Kreftpasienters barrierer mot smertebehandling

Bakgrunn: Ulike faktorer hos helsepersonell, pasienten selv eller i rammefaktorene kan forklare mangelfull smertelindring hos kreftpasienter. Hos pasientene kan barrierer for optimal smertebehandling være tilbakeholdenhet med å rapportere smerte og å følge anbefalte smerteregimer. Dette kan forklares med feiloppfatninger, misforståelser eller manglende kunnskap om smerte og smertebehandling. For eksempel redsel for avhengighet, toleranse og bivirkninger eller at smerte er en uunngåelig del av sykdommen. Hensikt: Å beskrive pasientrelaterte barrierer i forhold til smerte og smertebehandling i et utvalg av norske kreftpasienter. Og undersøke om barrierer for smertebehandling påvirker pasientenes smerteintensitet og smertens påvirkning på funksjon. Metode: Studien er en beskrivende tverrsnittsundersøkelse med 217 polikliniske kreftpasienter som har smerter og/eller bruker smertestillende medikamenter hvor barriere mot smerte og smertebehandling undersøkes ved hjelp av barriereskjema (NBQ–II). Hovedresultat: De spørsmål som reflekterer de høyeste barrierene for smertebehandling er spørsmål om avhengighet, toleranse, monitorere symptomer i forhold til egen helsetilstand, nye smerter og redsel for enkelte bivirkninger som døsighet. Konklusjon: Polikliniske kreftpasienter rapporterer en del barrierer for smertebehandling og må kanskje få en mer individualisert informasjon om smerte og smertebehandling for å bedre smertebehandlingen.Background: Numerous professional, patient, and system barriers contribute to the under-treatment of pain in cancer patients. Patients may, for example, be reluctant to report pain and to use available analgesics. This reluctance is often based on erroneous beliefs or misconceptions about pain and pain medication and includes factors such as fears of addiction and tolerance, fear of side-effects, and a belief that pain is an inevitable component of the disease. Objectives: To investigate patient-related barriers to pain management in a sample of outpatients with cancer and investigate whether barriers influence patients pain intensity and pain interference with function. Method: The study is a cross-sectional descriptive study with a convenient sample of 217 cancer patients self-reporting pain and/or using analgesics assessing barriers to pain and pain management using the Norwegian version of the Barriers Questionnaire (NBQ–II). Results: Questions reflecting the highest barriers were concerns about addiction, tolerance and about the pain-medications’ ability to prevent knowledge about new pain and changes in their health. With regard to side-effects of pain medication, the highest reported level on NBQ–II was on the items concerning drowsiness. Conclusion: Out-patients with cancer still have barriers to pain management and may need more individualized information and follow-up by health personnel in order to enhance pain management. Keyword: cancer pain, patients’ barriers, pain management, outpatient

Interference of Postoperative Pain on Women's daily Life after Early Discharge from Cardiac Surgery

Women report more postoperative pain and problems performing domestic activities than men in the first month of recovery after cardiac surgery. The purpose of this article is to describe how women rate and describe pain interference with daily life after early discharge from cardiac surgery. A qualitative study was conducted in 2004-2005 with ten women recruited from a large Norwegian university hospital before discharge from their first elective cardiac surgery. Various aspects of the women's postoperative experiences were collected with qualitative interviews in the women's homes 8-14 days after discharge: a self-developed pain diary measuring pain intensity, types and amount of pain medication taken every day after returning home from hospital; and the Brief Pain Inventory–Short Form immediately before the interview. Qualitative content analysis was used to identify recurring themes from the interviews. Data from the questionnaires provided more nuances to the experiences of pain, pain management, and interference of postoperative pain. Postoperative pain interfered most with sleep, general activity, and the ability to perform housework during the first 2 weeks after discharge. Despite being advised at the hospital to take pain medication regularly, few women consumed the maximum amount of analgesics. Early hospital discharge after open cardiac surgery implies increased patient participation in pain management. Women undergoing this surgery need more information in hospital on why postoperative pain management beyond simple pain relief is important

The Relationships between Mood Disturbances and Pain, Hope, and Quality of Life in Hospitalized Cancer Patients with Pain on Regularly Scheduled Opioid Analgesic

