9 research outputs found

    Reflections on the Data Governance Act

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    The European Union (EU) has been pursuing a new strategy under the umbrella label of digital sovereignty. Data is an important element in this strategy. To this end, a specific Data Governance Act was enacted in 2022. This new regulation builds upon two ideas: reuse of data held by public sector bodies and voluntary sharing of data under the label of data altruism. This short commentary reviews the main content of the new regulation. Based on the review, a few points are also raised about potential challenges.Comment: Digital Society, vol. 2, no. 1, pp. 1-1

    Prevalence, associated factors and outcomes of pressure injuries in adult intensive care unit patients: the DecubICUs study

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    Funder: European Society of Intensive Care Medicine; doi: http://dx.doi.org/10.13039/501100013347Funder: Flemish Society for Critical Care NursesAbstract: Purpose: Intensive care unit (ICU) patients are particularly susceptible to developing pressure injuries. Epidemiologic data is however unavailable. We aimed to provide an international picture of the extent of pressure injuries and factors associated with ICU-acquired pressure injuries in adult ICU patients. Methods: International 1-day point-prevalence study; follow-up for outcome assessment until hospital discharge (maximum 12 weeks). Factors associated with ICU-acquired pressure injury and hospital mortality were assessed by generalised linear mixed-effects regression analysis. Results: Data from 13,254 patients in 1117 ICUs (90 countries) revealed 6747 pressure injuries; 3997 (59.2%) were ICU-acquired. Overall prevalence was 26.6% (95% confidence interval [CI] 25.9–27.3). ICU-acquired prevalence was 16.2% (95% CI 15.6–16.8). Sacrum (37%) and heels (19.5%) were most affected. Factors independently associated with ICU-acquired pressure injuries were older age, male sex, being underweight, emergency surgery, higher Simplified Acute Physiology Score II, Braden score 3 days, comorbidities (chronic obstructive pulmonary disease, immunodeficiency), organ support (renal replacement, mechanical ventilation on ICU admission), and being in a low or lower-middle income-economy. Gradually increasing associations with mortality were identified for increasing severity of pressure injury: stage I (odds ratio [OR] 1.5; 95% CI 1.2–1.8), stage II (OR 1.6; 95% CI 1.4–1.9), and stage III or worse (OR 2.8; 95% CI 2.3–3.3). Conclusion: Pressure injuries are common in adult ICU patients. ICU-acquired pressure injuries are associated with mainly intrinsic factors and mortality. Optimal care standards, increased awareness, appropriate resource allocation, and further research into optimal prevention are pivotal to tackle this important patient safety threat

    Henkilötietojen käsittelyn läpinäkyvyys ja joukkoliikenteen mobiilisovellukset

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    Joukkoliikenteen käyttäminen on monelle kansalaiselle välttämättömyys, joten joukkoliikenteen mobiilisovelluksien toiminnan tulee olla avointa ja luotettavaa. Tässä artikkelissa tutkimme henkilötietojen käsittelyn läpinäkyvyyden toteutumista suomalaisissa joukkoliikenteen mobiilisovelluksissa havainnoimalla empiirisesti sovellusten tietosuojaselosteiden saatavuutta ja sisältöjä sekä analysoimalla teknisillä työvälineillä sovellusten tekemiä tietojen siirtoja. Henkilötietojen käsittelyn läpinäkyvyydessä vaikuttaisi tutkimuksemme perusteella olevan selkeitä puutteita: yli kolmella neljäsosalla tutkituista neljästätoista sovelluksesta ei ollut helposti saatavilla sellaista tietosuojaselostetta, joka kuvaisi henkilötietojen käsittelyä kyseisessä sovelluksessa. Havaitsimme myös, että osa sovelluksista lähetti henkilötietoja kolmansille osapuolille ja Euroopan talousalueen ulkopuolelle, vaikka sovellusten tietosuojaselosteissa ei tiedotettu tästä selkeästi käyttäjälle

    Arctic childhood in data-driven culture: Wearable technology and children’s right to privacy in Finland

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    The article discusses the definition of ‘arctic childhood’: how it affects the ideal of childhood in the Arctic countries while differentiating it from understandings of childhood in more temperate climates. ‘Arctic childhood’ offers novel viewpoints to the concept of childhood. It grants agency to the non-human world: environment, weather and design solutions such as clothes and wearable technology. It also highlights how these shape the concept of childhood in the Arctic and beyond. The article focuses on wearable technology, which brings new legal issues to considerations of childhood in data-driven culture. The central argument is two-fold. As design solutions, wearable technology may preserve the ideal of the active child, essential to Arctic and Finnish childhoods. Legally, however, there are some issues: since wearable technology is designed to bring forth and share with others the vital functions of the child’s body, it raises concerns about children’s fundamental right to privacy and data protection. By bringing together fashion studies and the doctrinal study of law, and by using wearable technology as an example, the article argues that multidisciplinary approaches are needed when new technologies designed to track and monitor individuals are offered to minors in the name of staying healthy

    Correction to: Prevalence, associated factors and outcomes of pressure injuries in adult intensive care unit patients: the DecubICUs study (Intensive Care Medicine, (2021), 47, 2, (160-169), 10.1007/s00134-020-06234-9)

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    The original version of this article unfortunately contained a mistake. The members of the ESICM Trials Group Collaborators were not shown in the article but only in the ESM. The full list of collaborators is shown below. The original article has been corrected
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