The Impact of Family Functioning and Treatment Burden on Health-Related Quality of Life in Children with Cystic Fibrosis

Health-Related Quality of Life (HRQOL) is the leading construct for measuring the impact of chronic illness on general well-being in pediatric populations. Little is known about what factors contribute to HRQOL in pediatric cystic fibrosis (CF). The current study hypothesized that family functioning and treatment burden would impact HRQOL and explored treatment burden as a potential moderator using self and parent-proxy reports. Self-report results confirmed that “unhealthy” family functioning (F(4,43) = 3.83, p = 0.01, R² = 0.26, R²adjusted = 0.20) predicted poor HRQOL, controlling for age and disease severity. Greater treatment burden perceptions were also associated with poor HRQOL using a self-report score (F(4,43) = 4.14, p = 0.01, R² = 0.28, R²adjusted = 0.21) and the CFQ-R treatment burden subscale (F(4,45) = 3.29, p = 0.01, R² = 0.29, R²adjusted = 0.20), controlling for age and disease severity. Parent-proxy report results demonstrated significant relationships for family functioning (α = -0.34, p < 0.05) and treatment burden (α = 0.46, p < 0.05) with HRQOL as well. Moderation analyses indicated that the relationship between family functioning and HRQOL was not dependent upon treatment burden perceptions in either child or parent-proxy report. However, the overall models suggested that together age, disease severity, family functioning, and treatment burden accounted for significant variance in HRQOL scores for self-report (R² = 0.32, F(5,47) = 4.03, p = 0.004) and parent-proxy report (R²= 0.25, F(2,23) = 3.90, p = 0.035). Results confirm previous findings that family functioning is related to HRQOL in pediatric CF. This is the first study to suggest that perceptions of treatment burden are related to HRQOL. Overall findings suggest that children who experience “unhealthy” family functioning and greater treatment burden perceptions are at risk for experiencing diminished HRQOL. Intervention efforts to promote familial support and monitoring perceptions of treatment burden may be useful in promoting greater HRQOL within pediatric CF

Addressing Stigma Through Evidence Based Recommendations: An Introductory Fact Sheet on Consensual Non-Monogamy

An integral part to sexuality science is bridging the research-outreach gap through the creation of public educational materials. While there has been a resurgence in empirical and clinical attention to consensual nonmonogamy (CNM), the distribution of its findings are not easily accessible. Recent studies have shown that 1 in 5 people report having engaged in a CNM relationship (polyamorous, swinging, and open relationships) in their lifetime (Haupert, Gesselman, Moors, Fisher, & Garcia, 2017). Meanwhile, the general public has yet to recognize its presence in mainstream culture. The goal of this project is to create a Consensual Non-Monogamy Fact Sheet, as part of the American Psychological Association Division 44 Consensual Non-Monogamy Task Force, to provide (1) an overview of recent research (e.g., prevalence, relationship qualities, mental health), (2) empirically supported recommendations for clinical practice and research, and (3) ways to reduce stigma surrounding these relationship styles. Using a mini-Delphi method, we outlined themes of converging information, engaged in reiterative feedback with experts, and condensed the most suitable information for a diverse audience into a concise, digestible fact sheet. In addition, the CNM fact sheet helps bridge the researchoutreach gap by addressing common misconceptions about CNM and serving as an introductory tool for those who are uninformed about the topic. Stigma surrounding CNM has led to a lack of empirical research (Conley, Matsick, Moors, & Ziegler, 2017) and clinical errors in treating individuals who practice CNM (Schechinger, Sakaluk, & Moors, 2018). This project addresses the need for evidence-based, accessible, and easy-to-read information on human sexuality

Adolescent Impulsivity: A Mediator between Parental Monitoring and Adolescent Psychosocial Outcomes

