Principles of data management and sharing at European Research Infrastructures

Under the umbrella of the BioMedBridges project, fourteen research infrastructures in the biological, biomedical and environmental sciences developed commonly agreed principles of data management and sharing. The document makes key recommendations on how data management and sharing via the research infrastructures can be supported and encouraged: The RIs encourage data sharing and reuse and support the notion that public funders should encourage Open Access to data from publicly funded research where possible. Some data may only be shared under certain conditions and with appropriate safekeeping mechanisms in place, such as personally identifiable data, data subject to ethical or legal restrictions, or restrictions for intellectual property protection. To encourage data sharing, systematic reward and recognition mechanisms are necessary. Proposals for publicly funded research at RIs should include a data management plan concerning the deposition of data in long-term archives that addresses specific resources and activities (including standardisation of data production and curation/annotation). Funding for tools and activities connected to data deposition must be available. Systems, services and resources must be in place to facilitate straightforward data deposition by researchers, including support concerning the necessary data use agreements and consent forms for data with data protection or intellectual property requirements. Systems are also needed to capture and track data provenance and use. To ensure necessary trust by data providers or depositors, RIs must guarantee high standards of security and traceability

Knowledge, attitudes, behavioral and organizational factors of health professions students for a competent smoking cessation practice: An instrument adaptation and psychometric validation study in Spanish and English samples

Background: To improve smoking cessation, training of health professions students is essential. However, no specific instrument is available to assess factors that may affect students' learning about smoking cessation practice. Aim: To adapt and validate the Knowledge, Attitudes, Behaviors and Organization questionnaire in the population of undergraduate health professions students. Design: Methodological research. Methods: The researchers conducted this study with 511 Spanish and 186 English health professions students from four different universities. We used a four-step approach: 1) adaptation of the items to the target population and validation of the content by a panel of experts; 2) a pilot study to test face validity; 3) linguistic adaptation of the Spanish version to English; and 4) the psychometric assessment based on construct validity, criterion validity and internal consistency. Results: Exploratory factor analysis revealed four subscales for the Spanish version, namely ‘Individual knowledge and skills’, ‘Individual attitudes and beliefs’, ‘Organizational support’ and ‘Organizational resources’, which accounted for 85.1% of the variance. Confirmatory factor analysis in the holdout Spanish and English samples revealed adequate goodness-of-fit values, supporting the factor structure. Hypotheses testing demonstrated significant differences by capacitation in smoking cessation interventions and degree courses, providing further evidence regarding construct validity. All the subscales correlated positively with the criterion variables (5 A’s smoking cessation model), except for the ‘Organizational resources’ subscale, which was not significantly correlated with the 5 A's. The overall Cronbach’s alpha was.83 for the Spanish version and.88 for the English one. Conclusions: Our results provide empirical support for the use of the Knowledge, Attitudes, Behaviors and Organization questionnaire for Students as a reliable and valid instrument to assess knowledge, attitudes, behaviors and organization perceptions in health professions students, which is essential for competent smoking cessation practice. Interestingly, ‘Organizational resources’ subscale presented the lowest correlations among factors and did not correlate with any component of the 5 A's, suggesting the need of enhancing students' responsibility and involvement during their internships, as well as the interest of some organizations

Online purchase intention of generation z: an approach from theory of planned behavior and roles of shopping experience, Graduate thesis, Chuyên ngành Quản trị kinh doanh

68 p.A multigroup analysis of online shopping experience as control variables was also tested. Research results show that attitude, subjective norms, behavioral control and online trust have an impact on online purchase intention. In particular, perceived risk did not affect online purchase intention. Besides, the thesis also confirms the role of online shopping experience as control variables. These results kindly contribute to theoretical and practical bricks in the construction of determinants of purchase intention and multi-group analysis for future consideration about Generation

Promoting export of rice to ghana market at vilaconic joint stock company : Khóa luận tốt nghiệp, chuyên ngành Quản trị Kinh doanh

89 p.This research hopes to have a better view and understanding of Vilaconic Corporation's rice export business to the Ghana market. And provide some solutions and recommendations to promote the rice export business to the Ghana market of Vilaconic Joint Stock Company in the coming futur

Analysis of digital marketing activities of topzone high-end technology store chain : Khóa luận tốt nghiệp, chuyên ngành Quản trị Kinh doanh

86 p.Find out the current state of digital marketing at Topzone high-end technology store chain. Evaluate And Make Recommendations For Digital Marketing Of TopZone High-End Technology Store Chai

A framework for quality management in the biomedical research infrastructures (BMS RIs)

Thirteen biomedical research infrastructures (BMS RIs) have been prioritised by the European Strategy Forum on Research Infrastructures as ESFRI Projects or ESFRI Landmarks. This working paper describes a core set of eight principles on quality management recognised by all BMS RIs

Effective Information Provision About the Side Effects of Treatment for Malignant Lymphoma: Protocol of a Randomized Controlled Trial Using Video Vignettes

