Looking for "The Equalizer" in antenatal care : developing and evaluating language-supported group antenatal care in Sweden

Group antenatal care (gANC) is an antenatal care (ANC) model that aims to empower women and has demonstrated potential to improve outcomes for groups of women with poorer reproductive health outcomes. The overall aim of this thesis was to develop and test the acceptability and impact of language-supported gANC for Somali-born women in Sweden. The purpose of the intervention was to improve experiences of antenatal care, emotional well-being, knowledge about childbearing and the Swedish healthcare system, and ultimately, pregnancy outcomes. Experiences of standard ANC were explored in focus group discussions with parents and midwives (Study I). Challenges and barriers in standard antenatal were described, both related to the encounters between midwives and parents-to-be, and organizational challenges. Utilising data from Study I, “language-supported group antenatal care” was developed and implemented in one clinic for 18 months. The intervention was evaluated, and women’s care experiences and emotional wellbeing were compared with those of women offered standard care (historical controls) and those subsequently offered gANC (intervention). Data were collected by means of questionnaires at baseline, in late pregnancy and at 6–8 weeks postpartum (Study II). The development, implementation, and feasibility of the intervention was assessed through a process evaluation using mixed data sources (observations, interviews, questionnaires, etc.) (Study III). In study II, no differences between the intervention group and the control group on the primary outcome of women’s overall rating of antenatal care were found. The reduction in mean EPDS score was greater in the intervention group when adjusting for differences at baseline (mean difference –1.89; CI 95% –3.73 to –0.07). Women in gANC were happier with received pregnancy and birth information; e.g., in the case of caesarean sections, where 94.9% believed the information was sufficient compared to 17.5% in standard care (p <0.001) in late pregnancy. In study III, women in language-supported gANC thought it was a positive experience as a complement to individual care, but the intervention was not successful at involving partners in ANC. In gANC, the midwives and women got to know each other better. The main mechanism of impact was more comprehensive care. The position of women was strengthened in the groups, and the way midwives expanded their understanding of the women, and their narratives, was promising. This evaluation suggests potential for language-supported gANC to improve information provision and knowledge acquisition for Somali–Swedish women during pregnancy (with residence in Sweden ˂10 years). Language-supported gANC is feasible and relevant if there is an adequate number of pregnant migrant or minority women in an uptake area who share a common language. To be feasible in other settings, gANC requires adaptations to local context. Reflection is called for when forming groups based on ethnicity or language, to avoid potential unintended consequences such as reinforcing stereotypes by grouping people according to country of birth or reducing privacy for individual women. The “othering” of women in risk groups should be avoided. There may also be a trade-off in gANC between peer-to-peer support and other important aspects such as the inclusion of partners and integration/inclusion in regular birth preparation and parenting activities. Person-centring seemed to be enhanced with gANC in this study with Somali–Swedish women. ANC interventions including gANC that target inequalities between migrants and non-migrants should adapt a culturally sensitive person-centred approach, as a means of providing individually tailored high quality care that counteracts stereotypes and biases

Group antenatal care (gANC) for Somali-speaking women in Sweden - a process evaluation.

BACKGROUND: Language supported group antenatal care (gANC) for Somali-born women was implemented in a Swedish public ANC clinic. The women were offered seven 60-min sessions, facilitated by midwives and starting with a presentation of a selected topic, with an additional 15-min individual appointment before or after. The aim of this study was to assess the feasibility for participants and midwives of implementing The Hooyo ("mother" in Somali) gANC intervention, including implementation, mechanisms of impact and contextual factors. METHODS: A process evaluation was performed, using The Medical Research Council (MRC) guidelines for evaluating complex interventions as a framework. A range of qualitative and quantitative data sources were used including observations (n = 9), complementary, in-depth and key-informant interviews (women n = 6, midwives n = 4, interpreters and research assistants n = 3) and questionnaire data (women n = 44; midwives n = 8). RESULTS: Language-supported gANC offered more comprehensive ANC that seemed to correspond to existing needs of the participants and could address knowledge gaps related to pregnancy, birth and the Swedish health care system. The majority of women thought listening to other pregnant women was valuable (91%), felt comfortable in the group (98%) and supported by the other women (79%), and they said that gANC suited them (79%). The intervention seemed to enhance knowledge and cultural understanding among midwives, thus contributing to more women-centred care. The intervention was not successful at involving partners in ANC. CONCLUSIONS: The Hooyo gANC intervention was acceptable to the Somali women and to midwives, but did not lead to greater participation by fathers-to-be. The main mechanisms of impact were more comprehensive ANC and enhanced mutual cultural understanding. The position of women was strengthened in the groups, and the way in which the midwives expanded their understanding of the participants and their narratives was promising. To be feasible at a large scale, gANC might require further adaptations and the "othering" of women in risk groups should be avoided. TRIAL REGISTRATION: The study was registered in ClinicalTrials.gov (Identifier: NCT03879200)

Group antenatal care compared with standard antenatal care for Somali-Swedish women : a historically controlled evaluation of the Hooyo Project

