95 research outputs found
Amplified ambivalence: having a sibling with juvenile idiopathic arthritis
Despite increased awareness of family responses to chronic illness and disability, there is still a need to understand experiences of well siblings. We begin to address this by asking âWhat is it like to have a sibling with juvenile idiopathic arthritis?â (JIA).Eight families with an adolescent diagnosed with JIA participated. Four members of each family, including one healthy sibling, were interviewed and transcripts analyzed using grounded theory. Analysis suggests healthy siblings see their family as different to ânormalâ families, forfeit time with peers, share vicariously adverse experiences of their ill sibling, and feel inadequately informed. Such experiences amplify the ambivalent nature of sibling relationships and are possibly felt most strongly during late childhood and early adolescence. Support from extended family can reduce these negative experiences and facilitate social and emotional adjustment which also occurs over time as the children mature. These findings have implications for healthcare professionals and voluntary organizations
Patterns of risk and protective factors in the intergenerational cycle of maltreatment
his study investigates the continuation and discontinuation of the intergenerational transmission of child maltreatment within the first 13 months of the childâs life. Differences in risk factors and parenting styles between families who initiate (Initiators), maintain (Maintainers) or break (Cycle Breakers) the intergenerational cycle of child maltreatment are explored in comparison to control families (Controls). One hundred and three Health Visitors were trained to assess risk factors and parenting styles of 4,351 families, at both 4â6 weeks and 3â5 months after birth. Maintainers, Initiators and Cycle Breakers had a significantly higher prevalence for the majority of risk factors and poor parenting styles than Controls. Protective factors of financial solvency and social support distinguished Cycle Breakers from Maintainers and Initiators. Therefore, it is the presence of protective factors that distinguish Cycle Breakers from families who were referred to Child Protection professionals in the first year after birth. A conceptual, hierarchical model that considers history of abuse, risk and protective factors, in turn, is proposed to assess families for the potential of child maltreatment
Young patients', parents', and survivors' communication preferences in paediatric oncology: Results of online focus groups
Contains fulltext :
51596.pdf ( ) (Open Access)BACKGROUND: Guidelines in paediatric oncology encourage health care providers to share relevant information with young patients and parents to enable their active participation in decision making. It is not clear to what extent this mirrors patients' and parents' preferences. This study investigated communication preferences of childhood cancer patients, parents, and survivors of childhood cancer. METHODS: Communication preferences were examined by means of online focus groups. Seven patients (aged 8-17), 11 parents, and 18 survivors (aged 8-17 at diagnosis) participated. Recruitment took place by consecutive inclusion in two Dutch university oncological wards. Questions concerned preferences regarding interpersonal relationships, information exchange and participation in decision making. RESULTS: Participants expressed detailed and multi-faceted views regarding their needs and preferences in communication in paediatric oncology. They agreed on the importance of several interpersonal and informational aspects of communication, such as honesty, support, and the need to be fully informed. Participants generally preferred a collaborative role in medical decision making. Differences in views were found regarding the desirability of the patient's presence during consultations. Patients differed in their satisfaction with their parents' role as managers of the communication. CONCLUSION: Young patients' preferences mainly concur with current guidelines of providing them with medical information and enabling their participation in medical decision making. Still, some variation in preferences was found, which faces health care providers with the task of balancing between the sometimes conflicting preferences of young cancer patients and their parents
Deformation analysis of a metropolis from C- to X-band PSI: proof-of-concept with Cosmo-Skymed over Rome, Italy
Stability of monuments and subsidence of residential
quarters in Rome (Italy) are depicted based on geospatial
analysis of more than 310,000 Persistent Scatterers (PS)
obtained from Stanford Method for Persistent Scatterers
(StaMPS) processing of 32 COSMO-SkyMed 3m-resolution
HH StripMap ascending mode scenes acquired between 21
March 2011 and 10 June 2013. COSMO-SkyMed PS
densities and associated displacement velocities are
compared with almost 20 years of historical C-band ERS-
1/2, ENVISAT and RADARSAT-1/2 imagery. Accounting
for differences in image processing algorithms and satellite
acquisition geometries, we assess the feasibility of ground
motion monitoring in big cities and metropolitan areas by
coupling newly acquired and legacy SAR in full time series.
Limitations and operational benefits of the transition from
medium resolution C-band to high resolution X-band PS
data are discussed, alongside the potential impact on the
management of expanding urban environments
Influence of attended repetition trials on negative priming in younger and older adults
ArrĂȘtĂ© du 10 juillet 1984
Modification de l'arrĂȘtĂ© du 14 mars 1977 fixant les horaires et effectifs des classes de 6e des collĂšges. La technologie remplace EM
ArrĂȘtĂ© du 10 juillet 1984
Programme de technologie des classes de 6e (sixiĂšme), 5e (cinquiĂšme), 4e (quatriĂšme) et 3e (troisiĂšme) des collĂšges
ArrĂȘtĂ© du 10 juillet 1984
Modification de l'arrĂȘtĂ© du 26 janvier 1978 fixant les horaires et effectifs des classes de 5e des collĂšges. La technologie remplace EM
ArrĂȘtĂ© du 10 juillet 1984
Modification de l'arrĂȘtĂ© du 22 dĂ©cembre 1978 modifiĂ© par l'arrĂȘtĂ© du 10 juin 1980 fixant les horaires et effectifs des classes de 4e et de 3e des collĂšges. La technologie remplace EM
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