Quality of Life (QoL) in Patients with Traumatic Brain Injury (TBI): a Literature Review

Purpose: To describe the definition of quality of life (QoL) and identify the most appropriate tool for QoL assessment used in patients with TBI.Method: Searching was conducted from PubMed, CINAHL, EBSCO, and ProQuest during 2000-2011. A total of 33 studies were analyzed for this review consisting of 9 review studies, 2 intervention studies, and 22 descriptive studies.Result: Two important definitions of QoL were used in studies related to TBI namely achievement and subjective well-being. Although varieties of generic measurements have been used to measure QoL in TBI patients, there was a lack of TBI-specific Health-related Quality of Life (HRQoL) instrument. Despite the different approach and time measured either short or long outcomes, appropriate domains of QoL tool seem essential particularly among those with moderate and severe TBI.Conclusion: QoL is a wide concept which can be defined in several dimensions. The QOLIBRI as a new disease-specific QoL measurement in TBI seems a feasible and valid approach for the assessment of QoL in TBI. However, the application across cultural remains a challenge and needs a validation

Qualidade de vida nos doentes ostomizados – estudo usando o questionário Stoma-care QoL – influência de alguns dados clínicos e demográficos na QoL

Introduction In Portugal around 20,000 individuals are ostomized, with all the associated changes in patients’ everyday life that can compromise their Quality of Life (QoL). Objectives Assess and compare QoL of a group of ostomized patients according to sex, age group, type of surgery, primary disease, stoma duration and stoma type. Material and methods Ostomized patients observed in Stomatherapy department in between January 1st and May 30th 2017 was enrolled. QoL was assessed using the questionnaire Stoma Care QoL Questionnaire). Four domains were evaluated: Self-esteem and Self-image – SeSi Score; relation with Family and Friends – FF Score; relation with Sleep and Fatigue – SF score and ostomy Device Functioning insecurities – DeF score. Results Urostomy patients had significantly higher Total Scores, SeSi and FF scores than colostomy and ileostomy patients. Regarding SeSi Score, patients aged 70 years old or more and malignant diseases presented significantly higher scores than their younger counterparts and benign causes, respectively. FF Score document that patients with malignant diseases have significantly higher scores than patients with benign diseases. Conclusions Ileostomy and colostomy patients have a significantly lower QoL than urostomy patients mostly because of its impact on social relations and self-esteem and self-image.Introdução Em Portugal estima-se que cerca de 20.000 indivíduos sejam portadores de estoma, com todas as alterações associadas que podem comprometer a sua Qualidade de Vida (QdV). Objectivos Avaliar a QdV de doentes ostomizados de acordo com o sexo, idade, tipo de cirurgia, doença primária, duração e tipo de estoma. Materiais e métodos Foram incluídos todos os avaliados na consulta de Estomatoterapia entre Janeiro e Maio de 2017. A avaliação da QdV foi efetuada com recurso ao Questionário de QdV Stoma care. Avaliaram-se quatro domínios: autoestima e autoimagem (SeSi); relação com família e amigos (FF) relação com sono e cansaço e inseguranças relacionada com funcionamento do dispositivo (DeF). Resultados Doentes com urostomia apresentaram Scores Total, SeSi e FF, significativamente superior a doentes com colostomia e ileostomia. Relativamente ao score SeSi, os doentes com idade igual ou superior a 70 anos e doença maligna apresentaram scores significativamente maiores que os mais jovens e com doenças benignas, respectivamente. Quanto ao score FF verificou-se que doentes com causas malignas apresentaram scores significativamente superiores aos com causas benignas. Conclusões Doente ileostomizados e colostomizados apresenta QdV significativamente inferior aos doentes com urostomia, sobretudo devido ao impacto nas relações sociais, auto-estima e auto-imagem.(undefined

A Quantitative Study of Quality of Life (QOL) on Postgraduate Students in Universiti Sains Malaysia

A Quantitative study was done to analysis Quality of Life (QOL) between Iranian and Malay postgraduate students in Universiti Sains Malaysia (USM). For this purpose, data were elicited from 35 Iranian and 35 Malay students through a WHOQOL-BREF questionnaire. WHOQOL-BREF has 26 questions and four broad domains namely: Physical health, Psychological, Social Relationships and Environmental domains. Sample characteristics were determined using means and standard deviation and Independent t-tests uses to consider differences for the domain of QOL in two groups of postgraduate students. The participants were of the same language proficiency. Results showed that the internal consistencies (Cronbach alpha) in physical health, psychological, social Relationships and environmental domains are 0.74, 0.79, 0.61, and 0.72, respectively. Moreover, domains are evaluated 60.5 ±10.6, 62.9±11.3, 64.5±14.5, 60.2±10.1 for Malay postgraduate students, and 66.5±13.5, 64.5±16.1, 63.6±17.7, 59.4±13.4 for Iranian postgraduate students, respectively. According to these results, the physical domain is only significant between two groups (P<0.008). Furthermore, our study indicates QOL is in the middle level (50 – 75 %) for all postgraduate students. This study provides comprehensive information that can be applied to improve education quality in national and international students

Health-related quality of life in the WA HIV Cohort: 2008

Quality of life (QOL) is an important outcome of HIV treatment and a priority in the management of HIV. A new Patient-Reported Outcomes (PRO) questionnaire to measure the QOL in people living with HIV/AIDS (PLWHA) from different cultures and language groups has been developed. The instrument, PROQOL-HIV, has undergone psychometric validation in 791 individuals from 8 countries including 99 people from the WA HIV Cohort Study

