3,669 research outputs found

    Advances in Teaching & Learning Day Abstracts 2004

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    Proceedings of the Advances in Teaching & Learning Day Regional Conference held at The University of Texas Health Science Center at Houston in 2004

    An Examination of Concussion Understanding Among Parents of High School Female Student Athletes

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    Few online concussion education programs have been developed specifically for parents, and those that have been tend to neglect the fact that concussion rates are higher in female rather than male student athletes (Donaldson et al., 2016; Macdonald & Hauber, 2016; Williamson et al., 2014). This quantitative study is important because it addressed gaps in the concussion education literature. The purpose of this study was to examine whether concussion symptoms knowledge and general youth sports-related concussion knowledge was significantly higher among parents of female student athletes who watched the Center for Disease Control and Prevention’s Heads Up concussion videos (intervention group) than among parents of female student athletes who read an online concussion awareness fact sheet (control group). A quasi-experimental, posttest-only control-group design was used to compare concussion knowledge differences between parents who watched the videos and those who read the standard concussion awareness fact sheet. The experiment was conducted using the online survey platform Qualtrics®. The required sample size was 128 participants, with 64 in the intervention group and 64 in the control group. The participants came from the Qualtrics® study pool of participants who met study criteria and were randomly assigned to the intervention or control group. After random assignment and informed consent, parents clicked the screen link that took them to either the videos or the fact sheet. After completing the awareness fact sheet or watching the videos, parents answered an information survey and two questionnaires measuring parental knowledge of concussion symptoms and youth sports-related concussions, respectively. Descriptive statistics were run on participant data and the study dependent variables. Independent samples t-tests were conducted for hypothesis testing. The researcher found no significant difference in the understanding of concussion symptoms, as measured by the CSRS (McLeod et al., 2007), between parents of girls who play organized sports at the high school level who read an online concussion awareness fact sheet (control group) versus those who viewed the CDC’s Heads Up concussion training videos (intervention group). Additionally, there was no significant difference in the understanding of youth sports-related concussion knowledge, as measured by the CDC’s (2004) Heads Up CYSS, between parents of girls who play organized sports at the high school level who read an online concussion awareness fact sheet (control group) versus those who viewed the CDC’s Heads Up concussion training videos (intervention group)

    Supporting the transition of children and young people with a spinal cord injury from paediatric to adult healthcare services

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    The seamless transition from the paediatric to the adult healthcare system, termed healthcare transition, is a significant and critical factor in fostering independence and improved health outcomes. Empirical evidence confirms that a structured healthcare transition process can improve outcomes for young people with chronic conditions. However, to date, healthcare transition research has not explored the impact of healthcare transition interventions for young people with paediatric onset spinal cord injuries. Based on lived experience, people with disabilities have knowledge and expertise to share with researchers. In healthcare research and intervention design, end-user involvement is paramount, as interventions designed in this way are better adapted to the specific needs of users and are often more innovative. Although studies report involving young people with chronic conditions in the development of healthcare transition interventions, few details have been provided as to how this was achieved. This study fills an important gap, as it details how a healthcare transition intervention was co-designed and developed with young people with paediatric onset spinal cord injuries and parents/caregivers. The aim of this study was to co-design, develop, implement, and evaluate a healthcare transition intervention to support young people with spinal cord injuries. This study has provided new insight into the healthcare transition needs of young people with spinal cord injuries. It is also the first study to co-design and develop a healthcare transition intervention in partnership with young people with spinal cord injuries and parents/caregivers. Although the sample was small, it has shown that it is possible to meaningfully engage and empower young people with spinal cord injuries and parents/caregivers in the co-design of a healthcare transition intervention. Using a participatory action research approach and co-design activities resulted in enhanced end-user acceptability of the developed healthcare transition intervention. The initial findings from this research also highlight that the ‘SCI Healthcare Transition’ website is a novel, innovative intervention that is feasible and acceptable. However, further evaluation of the website is needed to determine the impact on healthcare transition experiences and success

    A multimedia mobile phone-based youth smoking cessation intervention: findings from content development and piloting studies

