14 research outputs found
Should parents be informed about the carrier status of their fetus?
- Publication venue
- 'Wiley'
- Publication date
- Field of study
A framework for genetic service provision for haemophilia and other inherited bleeding disorders
- Author
- British Medical Association
- Department of Health
- European Society of Human Genetics Public ad Professional Policy Committee
- Genetic Interest Group
- Genetic Interest Group
- Human Genetics Commission
- Miller R.
- NHS Executive
- Nuffield Council on Bioethics
- RCN Haemophilia Nurses Association
- Report of Working Party of the Clinical Genetics Society (UK)
- Robertson J.
- Royal College of Obstetrics and Gynaecology
- The Haemophilia Alliance
- UKHCDO Genetics Working Party
- Publication venue
- 'Wiley'
- Publication date
- Field of study
Psychosocial and Ethical Issues Relating to Genetic Testing for BRCA1
- Author
- Publication venue
- 'Future Medicine Ltd'
- Publication date
- Field of study
Parental attitudes regarding newborn screening of PKU and DMD
- Author
- American Academy of Pediatrics (AAP) Committee on Bioethics
- American Society of Human Genetics (ASHG)/American College of Medical Genetics (ACMG)
- Appelbaum
- Beaulieu
- Billings
- Bushy
- Campbell
- Carey
- Channock
- Clarke
- Clayton
- Dalby
- Faden
- Flanders
- Geller
- Institute of Medicine (IOM)
- Kerr
- Marshall
- Marteau
- Marteau
- Meiser
- Parsons
- Robertson
- Ross
- St. Petersburg Times
- Stewart
- Wertz
- Working Party of the Clinical Genetics Society (UK)
- Publication venue
- 'Wiley'
- Publication date
- Field of study
“Holding your breath”: Interviews with young people who have undergone predictive genetic testing for Huntington disease
- Author
- American Academy of Paediatrics Committee on Bioethics
- American Society of Human Genetics Board of Directors American College of Medical Genetics Board of Directors
- Binedell
- Bloch
- Cantor
- Chapman
- Chapman
- Cox
- Decruyenaere
- Decruyenaere
- Decruyenaere
- Duncan
- Duncan
- Duncan
- Etchegary
- Genetic Interest Group (UK)
- Huggins
- International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea
- Kessler
- Kessler
- Lawson
- McAllister
- Meiser
- Michie
- Norem
- Smith
- Tassicker
- Taylor
- Tibben
- Tibben
- Wahlin
- Wexler
- Wexler
- Wilke
- Williams
- Working Party of the Clinical Genetics Society (UK)
- Publication venue
- 'Wiley'
- Publication date
- Field of study
“You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)
- Author
- Almqvist
- Almqvist
- American Academy of Paediatrics Committee on Bioethics
- American Society of Human Genetics Board of Directors and American College of Medical Genetics Board of Directors
- Andrews
- Andrews
- Bloch
- Chapman
- Clayton
- Codori
- Codori
- Codori
- Dickenson
- Duncan
- Duncan
- Duncan
- Duncan
- Elger
- Geller
- Genetic Interest Group (UK)
- Hansen
- Hanson
- Huggins
- International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea
- Lawson
- Meiser
- Michie
- Michie
- Michie
- Michie
- Nance
- Rice
- Ross
- Rozen
- Shepherd
- Shepherd
- Tassicker
- Tibben
- Tibben
- Timman
- United Nations: Report of the Secretary-General
- Wahlin
- Walker
- Wiggins
- Wilke
- Williams
- Working Party of the Clinical Genetics Society (UK)
- Publication venue
- 'Wiley'
- Publication date
- 01/01/2008
- Field of study
Removing the shadow of the law from the debate about genetic testing of children
- Author
- Bartholme
- Clayton
- Committee on Assessing Genetic Risks
- Committee on Bioethics American Academy of Pediatrics
- Dillon
- Gaylin
- Harper
- Hickson
- Hickson
- Hodgson
- Holder
- Knoppers
- Marlene
- Meyer
- Molien
- Parham
- Pelias
- Pierce
- Prosser
- re Baby
- Reben
- Schwartz
- Sigman
- Thing
- Wadlington
- Wertz
- Wertz
- Wisconsin
- Working Party of the Clinical Genetics Society (UK)
- Wright
- Publication venue
- 'Wiley'
- Publication date
- Field of study
Ethics, Policy, and Educational Issues in Genetic Testing
- Author
- American College of Medical Genetics Board of Directors
- ASHG/ACMG Report
- Association of Women's Health Obstetric, and Neonatal Nursing
- Clayton E.W.
