65 research outputs found
Care for chronic illness in Australian general practice – focus groups of chronic disease self-help groups over 10 years: implications for chronic care systems reforms
Background: Chronic disease is a major global challenge. However, chronic illness and its care, when intruding into everyday life, has received less attention in Asia Pacific countries, including Australia, who are in the process of transitioning to chronic disease orientated health systems. Aim: The study aims to examine experiences of chronic illness before and after the introduction of Australian Medicare incentives for longer consultations and structured health assessments in general practice. Methods: Self-help groups around the conditions of diabetes, epilepsy, asthma and cancer identified key informants to participate in 4 disease specific focus groups. Audio taped transcripts of the focus groups were coded using grounded theory methodology. Key themes and lesser themes identified using a process of saturation until the study questions on needs and experiences of care were addressed. Thematic comparisons were made across the 2002/3 and 1992/3 focus groups. Findings: At times of chronic illness, there was need to find and then ensure access to 'the right GP'. The 'right GP or specialist' committed to an in-depth relationship of trust, personal rapport and understanding together with clinical and therapeutic competence. The 'right GP', the main specialist, the community nurse and the pharmacist were key providers, whose success depended on interprofessional communication. The need to trust and rely on care providers was balanced by the need for self-efficacy 'to be in control of disease and treatment' and 'to be your own case manager'. Changes in Medicare appeared to have little penetration into everyday perceptions of chronic illness burden or time and quality of GP care. Inequity of health system support for different disease groupings emerged. Diabetes, asthma and certain cancers, like breast cancer, had greater support, despite common experiences of disease burden, and a need for research and support programs. Conclusion: Core themes around chronic illness experience and care needs remained consistent over the 10 year period. Reforms did not appear to alleviate the burden of chronic illness across disease groups, yet some were more privileged than others. Thus in the future, chronic care reforms should build from greater understanding of the needs of people with chronic illness
Differing instructional needs for children of similar reading achievement grades two, four, and six
Thesis (Ed.M.)--Boston Universit
Distance education methods are useful for delivering education to palliative caregivers: A single-arm trial of an education package (PalliativE Caregivers Education Package)
Background: Face-to-face/group education for palliative caregivers is successful, but relies on caregivers travelling, being absent from the patient, and rigid timings. This presents inequities for those in rural locations. Aim: To design and test an innovative distance-learning educational package (PrECEPt: PalliativE Caregivers Education Package). Design: Single-arm mixed-method feasibility proof-of-concept trial (ACTRN12616000601437). The primary outcome was carer self-efficacy, with secondary outcomes focused on caregiver preparedness and carer tasks/needs. Analysis focused on three outcome measures (taken at baseline and 6 weeks) and feasibility/acceptability qualitative data. Setting and participants: A single specialist palliative care service. Eligible informal caregivers were those of patients registered with the outpatient or community service, where the patient had a prognosis of ⩾12 weeks, supporting someone with nutrition/ hydration and/or pain management needs, proficient in English and no major mental health diagnosis. Results: Two modules were developed and tested (nutrition/hydration and pain management) with 18 caregivers. The materials did not have a statistically significant impact on carer self-efficacy. However, statistically significant improvements were observed on the two subsidiary measures of (1) caregiving tasks, consequences and needs (p = 0.03, confidence interval: 0.72, 9.4) and (2) caregiver preparedness (p = 0.001, confidence interval: −1.22, −0.46). The study determined that distance learning is acceptable and feasible for both caregivers and healthcare professionals. Conclusion: Distance education improves caregiver preparedness and is a feasible and acceptable approach. A two-arm trial would determine whether the materials benefitted caregivers and patients compared to a control group not receiving the materials. Additional modules could be fruitfully developed and offeredsch_nur1. Bee PE, Barnes P and Luker K. A systematic review of
informal caregivers' needs in providing home-based endof-
life care to people with cancer. J Clin Nurs 2009; 18(10):
1379-1393.
2. Harding R, Higginson IJ, Leam C, et al. Evaluation of a
short-term group intervention for informal carers of patients
attending a home palliative care service. J Pain Symptom
Manage 2004; 27(5): 396-408.
3. Hudson P, Aranda S and Hayman-White K. A psychoeducational
intervention for family caregivers of patients
receiving palliative care: a randomized controlled trial. J
Pain Symptom Manage 2005; 30(4): 329-340.
4. Hudson P, Quinn K, Kristjanson L, et al. Evaluation of a
psycho-educational group programme for family caregivers
in home-based palliative care. Palliat Med 2008; 22(3):
270-280.
