What the pediatric endocrinologist needs to know about skeletal dysplasia, a primer

Children with skeletal dysplasia are frequently referred to pediatric endocrinologists due to short stature. These children may present with disproportionate growth or medical histories that point to a skeletal dysplasia. This primer will discuss when to be concerned about skeletal dysplasia, the initial steps in evaluation for a skeletal dysplasia, and new therapies that are either recently approved or in development

How can continuing professional development better promote shared decision-making? : perspectives from an international collaboration

Background: Shared decision-making is not widely implemented in healthcare. We aimed to set a research agenda about promoting shared decision-making through continuing professional development. Methods: Thirty-six participants met for two days. Results: Participants suggested ways to improve an environmental scan that had inventoried 53 shared decisionmaking training programs from 14 countries. Their proposed research agenda included reaching an international consensus on shared decision-making competencies and creating a framework for accrediting continuing professional development initiatives in shared decision-making. Conclusions: Variability in shared decision-making training programs showcases the need for quality assurance frameworks

OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions

Objective. The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials. Methods. A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements. Results. OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains. Conclusion. A revised core domain set will undergo further consensus-building