Information Refinement Technologies for Crisis Informatics: User Expectations and Design Implications for Social Media and Mobile Apps in Crises

In the past 20 years, mobile technologies and social media have not only been established in everyday life, but also in crises, disasters, and emergencies. Especially large-scale events, such as 2012 Hurricane Sandy or the 2013 European Floods, showed that citizens are not passive victims but active participants utilizing mobile and social information and communication technologies (ICT) for crisis response (Reuter, Hughes, et al., 2018). Accordingly, the research field of crisis informatics emerged as a multidisciplinary field which combines computing and social science knowledge of disasters and is rooted in disciplines such as human-computer interaction (HCI), computer science (CS), computer supported cooperative work (CSCW), and information systems (IS). While citizens use personal ICT to respond to a disaster to cope with uncertainty, emergency services such as fire and police departments started using available online data to increase situational awareness and improve decision making for a better crisis response (Palen & Anderson, 2016). When looking at even larger crises, such as the ongoing COVID-19 pandemic, it becomes apparent the challenges of crisis informatics are amplified (Xie et al., 2020). Notably, information is often not available in perfect shape to assist crisis response: the dissemination of high-volume, heterogeneous and highly semantic data by citizens, often referred to as big social data (Olshannikova et al., 2017), poses challenges for emergency services in terms of access, quality and quantity of information. In order to achieve situational awareness or even actionable information, meaning the right information for the right person at the right time (Zade et al., 2018), information must be refined according to event-based factors, organizational requirements, societal boundary conditions and technical feasibility. In order to research the topic of information refinement, this dissertation combines the methodological framework of design case studies (Wulf et al., 2011) with principles of design science research (Hevner et al., 2004). These extended design case studies consist of four phases, each contributing to research with distinct results. This thesis first reviews existing research on use, role, and perception patterns in crisis informatics, emphasizing the increasing potentials of public participation in crisis response using social media. Then, empirical studies conducted with the German population reveal positive attitudes and increasing use of mobile and social technologies during crises, but also highlight barriers of use and expectations towards emergency services to monitor and interact in media. The findings led to the design of innovative ICT artefacts, including visual guidelines for citizens’ use of social media in emergencies (SMG), an emergency service web interface for aggregating mobile and social data (ESI), an efficient algorithm for detecting relevant information in social media (SMO), and a mobile app for bidirectional communication between emergency services and citizens (112.social). The evaluation of artefacts involved the participation of end-users in the application field of crisis management, pointing out potentials for future improvements and research potentials. The thesis concludes with a framework on information refinement for crisis informatics, integrating event-based, organizational, societal, and technological perspectives

PICT-DPA: A Quality-Compliance Data Processing Architecture to Improve the Performance of Integrated Emergency Care Clinical Decision Support System

Emergency Care System (ECS) is a critical component of health care systems by providing acute resuscitation and life-saving care. As a time-sensitive care operation system, any delay and mistake in the decision-making of these EC functions can create additional risks of adverse events and clinical incidents. The Emergency Care Clinical Decision Support System (EC-CDSS) has proven to improve the quality of the aforementioned EC functions. However, the literature is scarce on how to implement and evaluate the EC-CDSS with regard to the improvement of PHOs, which is the ultimate goal of ECS. The reasons are twofold: 1) lack of clear connections between the implementation of EC-CDSS and PHOs because of unknown quality attributes; and 2) lack of clear identification of stakeholders and their decision processes. Both lead to the lack of a data processing architecture for an integrated EC-CDSS that can fulfill all quality attributes while satisfying all stakeholders’ information needs with the goal of improving PHOs. This dissertation identified quality attributes (PICT: Performance of the decision support, Interoperability, Cost, and Timeliness) and stakeholders through a systematic literature review and designed a new data processing architecture of EC-CDSS, called PICT-DPA, through design science research. The PICT-DPA was evaluated by a prototype of integrated PICT-DPA EC-CDSS, called PICTEDS, and a semi-structured user interview. The evaluation results demonstrated that the PICT-DPA is able to improve the quality attributes of EC-CDSS while satisfying stakeholders’ information needs. This dissertation made theoretical contributions to the identification of quality attributes (with related metrics) and stakeholders of EC-CDSS and the PICT Quality Attribute model that explains how EC-CDSSs may improve PHOs through the relationships between each quality attribute and PHOs. This dissertation also made practical contributions on how quality attributes with metrics and variable stakeholders could be able to guide the design, implementation, and evaluation of any EC-CDSS and how the data processing architecture is general enough to guide the design of other decision support systems with requirements of the similar quality attributes