HUBUNGAN CAREGIVER BURDEN DENGAN QUALITY OF LIFE (QOL) ORANGTUA DENGAN ANAK AUTISME DAN ORANGTUA DENGAN ANAK DISABILITAS INTELEKTUAL

Latar Belakang : Anak berkebutuhan khusus seperti autisme dan disabilitas intelektual memiliki masalah terkait tingkah laku penderitanya. Hal itu dapat menimbulkan munculnya beban pada pengasuh dalam merawat anak dengan kondisi-kondisi tersebut. Beban yang timbul dapat bermacam-macam seperti beban fisik, mental/psikologis, dan beban-beban lain yang melibatkan berbagai aspek kehidupan pengasuh tersebut. Beban dalam merawat anak berkebutuhan khusus itulah yang diduga menyebabkan penurunan kualitas hidup pada pengasuh dengan anak autisme dan disabilitas intelektual. Tujuan : Penelitian ini bertujuan untuk mengetahui apakah terdapat hubungan caregiver burden dengan Quality of Life (QOL) dari pengasuh yang memiliki anak berkebutuhan khusus yaitu anak dengan autisme dan disabilitas intelektual. Metode : Penelitian ini merupakan penelitian observasional analitik dengan rancangan penelitian cross sectional. Teknik pengambilan sampel dengan consecutive sampling pada 82 responden selaku pengasuh (ibu) dari anak autisme dan disabilitas intelektual yang bersekolah di SLB Negeri Semarang yang memenuhi kriteria inklusi. Tingkat beban pada pengasuh/caregiver burden dan kualitas hidup dinilai dengan menggunakan kuesioner Zarit Caregiver Burden Scale dan kuesioner WHOQOL-BREF. Data yang terkumpul lalu dilakukan analisis dengan uji chi-square dan uji alternatif Kruskal-Wallis. Hasil : Dari hasil analisis menunjukkan tidak adanya hubungan yang bermakna antara caregiver burden dengan Quality of Life (QOL) pada keempat domain yaitu domain fisik (p=0,185), psikologis (p=0,438), sosial (p=0,799), dan lingkungan (p=0,755) pada responden dengan anak autisme dan pada keempat domain yaitu domain fisik (p=0,304), psikologis (p=0,780), sosial (p=0,418), dan lingkungan (p=0,198) pada responden dengan anak disabilitas intelektual. Status marital, pendidikan, dan pekerjaan pada responden dengan anak autisme dan disabilitas intelektual juga tidak memiliki hubungan yang bermakna dengan caregiver burden dan kualitas hidup pada setiap domainnya. Kesimpulan : Tidak terdapat hubungan bermakna antara tingkat beban pada pengasuh/ caregiver burden dengan Quality of Life (QOL) dari pengasuh yang memiliki anak autisme maupun disabilitas intelektual. Tidak terdapat hubungan yang bermakna antara faktor-faktor demografi dengan caregiver burden dan Quality of Life (QOL) responden dari anak dengan autisme dan disabilitas intelektual Kata kunci : caregiver burden, quality of life (QOL), autisme, disabilitas intelektua

Health-related quality of life after radical prostatectomy and low-dose-rate brachytherapy for localized prostate cancer

To evaluate quality of life (QOL) after radical retropubic prostatectomy (RP) and low-dose-rate brachytherapy (BT)

Are martial arts and combat sports a school for life? Relationships between sport attitudes and quality of life (intermediate results)

[EN] Quality of Life (QoL) is an indicator of health status and represents a multidimensional..

Quality of life (QOL) the essence of social work supervision

New challenges and priorities of social work modernization processes in the context of European integration and enlargement of the European Union are analysed in this theoretical article. Main attention is paid to the problematics of a person in a changing society. The priorities of citizens‘ activity in a society should be based on knowledge on the being of a personality, its entirety, because only by knowing the object of affection of our activity, we can allow it to create a vision of a better life and embody it in the real life.The article highlights the person‘s search for meanings in a changed world. The essence of a person‘s structure, importance of culture, morale, ethics and value thinking for creating life quality is revealed on a philosophical and theoretical level.The scientific problem presented in the article defines the following questions:- What attitude to personality of full value is important for a social worker when creating life quality?- Can a person‘s life quality be an essential motive of the supervision created?The object of the research were the attitudes of philosophers, psychologists and the author, their thoughs on the personality, its place in a changing world and creation of life quality as a motivation of social worker‘s supervision

The measurement of health-related quality of life (QOL) in paediatric clinical trials: a systematic review

Background The goal of much care in chronic childhood illness is to improve quality of life (QOL). However, surveys suggest QOL measures are not routinely included. In addition, there is little consensus about the quality of many QOL measures. Objectives To determine the extent to which quality of life (QOL) measures are used in paediatric clinical trials and evaluate the quality of measures used. Design Systematic literature review. Review Methods Included paediatric trials published in English between 1994 and 2003 involving children and adolescents up to the age of 20 years, and use of a standardised QOL measure. Data Sources included MEDLINE, CINAHL, EMB Reviews, AMED, BNI, PSYCHINFO, the Cochrane library, Internet, and reference lists from review articles. Results We identified 18 trials including assessment of QOL (4 Asthma, 4 Rhinitis, 2 Dermatitis, and single studies of Eczema, Cystic fibrosis, Otis media, Amblyopia, Diabetes, Obesity associated with a brain tumour, Idiopathic short stature, and Congenital agranulocytosis). In three trials, parents rated their own QOL but not their child's. Fourteen different QOL measures were used but only two fulfilled our minimal defined criteria for quality. Conclusions This review confirms previous reports of limited use of QOL measures in paediatric clinical trials. Our review provides information about availability and quality of measures which will be of especial value to trial developers