5. Hudson P. Improving support for family carers: key implications
for research, policy and practice. Palliat Med 2013;
27(7): 581-582.
6. Du S, Liu Z, Liu S, et al. Web-based distance learning for
nurse education: a systematic review. Int Nurs Rev 2013;
60(2): 167-177.
7. Smith PJ, Wigmore SJ, Paisley A, et al. Distance learning
improves attainment of professional milestones in the early
years of surgical training. Ann Surg 2013; 258(5): 838-842;
discussion 842-843.
8. Doyle NW and Jacobs K. Accommodating student learning
styles and preferences in an online occupational therapy
course. Work 2013; 44(3): 247-253.
9. Hattink B, Meiland F, van der Roest H, et al. Web-based
STAR E-learning course increases empathy and understanding
in dementia caregivers: results from a randomized
controlled trial in the Netherlands and the United Kingdom.
J Med Internet Res 2015; 17(10): e241.
10. Gant JR, Steffen AM and Lauderdale SA. Comparative outcomes
of two distance-based interventions for male caregivers
of family members with dementia. Am J Alzheimers Dis
Other Demen 2007; 22(2): 120-128.
11. Leow MQ and Chan SW. Evaluation of a video, telephone
follow-ups, and an online forum as components
of a psychoeducational intervention for caregivers of persons
with advanced cancer. Palliat Support Care 2016;
14(5): 474-478.
12. Thomas K and Moore G. The development and evaluation
of a multimedia resource for family carers of patients
receiving palliative care: a consumer-led project. Palliat
Support Care 2015; 13(3): 417-423.
13. Griffiths PC, Whitney KM, Kovaleva M, et al. Development
and implementation of Tele-Savvy for dementia caregivers:
a department of veterans affairs clinical demonstration project.
Gerontologist 2015; 56(1): 145-154.
14. Lewis M, Hobday JV and Hepburn K. Internet-based program
for dementia caregivers. Am J Alzheimers Dis Other
Demen 2010; 25(8): 674-679.
15. Forbat L, Haraldsdottir E, Lewis M, et al. Supporting the provision
of palliative care in the home environment: a proofof-
concept single-arm trial of a PalliativE Carers Education
Package (PrECEPt). BMJ Open 2016; 6(10): e012681.
16. McClement SE and Harlos M. When advanced cancer
patients won't eat: family responses. Int J Palliat Nurs
2008; 14(4): 182-188.
17. Cohen MZ, Torres-Vigil I, Burbach BE, et al. The meaning
of parenteral hydration to family caregivers and patients
with advanced cancer receiving hospice care. J Pain
Symptom Manage 2012; 43(5): 855-865.
18. Chai HZ, Krishna LK and Wong VH. Feeding: what it
means to patients and caregivers and how these views influence
Singaporean Chinese caregivers' decisions to continue
feeding at the end of life. Am J Hosp Palliat Care 2014;
31(2): 166-171.
19. Armes PJ and Addington-Hall J. Perspectives on symptom
control in patients receiving community palliative care.
Palliat Med 2003; 17(7): 608-615.
20. Docherty A, Owens A, Asadi-Lari M, et al. Knowledge and
information needs of informal caregivers in palliative care:
a qualitative systematic review. Palliat Med 2008; 22(2):
153-171.
21. Letizia M, Creech S, Norton E, et al. Barriers to caregiver
administration of pain medication in hospice care. J Pain
Symptom Manage 2004; 27(2): 114-124.
22. Lin CC. Barriers to the analgesic management of cancer
pain: a comparison of attitudes of Taiwanese patients and
their family caregivers. Pain 2000; 88(1): 7-14.
23. Mehta A, Chan LS and Cohen SR. Flying blind: sources of
distress for family caregivers of palliative cancer patients
managing pain at home. J Psychosoc Oncol 2014; 32(1):
94-111.
24. Ugalde A, Krishnasamy M and Schofield P. Development
of an instrument to measure self-efficacy in caregivers of
people with advanced cancer. Psychooncology 2013; 22(6):
1428-1434.
25. Lund L, Ross L and Groenvold M. The initial development
of the 'Cancer Caregiving Tasks, Consequences and Needs
Questionnaire' (CaTCoN). Acta Oncol 2012; 51(8): 1009-
1019.
26. Archbold P, Stewart B, Greenlick M, et al. Mutuality and
preparedness as predictors of role strain. Res Nurs Health
1990; 13: 375-384.
27. Hudson PL and Hayman-White K. Measuring the psychosocial
characteristics of family caregivers of palliative care patients: psychometric properties of nine self-report
instruments. J Pain Symptom Manage 2006; 31(3): 215-
228.