Constructing a Community Response Grid (CRG): The Dublin, Ohio Case Study

During an emergency, information availability is critical to preserving life and minimizing damages. During the emergency response, however, information may not be available to those who need it. A community response grid (CRG) can help ameliorate this lack of availability by allowing people to document and distribute emergency information to professional emergency responders (PERs). A CRG combines mobile communications services, Internet technologies, e-government applications, and social network concepts with traditional emergency response systems. The problem that this case study investigated was how to construct a CRG for the City of Dublin, Ohio, Division of Police that works in conjunction with an in-place emergency management system (EMS). The goal was to create a process that is replicable by similarly sized cities that wished to implement a CRG. In this investigation, the author examined CRG design and implementation issues such as message origin, training needs, policy design, security issues, and funding. The results of this investigation were organized in terms of Systems Development Lifecycle (SDLC) phases. Throughout these phases, the author identified information that can aid PERs in to better implement a CRG. Based on the results, the author developed a paradigm for constructing a CRG that meets the requirements of residents of the City of Dublin, Ohio, Division of Police and of similarly sized municipalities

Translational Research in the Era of Precision Medicine: Where We Are and Where We Will Go

The advent of Precision Medicine has globally revolutionized the approach of translational research suggesting a patient-centric vision with therapeutic choices driven by the identification of specific predictive biomarkers of response to avoid ineffective therapies and reduce adverse effects. The spread of "multi-omics" analysis and the use of sensors, together with the ability to acquire clinical, behavioral, and environmental information on a large scale, will allow the digitization of the state of health or disease of each person, and the creation of a global health management system capable of generating real-time knowledge and new opportunities for prevention and therapy in the individual person (high-definition medicine). Real world data-based translational applications represent a promising alternative to the traditional evidence-based medicine (EBM) approaches that are based on the use of randomized clinical trials to test the selected hypothesis. Multi-modality data integration is necessary for example in precision oncology where an Avatar interface allows several simulations in order to define the best therapeutic scheme for each cancer patient

Identifying success factors in crowdsourced geographic information use in government

Crowdsourcing geographic information in government is focusing on projects that are engaging people who are not government officials and employees in collecting, editing and sharing information with governmental bodies. This type of projects emerged in the past decade, due to technological and societal changes - such as the increased use of smartphones, combined with growing levels of education and technical abilities to use them by citizens. They also flourished due to the need for updated data in relatively quick time when financial resources are low. They range from recording the experience of feeling an earthquake to recording the location of businesses during the summer time. 50 cases of projects in which crowdsourced geographic information was used by governmental bodies across the world are analysed. About 60% of the cases were examined in 2014 and in 2017, to allow for comparison and identification of success and failure. The analysis looked at different aspects and their relationship to success: the drivers to start a project; scope and aims; stakeholders and relationships; inputs into the project; technical and organisational aspect; and problems encountered. The main key factors of the case studies were analysed with the use of Qualitative Comparative Analysis (QCA) which is an analytical method that combines quantitative and qualitative tools in sociological research. From the analysis, we can conclude that there is no “magic bullet” or a perfect methodology for a successful crowdsourcing in government project. Unless the organisation has reached maturity in the area of crowdsourcing, identifying a champion and starting a project that will not address authoritative datasets directly is a good way to ensure early success and start the process of organisational learning on how to run such projects. Governmental support and trust is undisputed. If the choice is to use new technologies, this should be accompanied by an investment of appropriate resources within the organisation to ensure that the investment bear fruits. Alternatively, using an existing technology that was successful elsewhere and investing in training and capacity building is another path for success. We also identified the importance of intermediary Non-Governmental Organizations (NGOs) with the experience and knowledge in working with crowdsourcing within a partnership. These organizations have the knowledge and skills to implement projects at the boundary between government and the crowd, and therefore can offer the experience to ensure better implementation. Changes and improvement of public services, or a focus on environmental monitoring can be a good basis for a project. Capturing base mapping is a good point to start, too. The recommendation of the report address organisational issues, resources, and legal aspects