Objective: The study purposes were to describe the percentage of patients in one of four mood groups (i.e., neither anxiety nor depression [NEITHER], only anxiety [ANX], only depression [DEP], both anxiety and depression [BOTH]) and to evaluate how differences in mood states are related to pain, hope, and quality of life (QOL). Methods: Oncology inpatients (n=225) completed Brief Pain Inventory, Herth Hope Index (HHI), and the European Organization for Research and Treatment of Cancer Core QOL Questionnaire-C30. Research nurses completed Symptom Severity Checklist, Karnofsky Performance Status score, and medical record reviews. Data were analyzed using x^2, Kruskal-Wallis, one-way analyses of variance (ANOVAs), and analyses of covariance (ANCOVA). Results: Thirty-two percent of patients were categorized in the NEITHER group, 12% in the ANX group, 12% in the DEP group, and 44% in the BOTH group. Younger patients and women were more likely to be in the BOTH group. While only minimal differences were found among the mood groups on pain intensity scores, patients in the NEITHER group in general, reported lower pain interference scores than those in the other three groups. Significant differences were found in HHI scores between the patients in the NEITHER group and the BOTH group. In addition, patients with both mood disorders reported significantly poorer QOL scores. Conclusions: Because 44% of the patients had both anxiety and depression, clinicians need to evaluate patients for the co-occurrence of these two symptoms, evaluate its impact on pain management, hope, and QOL, and develop appropriate interventions to manage these symptoms

The complexity of the relationship between chronic pain and quality of life: a study of the general Norwegian population

The aims of this paper were to evaluate the relationship between chronic pain and global quality of life (GQOL) and to explore the effect of possible confounders, mediators, and moderators such as selected demographic variables, chronic illnesses, stress-related symptoms, fatigue, and subjective health of the relationship between chronic pain and GQOL. We used a cross-sectional design, including 1,893 respondents from a population of 4,000 of Norwegian citizens, aged 19–81 years, who were randomly drawn from the National Register by Statistics Norway in November 2000 (48.5%). Pain duration of more than 3 months was categorized as having chronic pain. The Quality of Life Scale, the Fatigue Severity Scale, and the Posttraumatic Stress Scale were used as our main dependent and independent variables, respectively. A series of multiple regression analyses (GLM in SPSS) were applied using GQOL as the dependent variable, entering subsets of independent variables in a theoretically predefined sequence. In the total model, there was no significant relationship between chronic pain and GQOL. The model explained 39% of the variance in GQOL. For direct effect sizes, stress-related symptoms were related most strongly to GQOL, followed by subjective health, fatigue, chronic illnesses, and selected demographic variables. These findings support the assumption of a complex and indirect relationship between chronic pain and GQOL

Can patient-reported measurements of pain be used to improve cancer pain management? A systematic review and meta-analysis

PURPOSE: Cancer pain is a distressing and complex experience. It is feasible that the systematic collection and feedback of patient-reported outcome measurements (PROMs) relating to pain could enhance cancer pain management. We aimed to conduct a systematic review of interventions in which patient-reported pain data were collected and fed back to patients and/or professionals in order to improve cancer pain control. METHODS: MEDLINE, EMBASE and CINAHL databases were searched for randomised and non-randomised controlled trials in which patient-reported data were collected and fed back with the intention of improving pain management by adult patients or professionals. We conducted a narrative synthesis. We also conducted a meta-analysis of studies reporting pain intensity. RESULTS: 29 reports from 22 trials of 20 interventions were included. PROM measures were used to alert physicians to poorly controlled pain, to target pain education and to link treatment to management algorithms. Few interventions were underpinned by explicit behavioural theories. Interventions were inconsistently applied or infrequently led to changes in treatment. Narrative synthesis suggested that feedback of PROM data tended to increase discussions between patients and professionals about pain and/or symptoms overall. Meta-analysis of 12 studies showed a reduction in average pain intensity in intervention group participants compared with controls (mean difference=-0.59 (95% CI -0.87 to -0.30)). CONCLUSIONS: Interventions that assess and feedback cancer pain data to patients and/or professionals have so far led to modest reductions in cancer pain intensity. Suggestions are given to inform and enhance future PROM feedback interventions

Institutionalizing Lean in a Norwegian Public Hospital - The same-day surgery process at SI Lillehammer

In line with population growth, the need for public health services increases. In order to meet this increase in demand, greater financial support for public healthcare services is required. However, the economic frames are not increasing as rapidly as the demand for healthcare, and hospitals are therefore forced to spend less on more people. As a result, several Norwegian health organizations are trying to introduce methods of process improvement derived from industry, in order to increase efficiency and cut costs. One example of this is the same-day surgery process at SI Lillehammer, a Lean initiative. As one of very few Norwegian hospitals, SI Lillehammer has succeeded in institutionalizing the change, which is why we have chosen to conduct a qualitative, single case study of this particular process. By using a framework presented by Kuipers et al. s (2014), originally developed by Pettigrew (1985), we have studied how the context, content, process, leadership and the interaction between these factors have shaped the outcome of the change. The main findings of this study include that the external context in many ways has facilitated the same-day surgery process, and that the internal context of the surgical department at SI Lillehammer has been adjusted to fit with the change. At the same time, the concept of Lean has been adapted to fit with the internal context. Instead of relying on external consultants, they have had an internal consultant, with knowledge of both Lean and the healthcare sector, to assist the change. Furthermore, the leaders of same-day surgery process have facilitated employee involvement. The process has been implemented gradually, and the process leaders have stayed highly dedicated to Lean and the same-day surgery process over many years, despite employee resistance. Thus, the coherence between the framework factors have led to the successful institutionalization of this change. To our knowledge, no studies have been published that look at successful Lean processes in Norwegian public hospitals. We believe the findings in this study may be used as an instrument by other Norwegian public hospitals aiming to succeed with institutionalization of Lean initiatives, and hope this thesis will be a pointer for further research in the field

