Heart Failure Monitoring System Based on Wearable and Information Technologies

In Europe, Cardiovascular Diseases (CVD) are the leading source of death, causing 45% of all deceases. Besides, Heart Failure, the paradigm of CVD, mainly affects people older than 65. In the current aging society, the European MyHeart Project was created, whose mission is to empower citizens to fight CVD by leading a preventive lifestyle and being able to be diagnosed at an early stage. This paper presents the development of a Heart Failure Management System, based on daily monitoring of Vital Body Signals, with wearable and mobile technologies, for the continuous assessment of this chronic disease. The System makes use of the latest technologies for monitoring heart condition, both with wearable garments (e.g. for measuring ECG and Respiration); and portable devices (such as Weight Scale and Blood Pressure Cuff) both with Bluetooth capabilitie

Co-designing smart home technology with people with dementia or Parkinson's disease

Involving users is crucial to designing technology successfully, especially for vulnerable users in health and social care, yet detailed descriptions and critical reflections on the co-design process, techniques and methods are rare. This paper introduces the PERCEPT (PERrsona-CEntred Participatory Technology) approach for the co-design process and we analyse and discuss the lessons learned for each step in this process. We applied PERCEPT in a project to develop a smart home toolset that will allow a person living with early stage dementia or Parkinson's to plan, monitor and self-manage his or her life and well-being more effectively. We present a set of personas which were co-created with people and applied throughout the project in the co-design process. The approach presented in this paper will enable researchers and designers to better engage with target user groups in co-design and point to considerations to be made at each step for vulnerable users

Guidelines For Pursuing and Revealing Data Abstractions

Many data abstraction types, such as networks or set relationships, remain unfamiliar to data workers beyond the visualization research community. We conduct a survey and series of interviews about how people describe their data, either directly or indirectly. We refer to the latter as latent data abstractions. We conduct a Grounded Theory analysis that (1) interprets the extent to which latent data abstractions exist, (2) reveals the far-reaching effects that the interventionist pursuit of such abstractions can have on data workers, (3) describes why and when data workers may resist such explorations, and (4) suggests how to take advantage of opportunities and mitigate risks through transparency about visualization research perspectives and agendas. We then use the themes and codes discovered in the Grounded Theory analysis to develop guidelines for data abstraction in visualization projects. To continue the discussion, we make our dataset open along with a visual interface for further exploration

COUNTING ON: Humanizing self-tracked data in a connected world

This thesis explores the evolving role of the Quantified Self and self-tracking culture within personalized healthcare. Health and fitness wearables are proliferating globally. However, wearable device abandonment rates are also surging. Wearables can sometimes be authoritative or punitive when presenting wearers with their biological data. In the past, some devices have even triggered adverse health-related conditions. This thesis proposes an approach to visualizing biological data from wearables, in ways that are coherent, contextual, and humane. It critiques normative data visualizations in commercial wearables and speculates alternate futures for self-tracking to empower individuals to manage their health and well-being autonomously. Through an iterative development process to prototype creation, the author gathers biological data using a consumer wearable device and uses it to propose an information architecture that categorizes the data coherently. The architecture is applied in hand-drawn, domestic, embedded visualization prototypes that present the author’s biological data. Lastly, user interviews are conducted to acquire responses to the prototypes and plan possibilities for future iterations. The purpose of this research is to advocate empathy and compassion in the emerging culture of living with data while considering the intricacies of everyday life, the imperfections of being human, and the need for autonomy in personal data management

KoopaML, a Machine Learning platform for medical data analysis

Machine Learning allows facing complex tasks related to data analysis with big datasets. This Artificial Intelligence branch allows not technical contexts to get benefits related to data processing and analysis. In particular, in medicine, medical professionals are increasingly interested in Machine Learning to identify patterns in clinical cases and make predictions regarding health issues. However, many do not have the necessary programming or technological skills to perform these tasks. Many different tools focus on developing Machine Learning pipelines, from libraries for developers and data scientists to visual tools for experts or platforms to learn. However, we have identified some requirements in the medical context that raise the need to create a customized platform adapted to end-user found in this context. This work describes the design process and the first version of KoopaML, an ML platform to bridge the data science gaps of physicians while automatizing Machine Learning pipelines. The platform is focused on enhanced interactivity to improve the engagement of physicians while still providing all the benefits derived from the introduction of Machine Learning pipelines in medical departments, as well as integrated ongoing training during the use of the tool’s features

Too Cool at School - Understanding Cool Teenagers

Cool can be thought about on three levels; the having of cool things, the doing of cool stuff and the being of cool. Whilst there is some understanding of cool products, the concept, of being cool is much more elusive to designers and developers of systems. This study examines this space by using a set of pre-prepared teenage personas as probes with a set of teenagers with the aim of better understanding what is, and isn’t cool about teenage behaviours. The study confirmed that teenagers are able to rank personas in order of cool and that the process of using personas can provide valuable insights around the phenomenon of cool. The findings confirm that cool is indeed about having cool things but in terms of behaviours cool can be a little bit, but not too, naughty

ICS Materials. Towards a re-Interpretation of material qualities through interactive, connected, and smart materials.

The domain of materials for design is changing under the influence of an increased technological advancement, miniaturization and democratization. Materials are becoming connected, augmented, computational, interactive, active, responsive, and dynamic. These are ICS Materials, an acronym that stands for Interactive, Connected and Smart. While labs around the world are experimenting with these new materials, there is the need to reflect on their potentials and impact on design. This paper is a first step in this direction: to interpret and describe the qualities of ICS materials, considering their experiential pattern, their expressive sensorial dimension, and their aesthetic of interaction. Through case studies, we analyse and classify these emerging ICS Materials and identified common characteristics, and challenges, e.g. the ability to change over time or their programmability by the designers and users. On that basis, we argue there is the need to reframe and redesign existing models to describe ICS materials, making their qualities emerge

The OCareCloudS project: toward organizing care through trusted cloud services

The increasing elderly population and the shift from acute to chronic illness makes it difficult to care for people in hospitals and rest homes. Moreover, elderly people, if given a choice, want to stay at home as long as possible. In this article, the methodologies to develop a cloud-based semantic system, offering valuable information and knowledge-based services, are presented. The information and services are related to the different personal living hemispheres of the patient, namely the daily care-related needs, the social needs and the daily life assistance. Ontologies are used to facilitate the integration, analysis, aggregation and efficient use of all the available data in the cloud. By using an interdisciplinary research approach, where user researchers, (ontology) engineers, researchers and domain stakeholders are at the forefront, a platform can be developed of great added value for the patients that want to grow old in their own home and for their caregivers

An ontology co-design method for the co-creation of a continuous care ontology

Ontology engineering methodologies tend to emphasize the role of the knowledge engineer or require a very active role of domain experts. In this paper, a participatory ontology engineering method is described that holds the middle ground between these two 'extremes'. After thorough ethnographic research, an interdisciplinary group of domain experts closely interacted with ontology engineers and social scientists in a series of workshops. Once a preliminary ontology was developed, a dynamic care request system was built using the ontology. Additional workshops were organized involving a broader group of domain experts to ensure the applicability of the ontology across continuous care settings. The proposed method successfully actively engaged domain experts in constructing the ontology, without overburdening them. Its applicability is illustrated by presenting the co-created continuous care ontology. The lessons learned during the design and execution of the approach are also presented