Three participatory geographers: reflections on positionality and working with participants in researching religions, spiritualities, and faith

This paper advances the geographies of religion, spirituality and faith's limited attention to positionality by discussing the critical issues raised when using participatory approaches. Reflecting on three cases of participatory research, we foreground the dynamics of being a researcher with faith when working with participants from faith communities. Advocating participatory approaches as valuable methodologies that should be used more extensively to explore beliefs, faith practices, and social justice, we argue that greater attention needs to be given to the positionality of researchers undertaking this sort of research. Our cases raise three themes for discussion. First, the variety of ways in which faith positionalities influence how research is developed, conducted and concluded. Second, the intersections between our faith and other positionalities and how they shape our roles and relationships with research participants. Third, the fluid and multifaceted nature of faith positionalities and how they are changed, emphasized, and softened through the dynamics and entanglements of fieldwork. In doing so, we reflect on the complexities of being a researcher with faith, argue that faith positionality is a helpful dimension of their research rather than a limitation, and that all cultural, social and historical geographical researchers should reflect on their faith positionality

Engaging with clinicians to implement and evaluate the ICF in neurorehabilitation practice

INTRODUCTION: Although deemed a globally accepted framework, there remains scare evidence on the process and outcome of implementing the International Classification of Functioning, Disability and Health (ICF) within neurorehabilitation. OBJECTIVES: This review briefly explores the existing, broader literature and then reports on two action research projects, undertaken in England, specifically within stroke and neurorehabilitation. Working with participants, including clinicians from in-patient and community settings, there are now 35 different ways identified for the use of the ICF. CONCLUSION: The outcome of the first project highlights that using the ICF enhances communication within and beyond the acute stroke service, fosters holistic thinking and clarifies team roles. To adopt it into clinical practice, the ICF must be adapted to meet local service needs. The use of action research has facilitated the knowledge translation process which has enabled the ICF to become a clinical reality in neurorehabilitation, with clinicians identifying a range of potential uses

Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research.

The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials. This paper provides an overview of the patient-powered research networks (PPRNs), networks of patient organizations focused on a particular health condition that are interested in sharing health information and engaging in research. PPRNs will build on their foundation of trust within the patient communities and draw on their expertise, working with participants to identify true patient-centered outcomes and direct a patient-centered research agenda. The PPRNs will overcome common challenges including enrolling a diverse and representative patient population; engaging patients in governance; designing the data infrastructure; sharing data securely while protecting privacy; prioritizing research questions; scaling small networks into a larger network; and identifying pathways to sustainability. PCORnet will be the first distributed research network to bring PCOR to national scale

Inadvertent and Unexpected Learning: Play in Socially-Engaged Art Practices

Socially-engaged Art (SEA) has been defined as a practice geared towards social action in which the experience of its own creation becomes a central element of the artwork; as an art practice invested in experience, or what I would call a shared experience, since it solicits the audience’s participation. This dependence on social dialogue situates the negotiation between the conditions and expectations set by the artist, and the actual development of the artworks among the participants in a realm of uncertainty. It is this uncertainty that blends in aesthetic experience, social function, and education. SEA artists have used a variety of strategies while working with participants at intervening or transforming their social environments, among which is play. Artists have used a variety of strategies while working with participants at intervening or transforming everyday life, among which is play. This paper investigates how play manifests in SEA, and what roles it assumes in making possible the ideas and practices that shape a SEA in the context of a phenomenological study

Developing the Critical Verbatim Theater Artist during the Pandemic: A Transatlantic Collaboration

Following recent social upheavals and an unprecedented pandemic, the development of theater students to work with stories from the community has become more urgent. Because verbatim theater brings to focus real voices and often involves sensitive topics, artists/educators consider key ethical questions before their engagement with educational or community contexts. Artists/educators are developed within the fieldwork of applied theater, during their study at university, through supervision to engage communities. The pandemic made such fieldwork difficult due to online learning and teaching, so university educators tested alternative ways of simulating the experience of working with participants. This article analyzes the rationale, application and evaluation of an educational verbatim theater case study that involved British theater students and American nursing students, from the University of Chichester and Kent State University respectively. It identifies how international collaborations might offer an alternative environment to fieldwork by inviting students to consider key ethical questions before their engagement with communities. The narrative of practice reveals how it was rooted in Paulo Freire’s pedagogy. The artist/educator’s reflection highlights how such collaborations invite students to explore dialectics and the ethics of representation in verbatim theater, and to develop accountability and empathy when working with participants, which hopefully, they bring to their future fieldwork

Agroforestry in the Nijmegen-area: visioning, sharing, designing

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Lessons Learned: Methods Used to Recruit Rural Latinos for a Health Awareness Study

The growth of the nation’s Latino population in rural areas may provide challenges for investigators seeking to recruit a diverse participant pool for use in survey and focus group research. This paper presents a case study that describes the successful recruitment of rural Latinos as part of a multidisciplinary health awareness project that targeted adolescent Latinos, ages 11-15, and at least one parent or guardian. Logistical considerations when organizing a series of surveys and focus groups in rural areas are presented. Lessons learned from working with participants in the study are also included, such as providing child care services, addressing literacy issues during the consent form process, and strategies for working with local faith-based organizations for improved participant recruitment success

Use of an agile bridge in the development of assistive technology

Engaging with end users in the development of assistive technologies remains one of the major challenges for researchers and developers in the field of accessibility and HCI. Developing usable software systems for people with complex disabilities is problematic, software developers are wary of using user-centred design, one of the main methods by which usability can be improved, due to concerns about how best to work with adults with complex disabilities, in particular Severe Speech and Physical Impairments (SSPI) and how to involve them in research. This paper reports on how the adoption of an adapted agile approach involving the incorporation of a user advocate on the research team helped in meeting this challenge in one software project and offers suggestions for how this could be used by other development teams

Institutional Title IX Requirements for Researchers Conducting Human Subjects Research on Sexual Violence and other Forms of Interpersonal Violence

The purpose of this white paper is to provide guidance on how university and college Institutional Review Boards (IRBs) and IRB administrators can oversee, and researchers can conduct, research investigating the different aspects of Sexual Violence and other forms of Interpersonal Violence