Nurse's Evaluation of a Pain Management Algorithm in Intensive Care Units

Background: Many patients have memories of pain during intensive care unit stay. To improve pain management, practice guidelines recommend that pain management should be guided by routine pain assessment and suggest an assessment-driven, protocol-based, stepwise approach. This recommendation prompted the development of a pain-management algorithm. Aim: Evaluate the feasibility and clinical utility of this algorithm. Design: A descriptive survey. Settings: One medical/surgical intensive care unit, one surgical intensive care unit, and one postanesthesia care unit at two hospitals in Norway. Participants/Subjects: Nurses working at the three units. Methods: A pain-management algorithm, including three pain assessment tools and a guide to pain assessment and pain management, was developed and implemented in three intensive care units. Nurses working at the three units (n = 129) responded to a questionnaire regarding the feasibility and clinical utility of the algorithm used. Results: Our results suggested that nurses considered the new pain-management algorithm to have relatively high feasibility, but somewhat lower clinical utility. Less than half of respondents thought that pain treatment in clinical practice had become more targeted using the tree pain-assessment tools (45%) and the algorithm for pain assessment and pain management (24%). Conclusions: Pain-management algorithms may be appropriate and useful in clinical practice. However, to increase clinical utility and to achieve more targeted pain treatment, more focus on pain-treatment actions and reassessment of patients’ pain is needed. Further focus in clinical practice on how to implement an algorithm and more focus on pain-treatment action and reassessment of patients’ pain is needed.acceptedVersio

Three patterns of symptom communication between patients and clinicians in the intensive care unit: A fieldwork study

Aim: To describe different patterns of communication aimed at preventing, identify- ing and managing symptoms between mechanically ventilated patients and clinicians in the intensive care unit. Design: We conducted a fieldwork study with triangulation of participant observation and individual interviews. Methods: Participant observation of nine patients and 50 clinicians: nurses, physiother- apists and physicians. Subsequent individual face-to-face interviews with nine of the cli- nicians, and six of the patients after they had regained their ability to speak and breathe spontaneously, were fully alert and felt well enough to sit through the interview. Findings: Symptom communication was found to be an integral part of patient care. We identified three communication patterns: (1) proactive symptom communication, (2) reactive symptom communication and (3) lack of symptom communication. The three patterns co-existed in the cases and the first two complemented each other. The third pattern represents inadequate management of symptom distress. Conclusion: Recognition of symptoms in non-speaking intensive care patients is an important skill for clinicians. Our study uncovered three patterns of symptom commu- nication, two of which promoted symptom management. The third pattern suggested that clinicians did not always acknowledge the symptom distress. Implications for Patient Care: Proactive and reactive symptom assessment of non- speaking patients require patient verification when possible. Improved symptom prevention, identification and management require a combination of sound clinical judgement and attentiveness towards symptoms, implementation and use of relevant assessment tools, and implementation and skill building in augmentative and alterna - tive communication. Impact: This study addressed the challenges of symptom communication between mechanically ventilated patients and clinicians in the intensive care unit. Our findings may have an impact on patients and clinicians concerned with symptom management in intensive care units. Reporting Method: We used the consolidated criteria for reporting qualitative research.publishedVersio

The relationship between chronic pain and health-related quality of life in long-term social assistance recipients in Norway

PurposeThe purposes of this study were to compare the health-related quality of life (HRQOL) of long-term social assistance recipients (LTRs) with and without chronic pain and determine the effect of select demographic, social, pain, alcohol, and illicit drug use characteristics on the physical and mental components of their HRQOL.MethodsIn this cross-sectional study, which is part of a larger study that evaluated the health and functional abilities of LTRs in Norway, 405 LTRs of which 178 had chronic pain were recruited from 14 of 433 municipalities.ResultsLTRs with chronic pain were older (P < .001), more often married (P = .002), feeling more lonely, (P = .048), and had more problems with alcohol (P = .035). The final regression model explained 41.2% (P < .001) of the variance in PCS scores and 32.2% (P < .001) of the variance in MCS scores. Being in chronic pain (29.7%), being older (4.7%), and never married (2%) predicted worse PCS scores. Feeling lonely (11.9%), having problems with illicit drug use (5.9%), and being in chronic pain (2.9%) predicted worse MCS scores.ConclusionLTRs with chronic pain rated both the physical and mental components of HRQOL lower than LTRs without chronic pain. The MCS score in both groups was negatively effected