Background: Informing patients with cancer about the possible implications of prospective treatment is a crucial yet challenging task. Unfortunately, patients' recall of medical information is generally poor and their information needs are not met. Effective information giving entails that oncologists help patients understand and recall the implications of their treatment, meanwhile fostering a trusting physician-patient relationship. Communication strategies that are often suggested to be effective are structuring and tailoring (cognition-oriented) but also are oncologists' expressions of caring or empathy (affect-oriented). Objective: The aim of this study is to provide evidence concerning the pathways linking physician communication to (improved) consultation outcomes for patients. More specifically, the aim is to determine the effects of information structuring and information tailoring, combined with physician caring, on information recall, satisfaction with information, and trust in the physician (primary objective) and on symptom distress (secondary objective). Methods: A randomized controlled trial, systematically testing the effects of information structuring and information tailoring, each combined with caring, in 2 video-vignette experiments (2×2 and 2×2×2 design). Using an online survey platform, participants will be randomly allocated (blinded) to 1 of 12 conditions in which they are asked to view a video vignette (intervention) in which an oncologist discusses a treatment plan for malignant lymphoma with a patient. The independent variables of interest are systematically varied across conditions. The outcome measures are assessed in a survey, using validated instruments. Study participants are (former) patients with cancer and their relatives recruited via online panels and patient organizations. This protocol discusses the trial design, including the video-vignette design, intervention pretesting, and a pilot study. Results: Data collection has now been completed, and preliminary analyses will be available in Spring 2019. A total of 470 participants completed the first part of the survey and were randomized to receive the intervention. Conclusions: The results of the proposed trial will provide evidence concerning the pathways linking physician information, giving skills to (improved) consultation outcomes for patients

Stahlkonstruktionen mit Wasserkuehlung Abschlussbericht. Studie. Projekt 86

SIGLETIB: AC 8348 / FIZ - Fachinformationszzentrum Karlsruhe / TIB - Technische InformationsbibliothekDEGerman

Effective information provision about the side effects of treatment for malignant lymphoma: protocol of a randomized controlled trial using video vignettes.

Background: Informing patients with cancer about the possible implications of prospective treatment is a crucial yet challenging task. Unfortunately, patients’ recall of medical information is generally poor and their information needs are not met. Effective information giving entails that oncologists help patients understand and recall the implications of their treatment, meanwhile fostering a trusting physician-patient relationship. Communication strategies that are often suggested to be effective are structuring and tailoring (cognition-oriented) but also are oncologists’ expressions of caring or empathy (affect-oriented). Objective: The aim of this study is to provide evidence concerning the pathways linking physician communication to (improved) consultation outcomes for patients. More specifically, the aim is to determine the effects of information structuring and information tailoring, combined with physician caring, on information recall, satisfaction with information, and trust in the physician (primary objective) and on symptom distress (secondary objective). Methods: A randomized controlled trial, systematically testing the effects of information structuring and information tailoring, each combined with caring, in 2 video-vignette experiments (2×2 and 2×2×2 design). Using an online survey platform, participants will be randomly allocated (blinded) to 1 of 12 conditions in which they are asked to view a video vignette (intervention) in which an oncologist discusses a treatment plan for malignant lymphoma with a patient. The independent variables of interest are systematically varied across conditions. The outcome measures are assessed in a survey, using validated instruments. Study participants are (former) patients with cancer and their relatives recruited via online panels and patient organizations. This protocol discusses the trial design, including the video-vignette design, intervention pretesting, and a pilot study. Results: Data collection has now been completed, and preliminary analyses will be available in Spring 2019. A total of 470 participants completed the first part of the survey and were randomized to receive the intervention

Developing a digital communication training tool on information-provision in oncology: uncovering learning needs and training preferences

Background: Adequate information-provision forms a crucial component of optimal cancer care. However, information-provision is particularly challenging in an oncology setting. It is therefore imperative to help oncological health care practitioners (HCP) optimise their information-giving skills. New forms of online education, i. e. e-learning, enable safe and time and location independent ways of learning, enhancing access to continuous learning for HCP. As part of a user-centred approach to developing an e-learning to improve information-giving skills, this study aims to: 1) uncover the learning needs of oncological healthcare providers related to information- provision, and 2) explore their training preferences in the context of clinical practice. Methods: Focus groups and interviews were organised with oncological HCP (medical specialists and clinical nurse specialists) addressing participants’ learning needs concerning information- provision and their training preferences with respect to a new digital training tool on this issue. All sessions were audiorecorded and transcribed verbatim. Using an inductive approach, transcripts were independently coded by three researchers and discussed to reach consensus. Main themes were summarised and discussed. Results: Four focus group sessions (total n = 13) and three interviews were conducted. The first theme concerned the patient outcomes HCP try to achieve with their information. We found HCP to mainly strive to promote patients’ understanding of information. The second theme concerned HCP reported strategies and challenges when trying to inform their patients. These entailed tailoring of information to patient characteristics, structuring of information, and dealing with patients’ emotions. Regarding HCP training preferences, an e-learning should be neatly connected to clinical practice. Moreover, participants desired a digital training to allow for feedback on their own (videotaped) information-giving skills from peers, communication experts, and/or patients; to monitor their progress and to tailored the training to individual learning needs. Conclusions: An e-learning for improvement of information-giving skills of oncological HCP should be aimed at the transfer of skills to clinical practice, rather than at enhancing knowledge. More over, an e-learning is probably most effective when the facilitates individual learning needs, supports feedback on competence level and improvement, and allows input from significant others (experts, peers, or patients). (aut. ref.