62 research outputs found

    What Would Madeline Hunter Say?

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    Editorial Opinio

    Universal Access to a Quality Education: Research and Recommendations for the Elimination of Curricular Stratification

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    This policy brief makes the case for schools across the country to put an end to policies that cast off students into unchallenging, low-track classrooms. The authors recommend a clear process for the phasing out of curricular stratification in grades K-10, beginning with the lowest track and granting meaningful access to AP and IB courses to all students. The brief includes model statutory language to implement its recommendations

    Post-Rehabilitation Adapted-Yoga at the YMCA for Adults with Acquired Brain Injury: A Feasibility and Pilot Study

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    Background & purpose: Adults with acquired brain injury (ABI) (stroke and traumatic brain injury) experience long-term physical performance deficits for which participation in post-rehabilitation exercise is recommended. Community-based adapted-yoga has potential as an exercise modality to promote post-rehabilitation exercise and physical function improvements. The purpose of this study was to examine the feasibility and benefit of adapted-yoga at the local YMCA for post-rehabilitation adults with ABI. Methods: Participants were recruited by referral from clinical therapists in outpatient rehabilitation centers to participate in adapted-yoga 2x/week for 8 weeks at the YMCA. Referral tracking, yoga attendance, safety, and intervention fidelity were assessed for feasibility. Participants completed pre and post-yoga assessments of balance (trunk impairment scale [TIS], berg balance scale [BBS], dynamic gait index [DGI]) and walking (10-meter walk test [10MWT] and six-minute walk test [6MWT]) and 8 weeks of adapted-yoga class. Results: Thirty-two people were referred to the YMCA adapted-yoga program by clinical therapists with 17 (53%) of referred persons enrolling in the program. Intervention fidelity was 87% with the standardized adapted-yoga protocol, and the average number of classes attended was 12.82+3.7. Balance (TIS, p<0.001; BBS, p<0.001; DGI, p<0.001), and walking distance (6MWT, p= 0.028) all significantly improved after 8-weeks of yoga. Balance confidence did not improve significantly and walking speed did not change. Discussion & Conclusion: Clinician referral to community-based programs may be a feasible mechanism to engage persons in post-rehabilitation community-based exercise. Adapted-yoga may beneficially impact balance and walking performance in post-rehabilitation adults with ABI

    Developing a Common Framework for Evaluating the Implementation of Genomic Medicine Interventions in Clinical Care: The IGNITE Network’s Common Measures Working Group

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    Purpose Implementation research provides a structure for evaluating the clinical integration of genomic medicine interventions. This paper describes the Implementing GeNomics In PracTicE (IGNITE) Network’s efforts to promote: 1) a broader understanding of genomic medicine implementation research; and 2) the sharing of knowledge generated in the network. Methods To facilitate this goal the IGNITE Network Common Measures Working Group (CMG) members adopted the Consolidated Framework for Implementation Research (CFIR) to guide their approach to: identifying constructs and measures relevant to evaluating genomic medicine as a whole, standardizing data collection across projects, and combining data in a centralized resource for cross network analyses. Results CMG identified ten high-priority CFIR constructs as important for genomic medicine. Of those, eight didn’t have standardized measurement instruments. Therefore, we developed four survey tools to address this gap. In addition, we identified seven high-priority constructs related to patients, families, and communities that did not map to CFIR constructs. Both sets of constructs were combined to create a draft genomic medicine implementation model. Conclusion We developed processes to identify constructs deemed valuable for genomic medicine implementation and codified them in a model. These resources are freely available to facilitate knowledge generation and sharing across the field

    A research agenda to support the development and implementation of genomics-based clinical informatics tools and resources.

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    OBJECTIVE: The Genomic Medicine Working Group of the National Advisory Council for Human Genome Research virtually hosted its 13th genomic medicine meeting titled Developing a Clinical Genomic Informatics Research Agenda . The meeting\u27s goal was to articulate a research strategy to develop Genomics-based Clinical Informatics Tools and Resources (GCIT) to improve the detection, treatment, and reporting of genetic disorders in clinical settings. MATERIALS AND METHODS: Experts from government agencies, the private sector, and academia in genomic medicine and clinical informatics were invited to address the meeting\u27s goals. Invitees were also asked to complete a survey to assess important considerations needed to develop a genomic-based clinical informatics research strategy. RESULTS: Outcomes from the meeting included identifying short-term research needs, such as designing and implementing standards-based interfaces between laboratory information systems and electronic health records, as well as long-term projects, such as identifying and addressing barriers related to the establishment and implementation of genomic data exchange systems that, in turn, the research community could help address. DISCUSSION: Discussions centered on identifying gaps and barriers that impede the use of GCIT in genomic medicine. Emergent themes from the meeting included developing an implementation science framework, defining a value proposition for all stakeholders, fostering engagement with patients and partners to develop applications under patient control, promoting the use of relevant clinical workflows in research, and lowering related barriers to regulatory processes. Another key theme was recognizing pervasive biases in data and information systems, algorithms, access, value, and knowledge repositories and identifying ways to resolve them
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