Telemedicine in diabetes foot care delivery: health care professionals’ experience

Background: Introducing new technology in health care is inevitably a challenge. More knowledge is needed to better plan future telemedicine interventions. Our aim was therefore to explore health care professionals’ experience in the initial phase of introducing telemedicine technology in caring for people with diabetic foot ulcers. Methods: Our methodological strategy was Interpretive Description. Data were collected between 2014 and 2015 using focus groups (n = 10). Participants from home-based care, primary care and outpatient hospital clinics were recruited from the intervention arm of an ongoing cluster randomized controlled trial (RCT) (Clinicaltrials.gov: NCT01710774). Most were nurses (n = 29), but the sample also included one nurse assistant, podiatrists (n = 2) and physicians (n = 2). Results: The participants reported experiencing meaningful changes to their practice arising from telemedicine, especially associated with increased wound assessment knowledge and skills and improved documentation quality. They also experienced more streamlined communication between primary health care and specialist health care. Despite obstacles associated with finding the documentation process time consuming, the participants’ attitudes to telemedicine were overwhelmingly positive and their general enthusiasm for the innovation was high. Conclusions: Our findings indicate that using a telemedicine intervention enabled the participating health care professionals to approach their patients with diabetic foot ulcer with more knowledge, better wound assessment skills and heightened confidence. Furthermore, it streamlined the communication between health care levels and helped seeing the patients in a more holistic way. Keywords: telemedicine, diabetic foot ulcer, focus groups, interpretive description, health care professional

Diabetes knowledge in nursing homes and home-based care services: a validation study of the Michigan Diabetes Knowledge Test adapted for use among nursing personnel

Background: Providing high-quality diabetes care in nursing homes and home-based care facilities requires suitable instruments to evaluate the level of diabetes knowledge among the health-care providers. Thus, the aim of this study was to examine the psychometric properties of the Michigan Diabetes Knowledge Test adapted for use among nursing personnel. Methods: The study included 127 nursing personnel (32 registered nurses, 69 nursing aides and 26 nursing assistants) at three nursing homes and one home-based care facility in Norway. We examined the reliability and content and construct validity of the Michigan Diabetes Knowledge Test. Results: The items in both the general diabetes subscale and the insulin-use subscale were considered relevant and appropriate. The instrument showed satisfactory properties for distinguishing between groups. Item response theory-based measurements and item information curves indicate maximum information at average or lower knowledge scores. Internal consistency and the item-total correlations were quite weak, indicating that the Michigan Diabetes Knowledge Test measures a set of items related to various relevant knowledge topics but not necessarily related to each other. Conclusions: The Michigan Diabetes Knowledge Test measures a broad range of topics relevant to diabetes care. It is an appropriate instrument for identifying individual and distinct needs for diabetes education among nursing personnel. The knowledge gaps identified by the Michigan Diabetes Knowledge Test could also provide useful input for the content of educational activities. However, some revision of the test should be considered.publishedVersio

Health related quality of life after extremely preterm birth: a matched controlled cohort study

<p>Abstract</p> <p>Background</p> <p>The majority of infants born before the last trimester now grow up. However, knowledge on subsequent health related quality of life (HRQoL) is scarce. We therefore aimed to compare HRQoL in children born extremely preterm with control children born at term. Furthermore, we assessed HRQoL in relation to perinatal and neonatal morbidity and to current clinical and sociodemographic characteristics.</p> <p>Method</p> <p><it>The Child Health Questionnaire </it>(CHQ-PF50) and a general questionnaire were applied in a population based cohort of 10 year old children born at gestational age ≤ 28 weeks or with birth weight ≤ 1000 grams in Western Norway in 1991-92 and in term-born controls, individually matched for gender and time of birth. The McNemar test and paired t-tests were used to explore group differences between preterms and matched controls. Paired regression models and analyses of interaction (SPSS mixed linear model) were used to explore potential effects of sociodemographic and clinical characteristics on HRQoL in the two groups.</p> <p>Results</p> <p>All 35 eligible preterm children participated. None had major impairments. Learning and/or attention problems were present in 71% of preterms and 20% of controls (odds ratio (OR): 7.0; 95% confidence interval (CI): 2.2 to 27.6). Insufficient professional support was described by 36% of preterm vs. 3% of control parents (OR: infinite; CI: 2.7 to infinite). Preterms scored lower on eight CHQ-PF50 sub-scales and the two summary scores, boys accounting for most of the deficits in areas of behavior, psychosocial functioning and parental burden. HRQoL was associated with learning and/or attention problems in both preterm and control children, significantly more so in preterms in areas related to health and parental burden. Within the preterm group, HRQoL was mostly unrelated to perinatal and neonatal morbidity.</p> <p>Conclusions</p> <p>HRQoL for children born extremely preterm, and particularly for boys, was described by parents to be inferior to that of children born at term, and sufficiently poor to affect the daily life of the children and their families. Learning and/or attention problems were reported for a majority of preterms, strongly influencing their HRQoL.</p

