From ‘other’ to involved: User involvement in research: An emerging paradigm

This article has been made available through the Brunel Open Access Publishing Fund. Copyright @ 2013 The Author(s). This is an Open Access article. Non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly attributed, cited, and is not altered, transformed, or built upon in any way, is permitted. The moral rights of the named author(s) have been asserted.This article explores the issue of ‘othering’ service users and the role that involving them, particularly in social policy and social work research may play in reducing this. It takes, as its starting point, the concept of ‘social exclusion’, which has developed in Europe and the marginal role that those who have been included in this construct have played in its development and the damaging effects this may have. The article explores service user involvement in research and is itself written from a service user perspective. It pays particular attention to the ideological, practical, theoretical, ethical and methodological issues that such user involvement may raise for research. It examines problems that both research and user involvement may give rise to and also considers developments internationally to involve service users/subjects of research, highlighting some of the possible implications and gains of engaging service user knowledge in research and the need for this to be evaluated

Torture, Identity, and the Corporeality of Female Sanctity: The Body as Locus of Meaning in the Legend of St Margaret of Antioch

The legend of St Margaret of Antioch problematizes a range of conceptions of selfhood, particularly the relationship between the body and identity, by constantly blurring the dialectical clarity of the opposition between self and other, between internal and external. Margaret, who is lacerated to the point where the inner workings of her body become visible, is swallowed by a dragon, but subsequently bursts outwards through its stomach by making the sign of the cross. She in this way becomes a complex and ambivalent figure, a source of abjection rather than scopic objectification for Olybrius, the pagan inquisitor, but a model of heroic resistance for a partisan Christian audience. In this discussion, which focuses on the previously unedited version of her legend in the Castilian Gran flos sanctorm, particular attention is paid to questions of ontological significance, the so-called ‘pious pornography’ thesis, and the appropriation of the female body as a symbolic locus of meaning

Working with Children with Learning Disabilities and/or who Communicate Non-verbally: Research experiences and their implications for social work education, increased participation and social inclusion

Social exclusion, although much debated in the UK, frequently focuses on children as a key 'at risk' group. However, some groups, such as disabled children, receive less consideration. Similarly, despite both UK and international policy and guidance encouraging the involvement of disabled children and their right to participate in decision-making arenas, they are frequently denied this right. UK based evidence suggests that disabled children's participation lags behind that of their non-disabled peers, often due to social work practitioners' lack of skills, expertise and knowledge on how to facilitate participation. The exclusion of disabled children from decision-making in social care processes echoes their exclusion from participation in society. This paper seeks to begin to address this situation, and to provide some examples of tools that social work educators can introduce into pre- and post-qualifying training programmes, as well as in-service training. The paper draws on the experiences of researchers using non-traditional qualitative research methods, especially non-verbal methods, and describes two research projects, focusing on the methods employed to communicate with and involve disabled children, the barriers encountered and lessons learnt. Some of the ways in which these methods of communication can inform social work education are explored alongside wider issues of how and if increased communication can facilitate greater social inclusion

A Conflict-Free Replicated JSON Datatype

Many applications model their data in a general-purpose storage format such as JSON. This data structure is modified by the application as a result of user input. Such modifications are well understood if performed sequentially on a single copy of the data, but if the data is replicated and modified concurrently on multiple devices, it is unclear what the semantics should be. In this paper we present an algorithm and formal semantics for a JSON data structure that automatically resolves concurrent modifications such that no updates are lost, and such that all replicas converge towards the same state (a conflict-free replicated datatype or CRDT). It supports arbitrarily nested list and map types, which can be modified by insertion, deletion and assignment. The algorithm performs all merging client-side and does not depend on ordering guarantees from the network, making it suitable for deployment on mobile devices with poor network connectivity, in peer-to-peer networks, and in messaging systems with end-to-end encryption.This research was supported by a grant from The Boeing Company

Evaluation of three models for predicting Venturia inaequalis ascospore release in Southern Brazil.

Ascospores of Venturia inaequalis constitute the principal source of primary inoculum for epidemics of apple black spot (scab). Mathematical models that describe ascospore release have been developed in USA, New Zealand and Italy. These models are based upon degree-day accumulation. In this work, the seasonal pattern of released ascospores of V. inaequalis in Vacaria, Brazil, was evaluated. During four apple growth seasons (2009 to 2012) the natural release of ascospores from ive orchards was recorded. The cumulative percentage of ascospore release was predicted using three different degreeday models. The released ascospore data showed the best it to the model developed in Italy, with a start date of 22 August rather than the phenological stage of apple bud break. It is concluded that in regions with warm winter temperatures, models that use bud break to initiate ascospore maturation will tend to underestimate availability of ascospores at the beginning of the apple growth season

Selecting passive dosimetry technologies for measuring the external dose of terrestrial wildlife

