86 research outputs found

    Experiencia de un análisis clínico de la actividad en la Biblioteca Nacional de Francia: prácticas de transmisión, prácticas de orientación al lector

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    Description of an evaluation of performance of the Public Services Section personnel at the National Library of France, based on the research methodology known as clinical analysis of the activity, branch of Work Psychology, widely used in France. It takes as its aim, the development of professionals as subjects and the development of the groups formed based on the review of their professional exercise. The work is sustained in image records of the professional practices, recorded by an external researcher, which will give place to debates, reflections and controversies between the participants in order to enrich, rationalize and make such activities objective for personal and institutional benefit

    Living with a Crucial Decision: A Qualitative Study of Parental Narratives Three Years after the Loss of Their Newborn in the NICU

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    BACKGROUND: The importance of involving parents in the end-of-life decision-making-process (EOL DMP) for their child in the neonatal intensive care unit (NICU) is recognised by ethical guidelines in numerous countries. However, studies exploring parents' opinions on the type of involvement report conflicting results. This study sought to explore parents' experience of the EOL DMP for their child in the NICU. METHODS: The study used a retrospective longitudinal design with a qualitative analysis of parental experience 3 years after the death of their child in four NICUs in France. 53 face-to-face interviews and 80 telephone interviews were conducted with 164 individuals. Semi-structured interviews were conducted to explore how parents perceived their role in the decision process, what they valued about physicians' attitudes in this situation and whether their long-term emotional well being varied according to their perceived role in the EOL DMP. FINDINGS: Qualitative analysis identified four types of perceived role in the DMP: shared, medical, informed parental decision, and no decision. Shared DM was the most appreciated by parents. Medical DM was experienced as positive only when it was associated with communication. Informed parental DM was associated with feelings of anxiousness and abandonment. The physicians' attitudes that were perceived as helpful in the long term were explicit sharing of responsibility, clear expression of staff preferences, and respectful care and language toward the child. INTERPRETATION: Parents find it valuable to express their opinion in the EOL DMP of their child. Nonetheless, they do need continuous emotional support and an explicit share of the responsibility for the decision. As involvement preferences and associated feelings can vary, parents should be able to decide what role they want to play. However, our study suggests that fully autonomous decisions should be misadvised in these types of tragic choices