28. Carter JH, Stewart BJ, Archbold PG, et al. Living with
a person who has Parkinson's disease: the spouse's perspective
by stage of disease. Mov Disord 1998; 13(1):
20-28.
29. Wittenberg E, Goldsmith J, Ferrell B, et al. Promoting
improved family caregiver health literacy: evaluation of
caregiver communication resources. Psychooncology. Epub
ahead of print 16 March 2016. DOI: 10.1002/pon.4117.
30. Arain M, Campbell MJ, Cooper CL, et al. What is a pilot or
feasibility study? A review of current practice and editorial
policy. BMC Med Res Methodol 2010; 10: 67.
31. Braun V and Clarke V. Using thematic analysis in psychology.
Qual Res Psychol 2006; 3(2): 77-101.
32. Lobb EA, Hudson PL, Thomas K, et al. Psycho-educational
group intervention for family caregivers of hospitalized palliative
care patients: pilot study. J Palliat Med 2012; 15(3):
277-281.
33. Keefe FJ, Ahles TA, Porter LS, et al. The self-efficacy of
family caregivers for helping cancer patients manage pain
at end-of-life. Pain 2003; 103(1-2): 157-162.
34. Chi NC, Demiris G, Lewis FM, et al. Behavioral and educational
interventions to support family caregivers in end-oflife
care: a systematic review. Am J Hosp Palliat Care 2016;
33(9): 894-908.
35. Norinder M, Goliath I and Alvariza A. Patients' experiences
of care and support at home after a family member's participation
in an intervention during palliative care. Palliat
Support Care. Epub ahead of print 17 October 2016. DOI:
10.1017/S1478951516000729.32pub4880pub
The Evolution, Spread and Global Threat of H6Nx Avian Influenza Viruses
Avian influenza viruses of the subtype H6Nx are being detected globally with increasing
frequency. Some H6Nx lineages are becoming enzootic in Asian poultry and sporadic incursions into European poultry are occurring more frequently. H6Nx viruses that contain mammalian adaptation motifs pose a zoonotic threat and have caused human cases. Although currently understudied globally, H6Nx avian influenza viruses pose a substantial threat to both poultry and human health. In this review we examine the current state of knowledge of H6Nx viruses including their global distribution, tropism, transmission routes and human health risk
Green growth strategy: The economywide impact of promoting renewable power generation in the Philippines
This study assesses the economywide impact of promoting renewable power generation by targeting a 50 percent share of renewables in energy production by 2040. Using a novel approach by linking a bottom-up energy model with a top-down economywide model, we found that increasing the share of renewables in the power sector could slightly slow down the industrialization process and reduce economic growth. Implementing this policy, however, would allow the country to reduce carbon emissions by 65 million tons in 2040 and improve energy security. The health co-benefit is estimated to reach up to 324 billion Philippine pesos (PHP), which levels the welfare loss. Receiving foreign financial inflow as a compensation for reducing carbon emissions could drive the economy into Dutch disease, shifting more economic activities into the nontradable sector. Increasing total investment demand in the future as a policy response could potentially mitigate this effect and improve economic welfare by 155 billion PHP
Detection of Highly Pathogenic Avian Influenza Virus H5N1 Clade 2.3.4.4b in Great Skuas:A Species of Conservation Concern in Great Britain
The UK and Europe have seen successive outbreaks of highly pathogenic avian influenza across the 2020/21 and 2021/22 autumn/winter seasons. Understanding both the epidemiology and transmission of these viruses in different species is critical to aid mitigating measures where outbreaks cause extensive mortalities in both land- and waterfowl. Infection of different species can result in mild or asymptomatic outcomes, or acute infections that result in high morbidity and mortality levels. Definition of disease outcome in different species is of great importance to understanding the role different species play in the maintenance and transmission of these pathogens. Further, the infection of species that have conservation value is also important to recognise and characterise to understand the impact on what might be limited wild populations. Highly pathogenic avian influenza virus H5N1 clade 2.3.4.4b has been detected in great skuas (Stercorarius skua) across different colonies on islands off the shore of Scotland, Great Britain during summer 2021. A large number of great skuas were observed as developing severe clinical disease and dying during the epizootic and mortalities were estimated to be high where monitored. Of eight skuas submitted for post-mortem examination, seven were confirmed as being infected with this virus using a range of diagnostic assays. Here we overview the outbreak event that occurred in this species, listed as species of conservation concern in Great Britain and outline the importance of this finding with respect to virus transmission and maintenance
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