How to promote citizens' brain health? Insights from the Global Brain Health Survey on citizens' perceptions of brain health interventions

Brain health is about your mental well-being and the ability to remember, learn, plan and concentrate. The report is based on answers from 27,590 respondents from 81 countries who took part in the Global Brain Health Survey, which asked the public what they would need in order to help improve or maintain their brain health. The survey is the largest worldwide study to date about public perceptions of brain health. The report found that people want clear, evidence-based information about exactly which lifestyle changes can improve their brain health. People also say they would need professional support and regular monitoring or follow-up to track the effect of such changes. The report was written by Lifebrain consortium members at the University of Oslo and the Norwegian Institute of Public Health.publishedVersio

People's interest in brain health testing: Findings from an international, online cross-sectional survey

Brain health entails mental wellbeing and cognitive health in the absence of brain disorders. The past decade has seen an explosion of tests, cognitive and biological, to predict various brain conditions, such as Alzheimer's Disease. In line with these current developments, we investigated people's willingness and reasons to—or not to—take a hypothetical brain health test to learn about risk of developing a brain disease, in a cross-sectional multilanguage online survey. The survey was part of the Global Brain Health Survey, open to the public from 4th June 2019 to 31st August 2020. Respondents were largely recruited via European brain councils and research organizations. 27,590 people responded aged 18 years or older and were predominantly women (71%), middle-aged or older (>40 years; 83%), and highly educated (69%). Responses were analyzed to explore the relationship between demographic variables and responses. Results: We found high public interest in brain health testing: over 91% would definitely or probably take a brain health test and 86% would do so even if it gave information about a disease that cannot be treated or prevented. The main reason for taking a test was the ability to respond if one was found to be at risk of brain disease, such as changing lifestyle, seeking counseling or starting treatment. Higher interest in brain health testing was found in men, respondents with lower education levels and those with poor self-reported cognitive health. Conclusion: High public interest in brain health and brain health testing in certain segments of society, coupled with an increase of commercial tests entering the market, is likely to put pressure on public health systems to inform the public about brain health testing in years to come.publishedVersio

The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health.

Background: Brain health is a multi-faceted concept used to describe brain physiology, cognitive function, mental health and well-being. Diseases of the brain account for one third of the global burden of disease and are becoming more prevalent as populations age. Diet, social interaction as well as physical and cognitive activity are lifestyle factors that can potentially influence facets of brain health. Yet, there is limited knowledge about the population's awareness of brain health and willingness to change lifestyle to maintain a healthy brain. This paper introduces the Global Brain Health Survey protocol, designed to assess people's perceptions of brain health and factors influencing brain health. Methods: The Global Brain Health Survey is an anonymous online questionnaire available in 14 languages to anyone above the age of 18 years. Questions focus on (1) willingness and motivation to maintain or improve brain health, (2) interest in learning more about individual brain health using standardized tests, and (3) interest in receiving individualized support to take care of own brain health. The survey questions were developed based on results from a qualitative interview study investigating brain health perceptions among participants in brain research studies. The survey includes 28 questions and takes 15-20 min to complete. Participants provide electronically informed consent prior to participation. The current survey wave was launched on June 4, 2019 and will close on August 31, 2020. We will provide descriptive statistics of samples distributions including analyses of differences as a function of age, gender, education, country of residence, and we will examine associations between items. The European Union funded Lifebrain project leads the survey in collaboration with national brain councils in Norway, Germany, and Belgium, Brain Foundations in the Netherlands and Sweden, the National University of Ostroh Academy and the Women's Brain Project. Discussion: Results from this survey will provide new insights in peoples' views on brain health, in particular, the extent to which the adoption of positive behaviors can be encouraged. The results will contribute to the development of policy recommendations for supporting population brain health, including measures tailored to individual needs, knowledge, motivations and life situations

Framing the Gene. A science communication study of how newspapers frame different meanings of the gene concept, with applications for science education

Having some understanding about genes and genetics can be important in many aspects of life, from taking part in political debates on scientific matters, to making personal choices about genetically modified foods, personalized medicines, genetic testing or gene therapy. Knowing about genes can also help us understand why we might get diseases like cancer or diabetes. We know that the mass media play an important role in shaping and reflecting our perceptions of science. The media communicate science by organizing concepts and stories into meaningful frames. But we do not know what types of gene frames are currently present in the media, or how these may be affecting public perceptions of gene-related information. The major aim of this thesis has been to investigate the different ways the media frame the gene concept. Further, in relation to increasing demands for a scientifically literate public, who are able to understand, and respond critically, to science in the media, this thesis addresses another important question: Can awareness of media framing help people become more critical readers of gene-related information in the news, and thereby enrich their understanding of genetics

Building and validating tools for assessing Public Understanding of Genetics and Genomics (PUGGS)

International audienc

How to promote citizens' brain health? Insights from the Global Brain Health Survey on citizens' perceptions of brain health interventions

Brain health is about your mental well-being and the ability to remember, learn, plan and concentrate. The report is based on answers from 27,590 respondents from 81 countries who took part in the Global Brain Health Survey, which asked the public what they would need in order to help improve or maintain their brain health. The survey is the largest worldwide study to date about public perceptions of brain health. The report found that people want clear, evidence-based information about exactly which lifestyle changes can improve their brain health. People also say they would need professional support and regular monitoring or follow-up to track the effect of such changes. The report was written by Lifebrain consortium members at the University of Oslo and the Norwegian Institute of Public Health

How to promote citizens' brain health? Insights from the Global Brain Health Survey on citizens' perceptions of brain health interventions

Brain health is about your mental well-being and the ability to remember, learn, plan and concentrate. The report is based on answers from 27,590 respondents from 81 countries who took part in the Global Brain Health Survey, which asked the public what they would need in order to help improve or maintain their brain health. The survey is the largest worldwide study to date about public perceptions of brain health. The report found that people want clear, evidence-based information about exactly which lifestyle changes can improve their brain health. People also say they would need professional support and regular monitoring or follow-up to track the effect of such changes. The report was written by Lifebrain consortium members at the University of Oslo and the Norwegian Institute of Public Health

What motivates people to look after their brain health? Insights from the Global Brain Health Survey

Brain health is a relatively new concept encompassing mental and cognitive health. Good brain health involves both mental wellbeing and normal brain function, in the absence of brain disease. The current public report is based on answers from more than 27 000 people in Europe and elsewhere, and provides insight in factors motivating people to look after their brain. The report finds that the prospect of experiencing symptoms of cognitive or mental decline was a key motivation to undertake lifestyle changes, even more so than having been diagnosed with a brain disorder. Further, half of the respondents would be motivated by knowing that lifestyle changes are beneficial for brain health. Motivations to make lifestyle changes varied across sociodemographic and individual characteristics. Our results suggest that it may be harder to convince older people to change habits than younger people. The report is authored by members of the Lifebrain consortium at the University of Oslo and the Norwegian Institute of Public Health. The report is highly relevant for healthcare professionals, policymakers, and caregivers seeking to motivate patients and members of the public to look after their brain health

Investigating the Relationship Between Beliefs in Genetic Determinism as Related to Knowledge in Genetics and Genomics

International audienc

Investigating the Relationship Between Beliefs in Genetic Determinism as Related to Knowledge in Genetics and Genomics

International audienc