Dosimeters attached to wild animals can be used to validate regulatory assessment approaches and models for estimating radiation exposure of wild animals. Such measurements are also necessary to ensure that robust dose-effect relationships can be developed from the results of field research programmes. This paper presents the first comprehensive evaluation of the different dosimetry technologies available for specifically measuring the external exposure of wildlife. Guidance is provided on the selection of appropriate passive dosimetry approaches for directly measuring external exposure of terrestrial wildlife under field conditions. The characteristics and performance of four available dosimetry technologies (thermoluminescent dosimeter (TLD), optically stimulated luminescent dosimeter (OSLD), radiophotoluminescent dosimeter (RPLD) and direct ion storage, (DIS)) are reviewed. Dosimeter properties, detection limit and dose range, study organisms and the intended application are variables that need to be considered when selecting a suitable dosimetry technology. Evaluated against these criteria, it is suggested that LiF based and Al2O3:C TLDs, OSLD and RPLD could all be used to estimate doses to wildlife. However, only LiF based TLDs have been used to directly measure wildlife doses in field studies to date. DIS is only suitable for comparatively large species (e.g. medium to large mammals), but has the advantage that temporal variation in dose can be recorded. In all cases, dosimeter calibration is required to ensure that the dose measurements reported can be interpreted appropriately for the organisms of interest

The inverse eigenvector problem for real tridiagonal matrices

A little known property of a pair of eigenvectors (column and row) of a real tridiagonal matrix is presented. With its help we can define necessary and sufficient conditions for the unique real tridiagonal matrix for which an approximate pair of complex eigenvectors is exact. Similarly, we can designate the unique real tridiagonal matrix for which two approximate real eigenvectors, with different real eigenvalues, are also exact. We close with an illustration that these unique “backward error” matrices are sensitive to small rounding errors in certain partial sums which play a key role in determining the matrices.Ministerio de Economía y Competitividad of Spain through research grant MTM2012-32542info:eu-repo/semantics/publishedVersio

Estimating The Costs And Cost-effectiveness Of Promoting Mammography Screening Among US-based Latinas

Purpose: We characterize the costs and cost-effectiveness of a community health worker (CHW)-based intervention to promote screening mammography among US-based non-adherent Latinas. Methods: The parent study was a randomized controlled trial for 536 Latinas aged 42-74 years old who had sought care within a safety net health center in Western Washington. Participants were block-randomized within clinic to the control arm (usual care) or intervention arm (CHW-led motivational interviewing intervention). We used the perspective of the organization implementing promotional activities to characterize costs and cost-effectiveness. Cost data were categorized as program set-up and maintenance (initial training, booster/annual training) program implementation (administrative activities, intervention delivery); and, overhead/miscellaneous expenses. Cost-effectiveness was calculated as the incremental cost of screening for each additional woman screened between the intervention and control arms. Results: The respective costs per participant for standard care and the intervention arm were $69.96 and$300.99. There were no study arm differences in 1-year QALYs among women who completed a 12-month follow-up survey (intervention= 0.8827, standard care = 0.8841). Most costs pertained to program implementation and administrative activities specifically. The incremental cost per additional woman screened was $2,595.32. Conclusions: Our findings are within the ranges of costs and cost-effectiveness for other CHW programs to promote screening mammography among underserved populations. Our strong study design and focus on non-adherent women provides important strengths to this body of work, especially give implementation and dissemination science efforts regarding CHW-based health promotion for health disparity populations

Association between diabetes, diabetes treatment and risk of developing endometrial cancer.

BackgroundA growing body of evidence suggests that diabetes is a risk factor for endometrial cancer incidence. However, most of these studies used case-control study designs and did not adjust for obesity, an established risk factor for endometrial cancer. In addition, few epidemiological studies have examined the association between diabetes treatment and endometrial cancer risk. The objective of this study was to assess the relationships among diabetes, diabetes treatment and endometrial cancer risk in postmenopausal women participating in the Women's Health Initiative (WHI).MethodsA total of 88 107 postmenopausal women aged 50-79 years who were free of cancer and had no hysterectomy at baseline were followed until date of endometrial cancer diagnosis, death, hysterectomy or loss to follow-up, whichever came first. Endometrial cancers were confirmed by central medical record and pathology report review. Multivariate Cox proportional hazards regression models were used to estimate hazard ratios (HRs) (95% confidence interval (CI)) for diagnosis of diabetes and metformin treatment as risk factors for endometrial cancer.ResultsOver a mean of 11 years of follow-up, 1241 endometrial cancers developed. In the primary analysis that focused on prevalent diabetes at enrolment, compared with women without diabetes, women with self-reported diabetes, and the subset of women with treated diabetes, had significantly higher risk of endometrial cancer without adjusting for BMI (HR=1.44, 95% CI: 1.13-1.85 for diabetes, HR=1.57, 95% CI: 1.19-2.07 for treated diabetes). However after adjusting for BMI, the associations between diabetes, diabetes treatment, diabetes duration and the risk of endometrial cancer became non-significant. Elevated risk was noted when considering combining diabetes diagnosed at baseline and during follow-up as time-dependent exposure (HR=1.31, 95% CI: 1.08-1.59) even after adjusting for BMI. No significant association was observed between metformin use and endometrial cancer risk.ConclusionsOur results suggest that the relationship observed in previous research between diabetes and endometrial cancer incidence may be largely confounded by body weight, although some modest independent elevated risk remains