Enhancing Geospatial Preparedness for Disaster Management through the work of development organisations

A thesis submitted in partial fulfillment of the requirements for the degree of Doctor in Information Management, specialization in Geographic Information SystemsDepending on the complexity of a disaster and the local capacities, international organizations and multidisciplinary response teams might be involved in the response. Geographic Information Systems (GIS) are used for coordination and information sharing. However, geospatial preparedness is necessary: reliable up to date geodata, tools, and people with the knowledge to use those tools. In least-developed countries the lack of geospatial preparedness, particularly geospatial pre-disaster information, hinders disaster response. In those places, the United Nations Office for the Coordination of Humanitarian Affairs creates a framework for cooperation with the Coordinated Data Scramble Initiative where Information Management Officers (IMOs) from different organisations are supported by volunteers and technical communities to provide ad-hoc datasets and infrastructure to use GIS. Nevertheless, long-term solutions are needed. Before the disaster, Non-Governmental Organizations (NGOs) might already be using GIS to implement development projects. Based on the theoretical concept of disaster management and development as a learning circle, this investigation proposes the engagement of development NGOS working in disaster-prone areas to enhance geospatial preparedness. The research was based on a multi-method approach including the study of the body of literature, authoritative reports, and repositories and databases, monitorization of the tools used during responses to real emergencies, and semi-structured interviews to IMOs. Finally, the study concluded with an online survey with a worldwide sample of more than 200 development NGOs. The result show that disaster response requires reliable and up to date geodata which is not always the case. Humanitarian missions often rely on OpenStreetMap as a source of information to overcome this limitation. Therefore, improving OpenStreetMap would improve geospatial preparedness. Many development NGOs use digital geographic information, mostly open-data. They could indeed improve geospatial preparedness allowing community empowerment while conveying relevant pre-disaster datasets to the humanitarian missions. This bottom-up approach would allow for the inclusion of information relevant to the community in the disaster response decision-making process. There is, however, a limitation; most of these development NGOs are not familiar with the platform used by the humanitarian community (i.e., OpenStreetMap). Therefore, the sustainability of this synergic approach requires further harmonization between development and humanitarian organizations working for the wellbeing of the same communitie

Mapping Crisis: Participation, Datafication, and Humanitarianism in the Age of Digital Mapping

This book brings together critical perspectives on the role that mapping people, knowledges and data now plays in humanitarian work, both in cartographic terms and through data visualisations. Since the rise of Google Earth in 2005, there has been an explosion in the use of mapping tools to quantify and assess the needs of the poor, including those affected by climate change and the wider neo-liberal agenda. Yet, while there has been a huge upsurge in the data produced around these issues, the representation of people remains questionable. Some have argued that representation has diminished in humanitarian crises as people are increasingly reduced to data points. In turn, this data becomes ever more difficult to analyse without vast computing power, leading to a dependency on the old colonial powers to refine the data of the poor, before selling it back to them. These issues are not entirely new, and questions around representation, participation and humanitarianism can be traced back beyond the speeches of Truman, but the digital age throws these issues back to the fore, as machine learning, algorithms and big data centres take over the process of mapping the subjugated and subaltern. This book questions whether, as we map crises, it is the map itself that is in crisis

A Survey on Multihop Ad Hoc Networks for Disaster Response Scenarios

Disastrous events are one of the most challenging applications of multihop ad hoc networks due to possible damages of existing telecommunication infrastructure.The deployed cellular communication infrastructure might be partially or completely destroyed after a natural disaster. Multihop ad hoc communication is an interesting alternative to deal with the lack of communications in disaster scenarios. They have evolved since their origin, leading to differentad hoc paradigms such as MANETs, VANETs, DTNs, or WSNs.This paper presents a survey on multihop ad hoc network paradigms for disaster scenarios.It highlights their applicability to important tasks in disaster relief operations. More specifically, the paper reviews the main work found in the literature, which employed ad hoc networks in disaster scenarios.In addition, it discusses the open challenges and the future research directions for each different ad hoc paradigm