54 research outputs found
Young patients', parents', and survivors' communication preferences in paediatric oncology: Results of online focus groups
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51596.pdf ( ) (Open Access)BACKGROUND: Guidelines in paediatric oncology encourage health care providers to share relevant information with young patients and parents to enable their active participation in decision making. It is not clear to what extent this mirrors patients' and parents' preferences. This study investigated communication preferences of childhood cancer patients, parents, and survivors of childhood cancer. METHODS: Communication preferences were examined by means of online focus groups. Seven patients (aged 8-17), 11 parents, and 18 survivors (aged 8-17 at diagnosis) participated. Recruitment took place by consecutive inclusion in two Dutch university oncological wards. Questions concerned preferences regarding interpersonal relationships, information exchange and participation in decision making. RESULTS: Participants expressed detailed and multi-faceted views regarding their needs and preferences in communication in paediatric oncology. They agreed on the importance of several interpersonal and informational aspects of communication, such as honesty, support, and the need to be fully informed. Participants generally preferred a collaborative role in medical decision making. Differences in views were found regarding the desirability of the patient's presence during consultations. Patients differed in their satisfaction with their parents' role as managers of the communication. CONCLUSION: Young patients' preferences mainly concur with current guidelines of providing them with medical information and enabling their participation in medical decision making. Still, some variation in preferences was found, which faces health care providers with the task of balancing between the sometimes conflicting preferences of young cancer patients and their parents
Deformation analysis of a metropolis from C- to X-band PSI: proof-of-concept with Cosmo-Skymed over Rome, Italy
Stability of monuments and subsidence of residential
quarters in Rome (Italy) are depicted based on geospatial
analysis of more than 310,000 Persistent Scatterers (PS)
obtained from Stanford Method for Persistent Scatterers
(StaMPS) processing of 32 COSMO-SkyMed 3m-resolution
HH StripMap ascending mode scenes acquired between 21
March 2011 and 10 June 2013. COSMO-SkyMed PS
densities and associated displacement velocities are
compared with almost 20 years of historical C-band ERS-
1/2, ENVISAT and RADARSAT-1/2 imagery. Accounting
for differences in image processing algorithms and satellite
acquisition geometries, we assess the feasibility of ground
motion monitoring in big cities and metropolitan areas by
coupling newly acquired and legacy SAR in full time series.
Limitations and operational benefits of the transition from
medium resolution C-band to high resolution X-band PS
data are discussed, alongside the potential impact on the
management of expanding urban environments
Psychological long-term coping with experience of disease and treatment in childhood cancer survivors
Coping and adaptation in parents of children suffering from acute lymphoblastic leukemia
Psychological long-term coping with experience of disease and treatment in childhood cancer survivors
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