O trabalho em uma instituição de acolhimento à crianças e adolescentes: relato de experiência / Work in a child and adolescent care institution: experience report

No Brasil há inúmeras crianças e adolescentes institucionalizados. O acolhimento institucional é realizado como medida de proteção pela ocorrência de violação ao direito à saúde física ou mental. O contexto de vida e o desenvolvimento desses na instituição podem contribuir para a manifestação de processos patológicos. Objetivo: refletir sobre a assistência prestada às crianças e adolescentes em uma instituição de acolhimento. Metodologia: relato de experiência construído a partir  da  atuação  de  uma  das  autoras  como  assistente  social  em  instituição  filantrópica  de acolhimento para crianças e adolescentes de um município do noroeste do Rio Grande do Sul, mantido por uma igreja evangélica. O registro de percepções e reflexões foi realizado no primeiro semestre de  2016. Resultados: os menores acolhidos deveriam permanecer temporariamente na instituição, mas muitos permanecem por um longo período e boa parte do seu desenvolvimento ocorre nesse local. Dessa forma, a assistência é multidisciplinar, com escuta terapêutica, ações de reinserção à família extensa, emancipação e atenção psíquica. Conclusão: crianças e adolescentes em situação de acolhimento institucional permanecem muito tempo institucionalizados e apresentam sofrimento psíquico. A atenção  deve  ser  humanizada  e compreender  ações como  escuta  terapêutica,   reinserção familiar, estabelelcimento de limites e desenvolvimento de capacidade para crescimento pessoal e preparo para a vida fora desse ambiente. 

Post-intervention Status in Patients With Refractory Myasthenia Gravis Treated With Eculizumab During REGAIN and Its Open-Label Extension

OBJECTIVE: To evaluate whether eculizumab helps patients with anti-acetylcholine receptor-positive (AChR+) refractory generalized myasthenia gravis (gMG) achieve the Myasthenia Gravis Foundation of America (MGFA) post-intervention status of minimal manifestations (MM), we assessed patients' status throughout REGAIN (Safety and Efficacy of Eculizumab in AChR+ Refractory Generalized Myasthenia Gravis) and its open-label extension. METHODS: Patients who completed the REGAIN randomized controlled trial and continued into the open-label extension were included in this tertiary endpoint analysis. Patients were assessed for the MGFA post-intervention status of improved, unchanged, worse, MM, and pharmacologic remission at defined time points during REGAIN and through week 130 of the open-label study. RESULTS: A total of 117 patients completed REGAIN and continued into the open-label study (eculizumab/eculizumab: 56; placebo/eculizumab: 61). At week 26 of REGAIN, more eculizumab-treated patients than placebo-treated patients achieved a status of improved (60.7% vs 41.7%) or MM (25.0% vs 13.3%; common OR: 2.3; 95% CI: 1.1-4.5). After 130 weeks of eculizumab treatment, 88.0% of patients achieved improved status and 57.3% of patients achieved MM status. The safety profile of eculizumab was consistent with its known profile and no new safety signals were detected. CONCLUSION: Eculizumab led to rapid and sustained achievement of MM in patients with AChR+ refractory gMG. These findings support the use of eculizumab in this previously difficult-to-treat patient population. CLINICALTRIALSGOV IDENTIFIER: REGAIN, NCT01997229; REGAIN open-label extension, NCT02301624. CLASSIFICATION OF EVIDENCE: This study provides Class II evidence that, after 26 weeks of eculizumab treatment, 25.0% of adults with AChR+ refractory gMG achieved MM, compared with 13.3% who received placebo

Minimal Symptom Expression' in Patients With Acetylcholine Receptor Antibody-Positive Refractory Generalized Myasthenia Gravis Treated With Eculizumab

The efficacy and tolerability of eculizumab were assessed in REGAIN, a 26-week, phase 3, randomized, double-blind, placebo-controlled study in anti-acetylcholine receptor antibody-positive (AChR+) refractory generalized myasthenia gravis (gMG), and its open-label extension

Catálogo Taxonômico da Fauna do Brasil: setting the baseline knowledge on the animal diversity in Brazil

