Ethics Dumping Case Studies from North-South Research Collaborations

This book provides original, up-to-date case studies of “ethics dumping” that were largely facilitated by loopholes in the ethics governance of low and middle-income countries. It is instructive even to experienced researchers since it provides a voice to vulnerable populations from the fore mentioned countries. Ensuring the ethical conduct of North-South collaborations in research is a process fraught with difficulties. The background conditions under which such collaborations take place include extreme differentials in available income and power, as well as a past history of colonialism, while differences in culture can add a new layer of complications. In this context, up-to-date case studies of unethical conduct are essential for research ethics training

Fostering responsible research with genome editing technologies : a European perspective

In this consensus paper resulting from a meeting that involved representatives from more than 20 European partners, we recommend the foundation of an expert group (European Steering Committee) to assess the potential benefits and draw-backs of genome editing (off-targets, mosaicisms, etc.), and to design risk matrices and scenarios for a responsible use of this promising technology. In addition, this European steering committee will contribute in promoting an open debate on societal aspects prior to a translation into national and international legislation.peer-reviewe

From informed consent to negotiated consent: an approach of research among unevenly developed countries?

Joint note from Inserm Ethics Committee and IRD Advisory Committee on Deontology and Ethics. "Research to the South" Group

Du consentement éclairé au consentement négocié : une approche de la recherche entre pays au développement inégal ?

Note du Comité. Groupe "Recherche en santé du Sud"Note conjointe du Comité d'éthique de l'Inserm, et du Comité consultatif de déontologie et d’éthique de l’IRD. Travaux du groupe "Recherche au Sud

Fostering Responsible Research with Genome Editing Technologies: a European Perspective

International audienceIn this consensus paper resulting from a meeting that involved representatives from more than 20 European partners, we recommend the foundation of an expert group (European Steering Committee) to assess the potential benefits and draw-backs of genome editing (off-targets, mosaicisms, etc.), and to design risk matrices and scenarios for a responsible use of this promising technology. In addition, this European steering committee will contribute in promoting an open debate on societal aspects prior to a translation into national and international legislation