- Feetham S.L.
- Feetham S.L.
- French M.E.
- Goldberg I.V.
- Guttmacher A.
- Health Resources and Services Administration and the National Institutes of Health
- Human Genetics Commission
- International Society of Nurses in Genetics
- Kirk M.
- Lea D.H.
- Masny A.
- Masny A.
- National Center for Human Genome Research
- National Coalition for Health Professional Education in Genetics
- National Health Service Department of Health
- Oncology Nursing Society
- Public Health Genetics Unit
- Reede J.Y.
- Report of a Working Party of the Clinical Genetics Society (UK)
- Skirton H.
- U.S. Department of Health and Human Services Office for Civil Rights
- Willard H.F.
- Wolf L.E.
- World Health Organisation
- Publication venue
- 'Wiley'
- Publication date
- Field of study
Ethical and policy issues in pediatric genetics
- Author
- Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children
- American Academy of Pediatrics (AAP) Committee on Bioethics
- American College of Medical Genetics (ACMG)/Health Resources and Services Administration (HRSA). ACMG/HRSA
- American Society of Human Genetics (ASHG)/American College of Medical Genetics (ACMG)
- Andrews
- Association of Public Health Laboratories
- Atkinson
- Bookman
- Borry
- Borry
- Botkin
- Botkin
- Botkin
- Bradbury
- Braude
- Clarke
- Committee for the Study of Inborn Errors of Metabolism National Research Council
- Duncan
- Elstad
- Faden
- Feuchtbaum
- Fost
- Gaston
- Grosse
- Grosse
- Human Genetics Commission (UK)
- Jenkins
- Kaiser
- Kaufman
- Kavanagh
- Kestila
- Kodish
- Kohane
- Levy
- Levy
- Louey
- McConkie-Rosell
- National Children's Study
- National Heart Lung Blood Institute (NHLBI) Communications Office
- National Institutes of Health Consensus Development Conference
- National Newborn Screening and Genetics Resource Center
- National Newborn Screening and Genetics Resource Center
- Natowicz
- Offit
- Pandor
- Panepinto
- Pass
- Paul
- Phoenix
- Pollitt
- Pollitt
- Ravitsky
- Reilly
- Ross
- Shalowitz
- Sprinkle
- Stadler
- Tarini
- Tsevat
- Viner
- Whalley
- Working Party of the Clinical Genetics Society (UK)
- Publication venue
- 'Wiley'
- Publication date
- 01/01/2008
- Field of study
Ethical Issues in Genetic Testing for Cancer Susceptibility
- Author
- A. Fryer
- A.M. Codori
- A.S. Whittemore
- American Society of Clinical Oncology
- B. Fisher
- B. Gert
- B. Meiser
- B.B. Biesecker
- B.L. Weber
- B.S. Peshkin
- C. Julian-Reynier
- C. Lerman
- C. Lerman
- Congregation for the Doctrine of Faith
- Council on Ethical and Judicial Affairs
- Council on Ethical and Judicial Affairs American Medical Association
- D. Ford
- D.C. Wertz
- D.E. Hoffman
- D.S. Davis
- D.W. Nixon
- E.D. Kodish
- E.W. Clayton
- G. Geller
- G. Geller
- G. Goelen
- H.J. Jarvinen
- H.T. Greely
- J. Feinberg
- J. Rawls
- J.A. Lowden
- J.A. Robertson
- J.A. Robertson
- J.P. Struewing
- J.R. Botkin
- K. Rothenberg
- K.L. Hudson
- L. Gostin
- L.C. Hartman
- M. Dorval
- M.A. Rothstein
- M.F. Scheier
- M.J. Lopez
- M.R. Anderlik
- M.T. White
- N. Daniels
- N.A. Press
- P. Ang
- R. Cohen
- R.M. Veatch
- R.R. Faden
- S.A. Wiggins
- S.M. Miller
- T.F. Ackerman
- T.H. Murray
- T.L. Beauchamp
- The American Society of Human Genetics Board of Directors and the American College of Medical Genetics Board of Directors
- W.F. Mulholland II
- Working Party of the Clinical Genetics Society (UK)
- Publication venue
- 'Springer Science and Business Media LLC'
- Publication date
- 01/01/2004
- Field of study