Children’s books in the institutional repository: A case study

This presentation will describe an ongoing collaboration with an undergraduate course “The Exceptional Child.” Students in the course create a children’s book for and about students with a range of abilities as their final project. In 2018, the liaison librarian for the Child Study and Human Development department connected the presenter with the course instructor, initially as part of a conversation about digitizing the children’s books to share via the institutional repository. A digitization project was completed and the library hosted an end-of-the-semester book launch party for the course. In 2019 we recognized the need to expand the collaboration to offer an in-course workshop led by the presenter. This would help students better understand the idea of contributing their work to the institutional repository, provide guidance on incorporating others’ work into their finished books, and provide a unique opportunity to talk to undergraduates about foundational skills in scholarly communication in the frame of a real-world project. The presentation will describe the collaboration, offering attendees an example of a multi-year partnership working with faculty & students to share and preserve unique undergraduate scholarship in an IR. It will offer a framework for working with students on sharing their work, including highlighting skills such as copyright & fair use; licensing of the students’ own work and using others’ licensed work; open access and the opportunity to improve the diversity and representation of children’s books; and the idea of students as creators, rather than consumers, of information. Finally, it will reflect on the students’ response to the optional opportunity to digitize and share their work and lessons learned (by the presenter) throughout the process

Collection & community building through web archiving: engaging with faculty and students in a collaborative web archiving project

Tisch Library at Tufts University has recently begun a pilot web archiving project, aiming to deepen Tufts’ collections in areas of strategic importance and support more “traditional” library collection development activities, while collecting material that is not known to be comprehensively collected by other institutions. Additionally, the project offers an opportunity for collaborative collection building with faculty and students that serves as a unique way to deepen our community‘s engagement with the library. The initial pilot collection focuses on environmental justice, selected due to its relevance to the Tufts community and curriculum and to build on existing Tisch Library collection strengths. Two undergraduate courses related to environmental justice were identified and invited to partner in the pilot project. This partnership would leverage student research to expand the initial collection while introducing students to concepts of web archiving and information literacy around websites and providing them with the opportunity to contribute to shaping the scholarly record. Both courses added a brief assignment to their syllabus: while doing research on their chosen topics, students would identify 3-7 web sites they felt would benefit from preservation and submit the sites to the library, to be evaluated and added to the web archive as appropriate. This presentation discusses the process of beginning a subject-based web archiving project, focusing on the collaborative project with two undergraduate classes. It addresses decisions made when starting and scoping the project; collection development issues; the logistics, benefits, and outcomes of the student and faculty collaboration; and future directions

Crashing the IR Party: Artists as Scholars in Institutional Repositories

Andrea Schuler, Digital Collections Librarian and Ashley Peterson, fine arts Research & Instruction Librarian began working together in July 2016 on an initiative to include visual art thesis projects in the Tufts University institutional repository. This project, now in its third year, has resulted in the addition of dozens of visual arts theses into the repository, where they are available alongside senior honors theses from across disciplines in the Schools of Arts, Sciences, and Engineering. In this presentation, Schuler & Peterson will outline their initial research into best practices and case studies regarding artwork-as-scholarship in IRs, describe their pilot project, and summarize subsequent improvements and future directions. They will focus on the affective labor of this initiative, describing how they attempt to foster student engagement, achieve faculty buy-in, and navigate a project with multiple, cross-departmental institutional stakeholders. They will also speak to the technical challenges of representing artwork in a platform designed for text files. More broadly, the presentation will highlight opportunities to engage undergraduate students in the larger scholarly conversation and to introduce concepts of open access, copyright, and licensing in a real-world situation. The project offers a low-resource model for creating access to new types of material and empowers student artists to contextualize their work within the larger body of an institution’s scholarly output, while working within the limits of a repository designed for more “traditional” scholarship. After the presentation, in addition to questions, audience members will be encouraged to share examples of related work or unmet needs at their own institutions in order to broaden the conversation

Improper Supplementation Habits of Folic Acid Intake by Hungarian Pregnant Women: Improper Recommendations

