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Differences in the Experience of Caregiving Between Spouse and Adult Child Caregivers in Dementia With Lewy Bodies.
Background and objectivesDementia caregiving has been associated with increased burden, depression, grief, a decreased sense of well-being and quality of life, and a weakening of social support. Little is known about the experience of caregiving in Dementia with Lewy Bodies (DLB). The present study examines differences in the caregiving experience of spouse versus adult child caregivers of individuals with DLB.Research design and methodsIn this cross-sectional analytic study of spouses (n = 255) and adult children (n = 160) caregivers of individuals with DLB, participants completed an online survey of burden, grief, depression, well-being, quality of life, and social support.ResultsAdult child caregivers were more likely to care for women (p < .001) and see the care recipient less often (p < .001) than spouses. Adult child caregivers reported lower quality of life (p < .001) and more caregiver burden (p < .009), but also greater social support (p < .001) than spouses. Between group analyses of caregiver type by disease severity demonstrated that spousal caregivers experience greater grief with advancing disease (p = .005), while adult child caregivers increase social support with advancing disease (p < .001).Discussion and implicationsSpouses and adult children experience DLB caregiving differently. This was explained by the younger age of the adult child caregiver, frequency of contact with the care recipient, and differences in the care recipient's characteristics, frequency of neuropsychiatric symptoms, and disease severity. DLB caregiver support for this population should target psychoeducation for complicated neuropsychiatric symptoms in the care recipient. Screening all DLB caregivers for burden, grief, and depression is suggested to identify those that may benefit most from intervention. Spouses specifically may benefit from interventions that target increasing social support, while adult child caregivers may benefit from interventions aimed at mitigating burden and improving quality of life
A qualitative study of mothersâ perceptions of weaning and the use of commercial infant food in the United Kingdom
Background: Commercially produced infant food has a different taste profile and nutritional content to homemade baby food and its consumption is now very widespread. This change in early food experience may lead to a reduced dietary variety and a decreased microbial load exposure.Objective: The purpose of this study was to gain insight into parental perceptions of complementary feeding, specifically opinions of commercially produced baby food, using qualitative research methods. Methods: Four focus group discussions took place (n = 24), with mothers of infants aged 4-7 months. Half of participants were first time mothers and a third had experience weaning infants with symptoms of cows' milk allergy. Participants were prompted with questions about complementary feeding and shown several different products to stimulate discussion. Results: Thematic analysis of focus groups indicated that three distinctive groups of mothers exis
Acquiring knowledge prior to diagnosis: a grounded theory of patientsâ experiences
© 2019 The Authors. Published by Patient Experience Journal. This is an open access article available under a Creative Commons licence.
The published version can be accessed at the following link on the publisherâs website: https://doi.org/10.35680/2372-0247.1317This paper will specifically consider one of the major findings of a wider study (previously reported in Roddis, Holloway, Bond and Galvin1), concerning how patients acquired knowledge and information about their condition before being formally diagnosed. The overall purpose of this research was to explore and explain how people make sense of long-term health conditions. Through the use of both purposive and theoretical sampling within a grounded theory design, experiences of individuals with thrombophilia and asthma were explored
Deep XMM-Newton observations of the northern disc of M31. I. Source catalogue
We carried out new observations of two fields in the northern ring of M31
with XMM-Newton with two exposures of 100 ks each and obtained a complete list
of X-ray sources down to a sensitivity limit of ~7 x 10^34 erg s^-1 (0.5 - 2.0
keV). The major objective of the observing programme was the study of the hot
phase of the ISM in M31. The analysis of the diffuse emission and the study of
the ISM is presented in a separate paper. We analysed the spectral properties
of all detected sources using hardness ratios and spectra if the statistics
were high enough. We also checked for variability. We cross-correlated the
source list with the source catalogue of a new survey of the northern disc of
M31 carried out with Chandra and Hubble (Panchromatic Hubble Andromeda
Treasury, PHAT) as well as with other existing catalogues. We detected a total
of 389 sources, including 43 foreground stars and candidates and 50 background
sources. Based on the comparison to the Chandra/PHAT survey, we classify 24
hard X-ray sources as new candidates for X-ray binaries (XRBs). In total, we
identified 34 XRBs and candidates and 18 supernova remnants (SNRs) and
candidates. Three of the four brightest SNRs show emission mainly below 2 keV,
consistent with shocked ISM. The spectra of two of them also require an
additional component with a higher temperature. The SNR [SPH11] 1535 has a
harder spectrum and might suggest that there is a pulsar-wind nebula inside the
SNR. We find five new sources showing clear time variability. We also studied
the spectral properties of the transient source SWIFT J004420.1+413702, which
shows significant variation in flux over a period of seven months (June 2015 to
January 2016) and associated change in absorption. Based on the likely optical
counterpart detected in the Chandra/PHAT survey, the source is classified as a
low-mass X-ray binary.Comment: Accepted for publication in A&
Statistics of counter-streaming solar wind suprathermal electrons at solar minimum : STEREO observations