OBJECTIVES: Comparing language-supported group antenatal care (gANC) and standard antenatal care (sANC) for Somali-born women in Sweden, measuring overall ratings of care and emotional well-being, and testing the feasibility of the outcome measures. DESIGN: A quasi-experimental trial with one intervention and one historical control group, nested in an intervention development and feasibility study. SETTING: Midwifery-led antenatal care clinic in a mid-sized Swedish town. PARTICIPANTS: Pregnant Somali-born women (&lt;25 gestational weeks); 64 women in gANC and 81 in sANC. INTERVENTION: Language-supported gANC (2017-2019). Participants were offered seven 60-minute group sessions with other Somali-born women led by one to two midwives, in addition to 15-30 min individual appointments with their designated midwife. OUTCOMES: Primary outcomes were women's overall ratings of antenatal care and emotional well-being (Edinburgh Postnatal Depression Scale (EPDS)) in gestational week ≥35 and 2 months post partum. Secondary outcomes were specific care experiences, information received, social support, knowledge of pregnancy danger signs and obstetric outcomes. RESULTS: Recruitment and retention of participants were challenging. Of eligible women, 39.3% (n=106) declined to participate. No relevant differences regarding overall ratings of antenatal care between the groups were detected (late pregnancy OR 1.42, 95% CI 0.50 to 4.16 and 6-8 weeks post partum OR 2.71, 95% CI 0.88 to 9.41). The reduction in mean EPDS score was greater in the intervention group when adjusting for differences at baseline (mean difference -1.89; 95% CI -3.73 to -0.07). Women in gANC were happier with received pregnancy and birth information, for example, caesarean section where 94.9% (n=37) believed the information was sufficient compared with 17.5% (n=7) in standard care (p&lt;0.001) in late pregnancy. CONCLUSIONS: This evaluation suggests potential for language-supported gANC to improve knowledge acquisition among pregnant Somali-born women with residence in Sweden ˂10 years. An adequately powered randomised trial is needed to evaluate the effectiveness of the intervention. TRIAL REGISTRATION NUMBER: ClinicalTrials.gov Registry (NCT03879200)

Group antenatal care compared with standard antenatal care for Somali-Swedish women: a historically controlled evaluation of the Hooyo Project

Objectives Comparing language-supported group antenatal care (gANC) and standard antenatal care (sANC) for Somali-born women in Sweden, measuring overall ratings of care and emotional well-being, and testing the feasibility of the outcome measures.Design A quasi-experimental trial with one intervention and one historical control group, nested in an intervention development and feasibility study.Setting Midwifery-led antenatal care clinic in a mid-sized Swedish town.Participants Pregnant Somali-born women (&lt;25 gestational weeks); 64 women in gANC and 81 in sANC.Intervention Language-supported gANC (2017–2019). Participants were offered seven 60-minute group sessions with other Somali-born women led by one to two midwives, in addition to 15–30 min individual appointments with their designated midwife.Outcomes Primary outcomes were women’s overall ratings of antenatal care and emotional well-being (Edinburgh Postnatal Depression Scale (EPDS)) in gestational week ≥35 and 2 months post partum. Secondary outcomes were specific care experiences, information received, social support, knowledge of pregnancy danger signs and obstetric outcomes.Results Recruitment and retention of participants were challenging. Of eligible women, 39.3% (n=106) declined to participate. No relevant differences regarding overall ratings of antenatal care between the groups were detected (late pregnancy OR 1.42, 95% CI 0.50 to 4.16 and 6–8 weeks post partum OR 2.71, 95% CI 0.88 to 9.41). The reduction in mean EPDS score was greater in the intervention group when adjusting for differences at baseline (mean difference −1.89; 95% CI –3.73 to −0.07). Women in gANC were happier with received pregnancy and birth information, for example, caesarean section where 94.9% (n=37) believed the information was sufficient compared with 17.5% (n=7) in standard care (p&lt;0.001) in late pregnancy.Conclusions This evaluation suggests potential for language-supported gANC to improve knowledge acquisition among pregnant Somali-born women with residence in Sweden ˂10 years. An adequately powered randomised trial is needed to evaluate the effectiveness of the intervention.Trial registration number ClinicalTrials.gov Registry (NCT03879200)

Inequalities in COVID-19 severe morbidity and mortality by country of birth in Sweden

Abstract Migrants have been more affected by the COVID-19 pandemic. Whether this has varied over the course of the pandemic remains unknown. We examined how inequalities in intensive care unit (ICU) admission and death related to COVID-19 by country of birth have evolved over the course of the pandemic, while considering the contribution of social conditions and vaccination uptake. A population-based cohort study was conducted including adults living in Sweden between March 1, 2020 and June 1, 2022 (n = 7,870,441). Poisson regressions found that migrants from Africa, Middle East, Asia and European countries without EU28/EEA, UK and Switzerland had higher risk of COVID-19 mortality and ICU admission than Swedish-born. High risks of COVID-19 ICU admission was also found in migrants from South America. Inequalities were generally reduced through subsequent waves of the pandemic. In many migrant groups socioeconomic status and living conditions contributed to the disparities while vaccination campaigns were decisive when such became available

Antenatal care for Somali-born women in Sweden : Perspectives from mothers, fathers and midwives

