Perceptions of Burden and Preparedness for Caregiving among the Family Caregivers of Hospitalised Older Adults: A Cross-Sectional Stud

Background: Due to the increasing care needs of older adults, family caregivers are more and more solicited. This can have a negative impact on their quality of life related to a lack of preparedness for caregiving and feelings of burden. Objectives: To measure perceptions of burden and preparedness for caregiving among the family caregivers of hospitalised older adults, and to explore their possible associations. Methods: A cross-sectional study conducted in two university hospital geriatrics wards in Switzerland. Principal family caregivers of hospitalised older adults were invited to complete sociodemographic, the Zarit Burden Interview, and the Preparedness for Caregiving Scale questionnaires. Descriptive and correlational data analyses were performed. Results: Of the 38 responding caregivers, 80% provided informal care to their spouse or parent; 45% reported a lack of preparedness to provide care and 61% reported substantial levels of burden. There was no statistically significant correlation between preparedness and burden (ρ ≤ −0.30, p = 0.07). Conclusions: A significant proportion of caregivers reported burden and a lack of preparedness. Healthcare professionals should provide adequate support to help informal caregivers to fulfil their roles

Ethique de la relation d’accompagnement : analyse de l’activité des formateurs en soins infirmiers

La thèse de doctorat porte sur l'éthique dans la relation éducative. Elle s'intéresse à l'engagement du formateur pour orienter son activité dans une relation d'accompagnement en formation professionnelle continue en soins infirmiers. Il est fait l'hypothèse que cet engagement ne peut être qu'éthique et orienté dans une éthique de la relation. La problématique de recherche porte sur la relation d'accompagnement visant la professionnalisation dans une profession traversée par différentes finalités. La méthodologie de recherche s'appuie sur l'analyse de l'activité, utilisant des traces visuelles et auditives pour l'élaboration d'une compréhension de l'engagement éthique pour s'orienter par l'action. L'investigation de l'activité de six formateurs dans la relation d'accompagnement est conduite à partir d'une double analyse, du discours et interprétative sur la base d'indicateurs issus du cadre théorique élaboré.Les résultats éclairent l'extrême variabilité de l'orientation éthique et l'importance de l'expérience dans le déploiement d'une réflexivité délibérante. Cette variabilité a des conséquences sur la manière d'investir la relation éducative d'accompagnement, ses dilemmes et de conduire la mission de formation. Une éthique de la relation met en œuvre un accompagnement autorisant une professionnalisation comme mise en projet par la reliance à la culture infirmière.La finalité de ce travail de recherche s'inscrit dans une didactique au service de la formation. L'utilisation du collectif apparaît comme un moyen pouvant servir à faire émerger un travail d'interprétation de l'action et de soi et la faculté à délibérer sur la légitimité de ses actes.PhD thesis is part of the field research on ethics in the educational relationship. She is interested in the commitment of the trainer to guide his activity in a relationship of coaching in the field of continuing professional education in nursing. It is hypothesized that this commitment can only be ethical and oriented in an ethics of the relationship.The research problematic focuses on the relationship of coaching to professionalization in nursing, a professional field crossed by different finalities. Methodologically, the research relies on the analysis of the activity, using visual and auditory traces in the development of the understanding of the ethical commitment to direct action. The investigation of the activity of six trainers in the relationship of coaching is conduct from double analysis, discourse analysis and interpretative analysis on the basis on indicators developed from the theoretical framework.The results shed light on the extreme variability of the trainers' ethical orientation and on the importance of the experience in the deployment of a deliberative reflexivity. This variability has consequences on how to conduct the relationship of coaching, to deal with its dilemmas and with the training mission. An ethics of the relationship implements a coaching allowing professionalization process as power of action by the reliance with the nursing culture.The purpose of this research is part of a didactic dedicated to the teacher training. Using the collective appears as a mean that can be used by a trainer to develop an interpretation of action and of himself, and the ability to deliberate on the legitimacy of his actions

La perception des personnes présentant une déficience intellectuelle de la communication offerte par les soignants lors d’une hospitalisation

