Sud4science, de l'acquisition d'un grand corpus de SMS en français à l'analyse de l'écriture SMS

International audienceThis article describes the sud4science project (www.sud4science.org). Firstly, the authors present the acquisition phase of both SMS data and questionnaire data. Secondly, they explain anonymisation techniques, transcoding and optional annotation phases. Finally, they propose preliminary (socio-) linguistic analyses of scriptural usage of SMS writing, and they also indicate those that are planned in the foreseeable future.Dans le cadre de cet article, on expose le déroulement du projet sud4science (www.sud4science.org). En premier lieu, on décrit la phase d'acquisition des données en provenance des SMS et du questionnaire, avant d'aborder les étapes successives d'anonymisation, de transcodage et d'annotation optionnelle. Ensuite, on présente les analyses (socio-)linguistiques des pratiques scripturales de l'écriture SMS (eSMS) qui ont débuté, ainsi que celles prévues à court et à moyen terme

Tailoring STrAtegies for RelaTives for Black and South Asian dementia family carers in the United Kingdom: A mixed methods study

We culturally adapted STrAtegies for RelaTives (START), a clinically and cost-effective intervention for dementia family carers, for Black and South Asian families. It had previously been delivered to family carers around the time of diagnosis, when most people with dementia had very mild, mild or moderate dementia. We interviewed a maximum variation sample of family carers (phase one; n = 15 South Asian; n = 11 Black) about what aspect of START, required cultural adaptation, then analysed it thematically using the Cultural Treatment Adaptation Framework then adapted it in English and into Urdu. Facilitators then delivered START individually to carers (phase two; n = 13 South Asian; n = 8 Black). We assessed acceptability and feasibility through the number of sessions attended, score for fidelity to the intervention and interviewing family carers about their experiences. We used the Hospital Anxiety and Depression Scale. to examine whether immediate changes in family carers' mental health were in line with previous studies. In phase one we made adaptations to peripheral elements of START, clarifying language, increasing illustrative vignettes numbers, emphasising privacy and the facilitator's cultural competence and making images ethnically diverse. In phase two 21 family carers consented to receive the adapted intervention; 12 completed ≥5/8 sessions; four completed fewer sessions and five never started. Baseline HADS score (n = 21) was 14.4 (SD = 9.8) but for those who we were able to follow up was 12.3 (SD 8.1) and immediately post-intervention was 11.3 (n = 10; SD = 6.1). Family carers were positive about the adapted START and continued to use elements after the intervention. Culturally adapted START was acceptable and feasible in South Asian and Black UK-based family carers and changes in mental health were in line with those in the original clinical trial. Our study shows that culturally inclusive START was also acceptable. Changes made in adaptations were relevant to all populations. We now use the adapted version for all family carers irrespective of ethnicity

Improving Conversations about Parkinson's Dementia

Background: People with Parkinson's disease (PD) have an increased risk of dementia, yet patients and clinicians frequently avoid talking about it due to associated stigma, and the perception that “nothing can be done about it”. However, open conversations about PD dementia may allow people with the condition to access treatment and support, and may increase participation in research aimed at understanding PD dementia. Objectives: To co‐produce information resources for patients and healthcare professionals to improve conversations about PD dementia. Methods: We worked with people with PD, engagement experts, artists, and a PD charity to open up these conversations. 34 participants (16 PD; 6 PD dementia; 1 Parkinsonism, 11 caregivers) attended creative workshops to examine fears about PD dementia and develop information resources. 25 PD experts contributed to the resources. Results: While most people with PD (70%) and caregivers (81%) shared worries about cognitive changes prior to the workshops, only 38% and 30%, respectively, had raised these concerns with a healthcare professional. 91% of people with PD and 73% of caregivers agreed that PD clinicians should ask about cognitive changes routinely through direct questions and perform cognitive tests at clinic appointments. We used insights from the creative workshops, and input from a network of PD experts to co‐develop two open‐access resources: one for people with PD and their families, and one for healthcare professionals. Conclusion: Using artistic and creative workshops, co‐learning and striving for diverse voices, we co‐produced relevant resources for a wider audience to improve conversations about PD dementia

COVID-19 symptoms at hospital admission vary with age and sex: results from the ISARIC prospective multinational observational study

Background: The ISARIC prospective multinational observational study is the largest cohort of hospitalized patients with COVID-19. We present relationships of age, sex, and nationality to presenting symptoms. Methods: International, prospective observational study of 60 109 hospitalized symptomatic patients with laboratory-confirmed COVID-19 recruited from 43 countries between 30 January and 3 August 2020. Logistic regression was performed to evaluate relationships of age and sex to published COVID-19 case definitions and the most commonly reported symptoms. Results: ‘Typical’ symptoms of fever (69%), cough (68%) and shortness of breath (66%) were the most commonly reported. 92% of patients experienced at least one of these. Prevalence of typical symptoms was greatest in 30- to 60-year-olds (respectively 80, 79, 69%; at least one 95%). They were reported less frequently in children (≤ 18 years: 69, 48, 23; 85%), older adults (≥ 70 years: 61, 62, 65; 90%), and women (66, 66, 64; 90%; vs. men 71, 70, 67; 93%, each P < 0.001). The most common atypical presentations under 60 years of age were nausea and vomiting and abdominal pain, and over 60 years was confusion. Regression models showed significant differences in symptoms with sex, age and country. Interpretation: This international collaboration has allowed us to report reliable symptom data from the largest cohort of patients admitted to hospital with COVID-19. Adults over 60 and children admitted to hospital with COVID-19 are less likely to present with typical symptoms. Nausea and vomiting are common atypical presentations under 30 years. Confusion is a frequent atypical presentation of COVID-19 in adults over 60 years. Women are less likely to experience typical symptoms than men