Written reflection in an eHealth intervention for adults with type 2 diabetes mellitus: a qualitative study

Background: Individuals with type 2 diabetes mellitus (T2DM) are responsible for the daily decisions and actions necessary to manage their disease, which makes self-management the cornerstone of diabetes care. Many patients do not reach recommended treatment goals, and thus it is important to develop and evaluate innovative interventions that facilitate optimal motivation for adequate self-management of T2DM. Objective: The aim of the current study was to explore how adults with T2DM experience using reflection sheets to stimulate written reflection in the context of the Guided Self-Determination (GSD) eHealth intervention and how written reflection might affect their motivation for self-management of T2DM. Methods: We used a qualitative design in which data were collected through individual interviews. The sample consisted of 10 patients who completed the GSD eHealth intervention, and data were analyzed using qualitative content analysis. Results: The qualitative content analysis yielded 2 main themes. We labeled the first theme as “Written reflection affects awareness and commitment in diabetes self-management”, which reflects 2 subthemes, namely, “Writing creates space and time for autonomous reflection” and “Writing influences individuals’ focus in diabetes self-management”. We labeled the second theme as “Written reflection is perceived as inapplicable in diabetes self-management”, which reflects 2 subthemes, namely, “Responding in writing is difficult” and “The timing of the writing is inappropriate”. Conclusion: Our findings indicate that written reflection in the context of the GSD eHealth intervention may be conducive to motivation for diabetes self-management for some patients. However, it seems that in-person consultation with the diabetes nurse may be necessary to achieve the full potential benefit of the GSD as an eHealth intervention. We advocate further development and examination of the GSD as a “blended” approach, especially for those who consider written reflection to be difficult or unfamiliar.publishedVersio

Dropout From an eHealth Intervention for Adults With Type 2 Diabetes: A Qualitative Study

Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 30.05.2017. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/).Background: Adequate self-management is the cornerstone of type 2 diabetes treatment, as people make the majority of daily treatment measures and health decisions. The increasing prevalence of type 2 diabetes mellitus (T2DM) and the complexity of diabetes self-management demonstrate the need for innovative and effective ways to deliver self-management support. eHealth interventions are promoted worldwide and hold a great potential in future health care for people with chronic diseases such as T2DM. However, many eHealth interventions face high dropout rates. This led to our interest in the experiences of participants who dropped out of an eHealth intervention for adults with T2DM, based on the Guided Self-Determination (GSD) counseling method. Objective: In this study, we aimed to explore experiences with an eHealth intervention based on GSD in general practice from the perspective of those who dropped out and to understand their reasons for dropping out. To the best of our knowledge, no previous qualitative study has focused on participants who withdrew from an eHealth self-management support intervention for adults with T2DM. Methods: A qualitative design based on telephone interviews was used to collect data. The sample comprised 12 adults with type 2 diabetes who dropped out of an eHealth intervention. Data were collected in 2016 and subjected to qualitative content analysis. Results: We identified one overall theme: “Losing motivation for intervention participation.” This theme was illustrated by four categories related to the participants’ experiences of the eHealth intervention: (1) frustrating technology, (2) perceiving the content as irrelevant and incomprehensible, (3) choosing other activities and perspectives, and (4) lacking face-to-face encounters. Conclusions: Our findings indicate that the eHealth intervention based on GSD without face-to-face encounters with nurses reduced participants’ motivation for engagement in the intervention. To maintain motivation, our study points to the importance of combining eHealth with regular face-to-face consultations. Our study also shows that the perceived benefit of the GSD eHealth intervention intertwined with choosing to focus on other matters in complex daily lives are critical aspects in motivation for such interventions. This indicates the importance of giving potential participants tailored information about the aim, the content, and the effort needed to remain engaged in complex interventions so that eligible participants are recruited. Finally, motivation for engagement in the eHealth intervention was influenced by the technology used in this study. It seems important to facilitate more user-friendly but high-security eHealth technology. Our findings have implications for improving the eHealth intervention and to inform researchers and health care providers who are organizing eHealth interventions focusing on self-management support in order to reduce dropout rates.publishedVersio

