Primary immune deficiencies - principles of care

Primary immune deficiencies (PIDs) are a growing group of over 230 different disorders caused by ineffective, absent or an increasing number of gain of function mutations in immune components, mainly cells and proteins. Once recognized, these rare disorders are treatable and in some cases curable. Otherwise untreated PIDs are often chronic, serious, or even fatal. The diagnosis of PIDs can be difficult due to lack of awareness or facilities for diagnosis, and management of PIDs is complex. This document was prepared by a worldwide multi-disciplinary team of specialists; it aims to set out comprehensive principles of care for PIDs. These include the role of specialized centers, the importance of registries, the need for multinational research, the role of patient organizations, management and treatment options, the requirement for sustained access to all treatments including immunoglobulin therapies and hematopoietic stem cell transplantation, important considerations for developing countries and suggestions for implementation. A range of healthcare policies and services have to be put into place by government agencies and healthcare providers, to ensure that PID patients worldwide have access to appropriate and sustainable medical and support services

Transnationalism, an idea of human rights approach to violence against vulnerable groups (case study LGBT communities in Uganda)

This paper investigates the development of transnational human rights activists’ networks and how they operate and influence LGBTI human rights activist networks in Uganda against violence on the Ugandan LGBTI communities. The case study, employs semi structured interviews to investigate, how transnational networks are used as a mobilization too in promoting LGBTI human rights in Uganda. Further investigation is done on how transnational networks influence different social networks within local LGBTI activist groups when dealing with violence against the LGBTI communities. The study is taken from a view point of different local LGBTI activist groups and their close link with other international organizations and human rights bodies specifically from countries such as Sweden. Theories surrounding transnational networks and social networks are used in order to frame both cross border relations and local networks among the LGBTI groups. The study also calls for further research on other actors such as transnational migrants and individual activist including social media activist and their impact on the rights of LGBTI in Uganda

Transnationalism, an idea of human rights approach to violence against vulnerable groups (case study LGBT communities in Uganda)

This paper investigates the development of transnational human rights activists’ networks and how they operate and influence LGBTI human rights activist networks in Uganda against violence on the Ugandan LGBTI communities. The case study, employs semi structured interviews to investigate, how transnational networks are used as a mobilization too in promoting LGBTI human rights in Uganda. Further investigation is done on how transnational networks influence different social networks within local LGBTI activist groups when dealing with violence against the LGBTI communities. The study is taken from a view point of different local LGBTI activist groups and their close link with other international organizations and human rights bodies specifically from countries such as Sweden. Theories surrounding transnational networks and social networks are used in order to frame both cross border relations and local networks among the LGBTI groups. The study also calls for further research on other actors such as transnational migrants and individual activist including social media activist and their impact on the rights of LGBTI in Uganda

Theophile Obenga, African New World Studies Lecture Series

African New World Studies Lecture Series Speaker: Theophile Obenga Opening remarks by Carol Boyce Davies Kovens Conference Center Center, Biscayne Bay Campus 7PMhttps://digitalcommons.fiu.edu/aads_lectureseries/1036/thumbnail.jp

La Vie de Marien Ngouabi : 1938-1977 / Théophile Obenga

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Theophile Obenga, African New World Studies Lecture Series

African New World Studies Lecture Series Speaker: Theophile Obenga Opening remarks by Carol Boyce Davies Kovens Conference Center Center, Biscayne Bay Campus 7P