Previous research has established a robust relationship between characteristics of authoritative parenting as well as adolescent impulsivity on adolescent psychosocial outcomes. The current study was the first to expand upon this literature and examine the relationship between parenting characteristics and impulsivity, as well as the potential role for impulsivity as a mediator between perceived parenting characteristics and adolescent psychosocial outcomes. Results indicated that parental acceptance/involvement was positively related to the experiential discounting task (EDT; R^(2)= .122, F (1, 49) =7.474, p = .043) and negatively related to the Barratt Impulsiveness Scale (BIS; R^(2)= .122, F (1, 49) =7.474, p= .008). PSI Psychological Autonomy Granting was only found to be significantly positively related to the DDQ (R^(2)= .096, F (1, 49) =5.751 p = .020). Parental monitoring was only negatively related to the BIS (R^(2)= .072, F (1, 49) =4.195, p = .045). Mediation models revealed that adolescent performance on the DDQ fully mediated the relationship between psychological autonomy granting and both DSM-IV Hyperactive Symptoms and ADHD Symptoms Total. The BIS was a partial mediator in the relationship between parental acceptance/involvement and family problems and the ADHD Index. All other mediation models were not significant. Implications of the current findings and directions for future research are discussed

Surface and Complex Representation of Diverse Intimate Relationships: Insights from a Content Analysis of Marriage and Family Therapy Resources

Searching online for health information plays a vital role in the decision-making process to seek mental healthcare for relationship and sexual issues, especially among people with marginalized identities. The landscape of intimate arrangements in the U.S. is rapidly changing, yet it is unclear whether diverse intimate relationships are discussed in popular relationship-focused mental health resources. In the present research, we sought to understand how six diverse intimate relationships were represented in a set of online mental health resources focused on relationship and sexuality issues. We conducted a content analysis of 23 mental health articles; articles were coded for surface-level (1) and complex (2 through 5) representation: (1) the frequency at which six diverse relationship types were mentioned, (2) awareness of stigma (prejudicial experiences based on relationship type), (3) unique situations (experiences that are specific to a relationship type), (4) clinical recommendations (suggestions made for a specific relationship type) and (5) inclusive language. Overall, the frequency at which relationships were mentioned (surface-level representation) greatly varied: monogamous relationships (82.61%), singles (39.13%), blended families/stepfamilies (26.09%), same-sex/queer relationships (21.74%), multi-racial/cultural relationships (21.74%), and consensually non-monogamous relationships (0%). Complex representations, including stigma, unique situations, and recommendations for each diverse relationship type were infrequently mentioned (\u3c 14% and, in many cases, never mentioned). These results illustrate that relationships other than monogamy were infrequently mentioned and, if mentioned, content related to diverse relationships lacked relevant and inclusive details, including clinical recommendations

El riesgo operativo y el proceso de cobranza en la empresa Arthis E.I.R.L, Santa Anita 2020

La presente investigación buscó determinar en qué medida se relaciona el riesgo operativo y el proceso de cobranza en la Empresa Arthis E.I.R.L, Santa Anita 2020; para ello se valió de una metodología de enfoque cuantitativo, de tipo correlacional y de corte transversal; así mismo la técnica y el instrumento fueron la encuesta y el cuestionario respectivamente, este último fue comprobado en su requerimiento de validez de contenido y confiabilidad (alfa de cronbach = 0.810). Los resultados obtenidos arrojaron una rho de Spearman entre las variables Riesgo operativo y Proceso de cobranza de 0.659 y para cada una de las dimensiones en secuencia de: Comunicación (0.526), Pago (0.722) y Seguimiento (0.268). Se concluye que las variables riesgo operativo se relaciona significativamente (≤0.05) con la variable proceso de cobranza y con sus dimensiones proceso de comunicación y proceso de pago, de forma directamente proporcional

Diagnóstico del turismo gastronómico de la alameda de los chicharrones en Lurín, 2021

La presente investigación tuvo como objetivo general analizar el diagnóstico del turismo gastronómico de la Alameda de los Chicharrones en Lurín, 2021. La metodología utilizada fue de enfoque cualitativo, de tipo aplicada y diseño fenomenológico, los participantes estuvieron conformados por 15 personas que incluyó a los dueños de los restaurantes ubicados en la Alameda de los Chicharrones, el instrumento de recolección de datos fue la guía de entrevista con 18 preguntas abiertas y codificadas a través del programa Atlas Ti 9. Los resultados evidenciaron que los prestadores de servicios gastronómico promueven una buena experiencia agradable mediante la calidad en la elaboración y la presentación del plato, también se afirmó que la cultura forma parte de la gastronomía por la historia del plato bandera y la integración de la identidad, asimismo se observó que la gestión y promoción de las actividades no son indiferentes a ellos sin embargo se debe reforzar para un mejor desarrollo turístico. Se concluyó que el turismo gastronómico mediante las categorías mencionadas se identificaron algunas características acerca de la orientación de destino como preferencias, calidad, en cuanto a la cultura fueron identidad, herencia, y por último en gestión y promoción fueron capacitaciones, ferias, mercado y clientes