Har satsingen på pedodonti gitt resultater? Henvisninger til spesialister i pedodonti i Hordaland i 2014-2019

Hovedmålet med denne studien var å vurdere om satsingen i pedodonti i vest fra 2013 hadde ført til en økning i henvisninger til spesialisttjenesten i pedodonti i Bergen sammenlignet med en tidligere kartlegging 2006–2013. Delmål var å registrere antall henvisninger, geografisk spredning, alderssammensetning, henvisningsårsaker, hvilke yrkesgrupper helsepersonell som henviste, ventetid, samt å sammenligne resultatene med andre norske og svenske studier. Grunnlaget for studien var alle mottatte henvisninger til spesialisttjenesten i pedodonti ved Tannhelsetjenestens kompetansesenter Vest/Hordaland i løpet av seksårsperioden 2014–2019. Totalt ble 1781 henvisninger registrert. Prosentandelen av den totale befolkningen barn og ungdom som ble henvist fra tidligere Hordaland, var markant høyere enn tilsvarende prosentandel rapportert i en tidligere studie i samme område (0,23 % vs. 0,03 %). Økt avstand fra behandlingsstedet resulterte i færre henvisninger, og særlig var henvisningsantallet fra tidligere Sogn & Fjordane fylke bekymringsfullt lavt. Aldersgruppen 7–15 år utgjorde nesten tre-fjerdedel av henvisningene, og erupsjonsproblematikk var årsaken til flest henvisninger. Den gjennomsnittlige ventetiden for spesialistbehandling var ca. 2 måneder. I tillegg utgjorde rådgivningstjeneste fra spesialister en viktig del av tilbudet. Studien viser at satsingen har gitt et bedre spesialisttilbud for barn og unge i vår region, men at det bør satses på å utdanne flere spesialister slik at en kan oppnå en bedre regional dekning.publishedVersio

Reliability and validity of the Norwegian child and parent versions of the DISABKIDS Chronic Generic Module (DCGM-37) and Diabetes-Specific Module (DSM-10)

<p>Abstract</p> <p>Background</p> <p>International guidelines on type 1 diabetes advocate routine screening of health-related quality of life (HRQOL). DISABKIDS questionnaires are the first instruments developed across cultures and nations to provide age-appropriate measures of HRQOL in children with chronic diseases. DISABKIDS includes a Chronic Generic Module 37 (DCGM-37) and disease-specific modules. The purpose of this study was to examine reliability and validity of the Norwegian versions of the DISABKIDS questionnaires in children and adolescents with type 1 diabetes.</p> <p>Methods</p> <p>The DCGM-37 and the Diabetes Specific Module-10 (DDM-10) were translated into Norwegian using standard forward-backward translation. Eight to 19 year old children and adolescents with type 1 diabetes scheduled for routine follow-up at three diabetic clinics in Norway and one of their parents were invited to complete the DCGM-37 and the DDM-10. Internal consistency was determined using Cronbach's alpha. Results were compared with those of the Child Health Questionnaire Children Form-87 (CHQ-CF87) and Child Health Questionnaire Parent Form-50 which are established generic questionnaires. DISABKIDS results were related to age, gender, duration of diabetes, mode of insulin delivery and metabolic control. Clinical data were obtained from the Norwegian Childhood Diabetes Registry.</p> <p>Results</p> <p>Of 198 eligible child-parent dyads, 103 (52%) completed the questionnaires. Mean age was 13.6 (2.6), range 8-19 yrs, 52% were boys. Cronbach's alpha was > 0.70 for all the DISABKIDS sub-scales except two (physical ability and social inclusion). There were moderate to high correlations (0.65-0.81) between the DISABKIDS scales and mental/emotional sub-scales of CHQ-CF87. Increasing age and higher HbA1c were significantly associated with reduced HRQOL scores. Parents tended to score their child's HRQOL lower than the children/adolescents themselves.</p> <p>Conclusions</p> <p>The study shows that the DISABKIDS instruments are applicable to a Norwegian childhood diabetes population. They seem to be a relevant supplement to other clinical indicators in medical practice and research.</p

