41 research outputs found

    Friendship Experiences of Young Adults Who Use Augmentative and Alternative Communication

    Get PDF
    © 2020, © 2020 Informa UK Limited, trading as Taylor & Francis Group. Background: Friendship is a crucial relationship for young adults with disabilities as it offers practical support and enjoyment, and it is essential to well-being and health. The present study examined the friendships of young adults with physical disabilities whose challenges with natural speech necessitate the use of augmentative and alternative communication. Methods: Ten adults aged 19–32 were interviewed about their friendships. The semi-structured interviews were often co-constructed conversations between the participant, the carer and the interviewer. A process of largely inductive thematic analysis was followed, although this was guided by the existing literature on friendship experiences of persons using AAC. Results: Four themes were identified, namely companionship, quality of friendship, desire for independence, and the role of technology in mediating friendships. Conclusion: The participants in this study experienced positive relationships with friends. The importance of being understood by their friends and the role of social media in maintaining these friendships were highlighted

    The perspectives of adults with aphasia and their team members regarding the importance of nine life areas for rehabilitation : a pilot investigation

    Get PDF
    OBJECTIVES : Client-centred rehabilitation implies that persons with aphasia and their significant others are actively involved in all decisions regarding rehabilitation, including the setting of rehabilitation priorities and goals. This study aimed to describe and compare the perspectives of adults with aphasia, their significant others and their speech-language pathologists (SLPs) regarding the importance of nine life areas for the rehabilitation of adults with aphasia. METHOD : A total of 15 adults with expressive aphasia rated the importance of nine life areas using the Talking Matsâ„¢ framework. A questionnaire was used to obtain the ratings of 15 of their significant others and the 15 SLPs treating them. RESULTS : Most life areas were rated as important to work on in rehabilitation by most participants. The adults with aphasia rated the areas as important more frequently than their significant others and SLPs. All participants rated Communication as important. Statistically significant differences were noted for three of the nine life areas.DISCUSSION : The life areas which the participants were questioned about seem to provide a good starting point for rehabilitation teams to find common ground for collaborative goal setting. The Talking Matsâ„¢ approach allowed adults with aphasia to participate in the process. It can be a useful tool to promote client-centred rehabilitation for adults with expressive communication difficulties.The National Research Foundation (NRF) as well as a postgraduate student bursary from the University of Pretoria.http://www.tandfonline.com/loi/ytsr202018-03-31hb2017Centre for Augmentative and Alternative Communication (CAAC

    Deliberate self-harm and attachment: mediating and moderating roles of depression, anxiety, social support and interpersonal problems among Pakistani school going adolescents

    Get PDF
    Introduction: In Pakistan there is dearth of research on deliberate self-harm (DSH) and its predictors among adolescents. While the lack of research in Pakistan can be partly attributed to the sacrilegious status, criminalization and stigmatization attached to DSH, it is also an attribute of paucity of Urdu versions of the standardized psychological instruments. Previous research in developed countries has indicated that attachment theory can be used as a useful framework to understand the development of austere psychopathologies like DSH, as well as for studying pathways of interaction of interpersonal and intrapersonal factors of psychopathologies. In this study, standardized psychological instruments are translated into Urdu language as a first step. These instruments are then used to study pathways of interaction of interpersonal and intrapersonal factors of DSH, conceptualized within attachment framework. Method: The study was conducted in two steps. In step 1, Youth Health Risk Behavior Survey (YHRB), Inventory of Interpersonal Problems-32 (IIP-32) and Significant Others Scale (SOS), were translated into Urdu language. Along with these scales, Urdu translated versions of Hospital Anxiety and Depression Scale (HADS), Adolescent Relationship Scales Questionnaire (ARSQ), Life Events scale (LES) from CASE questionnaire and Family Affluence Scale-II (FAS-II) were reviewed for accuracy of translation through expert judgement and psychometric evaluation. Secondly, a cross sectional survey was conducted with 1290 adolescents (10 - 19 years age) using the translated Urdu versions of the instruments and demographic pro forma. Structural equation modelling was used to study the pathways of associations between predictors of DSH. Results: The extensive process of translation resulted in establishment of semantic, content, technical and construct equivalence of the translated instruments with the original English versions. Multiple imputation was performed to account for missing values in SPSS 20. Important structural adaptations were made in the scales based on factor analyses conducted in M plus. After modifications, all scales showed satisfactory CFI (≥ 0.90) and RMSEA (≤ 0.06). Results of the survey indicated that the prevalence of DSH (with, without and ambivalent suicidal intentions) was 7%. Two SEM models were constructed involving both mediation and moderation pathways. Results of Model 1 showed association of attachment with DSH was double mediated by social support, depression and anxiety. Model 2 also confirmed association of attachment with DSH with double mediation through relationship style problems, depression and anxiety. In order to understand the contextual picture of the concepts studied in this research both SEM models were also constructed by controlling for demographic factors. This resulted in confirming age, gender and family affluence as significant contributors but with very small effects. Discussion and conclusion: In the present study translation of the instruments helped in building a reservoir for future research. The results of translation and validation of instruments indicated that cultural differences, language needs and age must be accounted for while using standardized psychological instruments. Taking into consideration specific cultural and demographic background of Pakistan, this study also confirms the key role of attachment in influencing interaction of predictors of DSH. It is suggested that intrapersonal and interpersonal factors are influential points of intervention for designing clinical, school and community based awareness and prevention programs for DSH. The thesis also discusses the implications for policy guidelines along with recommendations for future research and other applications of the study

    Technology as a disruptive agent: Intergenerational perspectives

    Get PDF
    YesThis study explores how British South Asian parents perceive their children’s technology consumption through their collectivist lenses and interdependent values. The findings for this qualitative study indicate that second and third generation South Asian parents acknowledge the benefits of children’s technology use; but largely perceive technology as a disruptive agent, whereby children are becoming isolated and increasingly independent within the household. The analysis aims to understand how parents view their children’s relationship with others as a result of technology consumption. Accordingly, this paper proposes an extension of the Construal of self conceptualisation and contributes a Techno-construal matrix that establishes a dyadic connection between technology consumption and cultural values. Overall, the study reveals that children display less inter-reliance and conformance typically associated with collectivist cultures, resulting from their technology use. Consequently, parents interpret their children’s shift from interdependence to more independence as a disruptive and unsettling phenomenon within the household

    Assessing social support among South Asians: the multidimensional scale of perceived social support

    No full text
    The psychometric properties of the Multidimensional Scale of Perceived Social Support (MSPSS) of the Urdu (MSPSS-U) and Nepali (MSPSS-N) versions were investigated among Pakistani (n=148) and Nepalese (n=153) respondents living in Hong Kong. The factor analysis of the MSPSS-N conducted in this study confirmed the three factors of the original MSPSS, namely, Family, Friend, and Significant Others, while only two factors were extracted from the MSPSS-U (i.e., the Family and Friends subscales). With regard to construct validity, both the MSPSS-U and MSPSS-N were inversely correlated with depression, anxiety and stress as assessed by the Depression Anxiety Stress Scale (DASS-21). The internal reliability and construct validity of the MSPSS-U and MSPSS-N were also established and provided support for the validity of both versions as tools for measuring perceived social support among South Asian migrants. © 2012 Elsevier B.V.link_to_subscribed_fulltex
    corecore