Copyright Education

This is a presentation of IFLA Copyright Literacy Education activities. It provides an update on a project to develop case studies of library associations with copyright literacy education programs which will feed into an upcoming global survey of library associations on their copyright literacy activities. Attendees will have the opportunity to discuss the case studies and how they illustrate a variety of approaches, successes, challenges, and lessons learned as well as advise on approaches for the global survey.Ope

Document Delivery and Resource Sharing: Global Perspectives

This publication is intended to provide librarians, library practitioners, as well as teachers, researchers, and students of universities and research organizations and other interested parties, a foundation in resource sharing principles, practices and management. This publication provides an overview of where things stand today with resource sharing, including key trends, challenges, opportunities, and priorities. The publication seeks to address international resource sharing, exploring the current state of European and international resource sharing systems and the governing laws and regulations and includes case studies and best practices from various countries

Ten-year mortality, disease progression, and treatment-related side effects in men with localised prostate cancer from the ProtecT randomised controlled trial according to treatment received

Background The ProtecT trial reported intention-to-treat analysis of men with localised prostate cancer randomly allocated to active monitoring (AM), radical prostatectomy, and external beam radiotherapy. Objective To report outcomes according to treatment received in men in randomised and treatment choice cohorts. Design, setting, and participants This study focuses on secondary care. Men with clinically localised prostate cancer at one of nine UK centres were invited to participate in the treatment trial comparing AM, radical prostatectomy, and radiotherapy. Intervention Two cohorts included 1643 men who agreed to be randomised and 997 who declined randomisation and chose treatment. Outcome measurements and statistical analysis Analysis was carried out to assess mortality, metastasis and progression and health-related quality of life impacts on urinary, bowel, and sexual function using patient-reported outcome measures. Analysis was based on comparisons between groups defined by treatment received for both randomised and treatment choice cohorts in turn, with pooled estimates of intervention effect obtained using meta-analysis. Differences were estimated with adjustment for known prognostic factors using propensity scores. Results and limitations According to treatment received, more men receiving AM died of PCa (AM 1.85%, surgery 0.67%, radiotherapy 0.73%), whilst this difference remained consistent with chance in the randomised cohort (p = 0.08); stronger evidence was found in the exploratory analyses (randomised plus choice cohort) when AM was compared with the combined radical treatment group (p = 0.003). There was also strong evidence that metastasis (AM 5.6%, surgery 2.4%, radiotherapy 2.7%) and disease progression (AM 20.35%, surgery 5.87%, radiotherapy 6.62%) were more common in the AM group. Compared with AM, there were higher risks of sexual dysfunction (95% at 6 mo) and urinary incontinence (55% at 6 mo) after surgery, and of sexual dysfunction (88% at 6 mo) and bowel dysfunction (5% at 6 mo) after radiotherapy. The key limitations are the potential for bias when comparing groups defined by treatment received and changes in the protocol for AM during the lengthy follow-up required in trials of screen-detected PCa. Conclusions Analyses according to treatment received showed increased rates of disease-related events and lower rates of patient-reported harms in men managed by AM compared with men managed by radical treatment, and stronger evidence of greater PCa mortality in the AM group. Patient summary More than 95 out of every 100 men with low or intermediate risk localised prostate cancer do not die of prostate cancer within 10 yr, irrespective of whether treatment is by means of monitoring, surgery, or radiotherapy. Side effects on sexual and bladder function are better after active monitoring, but the risks of spreading of prostate cancer are more common

Functional and quality of life outcomes of localised prostate cancer treatments (prostate testing for cancer and treatment [ProtecT] study)

