Biosamples as gifts? How participants in biobanking projects talk about donation.

Funded by National Institute for Health Research (NIHR) Oxford Biomedical Research Centre based at Oxford University Hospitals NHS Trust University of Oxford Oxford Biomedical Research Centre FellowshipPeer reviewedPublisher PD

1988/89 misuse of drugs anit-injecting campaign Qualitative research report

RS 2453; prepared for the Central Office of Information, London (GB)Available from British Library Document Supply Centre-DSC:q96/33003 / BLDSC - British Library Document Supply CentreSIGLEGBUnited Kingdo

ES referral process for ex-IB clients Qualitative research among client advisers and disability employment advisers

SIGLEAvailable from British Library Document Supply Centre-DSC:q97/18298 / BLDSC - British Library Document Supply CentreGBUnited Kingdo

JSA evaluation Employment Service clients and the benefit system

SIGLEAvailable from British Library Document Supply Centre-DSC:99/12323 / BLDSC - British Library Document Supply CentreGBUnited Kingdo

Teenage smoking mass media campaign Qualitative evaluation of TV and print advertising

Research report seriesSIGLEAvailable from British Library Document Supply Centre- DSC:MFE 1169(CH--92.3963)(microfiche) / BLDSC - British Library Document Supply CentreGBUnited Kingdo

Enterprising or altruistic selves?:making up research subjects in genetics research

The emergence of direct-to-consumer (DTC) personal genomics companies in 2007 was accompanied by considerable media attention and criticism from clinical geneticists and other health professionals, regulators, policy advisors, and ethicists. As well as offering genetic testing services, some firms are also engaged in building their own databases and conducting research with the data obtained from their customers. In this paper, we examine how one of these companies, 23andMe, is creating a certain kind of 'research subject' in opposition to that constituted in conventional forms of disease research. Drawing on debates about neoliberalism, contemporary health discourses and subjectivity, we consider two kinds of subjectivities produced through the discursive and material practices of 23andMe and UK Biobank, namely, 'enterprising' and 'altruistic' selves. We argue that the 23andMe model promotes the idea that curiosity about one's genome on the one hand, and participation in research on the other, are not only compatible but complementary aspects of being an entrepreneurial subject of contemporary health and medicine framed by the technologies of web 2.0