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    BACKGROUND: While most young people who smoke want to quit, few access cessation support services. Mobile phone-based cessation programs are ideal for young people: mobile phones are the most common means of peer communication, and messages can be delivered in an anonymous manner, anywhere, anytime. Following the success of our text messaging smoking cessation program, we developed an innovative multimedia mobile phone smoking cessation intervention. OBJECTIVE: The aim of the study was to develop and pilot test a youth-oriented multimedia smoking cessation intervention delivered solely by mobile phone. METHODS: Development included creating content and building the technology platform. Content development was overseen by an expert group who advised on youth development principles, observational learning (from social cognitive theory), effective smoking cessation interventions, and social marketing. Young people participated in three content development phases (consultation via focus groups and an online survey, content pre-testing, and selection of role models). Video and text messages were then developed, incorporating the findings from this research. Information technology systems were established to support the delivery of the multimedia messages by mobile phone. A pilot study using an abbreviated 4-week program of video and text content tested the reliability of the systems and the acceptability of the intervention. RESULTS: Approximately 180 young people participated in the consultation phase. There was a high priority placed on music for relaxation (75%) and an interest in interacting with others in the program (40% would read messages, 36% would read a blog). Findings from the pre-testing phase (n = 41) included the importance of selecting "real" and "honest" role models with believable stories, and an interest in animations (37%). Of the 15 participants who took part in the pilot study, 13 (87%) were available for follow-up interviews at 4 weeks: 12 participants liked the program or liked it most of the time and found the role model to be believable; 7 liked the role model video messages (5 were unsure); 8 used the extra assistance for cravings; and 9 were happy with two messages per day. Nine participants (60%) stopped smoking during the program. Some technical challenges were encountered during the pilot study. CONCLUSIONS: A multimedia mobile phone smoking cessation program is technically feasible, and the content developed is appropriate for this medium and is acceptable to our target population. These results have informed the design of a 6-month intervention currently being evaluated for its effectiveness in increasing smoking cessation rates in young people

    A Comparison of Two Teaching Methods for Pediatric Medication Administration: Multimedia and Text-Based Modules

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    A Comparison of Two Teaching Methods for Pediatrics: Multimedia and Text-based Modules to Teach Pediatric Medication Administration Nurse educators are in a position to design and develop effective methods that consider the cognitive structures and how the mind processes information to teach pediatric medication content to nursing students. The majority of methods teaching medication administration use only one mode: the visual mode. One mode to present leaning material does not take advantage of the additive effects of using two modes to present learning material. The purpose of the study was to compare the effectiveness of two teaching methods to present learning material for teaching pediatric medication administration content: multimedia and text-based modules. The multimedia and text-based modules included worked examples with a step-by-step explanation and solution on how to calculate pound to kilogram, safe-dose ranges, intravenous flow rates, and fluid maintenance. The dependent variable was knowledge acquisition of mathematical calculation skills for medication administration. Calculation skills were defined operationally as a student\u27s ability to calculate (a) weight-based safe-dose ranges, (b) intravenous flow rates for primary and secondary (intravenous piggy-back) medication infusion, (c) conversions from pounds to kilograms, and (d) fluid maintenance. The results indicated that there were no statistically significant differences between the multimedia and the text-based module with regard to the pass rates and the four subtest items, pound-to-kilogram conversions, safe- dose calculations, intravenous flow rates, and fluid-maintenance calculations. The results also suggest that both modules were not as effective for teaching pediatric medication administration content for the participants in the study, as one would expect. As for additional findings, the majority of errors made by both groups were similar with the exception of three types of errors. The differences between the two groups were related to correctly setting-up the problem, mathematical functions, and calculation errors. The majority of the questions that were answered incorrectly were related to mathematical functions, for example, dividing, adding, or multiplying when not necessary. The text-based group made more mathematical functions errors and calculation errors compared with the multimedia group. All of other types of errors that were made between the two groups were similar

    Recruiting adolescents with CFS/ME to Internet-delivered therapy:Internal pilot within a randomised controlled trial

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    Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adolescents is common and disabling. Teenagers in the United Kingdom are more likely to recover if they access specialist care, but most do not have access to a local specialist CFS/ME service. Delivering treatment remotely via the internet could improve access to treatment. Objective: This study aims to assess (1) the feasibility of recruitment and retention into a trial of internet-delivered specialist treatment for adolescents with CFS/ME and (2) the acceptability of trial processes and 2 web-based treatments (to inform continuation to full trial). Methods: This study is an internal pilot for the initial 12 months of a full randomized controlled trial (RCT), with integrated qualitative methods (analysis of recruitment consultations and participant and clinician interviews). Recruitment and treatment were delivered remotely from a specialist pediatric CFS/ME treatment service within a hospital in South West United Kingdom. Adolescents (aged 11-17 years) from across the United Kingdom with a diagnosis of CFS/ME and no access to local specialist treatment were referred by their general practitioner to the treatment center. Eligibility assessment and recruitment were conducted via remote methods (telephone and on the web), and participants were randomized (via a computer-automated system) to 1 of 2 web-based treatments. The trial intervention was Fatigue in Teenagers on the InterNET in the National Health Service, a web-based modular CFS/ME-specific cognitive behavioral therapy program (designed to be used by young people and their parents or caregivers) supported by individualized clinical psychologist electronic consultations (regular, scheduled therapeutic message exchanges between participants and therapist within the platform). The comparator was Skype-delivered activity management with a CFS/ME clinician (mainly a physiotherapist or occupational therapist). Both treatments were intended to last for up to 6 months. The primary outcomes were (1) the number of participants recruited (per out-of-area referrals received between November 1, 2016, to October 31, 2017) and the proportion providing 6-month outcome data (web-based self-report questionnaire assessing functioning) and (2) the qualitative outcomes indicating the acceptability of trial processes and treatments. Results: A total of 89 out of 150 (59.3% of potentially eligible referrals) young people and their parents or caregivers were recruited, with 75 out of 89 (84.2%) providing 6-month outcome data. Overall, web-based treatment was acceptable; however, participants and clinicians described both the advantages and disadvantages of remote methods. No serious adverse events were reported. Conclusions: Recruiting young people (and their parents or caregivers) into an RCT of web-based treatment via remote methods is feasible and acceptable. Delivering specialist treatment at home via the internet is feasible and acceptable, although some families prefer to travel across the United Kingdom for face-to-face treatment

