Patient-Reported Outcome Measures of Quality of Life in People Affected by Diabetic Foot: A Psychometric Systematic Review

Peu diabètic; Psicometria; Qualitat de vidaDiabetic foot; Psychometrics; Quality of lifePie diabético; Psicometría; Calidad de vidaObjectives: This psychometric systematic review aimed to identify the most suitable patient-reported outcome measures (PROMs) of quality of life (QoL) in people affected by diabetic foot. Methods: We performed a literature search in MEDLINE (PubMed), CINAHL (EBSCOhost), and PsycINFO (EBSCOhost) databases from inception to February 1, 2022. We also searched gray literature databases. Eligible studies were full-text reports developing a QoL condition-specific PROM or assessing one or more of its measurement properties in people affected by diabetic foot. We assessed the methodological quality of included studies independently using the "Consensus-Based Standards for the Selection of Health Measurement Instruments Risk of Bias" checklist. The measurement properties were evaluated using specific criteria. We graded the quality of the evidence using a "Grading of Recommendations Assessment, Development and Evaluation" approach modified by Consensus-Based Standards for the Selection of Health Measurement Instruments. Results: Forty-three reports (46 studies) providing information on the measurement properties of 10 different PROMs were included. We did not identify any instruments that could be recommended for use. We identified 2 PROMs that were not recommended for use and 8 that were potentially recommended but would require further investigation. Of these 8 PROMs, 4 had better evidence for content validity. Conclusions: Available PROMs to measure QoL in people affected by diabetic foot have limited evidence for their measurement properties. There is no fully suitable PROM. Pending further evidence, 4 PROMs could potentially be recommended for use

Adaptación y validación de un cuestionario para evaluar las prácticas de autocuidado en población infantil sana residente en España

Altres ajuts: Departament de Salut (SLT006/17/00098) de la Generalitat de Catalunya per a la intensificació investigadora en el marc del Pla Estratègic de Recerca i Innovació en Salut (PERIS)Adaptar y validar el Child and Adolescent Self-Care Performance Questionnaire (CASPQ) al contexto de la población infantil sana de 8 a 12 años residente en España y evaluar sus propiedades métricas. Estudio de validación fundamentado en la Teoría Clásica de los Tests. Cuatro centros educativos participantes en el programa «Salut i Escola» de un centro de atención primaria de Barcelona (España). Un total de 498 alumnos y alumnas de educación primaria participaron en el estudio durante los primeros seis meses de 2016. Se realizó la adaptación cultural del cuestionario. Se evaluó el proceso de respuesta, la estructura factorial y se analizaron las relaciones de las puntuaciones del CASPQ con las del cuestionario KIDSCREEN-27. Asimismo, se evaluaron la consistencia interna y la reproducibilidad de las puntuaciones. Se obtuvieron 489 cuestionarios. El análisis factorial confirmatorio de su estructura teórica mostró un ajuste suficiente. Se observó una asociación positiva entre las puntuaciones del cuestionario y las del KIDSCREEN-27. La consistencia interna global fue satisfactoria; no obstante, la de cada factor fue marginal o moderada. La reproducibilidad de las puntuaciones fue óptima. El CASPQ adaptado a la población infantil sana de 8 a 12 años muestra unas propiedades métricas adecuadas y similares a las del cuestionario original. Por ello, es un instrumento útil para evaluar las prácticas de autocuidado y planificar intervenciones dirigidas a su promoción

Health-related quality of life in primary school children: a cross-sectional study

Antecedentes: la calidad de vida relacionada con la salud (CRVS) es un constructo esencial en la salud de la persona. Esta ha sido ampliamente estudiada en niños con enfermedades crónicas; sin embargo, los estudios en niños sanos son escasos. Objetivo: analizar la CVRS percibida en escolares de 3º a 6º de Educación Primaria. Metodología: se llevó a cabo en cuatro centros educativos de Barcelona (España) en 2015. Su participación fue voluntaria, previo consentimiento informado de los padres. Se excluyeron del estudio aquellos alumnos y alumnas que estaban diagnosticados de un problema de salud crónico. No se excluyeron los alumnos y las alumnas que padecían un problema de salud agudo (duración inferior a tres meses). Se autoadministró en grupo el cuestionario KIDSCREEN-27 en su versión para niños y adolescentes. Resultados: en total 489 alumnos respondieron el cuestionario KIDSCREEN-27. Las puntuaciones fueron superiores a las estandarizadas para población europea y en determinadas dimensiones se asociaban de manera negativa con la edad. El porcentaje de alumnos con una CVRS percibida baja en determinadas dimensiones fue sustancialmente relevante, especialmente en "bienestar físico". Conclusiones: la utilización de un instrumento multidimensional ha permitido identificar cuáles son las dimensiones de la CVRS susceptibles de mejora en diferentes grupos de edad. La CVRS es un importante indicador de salud y puede servir para planificar, desarrollar y evaluar intervenciones enfermeras de promoción de la salud y como punto de partida para futuras investigaciones sobre sus factores determinantes

