication, anxiety and depression, quality of life, and asthma control (CARAT, >24 good control) were collected. Hierarchical cluster analysis was performed using CARAT total score (CARAT-T). Results: 410 patients (68% adults), with a median (percentile 25–percentile 75) age of 28 (16-46) years, were analysed. Three clusters were identified [mean CARAT-T (min-max)]: cluster 1 [27(24-30)], cluster 2 [19(14-23)] and cluster 3 [10(2-13)]. Patients in cluster 1 (34%) were characterised by better asthma control, better quality of life, higher inhaler adherence and use of a single inhaler. Patients in clusters 2 (50%) and 3 (16%) had uncontrolled asthma, lower inhaler adherence, more symptoms of anxiety and depression and more than half had at least one exacerbation in the previous year. Further-more, patients in cluster 3 were predominantly female, had more unscheduled medical visits and more anxiety symp-toms, perceived a higher necessity of their prescribed inhalers but also higher levels of concern about taking these inhalers. There were no differences in age, body mass index, lung function, smoking status, hospital admissions or specialist physician follow-up time among the three clusters. Conclusion: An unsupervised method based on CARAT--T, identified 3 clusters of patients with distinct, clinically meaningful characteristics. The cluster with better asthma control had a cut-off similar to the established in the validation study of CARAT and an additional cut-off seems to distinguish more severe disease. Further research is necessary to validate the asthma control clusters identified.publishersversionpublishe

SARS-CoV-2 introductions and early dynamics of the epidemic in Portugal

Genomic surveillance of SARS-CoV-2 in Portugal was rapidly implemented by the National Institute of Health in the early stages of the COVID-19 epidemic, in collaboration with more than 50 laboratories distributed nationwide. Methods By applying recent phylodynamic models that allow integration of individual-based travel history, we reconstructed and characterized the spatio-temporal dynamics of SARSCoV-2 introductions and early dissemination in Portugal. Results We detected at least 277 independent SARS-CoV-2 introductions, mostly from European countries (namely the United Kingdom, Spain, France, Italy, and Switzerland), which were consistent with the countries with the highest connectivity with Portugal. Although most introductions were estimated to have occurred during early March 2020, it is likely that SARS-CoV-2 was silently circulating in Portugal throughout February, before the first cases were confirmed. Conclusions Here we conclude that the earlier implementation of measures could have minimized the number of introductions and subsequent virus expansion in Portugal. This study lays the foundation for genomic epidemiology of SARS-CoV-2 in Portugal, and highlights the need for systematic and geographically-representative genomic surveillance.We gratefully acknowledge to Sara Hill and Nuno Faria (University of Oxford) and Joshua Quick and Nick Loman (University of Birmingham) for kindly providing us with the initial sets of Artic Network primers for NGS; Rafael Mamede (MRamirez team, IMM, Lisbon) for developing and sharing a bioinformatics script for sequence curation (https://github.com/rfm-targa/BioinfUtils); Philippe Lemey (KU Leuven) for providing guidance on the implementation of the phylodynamic models; Joshua L. Cherry (National Center for Biotechnology Information, National Library of Medicine, National Institutes of Health) for providing guidance with the subsampling strategies; and all authors, originating and submitting laboratories who have contributed genome data on GISAID (https://www.gisaid.org/) on which part of this research is based. The opinions expressed in this article are those of the authors and do not reflect the view of the National Institutes of Health, the Department of Health and Human Services, or the United States government. This study is co-funded by Fundação para a Ciência e Tecnologia and Agência de Investigação Clínica e Inovação Biomédica (234_596874175) on behalf of the Research 4 COVID-19 call. Some infrastructural resources used in this study come from the GenomePT project (POCI-01-0145-FEDER-022184), supported by COMPETE 2020 - Operational Programme for Competitiveness and Internationalisation (POCI), Lisboa Portugal Regional Operational Programme (Lisboa2020), Algarve Portugal Regional Operational Programme (CRESC Algarve2020), under the PORTUGAL 2020 Partnership Agreement, through the European Regional Development Fund (ERDF), and by Fundação para a Ciência e a Tecnologia (FCT).info:eu-repo/semantics/publishedVersio

práticas artísticas no ensino básico e secundário

Educação Artística: integrar a inovação. A educação artística apresenta-se como um território a re-cartografar, numa atualização tão rápida quanto aquela que ocorre no campo artístico. As propostas publicadas neste número 11 da Revista Matéria-Prima trazem essa diversidade de abordagens, com novidades conceptuais que estabelecem as devidas relações entre educação e cidadania, participação, sustentabilidade, cultura visual, e também com alguma atenção sobre os debates pós-coloniais e as questões de género. Os 16 artigos reunidos neste 11º número da Revista Matéria-Prima trazem a realidade operativa quer na formação de professores e quer na formulação dos discursos pedagógicos, suas justificações e suas propostas alternativas.As propostas apresentadas devolvem o debate ao terreno, e alargam-no. Provocam as periferias, convocam abordagens diferenciadas sobre o tema da arte e da educação. Em todas elas a proposta de crescimento através da arte, que hoje implica cada vez mais cidadania, crítica, criatividade, interligação, comprometimento, participação.info:eu-repo/semantics/publishedVersio