The limited temporal completeness and taxonomic accuracy of species lists, made available in a traditional manner in scientific publications, has always represented a problem. These lists are invariably limited to a few taxonomic groups and do not represent up-to-date knowledge of all species and classifications. In this context, the Brazilian megadiverse fauna is no exception, and the Catálogo Taxonômico da Fauna do Brasil (CTFB) (http://fauna.jbrj.gov.br/), made public in 2015, represents a database on biodiversity anchored on a list of valid and expertly recognized scientific names of animals in Brazil. The CTFB is updated in near real time by a team of more than 800 specialists. By January 1, 2024, the CTFB compiled 133,691 nominal species, with 125,138 that were considered valid. Most of the valid species were arthropods (82.3%, with more than 102,000 species) and chordates (7.69%, with over 11,000 species). These taxa were followed by a cluster composed of Mollusca (3,567 species), Platyhelminthes (2,292 species), Annelida (1,833 species), and Nematoda (1,447 species). All remaining groups had less than 1,000 species reported in Brazil, with Cnidaria (831 species), Porifera (628 species), Rotifera (606 species), and Bryozoa (520 species) representing those with more than 500 species. Analysis of the CTFB database can facilitate and direct efforts towards the discovery of new species in Brazil, but it is also fundamental in providing the best available list of valid nominal species to users, including those in science, health, conservation efforts, and any initiative involving animals. The importance of the CTFB is evidenced by the elevated number of citations in the scientific literature in diverse areas of biology, law, anthropology, education, forensic science, and veterinary science, among others

Editorial

Neste sétimo e oitavo números do Cadernos do LEPAARQ reunimos oito trabalhos apresentados na Jornada Práticas de Justiça e Diversidade Cultural (3ª edição), promovida pela Universidade Federal de Pelotas (UFPEL), Instituto de Ciências Humanas (ICH/UFPEL), Instituto de Sociologia e Política (ISP/UFPEL), Departamento de História e Antropologia (DHA/UFPEL), Departamento de Sociologia e Política (DESP/UFPEL), Laboratório de Ensino e Pesquisa em Antropologia e Arqueologia (LEPAARQ/ICH/UFPEL), Mestrado em Ciências Sociais (ISP/UFPEL), Universidade Federal do Rio Grande do Sul (UFRGS), Núcleo de Antropologia e Cidadania (NACI/UFRGS), evento esse realizado no Campus das Ciências Sociais, UFPEL, nos dias 25, 26 e 27 de abril de 2007

POR UM ESTUDO EXTRATEXTUAL DA OBRA LITERÁRIA: O EXEMPLO DE AS CRÔNICAS DE NÁRNIA, DE CLIVE STAPLES LEWIS

O presente trabalho versa sobre a questão extratextual da narrativa literária, o livro como produto. O objetivo deste artigo é verificar como se dá a circulação do conjunto de contos As crônicas de Nárnia, de C. S. Lewis, no mercado editorial, sob o rótulo de literatura juvenil. Para tanto, o artigo divide-se em quatro partes: A primeira trata do leitor extratextual, com base nos estudos de Pierre Bourdieu, Robert Darnton e Vera Aguiar. A segunda, a qual aborda a questão da literatura juvenil, fundamenta-se nas pesquisas de Mário Corso, Jaime Padrino e Alice Martha; Na terceira seção, tem-se informações sobre o autor do conjunto de textos a ser utilizado; e, por fim, a quarta parte trata da análise da obra escolhida enquanto produto.PALAVRAS-CHAVE: Leitura. Literatura. Juventude. ABSTRACT: This paper is about the issue of extratextual literary narrative, the book as a product. The purpose of this article is to verify how is the circulation of the collection of tales The Chronicles of Narnia by C. S. Lewis, in publishing, under the label of juvenile literature.Thus, the article is divided in four sections: The first deals with the extratextual reader, based on the studies of Pierre Bourdieu, Robert Darnton and Vera Aguiar; The second, which addresses the issue of juvenile literature, is based on the research of Mario Corso, Jaime Padrino and Alice Martha; In the third section, there is information about the author of the collection of texts that will be used; and, finally, the fourth part leads with the analysis of the work chosen as a product.KEYWORDS: Reading. Literature. Youth