Research on missed nursing care during the COVID-19 pandemic: A scoping review

COVID-19; Atenció d'infermeria perduda; Atenció al pacientCOVID-19; Atención de enfermería perdida; Atención al pacienteCOVID-19; Missed nursing care; Patient careAbstract Background: Missed nursing care is defined as care that is delayed, partially completed, or not completed at all. The scenario created by the COVID-19 pandemic may have influenced multifactorial determinants related to the care environment, nursing processes, internal processes, and decision-making processes, increasing missed nursing care. Aim: This scoping review aimed to establish the quantity and type of research undertaken on missed nursing care during the COVID-19 pandemic. Methods: This review was conducted following the Joanna Briggs Institute methodology for scoping reviews. We searched CINAHL, MEDLINE, Scopus, two national and regional databases, two dissertations and theses databases, a gray literature database, two study registers, and a search engine from November 1, 2019, to March 23, 2023. We included quantitative, qualitative, and mixed studies carried out in all healthcare settings that examined missed nursing care during the COVID-19 pandemic. Language restrictions were not applied. Two independent reviewers conducted study selection and data extraction. Disagreements between the reviewers were resolved through discussion or with an additional reviewer. Results: We included 25 studies with different designs, the most common being acute care cross-sectional survey designs. Studies focused on determining the frequency and reasons for missed nursing care and its influence on nurses and organizational outcomes. Linking Evidence to Action: Missed nursing care studies during the COVID-19 pandemic were essentially nurses-based prevalence surveys. There is an urgent need to advance the design and development of longitudinal and intervention studies, as well as to broaden the focus of research beyond acute care. Further research is needed to determine the impact of missed nursing care on nursing-sensitive outcomes and from the patient's perspective

Multidimensional instruments with an integral approach to identify frailty in community-dwelling people: protocol for a systematic psychometric review

Introduction An increasing number of investigations highlight the complex nature of frailty; therefore, the use of multidimensional assessment instruments could be useful in clinical decision-making. Frail people are found mainly in the community setting which is why this is the ideal environment for early screening and intervention. For this purpose, it is necessary to have valid, time-effective and easy-to-use frailty assessment instruments. The aim of this review is to critically appraise, compare and summarise the quality of the measurement properties of all multidimensional instruments with an integral approach to identify frailty in community-dwelling people. Methods and analysis Medline, Psychological Information Database (PsycINFO) and Cumulative Index to Nursing and Allied Health Literature (CINAHL) will be searched from their inception dates. We will also conduct searches in databases of grey literature. No limits will be applied for language. A highly sensitive validated search filter will be used for finding studies on measurement properties. An additional search including the names of the instruments found in the initial search will also be undertaken. Studies aiming at the development of a measurement instrument, the evaluation of one or more measurement properties or the evaluation of its interpretability will be included. The instrument should have an integral approach (physical, psychological and social) and it should measure all three domains. The context of use should be a community setting. Two reviewers independently will screen the references and assess the risk of bias by consensus-based standards for the selection of health measurement instruments checklist. To assess the overall evidence for the measurement properties of the identified instruments, the results of the different studies, adjusted for their methodological quality, will be combined. Ethics and dissemination Ethical approval and patient consent are not required as this is a psychometric review based on published studies. The results of this review will be disseminated at conferences and published in an international peer-reviewed journal. PROSPERO registration number CRD42019120212

Adaptación y validación del cuestionario “Child and Adolescent Self-Care Performance Questionnaire” para evaluar las prácticas de autocuidado de la población infantil sana de 8 a 12 años residente en España