Learning transitions-a descriptive study of nurses\u27 experiences during advanced level nursing education

BACKGROUND: Building capacity in a changing health care system is a challenge for advanced nursing education programs. Master-level nursing education is increasingly becoming the required education level for specialist nurses, and additional studies are needed to learn more about students\u27 experiences and learning transitions while undertaking such education. This study aimed to explore nursing students\u27 experience of their learning transitions while undertaking advanced nursing education and to describe how they translated the new knowledge and competence they gained into clinical practice. METHODS: We used a qualitative research design with narrative self-reported reflections. 34 nurses (95 % women) from both urban and rural areas working with children, with adults in outpatient and inpatient endocrinology clinics in hospitals or with adults, including older people, attending primary health care services participated in the study. We collected data at two time points 15 months apart. Time one was the first week of the advanced nursing education, and time two was the completion of the education program. We used Malterud\u27s modification of Giorgi\u27s phenomenological analysis, otherwise known as systematic text condensation, to analyze the data. RESULTS: Two core themes captured the participants\u27 experiences. The first theme was &quot;assessing the situation of people with diabetes from a different perspective&quot;, with the subthemes &quot;an expanded perspective of practice and higher level of reflection&quot;, &quot;applying critical thinking in practice&quot; and &quot;changing patient-nurse relationships in diabetes care&quot;. The second core theme was &quot;a change in participants\u27 perception of their professional position&quot;, with the subthemes &quot;a greater knowledge base enhancing professional confidence&quot; and &quot;a more equal position within the professional team&quot;. CONCLUSIONS: The study provides in-depth information about transition into advanced nursing education and can inform curriculum developers, nurse educators, policy-makers and nursing managers about how nursing education broadened participants\u27 perspectives of nursing and enhanced their confidence and professional position

The coping styles of adolescents with type 1 diabetes are associated with degree of metabolic control

