76 research outputs found
The QAME of Trans-disciplinary Ethnography: Making Visible Disciplinary Theories of Ethnographic Praxis as Boundary Object
Between Scylla and Charybdis: reconciling competing data management demands in the life sciences
Background:
The widespread sharing of biological and biomedical data is recognised as a key element in facilitating translation of scientific discoveries into novel clinical applications and services. At the same time, twenty-first century states are increasingly concerned that this data could also be used for purposes of bioterrorism. There is thus a tension between the desire to promote the sharing of data, as encapsulated by the Open Data movement, and the desire to prevent this data from ‘falling into the wrong hands’ as represented by ‘dual use’ policies. Both frameworks posit a moral duty for life sciences researchers with respect to how they should make their data available. However, Open data and dual use concerns are rarely discussed in concert and their implementation can present scientists with potentially conflicting ethical requirements.
Discussion:
Both dual use and Open data policies frame scientific data and data dissemination in particular, though different, ways. As such they contain implicit models for how data is translated. Both approaches are limited by a focus on abstract conceptions of data and data sharing. This works to impede consensus-building between the two ethical frameworks. As an alternative, this paper proposes that an ethics of responsible management of scientific data should be based on a more nuanced understanding of the everyday data practices of life scientists. Responsibility for these ‘micromovements’ of data must consider the needs and duties of scientists as individuals and as collectively-organised groups.
Summary:
Researchers in the life sciences are faced with conflicting ethical responsibilities to share data as widely as possible, but prevent it being used for bioterrorist purposes. In order to reconcile the responsibilities posed by the Open Data and dual use frameworks, approaches should focus more on the everyday practices of laboratory scientists and less on abstract conceptions of data
Ontario Progressive Conservatives Remove Ryan Gosling Image From Fundraising Message
Faculty mentioned/quoted: Professor Carys Crai
Ontario Progressive Conservatives Remove Ryan Gosling Image From Fundraising Message
Faculty mentioned/quoted: Professor Carys Crai
The Tragically Hip is suing Mill Street Brewery over ‘100th Meridian’ beer
Mentioned/quoted: Giuseppina D’Agostin
A study urged better standards for migrant workers\u27 housing. Nothing was done. Now COVID-19 has struck
Mentioned/quoted: Fay Farada
Despite a crackdown, workplace-related COVID deaths have accelerated in 2021
Mentioned/quoted: Eric Tucke
Controversies at U of T Law, York University highlight escalating suppression of moderate voices criticizing Israel
Mentioned/quoted: Faisal Bhabh
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