    Volume 98 Issue 5, pp. 899-1054

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    ECOLOGY-EPIDEMIOLOGY-BEHAVIOR Increased Surfacing Behavior in Longnose Killifish Infected by Brain-Encysting Trematode. B. L. FREDENSBORG and A. N. LONGORIA - 899 Spatial Structure of Helminth Communities in the Golden Grey Mullet, Liza aurata (Actinopterygii: Mugilidae), From the Western Mediterranean. RAUL MIGUEZ-LOZANO, TRINIDAD V. PARDO-CARRANZA, ISABEL BLASCO-COSTA, and JUAN ANTONIO BALBUENA - 904 Hepatozoon Infection Prevalence in Four Snake Genera: Influence of Diet, Prey Parasitemia Levels, or Parasite Type? BEATRIZ TOME, JOAD P. M. C. MAIA, and D. JAMES HARRIS - 913 ECTOPARASITOLOGY Molecular Identification and Description of the Female of Nothoaspis reddelli (Ixodida: Argasidae) From a Cave in Southeastern Mexico. CARMEN GUZMAN-CORNEJO, RICARDO PAREDES-LEON, MARCELO B. LABRUNA, SANTIAGO NAVA, and JOSE M. VENZAL - 918 Prevalence of Hemoproteus iwa in Galapagos Great Frigatebirds (Fregata minor) and Their Obligate Fly Ectoparasite (01- Jersia spiniJera). IRIS I. LEVIN and PATRICIA G. PARKER - 924 Variable Microsatellite Loci for Population Genetic Analysis of Old World Monkey Lice (Pedicinus sp.). KATLYN SCHOLL, JULIE M. ALLEN, FABIAN H. LEENDERTZ, COLIN A. CHAPMAN, and DAVID L. REED - 930 FUNCTIONAL MORPHOLOGY Ultrastructural Study of Vitellogenesis of Aphallus tubarium (Rudolphi, 1819) Poche, 1926 (Digenea: Cryptogonimidae), an Intestinal Parasite of Dentex dentex (Pisces: Teleostei). SAMUEL GREANI, YANN QUILICHINI, JOSEPHINE FOATA, and BERNARD MARCHAND - 938 IMMUNOLOGY Seroprevalence of Toxoplasma gondii Infection in Domestic Horses in Durango State, Mexico. C. ALVARADO-ESQUIVEL, S. RODRIGUEZ-PENA, I. VILLENA, and J. P. DUBEY - 944 INVERTEBRATE-PARASITE RELATIONSHIPS Excystation Signals Do Not Isolate Gregarine Gene Pools: Experimental Excystation of Blabericola migrator Among 11 Species of Cockroaches. SHELBY M. STEELE, DEBRA T. CLOPTON, and RICHARD E. CLOPTON - 946 LIFE CYCLES-SURVEY A New Sarcocystis Species (Apicomplexa: Sarcocystidae) From the Rock Gecko Bunopus tuberculatus in Saudi Arabi. A. S. ABDEL-BAKI, H. M. ABDEL-HALEEM, and S. AL-QURAISHY - 951 A Retrospective Study of Abattoir Condemnation Due to Parasitic Infections: Economic Importance in Ahwaz, Southwestern Iran. HASSAN BORJI, MOHAMMAD AZIZZADEH, and MEHRAB KAMELLI - 954 Prevalence of Eimeria Infection in Yaks on the Qinghai-Tibet Plateau of China. HUI DONG, CHUNHUA LI, QIPING ZHAO, JING LI, HONGYU HAN, LIANLIAN JIANG, SHUNHAI ZHU, TING LI, CHUNLIN KONG, BING HUANG, and JINZHONG CAI - 958 Prevalence of Coccidial Infection in Dairy Cattle in Shanghai, China. HUI DONG, QIPING ZHAO, HONGYU HAN, LIANLIAN JIANG, SHUNHAI ZHU, TING LI, CHUNLIN KONG, and BING HUANG - 963 Genetic Sequence Data Identifies the Cercaria of Drepanocephalus spathans (Digenea: Echinostomatidae), a Parasite of the Double-Crested Cormorant (Phalacrocorax auritus), with Notes on Its Pathology in Juvenile Channel Catfish (Ictalurus punctatus). MATT J. GRIFFIN, LESTER H. KHOO, SYLVIE M. QUINIOU, MARY M. O\u27HEAR, LINDA M. POTE, TERRENCE E. GREENWAY, and DAVID J. WISE - 967 SYSTEMATICS-PHYLOGENETICS A New Species of Megalobatrachonema (Nematoda: Kathlaniidae) in Fojia bumui (Squamata: Scincidae) From Papua New Guinea. CHARLES R. BURSEY, STEPHEN R. GOLDBERG, and FRED KRAUS - 973 Two New Species of Schizorchis (Cestoda: Anoplocephalidae) From Leporids (Lagomorpha: Leporidae) in China. KUIZHENG CAI, JIALIN BAI, and SHIEN CHEN - 977 The Genus Guerrerostrongylus (Nematoda: Heligmonellidae) in Cricetid Rodents From the Atlantic Rain Forest of Misiones, Argentina: Emended Description of Guerrerostrongylus zetta (Travassos, 1937) and Description of a New Species. MARIA CELINA DIGIANI, JULIANA NOTARNICOLA, and GRACIELA T. NAVONE - 985 A New Microphallid (Digenea) Species From Lontra provocax (Mammalia: Mustelidae) From Freshwater Environments of Northwestern Patagonia (Argentina). VERONICA R. FLORES, NORMA L. BRUGNI, and CARLA M. POZZI - 992 Description of Riouxgolvania