[spa] INTRODUCCIÓN: Las prácticas de autocuidado son esenciales para promover y mantener la salud. Su adopción en épocas tempranas de la vida es esencial para lograr una vida adulta activa y saludable. No se han identificado instrumentos de medida de las prácticas de autocuidado en población infantil sana española. Disponer de instrumentos que permitan evaluarlas de una manera fiable y válida permitirá identificar posibles déficits y facilitará la planificación de intervenciones dirigidas a su promoción. OBJETIVO: Adaptar el cuestionario Child and Adolescent Self-Care Performance (CASPQ) al contexto de la población infantil sana de 8 a 12 años residente en España y evaluar sus propiedades métricas. METODOLOGÍA: Se realizó la traducción, la retrotraducción y una prueba piloto de cuestionario que estaba formado por 35 ítems. Durante los primeros seis meses de 2016, 498 alumnos y alumnas de educación primaria de cuatro centros educativos de Cataluña (España) participaron de forma voluntaria en el estudio. Se evaluó el proceso de respuesta, la capacidad discriminativa de los ítems, la estructura factorial y se analizaron las relaciones de las puntuaciones del cuestionario adaptado con las del cuestionario KIDSCREEN-27, que mide la calidad de vida relacionada con la salud (CVRS). Asimismo, se evaluaron la consistencia interna y la estabilidad temporal de las puntuaciones. RESULTADOS: De los 498 participantes, 489 (82%) respondieron los 35 ítems. Los ítems del cuestionario presentaron una capacidad discriminativa óptima. El análisis factorial confirmatorio de su estructura teórica de tres factores mostró un ajuste suficiente. La consistencia interna global de las puntuaciones fue satisfactoria, no obstante, la de las puntuaciones de cada factor fue marginal o moderada. Se observó una asociación positiva entre las puntuaciones del cuestionario adaptado y la CVRS. Las puntuaciones de cada uno de los factores del cuestionario mostraron una estabilidad temporal óptima. CONCLUSIONES: El cuestionario CASPQ adaptado en su versión para población residente en España, permite medir de forma fiable y válida el desarrollo de las prácticas de autocuidado en la población infantil sana de 8 a 12 años y muestra propiedades métricas aceptables y similares a las del cuestionario original. El CASPQ es un instrumento útil para identificar posibles déficits y facilitar la planificación de intervenciones dirigidas a la promoción de la salud. Se debe continuar acumulando pruebas de su validez en otros contextos y desarrollar estudios que permitan conocer su sensibilidad a los cambios organizativos y a las estrategias de promoción de la salud.[eng] INTRODUCTION: Self-care practices are essential to promote and to mantain health. Its adoption in early times of life is essential for a healthy and active adult life. No instruments to measure self-care practices have been identified in Spanish healthy children. OBJECTIVE: To adapt the Child and Adolescent Self-care Performance Questionnaire (CASPQ) to the context of Spanish healthy children from 8 to 12 years old and to assess their metric properties. METHODOLOGY: We carried out the translation, the back translation and a pilot test of the questionnaire which consisted of 35 items. During the first six months of 2016, 498 primary school pupils from four educational centers in Catalonia (Spain) participated voluntarily in the study. We evaluated the response process, the discriminative validity of items, the factor structure, and we analysed the relationship of the scores of the adapted questionnaire between the scores of the KIDSCREEN-27 questionnaire. This questionnaire measures health-related quality of life (HRQL). Were also evaluated the internal consistency and temporal stability of the scores. RESULTS: Of the 498 participants, 489 (82%) answered all 35 items. The items of the questionnaire presented an optimal discriminative validity. The confirmatory factor analysis of its theoretical structure of three factors showed a sufficient fit. The overall internal consistency of the scores was satisfactory. Nevertheless, the internal consistency of scores for each factor was marginal or moderate. A positive association was observed between the scores of the adapted questionnaire and HRQoL. The factors’ scores of the questionnaire showed an optimal temporal stability. CONCLUSIONS: The CASPQ adapted in its version for Spanish population allows a reliable and valid measurement of the development of self-care practices in healthy children aged 8 to 12 years and shows acceptable metric properties similar to those of the original questionnaire. It is necessary to continue to accumulate evidence of its validity in other contexts and develop studies that allow to know its sensitivity to organizational changes and strategies for health promotion

Multidimensional instruments with an integral approach to identify frailty in community-dwelling people: protocol for a systematic psychometric review