Objective To investigate the functional and quality of life (QoL) outcomes of treatments for localised prostate cancer and inform treatment decision-making. Patients and Methods Men aged 50–69 years diagnosed with localised prostate cancer by prostate-specific antigen testing and biopsies at nine UK centres in the Prostate Testing for Cancer and Treatment (ProtecT) trial were randomised to, or chose one of, three treatments. Of 2565 participants, 1135 men received active monitoring (AM), 750 a radical prostatectomy (RP), 603 external-beam radiotherapy (EBRT) with concurrent androgen-deprivation therapy (ADT) and 77 low-dose-rate brachytherapy (BT, not a randomised treatment). Patient-reported outcome measures (PROMs) completed annually for 6 years were analysed by initial treatment and censored for subsequent treatments. Mixed effects models were adjusted for baseline characteristics using propensity scores. Results Treatment-received analyses revealed different impacts of treatments over 6 years. Men remaining on AM experienced gradual declines in sexual and urinary function with age (e.g., increases in erectile dysfunction from 35% of men at baseline to 53% at 6 years and nocturia similarly from 20% to 38%). Radical treatment impacts were immediate and continued over 6 years. After RP, 95% of men reported erectile dysfunction persisting for 85% at 6 years, and after EBRT this was reported by 69% and 74%, respectively (P < 0.001 compared with AM). After RP, 36% of men reported urinary leakage requiring at least 1 pad/day, persisting for 20% at 6 years, compared with no change in men receiving EBRT or AM (P < 0.001). Worse bowel function and bother (e.g., bloody stools 6% at 6 years and faecal incontinence 10%) was experienced by men after EBRT than after RP or AM (P < 0.001) with lesser effects after BT. No treatment affected mental or physical QoL. Conclusion Treatment decision-making for localised prostate cancer can be informed by these 6-year functional and QoL outcomes

Development and Access to Information 2019 Toolkit

Access to information is essential for the empowerment of individuals, the effectiveness of policies, and the accountability of governments. When everyone can enjoy it, it is a driver of sustainable development across all of its dimensions. When it is absent, insufficient or unequal, opportunities are missed, decisions are poorer, and progress is stifled. Libraries are vital in ensuring that everyone can benefit from access to information, making stronger, fairer societies a reality for all. This report – the second in the series following the first edition in 20171– provides further evidence, examples and analysis of this contribution, and of the role of libraries in achieving it. It is explicitly focused on the United Nations 2030 Agenda and its Sustainable Development Goals (SDG), which provide both an affirmation of the importance of access to information for development, and a framework for thinking about how to realize its potential

Development and Access to Information Fact Sheet

Can access to information create more socially and economically inclusive societies? Given the unprecedented ability we have today to gather, use, create, and exchange information, how can we capitalize on the strengths of the information society to help combat poverty and inequality, make governments more transparent and accountable, improve gender equity, increase youth’s social and economic participation, and promote civic life in our communities? Development and Access to Information (DA2I) is a joint project between the International Federation of Library Associations and Institutions (IFLA) and the Technology & Social Change Group (TASCHA) at the University of Washington Information School that aims to address these questions and demonstrate how access to information and libraries contribute to the achievement of the UN Sustainable Development Goals. This report is the first in a series of annual Development and Access to Information (DA2I) reports that will monitor the impact of access to information on a number of relevant SDGs and related targets. The overall objective of these annual reports is to bring together different voices to show the importance of access to information, in all its dimensions, in promoting more socially and economically inclusive societies. In order to accomplish this, this report establishes a baseline of access to information indicators to track progress over the lifespan of the SDGs Agenda (2015-2030) and examines the different ways in which access to information and libraries are contributing to advancing the SDGs, focusing specifically on the priority areas identified by the High Level Political Forum in 2017. This report demonstrates that meaningful access to information requires four key elements: (1) information and communications access infrastructure; (2) a positive social context for use; (3) sufficient capabilities in communities and their members; and (4) a favorable legal and policy landscape

A Toolkit for Copyright Advocacy - Knowledge Rights 21 Workshop

Knowledge Rights 21 held the workshop “A Toolkit for Knowledge Rights Advocacy”. Organisers Stephen Wyber (Director of Policy and Advocacy, IFLA) and Giannis Tsakonas (Director, Library & Information Center, University of Patras and LIBER Vice President) took an engaging and interactive approach to trigger participants’ reflections and motivate them to join the growing KR21 movement. KR21 is advocating for progressive and positive change in the way we provide access to knowledge - both on the ground and through legal reform