Exploring and Meeting the Needs of Black African and Caribbean Older People with Dementia and their Family Carers: A Qualitative Study

This thesis speaks to the intersections of three important contemporary social issues: race, ethnicity and dementia. It explores the nature of disparities and inequalities in dementia and dementia care through the experiences of UK-dwelling Black African and Caribbean adults. I report on the meanings that individuals of Black ethnicity attach to dementia, how they construct their own experiential reality of dealing with it and the factors and structures surrounding it, and how the broader social and environmental context impinges upon these meanings. I conducted a systematic review about the perception and experiences of dementia among Black adults and a large national multi-setting qualitative study with ethnographic observations of the lived experience of UK Black African and Caribbean people about their understanding of dementia and their expectations of health and social care services. 32 participants from diverse backgrounds, mixed heritages and experiences were included with people with dementia, family carers, and health and social care professionals recruited from community and care home settings. I met regularly with members of the public with lived experience of dementia and other stakeholders to situate my findings within current socio-political realities. Thematic analysis of the data collected conceptualised three main themes: 1_Dementia as a killer and foreign disease, 2_Ageing as a permanent visitor and 3_Kinship, care and cultural distance. These related to shared experiences of migration; lack of social and economic capital; and threats to their identity and legitimacy of belonging. I concluded that the lens of race and ethnicity cannot fully explain the experience of living with dementia in Black communities. While inequalities cluster around the categories of race and ethnicity, the experience of dementia in these communities is much more intersectional. Future research and policy as well as health and social care practice therefore need to adapt to this complex situation of minority migration rather than reducing everything to one dimension

Black African and Caribbean British Communities' Perceptions of Memory Problems: "We Don't Do Dementia.".

OBJECTIVES:We aimed to identify and explore the barriers to help-seeking for memory problems, specifically within UK Black African and Caribbean communities. METHOD:We purposively recruited participants from community groups and subsequent snowball sampling, to achieve a maximum variation sample and employed thematic analysis. Our qualitative semi-structured interviews used a vignette portraying a person with symptoms of dementia, and we asked what they or their family should do. We stopped recruiting when no new themes were arising. RESULTS AND SIGNIFICANCE:We recruited 50 people from a range of age groups, country of origin, time in the UK, religion and socio-economic background. Some of the barriers to presentation with dementia have been reported before, but others were specific to this group and newly identified. Many people recognised forgetfulness but neither that it could be indicative of dementia, nor the concept of dementia as applying to them. Dementia was viewed as a white person's illness. Participants felt there was little point in consulting a doctor for forgetfulness. Many thought that seeing a GP was only for severe problems. Some said that their culture was secretive and highly valued privacy of personal affairs and therefore did not want to discuss what they regarded as a private and stigmatising problem with a GP. Participants did not appreciate their GP could refer to memory services who have more time and expertise. They were concerned about harm from medication and compulsory institutionalisation. Care should be from the family. Any intervention should emphasise the legitimacy of seeing a doctor early for memory concerns, that dementia is a physical illness which also occurs in the Black community, that help and time are available from memory services whose role is to prolong independence and support families in caring

88milSMS. A corpus of authentic text messages in French

The first version of the corpus (ISLRN : 024-713-187-947-8) was produced in 2014 as part of the "sud4science LR project". More than 88,000 authentic SMS, sent by hundreds of donators living mainly in the Montpellier area, were collected, in 2011, then anonymised, by the researchers, their student interns and a legal adviser-CIL.The initial corpus was then converted to TEI standard in the project CoMeRe (Communication Médiée par les Réseaux). This project aims to build a kernel corpus assembling existing corpora of different CMC (Computer-Mediated Communication) genres and new corpora build on data extracted from the Internet. These heterogenous corpora will be structured and processed in a uniform way, complemented with metadata. CoMeRe will be released as OpenData through the national infrastructure Ortolang, following constraints which will be reused for the forthcoming “Corpus de Référence du Français”. Project supported by the national consortium Corpus-écrits, sub-part of Huma-Num, and Ortolang (French correspondant to DARIAH)The first version of the corpus (ISLRN : 024-713-187-947-8) was produced in 2014 as part of the "sud4science LR project". More than 88,000 authentic SMS, sent by hundreds of donators living mainly in the Montpellier area, were collected, in 2011, then anonymised, by the researchers, their student interns and a legal adviser-CIL.The initial corpus was then converted to TEI standard in the project CoMeRe (Communication Médiée par les Réseaux). This project aims to build a kernel corpus assembling existing corpora of different CMC (Computer-Mediated Communication) genres and new corpora build on data extracted from the Internet. These heterogenous corpora will be structured and processed in a uniform way, complemented with metadata. CoMeRe will be released as OpenData through the national infrastructure Ortolang, following constraints which will be reused for the forthcoming “Corpus de Référence du Français”. Project supported by the national consortium Corpus-écrits, sub-part of Huma-Num, and Ortolang (French correspondant to DARIAH

