Building capacity and identifying appropriate support: how can the EU contribute to securing resources for health systems?

European health systems face increasing challenges and demands, while striving to provide high-quality care. The European Union (‎EU)‎ offers support to complement national efforts, but accessing and utilising it can be challenging for Member States. Austria, Belgium, and Slovenia are collaborating on a multi-country project supported by the EU’s Technical Support Instrument, to create an EU Health Resources Hub. This advisory service aims to help Member States access EU funding instruments for their health needs. This article discusses the project’s goals and early learnings, offering insights that could inform future health funding opportunities and policies in Europe

Patient experience of spontaneous intracranial hypotension (SIH): qualitative interviews for concept elicitation

Abstract Background & objectives Spontaneous intracranial hypotension (SIH) is an underdiagnosed and debilitating condition caused by a spinal cerebrospinal fluid (CSF) leak. Although SIH can lead to substantial morbidity and disability, little data exists about patients’ perspectives. Without hearing directly from patients, our understanding of the full experience of having SIH is limited, as is our ability to identify and use appropriate patient-reported outcome measures (PROMs) within clinical care and research. The purpose of this study was to conduct qualitative interviews with confirmed SIH patients to fully describe their experiences and identify relevant concepts to measure. Methods Patients were recruited from an SIH specialty clinic at a large, U.S.-based healthcare center. Patients undergoing an initial consultation who were ≥ 18 years old, English-speaking, met the International Classification of Headache Disorders-3 criteria for SIH, and had a brain MRI with contrast that was positive for SIH were eligible to participate. During semi-structured qualitative interviews with a trained facilitator, participants were asked to describe their current SIH symptoms, how their experiences with SIH had changed over time, and the aspects of SIH that they found most bothersome. Analysts reviewed the data, created text summaries, and wrote analytic reports. Results Fifteen participants completed interviews. Common symptoms reported by patients included headache, tinnitus, ear fullness/pressure/pain, and neck or interscapular pain. Patients reported that their symptoms worsened over the course of their day and with activity. The most bothersome aspect of SIH was disruption to daily activities and limits to physical activities/exercise, which were severe. With regard to symptoms, the most bothersome and impactful included physical pain and discomfort (including headache), as well as fatigue. Conclusions Patients reported a diverse set of symptoms that were attributed to SIH, with devastating impacts on functioning and high levels of disability. Researchers considering use of PROMs for SIH should consider inclusion of both symptom scales and aspects of functioning, and future work should focus on evaluating the validity of existing measures for this patient population using rigorous qualitative and quantitative methods in diverse samples. Additionally, these data can be used to assist clinicians in understanding the impacts of SIH on patients

Centering the Margins: The Transportation Experience of Underserved Communities

(c)1036342 (wo) 16Transportation systems, as integral parts of human settlements, reflect the societal structures and cultural ideologies influenced predominantly by the dominant race or class. In the absence of prioritizing the transportation needs of underserved communities, transportation systems may perpetuate systematic inequities. This study aims to address the inequities present in current transportation systems by conducting a comprehensive examination of the transportation experiences of individuals belonging to ten specific underserved communities. These communities include eight within the Twin Cities metropolitan region (Latinx, African American, Hmong, people with disabilities, immigrants, people living with HIV, single mothers, and single fathers), as well as two communities in the Greater Minnesota area (transitioning home residents in Fergus Falls and tribal members of the White Earth Nation). This research adopts a mixed-method approach, incorporating both qualitative interviews and quantitative smartphone-based travel behavior surveys. The findings reveal that each community faces distinct transportation barriers, alongside shared themes in transportation inequities such as inadequate public transportation, difficulties related to car use, and the impact of transportation on significant life outcomes. Recommendations for future research and practice are provided

An update on clinical presentation and responses to therapy of patients with hereditary hypophosphatemic rickets with hypercalciuria (HHRH)

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