32 research outputs found

    Achieving consensus on psychosocial and physical rehabilitation management for people living with kidney disease

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    From Crossref journal articles via Jisc Publications RouterHistory: epub 2023-05-19, issued 2023-05-19Article version: AMPublication status: PublishedPelagia Koufaki - ORCID: 0000-0002-1406-3729 https://orcid.org/0000-0002-1406-3729Background People living with chronic kidney disease (CKD) need to be able to live well with their condition. The provision of psychosocial interventions (psychological, psychiatric, and social care) and physical rehabilitation management is variable across England, as well as the rest of the United Kingdom. There is a need for clear recommendations for standards of psychosocial and physical rehabilitation care for people living with CKD, and guidance for the commissioning and measurement of these services. The NHS England Renal Services Transformation Programme (RSTP) supported a programme of work and modified Delphi process to address the management of psychosocial and physical rehabilitation care as part of a larger body of work to formulate a comprehensive commissioning toolkit for renal care services across England. We sought to achieve expert consensus regarding the psychosocial and physical rehabilitation management of people living with CKD in England and the rest of the UK. Method A Delphi consensus method was used to gather and refine expert opinions of senior members of the kidney multi-disciplinary team (MDT) and other key stakeholders in the UK. An agreement was sought on 16 statements reflecting aspects of psychosocial and physical rehabilitation management for people living with CKD. Results Twenty-six expert practitioners and other key stakeholders, including lived experience representatives, participated in the process. The consensus (>80% affirmative votes) amongst the respondents for all 16 statements was high. Nine recommendation statements were discussed and refined further to be included in the final iteration of the ‘Systems’ section of the NHS England RSTP commissioning toolkit. These priority recommendations reflect pragmatic solutions that can be implemented in renal care and include recommendations for a holistic well-being assessment for all people living with CKD who are approaching dialysis, or who are at listing for kidney transplantation, which includes the use of validated measurement tools to assess the need for further intervention in psychosocial and physical rehabilitation management. It is recommended that the scores from these measurement tools be included in the NHS England Renal Data Dashboard. There was also a recommendation for referral as appropriate to NHS Talking therapies, psychology, counselling or psychotherapy, social work or liaison psychiatry for those with identified psychosocial needs. The use of digital resources was recommended to be used in addition to face-to-face care to provide physical rehabilitation, and all healthcare professionals should be educated to recognise psychosocial and physical rehabilitation needs and refer/sign-post people with CKD to appropriate services. Conclusion There was high consensus amongst senior members of the kidney MDT and other key stakeholders, including those with lived experience, in the UK on all aspects of the psychosocial and physical rehabilitation management of people living with CKD. The results of this process will be used by NHS England to inform the ‘Systems’ section of the commissioning toolkit and data dashboard and to inform the National Standards of Care for people living with CKD.inpressinpres

    Cloud cover effect of clear-sky index distributions and differences between human and automatic cloud observations

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    The statistics of clear-sky index can be used to determine solar irradiance when the theoretical clear sky irradiance and the cloud cover are known. In this paper, observations of hourly clear-sky index for the years of 2010--2013 at 63 locations in the UK are analysed for over 1 million data hours. The aggregated distribution of clear-sky index is bimodal, with strong contributions from mostly-cloudy and mostly-clear hours, as well as a lower number of intermediate hours. The clear-sky index exhibits a distribution of values for each cloud cover bin, measured in eighths of the sky covered (oktas), and also depends on solar elevation angle. Cloud cover is measured either by a human observer or automatically with a cloud ceilometer. Irradiation (time-integrated irradiance) values corresponding to human observations of "cloudless" skies (0 oktas) tend to agree better with theoretical clear-sky values, which are calculated with a radiative transfer model, than irradiation values corresponding to automated observations of 0 oktas. It is apparent that the cloud ceilometers incorrectly categorise more non-cloudless hours as cloudless than human observers do. This leads to notable differences in the distributions of clear-sky index for each okta class, and between human and automated observations. Two probability density functions---the Burr (type III) for mostly-clear situations, and generalised gamma for mostly-cloudy situations---are suggested as analytical fits for each cloud coverage, observation type, and solar elevation angle bin. For human observations of overcast skies (8 oktas) where solar elevation angle exceeds 10°, there is no significant difference between the observed clear-sky indices and the generalised gamma distribution fits

    At the intersection of mind and climate change : integrating inner dimensions of climate change into policymaking and practice

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    Dominant policy approaches have failed to generate action at anywhere near the rate, scale or depth needed to avert climate change and environmental disaster. In particular, they fail to address the need for a fundamental cultural transformation, which involves a collective shift in mindsets (values, beliefs, worldviews and associated inner human capacities). Whilst scholars and practitioners are increasingly calling for more integrative approaches, knowledge on how the link between our mind and the climate crisis can be best addressed in policy responses is still scarce. Our study addresses this gap. Based on a survey and in-depth interviews with high-level policymakers worldwide, we explore how they perceive the intersection of mind and climate change, how it is reflected in current policymaking and how it could be better considered to support transformation. Our findings show, on the one hand, that the mind is perceived as a victim of increasing climate impacts. On the other hand, it is considered a key driver of the crisis, and a barrier to action, to the detriment of both personal and planetary wellbeing. The resultant vicious cycle of mind and climate change is, however, not reflected in mainstream policymaking, which fails to generate more sustainable pathways. At the same time, there are important lessons from other fields (e.g. education, health, the workplace, policy mainstreaming) that provide insights into how to integrate aspects of mind into climate policies. Our results show that systematic integration into policymaking is a key for improving both climate resilience and climate responsiveness across individual, collective, organisational and system levels and indicate the inner human potential and capacities that support related change. We conclude with some policy recommendations and further research that is needed to move from a vicious to a virtuous cycle of mind and climate change that supports personal and planetary wellbeing

    Reconnection: Meeting the Climate Crisis Inside Out

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    Climate change is a physical reality, demanding political and practical solutions. But its inner dimension, overlooked entirely by mainstream approaches, is a human crisis of relationship. This report outlines the relevance of mindfulness and compassion practices in addressing the endemic disconnection from self, others and nature at the root of the climate crisis.We explore the cognitive and emotional foundations of conscious connection and discuss the potential for mindfulness and compassion practices to be developed into powerful enablers of reconnection, fostering both greater resilience and more appropriate responses to global sustainability crises.Written by Jamie Bristow, Rosie Bell and Professor Christine Wamsler (LUCSUS), the report follows a research collaboration between the Mindfulness Initiative and the Lund University Centre for Sustainability Studies, including 25 in-depth interviews with national and transnational politicians and policymakers, and a large-scale consultation with leading experts working on ‘inner’ aspects of the climate crisis. We draw upon the emerging evidence base linking internal transformation to sustainability, and broader academic literature on the prosocial impact of mindfulness and compassion training

    Inner Development Goals: from inner growth to outer change

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    Inner Development Goals (IDG) is a non-profit and open-source initiative for inner development. We research, collect and communicate science-based skills and qualities that help us to live purposeful, sustainable, and productive lives. Supported by a growing community of practitioners, researchers, organisations and governments, IDG seeks to bridge the gap between personal growth and global transformation. In keeping with the spirit of IDG, this article is a testament to co-creation and collaboration, made possible by every member of our organisation, partners, and community
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