Previous work has shown that solar wind suprathermal electrons can display a number of features in terms of their anisotropy. Of importance is the occurrence of counter-streaming electron patterns, i.e., with "beams" both parallel and anti-parallel to the local magnetic field, which is believed to shed light on the heliospheric magnetic field topology. In the present study, we use STEREO data to obtain the statistical properties of counter-streaming suprathermal electrons (CSEs) in the vicinity of corotating interaction regions (CIRs) during the period MarchâDecember 2007. Because this period corresponds to a minimum of solar activity, the results are unrelated to the sampling of large-scale coronal mass ejections, which can lead to CSE owing to their closed magnetic field topology. The present study statistically confirms that CSEs are primarily the result of suprathermal electron leakage from the compressed CIR into the upstream regions with the combined occurrence of halo depletion at 90° pitch angle. The occurrence rate of CSE is found to be about 15â20% on average during the period analyzed (depending on the criteria used), but superposed epoch analysis demonstrates that CSEs are preferentially observed both before and after the passage of the stream interface (with peak occurrence rate >35% in the trailing high speed stream), as well as both inside and outside CIRs. The results quantitatively show that CSEs are common in the solar wind during solar minimum, but yet they suggest that such distributions would be much more common if pitch angle scattering were absent. We further argue that (1) the formation of shocks contributes to the occurrence of enhanced counter-streaming sunward-directed fluxes, but does not appear to be a necessary condition, and (2) that the presence of small-scale transients with closed-field topologies likely also contributes to the occurrence of counter-streaming patterns, but only in the slow solar wind prior to CIRs
Dense packing on uniform lattices
We study the Hard Core Model on the graphs
obtained from Archimedean tilings i.e. configurations in with the nearest neighbor 1's forbidden. Our
particular aim in choosing these graphs is to obtain insight to the geometry of
the densest packings in a uniform discrete set-up. We establish density bounds,
optimal configurations reaching them in all cases, and introduce a
probabilistic cellular automaton that generates the legal configurations. Its
rule involves a parameter which can be naturally characterized as packing
pressure. It can have a critical value but from packing point of view just as
interesting are the noncritical cases. These phenomena are related to the
exponential size of the set of densest packings and more specifically whether
these packings are maximally symmetric, simple laminated or essentially random
packings.Comment: 18 page
Food security among dryland pastoralists and agropastoralists: The climate, land-use change, and population dynamics nexus
During the last decades, pastoralist, and agropastoralist populations of the worldâs drylands have become exceedingly vulnerable to regional and global changes. Specifically, exacerbated stressors imposed on these populations have adversely affected their food security status, causing humanitarian emergencies and catastrophes. Of these stressors, climate variability and change, land-use and management practices, and dynamics of human demography are of a special importance. These factors affect all four pillars of food security, namely, food availability, access to food, food utilization, and food stability. The objective of this study was to critically review relevant literature to assess the complex web of interrelations and feedbacks that affect these factors. The increasing pressures on the worldâs drylands necessitate a comprehensive analysis to advise policy makers regarding the complexity and linkages among factors, and to improve global action. The acquired insights may be the basis for alleviating food insecurity of vulnerable dryland populations.info:eu-repo/semantics/acceptedVersio
STEREO and Wind observations of a fast ICME flank triggering a prolonged geomagnetic storm on 5-7 April 2010
On 5 April 2010 an interplanetary (IP) shock was detected by the Wind
spacecraft ahead of Earth, followed by a fast (average speed 650 km/s) IP
coronal mass ejection (ICME). During the subsequent moderate geomagnetic storm
(minimum Dst = -72 nT, maximum Kp=8-), communication with the Galaxy 15
satellite was lost. We link images from STEREO/SECCHI to the near-Earth in situ
observations and show that the ICME did not decelerate much between Sun and
Earth. The ICME flank was responsible for a long storm growth phase. This type
of glancing collision was for the first time directly observed with the STEREO
Heliospheric Imagers. The magnetic cloud (MC) inside the ICME cannot be modeled
with approaches assuming an invariant direction. These observations confirm the
hypotheses that parts of ICMEs classified as (1) long-duration MCs or (2)
magnetic-cloud-like (MCL) structures can be a consequence of a spacecraft
trajectory through the ICME flank.Comment: Geophysical Research Letters (accepted); 3 Figure
Reflections on the Centenary of Sir William Osler: Science and Humanity are One, for Nursing and Medicine
Sir William Osler (1849-1991) was Regius Professor of Medicine at the University of Oxford in the UK and a founding professor at Johns Hopkins Hospital. The centenary of Oslerâs death is a time for recognition in nursing, as well as medicine, of a pioneering and highly influential Oxford physician on both sides of the Atlantic, an influence that extended to nursing from the UK to the USA. This letter captures reflections and discussion on contemporary nursing issues from an Osler Seminar Series, held at the University of Oxford in 2019 to mark the Centenary of Sir William Oslerâs death, focusing on his thinking and influence related to nursing. This extended letter illuminates issues on themes of science and humanity within a clinical and educational context, exploring a range of key contemporary nursing issues. These include the significance of interpersonal relations as they relate to care attitude and care technology; the therapeutic influence of the nurse; nursing education and clinical-academic development; the value of a life world perspective on nursing and wellbeing; and practice development within the context of person-centred workplace cultures. These issues are contextualised with examples from practice and include some from nursing developments and those illustrated in part by the clinical speciality of dermatological care. The letter concludes by considering the significance of the nursing service to promoting access to quality health care in the twenty-first century and its relevance to recognising the nursing contribution to universal health care through the WHO International Year(s) of the Nurse and Midwife in 2020-21
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