Background: Neural tube defects (NTDs) are some of the most common congenital anomalies. Proper folic acid supplementation is a dominant risk factor, which has been shown to decrease the incidence of NTDs. In Canada, the incidence of neuroblastoma has presented a considerable decrease of 60% as a result of enrichment cereal grain flours with synthetic folic acid. The aim of this study was to investigate the effect of folic acid intake by pregnant women on the incidence of NTDs and neuroblastoma. Methods: Regular folic acid intake has been recommended to pregnant women in Hungary since the eighties of the last century by health visitors eventually raking effect as an official protocol which had been released in 1997. During 2001, 2002 and 2003. folic acid intake habits of pregnant women were evaluated by health visitors, proving to be successful in collecting data front 95.06% of the pregnant women. The incidence of NTDs has been registered by the Hungarian National Centre of Epidemiology, Department of Human Genetics and Teratology. The Pediatric Cancer Registry provided the incidence of neuroblastoma in children. Results: Consistent findings revealed a regular intake of supplementary folic acid products by 68.71% of the pregnant women. Out of these. 93.13% of pregnant women who were taking folic acid, started the supplementation after their 7 weeks of pregnancies, a time designated as the completion period of the development of the neural tube. The dose of folic acid supplementation was evaluated as less than 5 mg/day in 84.75% of the pregnant women. In Hungary, the incidence of NTDs has remained constant, while the incidence of neuroblastoma has shown constant slight increase in spite of the introduction of folic acid supplementation in 1997. Conclusions: Based on our experience, folic acid supplementation was initiated after the recognition of pregnancy and its application in a dose of lower than 5 mg/day neither decreased the incidence of NTDs nor did it have an effect on the neuroblastoma incidence. It is implicated that proper folic acid supplementation, which is started front the conception. can be achieved only with the enrichment of cereal grain flours

A gyermekkori Ewing szarkómával szerzett magyarországi tapasztalataink

Magyarországon évente kb. 7-9 új Ewing szarkómás gyermeket diagnosztizálunk. Jelen munkánk célja az volt, hogy az Országos Gyermektumor Regiszter adatait felhasználva megvizsgáljuk a magyarországi Ewing szarkómás gyermekek prezentációs tüneteit, a klinikai paramétereket, a prognosztikai faktorokat, a terápiás és a túlélési eredményeket 1992 és 2002 közötti 11 éves periódusban. A fenti időszakban 88 új beteg került diagnosztizálásra, a fiú – leány arány 1,05 : 1 volt, az átlagéletkor 11 év 7 hónapnak bizonyult. A két leggyakoribb prezentációs tünet a lokális fájdalom és duzzanat voltak. 38 betegünkben hosszú csöves csontra lokalizálódott a megbetegedés, 29 gyermekben a Ewing szarkóma a csípő tájékról indult ki és 21 esetben valamely egyéb testtájékról. A betegeink közel egyharmadánál (29/88) már a diagnózis felállításakor áttétek voltak kimutathatóak. A fent nevezett időszakban három kemoterápiás protokollt alkalmaztunk Magyarországon: a CWS, az EICESS/CESS és 1999. decembere óta az Euro-EWING 99 protokollt. A 88 beteg 37,5%-nál (33/88) észleltünk recidívát átlagosan 22,4 hónappal a primer diagnózis felállítása után. A 88 betegből 45 jelenleg is él, az átlag követési idő 28,6 hónap. Az összes beteg 5-éves kumulatív túlélési valószínűsége 48,06±5,9%, a 10 éves 42,91±6,3%. A metasztázissal rendelkező betegek 5 és 8 éves túlélése 19,91±9,4%, a metasztázis nélküliek 5 éves túlélése 60,23±6,9%, míg a 10 éves 52,82±7,8%. A hazai eredmények megközelítik a nemzetközi adatokat, azonban törekednünk kell a diagnózis korai felállítására és ezáltal a kimondottan rossz prognózisú primer metasztatikus esetek számának csökkentésére. The number of newly diagnosed children in a year with Ewing’s sarcoma is 7-9 in Hungary. The aim of our study was to evaluate the presenting symptoms, clinical features, prognostic risk factors and treatment results of children’s Ewing’s sarcoma in Hungary using data from the National Childhood Cancer Registry in a 11 years-long period between 1992 and 2002. In this period, 88 new patients were diagnosed, the male-female ratio was 1,05:1 and the mean age was 11 years 7 months. The two most common presenting symptoms were local pain and swallowing. Tumor was located in the pelvis area in 29 patients, in the extremities in 38 and other sites in 21 cases. Almost one third of our patients (29/88) had metastasis at the time of the diagnosis. In this time period, three different protocols were used for treatment: CWS, EICESS/CESS and since December 1999 Euro-EWING 99. 37,5% of our patients (33/88) had relapse with a mean of 22,4 months after the diagnosis. 45 children are still alive, the median follow-up time is 28,6 months. The overall survival (OS) of all patients (n=88) was 48,06±5,9% at 5 years and 42,91±6,3% at 10 years. Patients with metastasis had OS 19,91±9,4% at 5 and at 8 years. The 5-year OS of children without metastasis was 60,23±6,9%, and 52,82±7,8% at 10 years. The Hungarian data are similar to international results, but we have to try to decrease the number of the primary metastatic cases with early diagnosis

Estudo sobre aderencia de argamassas com adicoes de microssilica

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