kapapkamui sp. n. (Nematoda: Muspiceoidea: Muspiceidae), a Peculiar Intradermal Parasite of Bats in Hokkaido, Japan. HIDEO HASEGAWA, MASAHIKO SATO, KISHIO MAEDA, and YOSHIKO MURAYAMA - 995 A New Species of Choleoeimeria (Apicomplexa: Eimeriidae) From Meller\u27s Chameleon, Trioceros melleri (Sauria: Chamaeleonidae). CHRIS T. McALLISTER - 1001 A New Species of Eimeria (Apicomplexa: Eimeriidae) From the Northern Myotis, Myotis septentrionalis (Chiroptera: Vespertilionidae), in Oklahoma. CHRIS T. McALLISTER, R. SCOTT SEVILLE, and ZACHARY P. ROEHRS - 1003 A New Spirurid (Nematoda) Parasite From Mormoopid Bats in Mexico. JORGE LUIS PERALTA-RODRIGUEZ, JUAN MANUEL CASPETA-MANDUJANO, and JOSE ANTONIO GUERRERO - 1006 THERAPEUTICS-DIAGNOSTICS Resistance of Rhipicephalus microplus to Amitraz and Cypermethrin in Tropical Cattle Farms in Veracruz, Mexico. AGUSTIN FERNANDEZ-SALAS, ROGER IVAN RODRIGUEZ-VIVAS, and MIGUEL ANGEL ALONSO-DIAZ - 1010 RESEARCH NOTES Seroprevalence Study on Theileria equi and Babesia caballi Antibodies in Horses From Central Province of Saudi Arabia. A. D. ALANAZI, M. S. ALYOUSIF, and M. M. HASSIEB - 1015 Influence of Rangelia vitalii (Apicomplexa: Piroplasmorida) on Copper, Iron and Zinc Bloodstream Levels in Experimentally Infected Dogs, ALEKSANDRO S, DA SILVA, RAQUELI T. FRANC;:A, MARCIO M. COSTA, CARLOS B. V. PAIM, FRANCINE C. PAIM, CLARISSA M. M. SANTOS, ERICO M. M. FLORES, TIAGO L. EILERS, CINTHIA M. MAZZANTI, SILVIA G. MONTEIRO, CARLOS H. DO AMARAL, and SONIA T. A. LOPES - 1018 Plagiorchis elegans (Trematoda) Induces Immune Response in an Incompatible Snail Host Biomphalaria glabrata (Pulmonata: Planorbidae). S. P. DAOUST, M. E. RAU, and J. D. McLAUGHLIN - 1021 Prevalence and Intensity of Fish-Borne Zoonotic Trematodes in Cultured Freshwater Fish From Rural and Urban Areas of Northern Vietnam. NGUYEN VAN DE, THANH HOA LE, and K. D. MURRELL - 1023 Details of the Paranephridial System of a Species of Prohyptiasmus (Cyclocoelidae: Hyptiasminae) From an American Coot, Fulica americana (Rallidae) in Oklahoma. NORMAN O. DRONEN, F. AGUSTIN JIMENEZ, and SCOTT L. GARDNER - 1026 Surface Ultrastructure of the Eggs of Malacopsylla grossiventris and Phthiropsylla agenoris (Siphonaptera: Malacopsyllidae). M. C. EZQUIAGA and M. LARES CHI - 1029 Prevalence of Ancylostoma braziliense in Cats in Three Northern Counties of Florida, United States. JANICE L. LIOTTA, KHUANCHAI N. KOOMPAPONG, JOSEPH P. YAROS, JOSEPH PRULLAGE, and DWIGHT D. BOWMAN - 1032 Obtaining an Isolate of Ancylostoma braziliense From Dogs Without the Need for Necropsy. JANICE L. LIOTTA, ALICE C. Y. LEE, SARP AKSEL, IBRAHIM ALKHALIFE, ALEJANDRO CRUZ-REYES, HEEJEONG YOUN, STEPHEN E. BIENHOFF, and DWIGHT D. BOWMAN - 1034 Obtaining an Isolate of Ancylostoma braziliense From Cats Without the Need for Necropsy. JANICE L. LIOTTA, ALICE C. Y. LEE, KHUANCHAI N. KOOMPAPONG, JOSEPH P. YAROS, JOSEPH PRULLAGE, MICHAEL A. ULRICH, and DWIGHT D. BOWMAN - 1037 Prevalence of Ancylostoma braziliense in Dogs From Alachua and Marion Counties, Florida, United States. JANICE L. LIOTTA, HEEJEONG YOUN, SARP AKSEL, STEPHEN E. BIENHOFF, and DWIGHT D. BOWMAN - 1039 Morphological Differentiation of Eggs of Ancylostoma caninum, Ancylostoma tubaeforme, and Ancylostoma braziliense From Dogs and Cats in the United States. ARACELI LUCIO-FORSTER, JANICE L. LIOTTA, JOSEPH P. YAROS, KAITLYN R. BRIGGS, HUSSNI O. MOHAMMED, and DWIGHT D. BOWMAN - 1041 Molecular and Immunological Characterization of a Novel 32-kDa Secreted Protein of Babesia microti. HIDEO OOKA, MOHAMAD A. TERKAWI, SHINUO CAO, GABRIEL ABOGE, YO UN-KYOUNG GOO, YUZI LUO, YAN LI, YOSHIFUMI NISHIKAWA, IKUO IGARASHI, and XUENAN XUAN - 1045 DNA Barcoding of Schistosome Cercariae Reveals a Novel Sub-Lineage within Schistosoma rodhaini From Ngamba Island Chimpanzee Sanctuary, Lake Victoria. C. J. STANDLEY and J. R. STOTHARD - 1049 Host Susceptibility Is Altered by Light Intensity After Exposure to Parasites. MICHELLE L. STEINAUER and KAITLIN M. BONNER - 1052 ANNOUNCEMENT: Change in Editorship - 903 ERRATUM - 91