Community-dwelling; Frailty; Psychometrics; ScreeningVivienda comunitaria; Fragilidad; Psicometría; RevisiónVivenda comunitària; Fragilitat; Psicometria; RevisióIntroduction An increasing number of investigations highlight the complex nature of frailty; therefore, the use of multidimensional assessment instruments could be useful in clinical decision-making. Frail people are found mainly in the community setting which is why this is the ideal environment for early screening and intervention. For this purpose, it is necessary to have valid, time-effective and easy-to-use frailty assessment instruments. The aim of this review is to critically appraise, compare and summarise the quality of the measurement properties of all multidimensional instruments with an integral approach to identify frailty in community-dwelling people. Methods and analysis Medline, Psychological Information Database (PsycINFO) and Cumulative Index to Nursing and Allied Health Literature (CINAHL) will be searched from their inception dates. We will also conduct searches in databases of grey literature. No limits will be applied for language. A highly sensitive validated search filter will be used for finding studies on measurement properties. An additional search including the names of the instruments found in the initial search will also be undertaken. Studies aiming at the development of a measurement instrument, the evaluation of one or more measurement properties or the evaluation of its interpretability will be included. The instrument should have an integral approach (physical, psychological and social) and it should measure all three domains. The context of use should be a community setting. Two reviewers independently will screen the references and assess the risk of bias by consensus-based standards for the selection of health measurement instruments checklist. To assess the overall evidence for the measurement properties of the identified instruments, the results of the different studies, adjusted for their methodological quality, will be combined. Ethics and dissemination Ethical approval and patient consent are not required as this is a psychometric review based on published studies. The results of this review will be disseminated at conferences and published in an international peer-reviewed journal

The Tilburg Frailty Indicator : A psychometric systematic review

Background: The Tilburg Frailty Indicator (TFI) is one of the most prominent multidimensional frailty assessment instruments. This review aimed to critically appraise and summarise its measurement properties. Methods: Reports were eligible if they included results of studies aimed at developing the TFI or evaluating its measurement properties. We performed a literature search in MEDLINE, CINAHL, and PsycINFO databases from their inception until December 8, 2021. We also searched grey literature databases. We assessed the methodological quality of the included studies using the "COSMIN Risk of Bias". The measurement properties were evaluated using specific criteria. We graded the quality of the evidence using a GRADE approach. Results: Sixty-three studies were included. We found moderate sufficient evidence for TFI content validity, although it is still insufficient for the comprehensiveness of its items. TFI construct validity was based on sufficient evidence from two studies of its structural validity as well as multiple hypothesis-testing for construct validity studies with inconsistent results. We did not find any studies that assessed cross-cultural validity. Only one of TFI's three dimensions showed sufficient evidence for the internal consistency of its scores, and results in test-retest reliability were inconsistent. The TFI showed high sufficient concurrent validity with the comprehensive geriatric assessment. We identified several studies assessing its predictive validity for adverse frailty-related outcomes, although most of the evidence from these studies was insufficient. We did not find any studies that assessed the responsiveness of TFI scores. Conclusions: The TFI had evidence gaps in several relevant measurement properties. Further research is needed to strengthen its usefulness as a clinical decision-making tool

The Tilburg frailty indicator: a psychometric systematic review

The Tilburg Frailty Indicator (TFI) is one of the most prominent multidimensional frailty assessment instruments. This review aimed to critically appraise and summarise its measurement properties. Methods Reports were eligible if they included results of studies aimed at developing the TFI or evaluating its measurement properties. We performed a literature search in MEDLINE, CINAHL, and PsycINFO databases from their inception until September 17, 2020. We also searched grey literature databases. We assessed the methodological quality of the included studies using the 'COSMIN Risk of Bias'. The measurement properties were evaluated using specific criteria. We graded the quality of the evidence using a GRADE approach. Results Fifty-five studies were included. We found moderate sufficient evidence for TFI content validity, although it is still insufficient for the comprehensiveness of its items. TFI construct validity was based on sufficient evidence from a single study of its structural validity as well as multiple hypothesis-testing for construct validity studies with inconsistent results. We did not find any studies that assessed cross-cultural validity. The TFI showed high sufficient concurrent validity with the comprehensive geriatric assessment. We identified several studies assessing its predictive validity for adverse frailty-related outcomes, although most of the evidence from these studies was insufficient. We did not find any studies that assessed the responsiveness of TFI scores. Conclusions The TFI is a simple measurement instrument that may be helpful in the assessment of frailty. However, more studies are needed to strengthen its usefulness as a clinical decision-making tool