    Utilização de recursos multimídia para crianças em contexto hospitalar: uma revisão integrativa

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    Hospitalization in children suppresses social interaction and produces isolation. This situation requires the recognition of strategies aimed at overcoming this condition and favoring inclusion. In this sense, the use of multimedia resources can be presented as a facilitating strategy, contributing to the interaction of children in their social environment. The objective of this work is to delineate the research related to the use of multimedia resources for children, adolescents, parents, and caregivers in a hospital context. This is an integrative review structured in the following stages: definition of the research question, establishment of inclusion and exclusion criteria in the literature search, definition of the information to be extracted from the studies, evaluation of included studies, interpretation of the results and synthesis of the data. The articles were surveyed in the databases PUBMED, B-ON, SCOPUS e Web of Science, adopting the descriptors multimedia, children and hospital in the period between 2013 and 2019. From the exclusion criteria and based on the analysis of the title and abstract, 19 articles were assigned to compose the final corpus of analysis. The results highlighted the potential of using multimedia resources for children in the hospital context. It was observed that the use of such resources favored the integration of children in medical procedures in a mild way, minimizing the state of stress and anxiety produced by the hospital environment, and clarifying and guiding parents and patients about such procedures in order to favor their involvement.La hospitalización en niños suprime la interacción social y produce aislamiento. Esta situación requiere el reconocimiento de estrategias dirigidas a superar esta conditión y favorecer la inclusión. En este sentido, el uso de recursos multimedia se puede presentar como una estrategia facilitadora, que contribuye a la interacción de los niños en su entorno social. El objetivo de este trabajo es caracterizar la investigación relacionada con el uso de recursos multimedia para niños, adolescentes, padres y cuidadores en un contexto hospitalario. Es una revisión integradora estructurada en las siguientes etapas: definición de la pregunta de investigación, establecimiento de criterios de inclusión y exclusión en la búsqueda bibliográfica, definición de la información que se extraerá de los estudios, evaluación de los estudios incluidos, interpretación de los resultados y síntesis de los datos. Los artículos fueron encuestados en las bases de datos PUBMED, B-ON, SCOPUS y Web of Science, adoptando los descriptores multimedia, niños y hospitales en el período comprendido entre 2013 y 2019. A partir de los criterios de exclusión y con base en el análisis del título y el resumen, se asignaron 19 artículos para componer el corpus final de análisis. Los resultados presentados resaltan el potencial del uso de recursos multimedia para niños en un contexto hospitalario. Se observó que el uso de tales recursos favoreció la integración de los niños en los procedimientos médicos de una manera moderada, minimizando el estado de estrés y ansiedad producido por el entorno hospitalario, y aclarando y guiando a los padres y pacientes sobre tales procedimientos para favorecerlos la participación.O internamento hospitalar em crianças suprime o convívio social e produz isolamento. Tal situação requer o reconhecimento de estratégias que visem superar esta situação e que favoreçam a inclusão. Neste sentindo, a utilização de recursos multimídia pode apresentar-se como estratégia facilitadora, contribuindo para a interação das crianças em seu meio social. O objetivo deste trabalho é caracterizar pesquisas relacionadas com a utilização de recursos multimídia para crianças, adolescentes, pais e cuidadores em contexto hospitalar. Trata-se de uma revisão integrativa estruturada nas seguintes etapas: definição da questão de pesquisa, estabelecimento de critérios de inclusão e exclusão na busca na literatura, definição das informações a serem extraídas dos estudos, avaliação dos estudos incluídos, interpretação dos resultados e síntese dos dados. O levantamento dos artigos nas bases de dados delimitadas, adotando os descritores e período pré-definidos, resultou em um total de 302 artigos. A partir dos critérios de exclusão e com base na análise do título e resumo, foram designados, para compor o corpus final de análise, 19 artigos. Os resultados apresentados evidenciam o potencial de utilização de recursos multimídias para crianças em contexto hospitalar e podem contribuir para minimizar as consequências inconvenientes produzidas nas experiências vivenciadas pelas crianças