    Efficacy of vinblastine in central nervous system Langerhans cell histiocytosis: a nationwide retrospective study

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    <p>Abstract</p> <p>Background</p> <p>Vinblastine (VBL) is the standard treatment for systemic Langerhans cell histiocytosis (LCH), but little is known about its efficacy in central nervous system (CNS) mass lesions.</p> <p>Methods</p> <p>A retrospective chart review was conducted. Twenty patients from the French LCH Study Group register met the inclusion criteria. In brief, they had CNS mass lesions, had been treated with VBL, and were evaluable for radiologic response.</p> <p>Results</p> <p>The median age at diagnosis of LCH was 11.5 years (range: 1-50). Intravenous VBL 6 mg/m<sup>2 </sup>was given in a 6-week induction treatment, followed by a maintenance treatment. The median total duration was 12 months (range: 3-30). Eleven patients received steroids concomitantly. Fifteen patients achieved an objective response; five had a complete response (CR: 25%), ten had a partial response (PR: 50%), four had stable disease (SD: 20%) and one patient progressed (PD: 5%). Of interest, four out of the six patients who received VBL without concomitant steroids achieved an objective response. With a median follow-up of 6.8 years, the 5-year event-free and overall survival was 61% and 84%, respectively. VBL was well-tolerated and there were no patient withdrawals due to adverse events.</p> <p>Conclusion</p> <p>VBL, with or without steroids, could potentially be a useful therapeutic option in LCH with CNS mass lesions, especially for those with inoperable lesions or multiple lesions. Prospective clinical trials are warranted for the evaluation of VBL in this indication.</p

    Mutations in DCC cause isolated agenesis of the corpus callosum with incomplete penetrance

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    Brain malformations involving the corpus callosum are common in children with developmental disabilities. We identified DCC mutations in four families and five sporadic individuals with isolated agenesis of the corpus callosum (ACC) without intellectual disability. DCC mutations result in variable dominant phenotypes with decreased penetrance, including mirror movements and ACC associated with a favorable developmental prognosis. Possible phenotypic modifiers include the type and location of mutation and the sex of the individual

    Evolution postnatale clinique et radiologique des ventriculomegalies fœtales isolées et modérées (A propos d'une série de 101 cas)

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    PARIS13-BU Serge Lebovici (930082101) / SudocPARIS-BIUM (751062103) / SudocSudocFranceF
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