Dites-le dans le français que vous voulez !: Les invités de Mediapart, 2 avril 2015

International audience« Dites-le en français » ! Le 16 mars 2015, le CSA a réalisé une campagne de trois vidéos. Des chercheurs (linguistes et informaticiens), tous membres du projet équipe sud4science sur les SMS, s'insurgent contre leur contenu qui dévalorise l'écriture SMS

Panckhurst R., Détrie C., Lopez C., Moïse C., Roche M., Verine B. (2014) "88milSMS. A corpus of authentic text messages in French", produit par l'Université Paul-Valéry Montpellier 3 et le CNRS, en collaboration avec l'Université catholique de Louvain, financé grâce au soutien de la MSH-M et du Ministère de la Culture (Délégation générale à la langue française et aux langues de France) et avec la participation de Praxiling, Lirmm, Lidilem, Tetis, Viseo.

88milSMS est un corpus de plus de 88 000 SMS authentiques français, recueillis à Montpellier en 2011. Le corpus 88milSMS est disponible à l'adresse suivante : http://88milsms.huma-num.fr/The 88milSMS corpus is accessible at the following address: http://88milsms.huma-num.fr/ A pluridisciplinary team of linguists and computer scientists (Rachel Panckhurst, Catherine Détrie, Cédric Lopez, Claudine Moïse, Mathieu Roche, Bertrand Verine (Praxiling, Lirmm, Lidilem, Tetis, Viseo) collected more than 88,000 French authentic text messages in Montpellier (2011), as part of the sud4science LR project (Sud4science Languedoc Roussillon. Mutation des pratiques scripturales en communication électronique médiée, http://sud4science.org (main financial support: MSH-M)). This project is part of a vast international project entitled sms4science (http://www.sms4science.org), coordinated by the CENTAL at Université catholique de Louvain (UCL) in Belgium. Participants from the general public, who donated their SMS to science, were also able to fill in a sociolinguistic questionnaire. The text messages from the sud4science LR project were then semi-automatically anonymised (in collaboration with student internships and a legal adviser-CIL, Nicolas Hvoinsky, SAJI, Université Paul-Valéry), before being partially transcoded (into standardised French) and annotated (cf. Panckhurst et al. 2013).Le corpus 88milSMS est disponible à l'adresse suivante : http://88milsms.huma-num.fr/ Une équipe pluridisciplinaire de linguistes et d'informaticiens (Rachel Panckhurst, Catherine Détrie, Cédric Lopez, Claudine Moïse, Mathieu Roche, Bertrand Verine (Praxiling, Lirmm, Lidilem, Tetis, Viseo) a recueilli plus de 88 000 SMS authentiques en français à Montpellier, en 2011. Cette collecte a été effectuée dans le cadre du projet sud4science LR (Sud4science Languedoc Roussillon. Mutation des pratiques scripturales en communication électronique médiée, http://sud4science.org (financement principal : MSH-M)), lui-même faisant partie du projet international sms4science (http://www.sms4science.org), coordonné par le CENTAL à l'Université catholique de Louvain (UCL) en Belgique. Lors du recueil des SMS, un questionnaire sociolinguistique a également été proposé aux participants. Les SMS du projet sud4science LR ont été ensuite anonymisés de manière semi-automatique (en collaboration avec des étudiants stagiaires et un juriste-CIL, Nicolas Hvoinsky, SAJI, Université Paul-Valéry), puis partiellement transcodés (en français standardisé) et annotés (cf. Panckhurst et al. 2013)

De la collecte à l'analyse d'un corpus de SMS authentiques : une démarche pluridisciplinaire

Nous présentons notre approche fondée sur les données authentiques, en nous concentrant sur des recherches récentes, portant sur le recueil, le traitement et l'analyse d'un grand corpus de SMS en français, intitulé 88milSMS (http://88milsms.huma-num.fr/, Panckhurst, Détrie, Lopez, Moïse, Roche, Verine, 2014), incluant un questionnaire sociolinguistique soumis aux donateurs au moment de la collecte ainsi que leurs réponses. Puis nous expliquons pourquoi, dans une démarche pluridisciplinaire (située entre sciences du langage, informatique et traitement automatique du langage naturel), nous avons décidé de fournir à la communauté scientifique et au grand public le corpus de SMS. (Résumé d'auteur