An Electrochemical Study of Frustrated Lewis Pairs: A Metal-free Route to Hydrogen Oxidation

[Image: see text] Frustrated Lewis pairs have found many applications in the heterolytic activation of H(2) and subsequent hydrogenation of small molecules through delivery of the resulting proton and hydride equivalents. Herein, we describe how H(2) can be preactivated using classical frustrated Lewis pair chemistry and combined with in situ nonaqueous electrochemical oxidation of the resulting borohydride. Our approach allows hydrogen to be cleanly converted into two protons and two electrons in situ, and reduces the potential (the required energetic driving force) for nonaqueous H(2) oxidation by 610 mV (117.7 kJ mol(–1)). This significant energy reduction opens routes to the development of nonaqueous hydrogen energy technology

Comparing flood mortality in Portugal and Greece (Western and Eastern Mediterranean)

For the first time flood mortality is analysed and compared between a Western (Portugal) and an Eastern Mediterranean country (Greece). Flood fatalities are examined and compared in terms of frequency, temporal evolution, spatial distribution, deadliest flood types, gender of the victims, circumstances surrounding fatalities, and individual and societal risk. A common flood fatalities database was formed for the period 1960–2010 by merging the DISASTER database for Portugal and the Greek database. Individual flood cases generated more deaths in Greece than in Portugal (excluding an outlier flash flood event in the latter). Despite some fluctuations evidence of a gradual decrease in fatality numbers were recorded for both countries. Since the 1980's the number of flood cases with multiple fatalities has been gradually declining, due to changes in qualitative characteristics of mortality. Flood fatalities predominantly occur during autumn in Greece and during winter in Portugal. In both Greece and Portugal flash floods were responsible for more than 80% of the total mortality. The main metropolitan areas of each country were found to be hotspots of flood mortality; a trend connected, with the higher population density along the coastal areas combined with the expansion of urban fabric towards floodprone areas. Gender distribution of fatalities indicates that males are more vulnerable in both countries. The circumstances surrounding fatalities showed that fatalities occurring inside buildings have been gradually reducing in time, while vehicle-related deaths have been rising, showing that individuals hold an active role when they voluntarily enter in floodwaters during a flood.info:eu-repo/semantics/publishedVersio

Ameliorating Systematic Uncertainties in the Angular Clustering of Galaxies: A Study using SDSS-III

We investigate the effects of potential sources of systematic error on the angular and photometric redshift, z_phot, distributions of a sample of redshift 0.4 < z < 0.7 massive galaxies whose selection matches that of the Baryon Oscillation Spectroscopic Survey (BOSS) constant mass sample. Utilizing over 112,778 BOSS spectra as a training sample, we produce a photometric redshift catalog for the galaxies in the SDSS DR8 imaging area that, after masking, covers nearly one quarter of the sky (9,913 square degrees). We investigate fluctuations in the number density of objects in this sample as a function of Galactic extinction, seeing, stellar density, sky background, airmass, photometric offset, and North/South Galactic hemisphere. We find that the presence of stars of comparable magnitudes to our galaxies (which are not traditionally masked) effectively remove area. Failing to correct for such stars can produce systematic errors on the measured angular auto-correlation function, w, that are larger than its statistical uncertainty. We describe how one can effectively mask for the presence of the stars, without removing any galaxies from the sample, and minimize the systematic error. Additionally, we apply two separate methods that can be used to correct the systematic errors imparted by any parameter that can be turned into a map on the sky. We find that failing to properly account for varying sky background introduces a systematic error on w. We measure w, in four z_phot slices of width 0.05 between 0.45 < z_phot < 0.65 and find that the measurements, after correcting for the systematic effects of stars and sky background, are generally consistent with a generic LambdaCDM model, at scales up to 60 degrees. At scales greater than 3 degrees and z_phot > 0.5, the magnitude of the corrections we apply are greater than the statistical uncertainty in w.Comment: Accepted by MNRA