    Development of an Informed Consent Multimedia Tool for Research

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    Standard research practice has been to protect the rights of human subjects by providing an informed consent document that explains the study in clear and concise language. The problems inherent in writing this document are considerable and it is not known how effective these documents are in providing information and enhancing understanding about research participation. I have selected a clinical research trial involving older men to illustrate the challenge of providing sufficient information so that a person can make an informed choice. I describe the many human, educational and technological aspects that must be considered in developing an alternative method to the written informed consent process. I have developed a tutorial that can be tested within the clinical trial to compare the differences in informed consent methods. The research community is obligated to improve the informed consent process and these preliminary efforts are worthy of further development

    Redefiniendo el consentimiento informado en investigación biomédica

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    Esta tesis se enmarca en el proyecto europeo i-CONSENT (H2020, GA 741856) y se enfoca en el consentimiento informado (CI) en el contexto de la investigación biomédica. Su objetivo principal es analizar la problemática actual del CI y proponer recomendaciones que mejoren su comprensibilidad y adaptabilidad a las necesidades y preferencias de la población objetivo. La tesis consta de 6 artículos que abarcan diversas actividades llevadas a cabo durante los casi 4 años de duración del proyecto, brindándonos una visión integral de su evolución y proporcionando una idea de la experiencia de participar en él. Además, la tesis incluye una sección dedicada a las principales vivencias y aprendizajes como coordinador técnico del proyecto. Desde una perspectiva académica, los artículos abordan distintos aspectos relacionados con el CI en investigación, combinando metodologías teóricas, como la revisión sistemática de la literatura y los textos legales, con metodologías participativas que dan voz a las principales partes interesadas, como grupos nominales o design thinking. Esta combinación de enfoques permite recopilar información relevante que facilita una mejor comprensión de las complejidades y desafíos asociados con el CI. Dentro de la tesis, se examinan diversos aspectos, como la percepción de los potenciales participantes sobre la comprensión del CI, las expectativas de participación de los pacientes, el asentimiento en menores y las perspectivas de género. También se analiza el contenido del asentimiento informado desde diferentes perspectivas, incluyendo la legislación y la literatura científica, con el objetivo de comprender las diferencias en la percepción de legisladores, investigadores, padres y menores. Otro tema abordado es el uso e impacto de las herramientas digitales en el CI. Además, se proporciona una visión general del proyecto y se presentan guías con recomendaciones para mejorar el CI, destacando los factores clave identificados durante la investigación. Se evalúa la idoneidad de las recomendaciones a través de la opinión de expertos representativos de las distintas partes interesadas, y se muestra la implementación práctica de las guías para la elaboración de materiales de asentimiento. En resumen, la tesis ofrece un análisis exhaustivo del CI en investigación, abordando aspectos específicos y enfatizando la importancia de la inclusión, al mismo tiempo que presenta recomendaciones para mejorar el proceso del CI.This PhD thesis is part of the European i-CONSENT project (H2020, GA 741856) and focuses on informed consent (IC) in the context of biomedical research. Its main objective is to analyse the current problems of IC and propose recommendations to improve its comprehensibility and adaptability to the needs and preferences of the target population. The thesis consists of 6 articles covering various activities carried out during the almost 4 years of the project, giving us a comprehensive view of its evolution and providing an insight into the experience of participating in it. In addition, the thesis includes a section dedicated to the main experiences and lessons learned as technical coordinator of the project. From an academic perspective, the articles address different aspects related to CI in research, combining theoretical methodologies, such as the systematic review of literature and legal texts, with participatory methodologies that give voice to the main stakeholders, such as focus groups or design thinking. This combination of approaches allows for the collection of relevant information that facilitates a better understanding of the complexities and challenges associated with IC. Within the thesis, various aspects are examined, such as potential participants' perceptions of understanding IC, patients' expectations of participation, assent in minors and gender perspectives. The content of informed consent is also analysed from different perspectives, including legislation and scientific literature, with the aim of understanding the differences in the perceptions of legislators, researchers, parents and minors. Another topic addressed is the use and impact of digital tools in IC. In addition, an overview of the project is provided and guidelines with recommendations for improving IC are presented, highlighting the key factors identified during the research. The appropriateness of the recommendations is assessed through the opinion of experts representing different stakeholders, and the practical implementation of the guidelines for the development of assent materials is shown. In summary, the research thesis provides a comprehensive analysis of IC in research, addressing specific aspects and emphasising the importance of inclusiveness, while presenting recommendations for improving the IC process
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