WSTĘP. Celem badania była analiza różnych sposobów radzenia sobie z problemami w grupie młodzieży chorej na cukrzycę typu 1 i ocena zależności między kontrolą metaboliczną a jakością życia związaną z cukrzycą. MATERIAŁ I METODY. Z grupy 116 osób chorych na cukrzycę typu 1, będących w okresie dojrzewania (wiek 13-18 lat), w badaniu wzięły udział 103 osoby (89%) &#8212; 52 chłopców i 51 dziewcząt. Pacjenci wypełnili kwestionariusz dotyczący sposobów radzenia sobie z problemem i oceny jakości życia związanej z cukrzycą. Średni wiek badanych (&plusmn; SD) wynosił 14,9 &plusmn; 1,6 roku, czas trwania cukrzycy 7,1 &plusmn; 3,8 roku, stężenie HbA1c 9,4 &plusmn; 1,6%. WYNIKI. Wykazano istotny statystycznie związek między podwyższonym stężeniem HbA1c a większym nasileniem myślowego (r = 0,25; p < 0,05) i behawioralnego (r = 0,33; p < 0,01) uciekania od problemów oraz częstszym wykorzystywaniem agresji jako sposobu radzenia sobie z nimi (r = 0,33; p < 0,01). Wielokrotna krokowa analiza regresji wykazała, że częstsze stosowanie agresji jako jednego ze sposobów radzenia sobie z problemami (p < 0,05) i behawioralnego uciekania od problemu (p < 0,05) były istotnie statystycznie związane z podwyższonym stężeniem HbA1c. Aktywne radzenie sobie z problemami (p < 0,05) wiązało się istotnie z obniżeniem stężenia HbA1c. Analiza korelacji cząstkowych wykazała, że niższa punktacja dotycząca jakości życia związanej z cukrzycą wiązała się z częstszym stosowaniem emocjonalnych sposobów radzenia sobie z problemem (r = -0,22 do -0,49). Wielokrotna krokowa analiza regresji wykazała, że częstsze myślowe unikanie problemu zmniejszało odczuwanie wpływu cukrzycy na życie. WNIOSKI. U osób w wieku dojrzewania, chorych na cukrzycę typu 1, zła kontrola metaboliczna i niska jakość życia związana z cukrzycą powodują częstsze stosowanie emocjonalnych sposobów radzenia sobie z problemami.INTRODUCTION. To systematically study the various coping styles in a population-based sample of adolescents with type 1 diabetes, exploring the association of different coping styles with metabolic control and adolescent self-reported diabetes-related quality of life. MATERIAL AND METHODS. Of a total population of 116 adolescents with type 1 diabetes (age 13&#8211;18 years), 103 (89%) participated in the study, completing a questionnaire to obtain information on coping styles and perception of diabetes-specific quality of life. The mean age (&#177; SD) was 14.9 &#177; 1.6 years, diabetes duration 7.1 &#177; 3.8 years, HbA1c 9.4 &#177; 1.6%, and male-to-female ratio 52:51. RESULTS. There was a significant correlation between higher HbA1c values and higher degree of mental (r = 0.25, P < 0.05) and behavioral (r = 0.33, P < 0.01) disengagement and aggressive coping (r = 0.33, P < 0.01). Stepwise multiple regression analyses indicated that greater use of aggressive coping (P < 0.05) and behavioral disengagement (P < 0.05) were significantly related to increase in HbA1c. Greater use of active coping (P < 0.05) was signifi- cantly related to a decrease in HbA1c. Partial correlation analysis showed that lower scores on diabetes-specific quality of life were significantly related to greater use of emotion-focused coping (r = &#8211;0.22 to &#8211;0.49). Stepwise multiple regression analyses showed that greater use of mental disengagement was significantly related to lower degree of perceived diabetes- related impact. CONCLUSIONS. Poor metabolic control and lower degree of diabetes-related quality of life are associated with greater use of emotion-focused coping in adolescents with type 1 diabetes

Young adults with type 1 diabetes and their experiences with diabetes follow‐up and participation in the DiaPROM pilot trial: A qualitative study

This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.Aim To explore young adults' experiences of outpatient follow‐up appointments, completing electronic Patient‐Reported Outcome Measures (PROMs), and using the Problem Areas In Diabetes (PAID) scale during the Diabetes Patient‐Reported Outcome Measures (DiaPROM) pilot trial. Methods We performed a qualitative study among 19 young adults (aged 22–39 years) with type 1 diabetes who participated in the pilot trial. Between February and June 2019, we conducted individual, semi‐structured telephone interviews with participants from the intervention and control arms. We analysed the data using thematic analysis. Results Our analyses generated three themes, each with two subthemes: (1) Follow‐up with limitations; (i) Marginal dialogue about everyday challenges, (ii) Value of supportive relationships and continuity, indicate that previous follow‐up had been experienced as challenging and insufficient. (2) New insights and raised awareness; (i) More life‐oriented insights, (ii) Moving out of the comfort zone, suggest mostly positive experiences with completing questionnaires and discussing the PAID scores. (3) Addressing problem areas with an open mind; (i) Need for elaboration, (ii) Preparedness for dialogue, indicate that both openness and explanations were vital in the follow‐up. Conclusions Participants characterised the previous follow‐up as challenging and insufficient. They described completing and using the PAID as somewhat uncomfortable yet worthwhile. Our findings also suggest that by utilising diabetes distress data alongside health and biomedical outcomes, consultations became more attuned to the young adults' wishes and needs, mainly because the dialogue was more focused and direct. Hence, the PAID has the potential to facilitate person‐centredness and improve patient–provider relationships.publishedVersio