Objective: To explore Somali-born parents' experiences of antenatal care in Sweden, antenatal care midwives' experiences of caring for Somali-born parents, and their respective ideas about group antenatal care for Somali-born parents. Design: Eight focus group discussions with 2-8 participants in each were conducted, three with Somaliborn mothers, two with fathers and three with antenatal care midwives. The transcribed text was analysed using Attride-Stirling's tool "Thematic networks". Setting: Two towns in mid-Sweden and a suburb of the capital city of Sweden. Participants: Mothers (n = 16), fathers (n = 13) and midwives (n = 7) were recruited using purposeful sampling. Findings: Somali-born mothers and fathers in Sweden were content with many aspects of antenatal care, but they also faced barriers. Challenges in the midwife-parent encounter related to tailoring of care to individual needs, dealing with stereotypes, addressing varied levels of health literacy, overcoming communication barriers and enabling partner involvement. Health system challenges related to accessibility of care, limited resources, and the need for clear, but flexible routines and supportive structures for parent education. Midwives confirmed these challenges and tried to address them but sometimes lacked the support, resources and tools to do so. Mothers, fathers and midwives thought that language-supported group antenatal care might help to improve communication, provide mutual support and enable better dialogue, but they were concerned that group care should still allow privacy when needed and not stereotype families according to their country of birth. Key conclusions: ANC interventions targeting inequalities between migrants and non-migrants may benefit from embracing a person-centred approach, as a means to counteract stereotypes, misunderstandings and prejudice. Group antenatal care has the potential to provide a platform for person-centred care and has other potential benefits in providing high-quality antenatal care for sub-groups that tend to receive less or poor quality care. Further research on how to address stereotypes and implicit bias in maternity care in the Swedish context is needed. (c) 2019 The Authors. Published by Elsevier Ltd

Rationale, development and feasibility of group antenatal care for immigrant women in Sweden : a study protocol for the Hooyo Project

INTRODUCTION: Somali-born women comprise a large group of immigrant women of childbearing age in Sweden, with increased risks for perinatal morbidity and mortality and poor experiences of care, despite the goal of providing equitable healthcare for the entire population. Rethinking how care is provided may help to improve outcomes. OVERALL AIM: To develop and test the acceptability, feasibility and immediate impacts of group antenatal care for Somali-born immigrant women, in an effort to improve experiences of antenatal care, knowledge about childbearing and the Swedish healthcare system, emotional well-being and ultimately, pregnancy outcomes. This protocol describes the rationale, planning and development of the study. METHODS AND ANALYSIS: An intervention development and feasibility study. Phase I includes needs assessment and development of contextual understanding using focus group discussions. In phase II, the intervention and evaluation tools, based on core values for quality care and person-centred care, are developed. Phase III includes the historically controlled evaluation in which relevant outcome measures are compared for women receiving individual care (2016-2018) and women receiving group antenatal care (2018-2019): care satisfaction (Migrant Friendly Maternity Care Questionnaire), emotional well-being (Edinburgh Postnatal Depression Scale), social support, childbirth fear, knowledge of Swedish maternity care, delivery outcomes. Phase IV includes the process evaluation, investigate process, feasibility and mechanisms of impact using field notes, observations, interviews and questionnaires. All phases are conducted in collaboration with a stakeholder reference group. ETHICS AND DISSEMINATION: The study is approved by the Regional Ethical Review Board, Stockholm, Sweden. Participants receive information about the study and their right to decline/withdraw without consequences. Consent is given prior to enrolment. Findings will be disseminated at antenatal care units, national/international conferences, through publications in peer-reviewed journals, seminars involving stakeholders, practitioners, community and via the project website. Participating women will receive a summary of results in their language

Addressing health inequalities in Europe: key messages from the Joint Action Health Equity Europe (JAHEE)

Abstract Health inequalities within and between Member States of the European Union are widely recognized as a public health problem as they determine a significant share of potentially avoidable mortality and morbidity. After years of growing awareness and increasing action taken, a large gap still exists across Europe in terms of policy responses and governance. With the aim to contribute to achieve greater equity in health outcomes, in 2018 a new Joint Action, JAHEE, (Joint Action Health Equity Europe) was funded by the third EU Health Programme, with the main goal of strengthening cooperation between participating countries and of implementing concrete actions to reduce health inequalities. The partnership led by Italy counted 24 countries, conducting actions in five policy domains: monitoring, governance, healthy living environments, health systems and migration, following a three-step implementation approach. Firstly, specific Policy Frameworks for Action (PFA) collecting the available evidence on what practice should be done in each domain were developed. Second, different Country Assessments (CAs) were completed to check the country’s adherence to the recommended practice in each domain. The gap between the expected policy response (PFA) and the present policy response (CA) guided the choice of concrete actions to be implemented in JAHEE, many of which are continuing even after the end of JA. Final recommendations based on the best results achieved during JAHEE were elaborated and agreed jointly with the representatives of the involved Ministries of Health. The JAHEE initiative represented an important opportunity for the participating countries to work jointly, and the results show that almost all have increased their level of action and strengthened their capacities to address health inequalities