Les personnes présentant une déficience intellectuelle (PPDI) hospitalisées font fréquemment l’expérience d’une communication difficile avec les soignants. La communication centrée sur le patient (CCP) améliore la qualité de la relation patient-soignant et les résultats de santé. Méthode : Étude descriptive corrélationnelle qui avait pour but de mesurer la CCP perçue par ces personnes durant leur hospitalisation. Un questionnaire a été rempli par 32 personnes, comprenant des PPDI auto-représentées et hétéro-représentées. Les données ont été analysées de manière descriptive; des associations et des corrélations ont été recherchées. Résultats : La CCP était perçue comme satisfaisante par 62 % des participants. Le score de perception de la CCP était associé négativement à la dimension « Perte/Dommage » de l’appréciation cognitive de l’hospitalisation.People with intellectual disability (PID) who are hospitalized frequently experience difficult communication with caregivers. Patient-centered communication (PCC) improves the quality of the patient-caregiver relationship and health outcomes. Method: A descriptive correlational study to measure the perceived PCC of these individuals during their hospitalization. A questionnaire was completed by 32 individuals, including self-represented and hetero-represented PID. Data were analyzed descriptively; associations and correlations were sought. Results: PCC was perceived as satisfactory by 62% of participants. The PCC perception score was negatively associated with the "Loss/Damage" dimension of the cognitive appraisal of hospitalization

Adults with intellectual disabilities’ satisfaction regarding their hospitalization ::a correlational descriptive study

When hospitalized, adults with intellectual disabilities are more anxious and have more unmet needs than the general population. Despite these problems, studies report contradictory results about their satisfaction with hospitalization. The aim of this study was to determine the level of satisfaction of adults with intellectual disabilities regarding their hospital care and the factors associated with satisfaction. An analysis of the Patient Satisfaction Scale (PSS) and Cognitive Appraisal of Health Scale (CAHS) instruments completed by adults with intellectual disabilities, or their caregivers, after hospitalization was done. The 32 participants’ mean PSS score was 3.6/5, with means of 13.3/25 and 8.7/25 on the CAHS’ ‘harm/loss’ dimension and ‘challenge’ dimension, respectively. None of the factors studied was associated with the total PSS score. Adults with intellectual disabilities were not fully satisfied with their hospital care, experiencing challenges and losses. These findings call for a rethink of the care provided to this population

Perceptions of burden and preparedness for caregiving among the family caregivers of hospitalised older adults ::a cross-sectional study

Background: Due to the increasing care needs of older adults, family caregivers are more and more solicited. This can have a negative impact on their quality of life related to a lack of preparedness for caregiving and feelings of burden. Objectives: To measure perceptions of burden and preparedness for caregiving among the family caregivers of hospitalised older adults, and to explore their possible associations. Methods: A cross-sectional study conducted in two university hospital geriatrics wards in Switzerland. Principal family caregivers of hospitalised older adults were invited to complete sociodemographic, the Zarit Burden Interview, and the Preparedness for Caregiving Scale questionnaires. Descriptive and correlational data analyses were performed. Results: Of the 38 responding caregivers, 80% provided informal care to their spouse or parent; 45% reported a lack of preparedness to provide care and 61% reported substantial levels of burden. There was no statistically significant correlation between preparedness and burden (ρ ≤ −0.30, p = 0.07). Conclusions: A significant proportion of caregivers reported burden and a lack of preparedness. Healthcare professionals should provide adequate support to help informal caregivers to fulfil their roles

Behavioral pain indicators for adults with an intellectual disability: a scoping review protocol

This scoping review aims to identify and map the behavioral pain indicators observed when adults with intellectual disability experience pain

Behavioral pain indicators for adults with an intellectual disability ::a scoping review protocol

Objective: This scoping review aims to identify and map the behavioral pain indicators observed when adults with an intellectual disability experience pain. Introduction: Adults with an intellectual disability have more health problems than the general population. The likelihood they experience pain is high, but intellectual disability can obstruct the verbal expression of it. Adults with an intellectual disability express pain via behavioral pain indicators, but because no behavioral pain scale exists for this population, an observer may misinterpret the pain of adults with an intellectual disability. Inclusion criteria: The review will examine literature about behavioral pain indicators for adults with any type of intellectual disability who are suffering from any type of pain in any country or care setting. Methods: The review will be conducted according to JBI recommendations for scoping reviews. A preliminary search equation focusing on the concepts of intellectual disability and pain measurement was prepared for PubMed and CINAHL in March 2022. Once the protocol has been validated, searches will also be carried out in Embase, JBI EBP Database, the Cochrane Database of Systematic Reviews, ProQuest Dissertations and Theses, PsycINFO Ovid, Web of Science Core Collection, ERIC, Google Scholar, MedNar, and other significant associations’ websites. Titles and abstracts and then full-text studies will be selected independently by 2 researchers and assessed against the inclusion criteria. Relevant information will be imported into a data chart. Any behavioral pain indicators identified will be classified into 14 behavioral categories. Review registration number: Open Science Framework osf.io/8xck