A Systematic Review: What Are the Barriers for Nurses in Providing End of Life Care for Pediatric Patients?

Background: Providing care for children at the end-of-life is challenging and distressing for nurses and healthcare professionals. It is important to identify matters that might be a barrier in providing end-of-life care (EOLC). Objectives: A review of the literature focusing on the barriers in providing EOLC for pediatric patients. Methods: Literature published from 2009 to 2019 was obtained from four databases (Academic Search Complete, CINAHL, MEDLINE, and Science Direct) and critically reviewed using Joanna Briggs Institute (JBI) critical appraisal tools. Primary research studies written in English describing barriers experienced by nurses on EOLC provision which published between 2009-2019 were included. Results: Ten studies met the inclusion criteria. The barriers perceived by nurses in these studies are communication and language barriers; barriers in interdisciplinary team; lack of knowledge; families who cannot accept the child’s poor prognosis; financial needs; nurses’ feeling; aggressive intervention received by the patient; and inadequate hospital facilities. Conclusions: Nurses enact a crucial role in caring for dying children and the children’s families. Overcoming barriers in EOLC provision could greatly improve the quality of end-oflife care for dying children. Therefore, it is necessary to develop a conceptual model tosupportnursesandhealthcareprofessionalsinprovidingEOLCforpediatricpatients

The Quality Of Life Of Toddler Post Colostomy In Bandung

Congenital abnormalities in children are still quite high in Indonesia such as hirschsprung disease and anorectal malformations which require the fabrication of colostomy as bowel decompression and faecal expenditure alternatives. Stoma fabrication can have a physical or psychosocial impact on a child's life. This study aimed to determine the perception of parents on the quality of life in toddler-aged children with post colostomy. The method of this research was quantitative descriptive with 35 respondents obtained by consecutive sampling technique. The participants involved in this study were the parents of toddler-aged children who had experienced colostomy surgery. The data were collected using a Pediatric Quality of Life Inventory (Peds QL) questionnaire. The data were analyzed with descriptive statistics. The results showed that 19 people (54.28%) of toddler-aged children who had experienced colostomy surgery had poor quality of life with the lowest score on cognitive function. The conclusions of this study indicated that most of parents perceived the quality of life of toddler-aged children who had experinced colostomy surgery in the bad category. The poor quality of life can affect the child growth. One of the efforts to improve the quality of life of children is by providing psychological therapy to help children deal with negative emotions and providing psychoeducation to parents about the importance of providing stimulus in toddler-aged childern so that children can have a better quality of life

Kebutuhan perawatan berpusat keluarga dalam manajemen diabetes pada anak dengan diabetes melitus

Diabetes mellitus (DM) is a serious disease that has the potential to cause complications and affect all ages, including children. Diabetes care management is needed to maintain blood glucose levels at an adequate level. Children, especially at an early age, have an inability to carry out various tasks related to proper diabetes care management. Family centered care is one strategy to empower families in diabetes care management to prevent complications. The purpose of this study was to identify the needs of parents in the management of diabetes care in children with DM type 1. This study was conducted in one hospital in Bandung. The type of research used is descriptive quantitative. This study used a total sampling technique to obtain 25 parents with children with DM. Data was collected using a Diabetic Care Needs Assessment Tool with 23 questions that were seen through the difficulty level of parents in meeting those needs. Data were analyzed using frequency distribution and percentage. The results obtained data on family centered care needs in the management of diabetes in children ranging from the most difficult to be fulfilled to those that were not difficult to fulfill in terms of the proportion of parents who stated it was information and education needs (32%), emotional needs (24%), collaboration and collaboration needs (20%), and psychosocial needs (8%). The most difficult thing for more than half the parents of children with diabetes mellitus is the information and education needs. Nurses can help parents to meet the management needs of diabetes care in children, especially information and education that parents need. Education that can be provided by nurses, including regular insulin administration, regular blood glucose control, physical exercise activities, appropriate menus, and self-management or self-care in children to improve the quality of life in children with diabetes

KESIAPAN ANAK DAN PERAN ORANG TUA MUSLIM DALAM MEMPERSIAPKAN MENARCHE

Menarche a physiological process in puberty as a sign of the maturity in women’s reproductive organs. For Muslim women, a menarche is also an important event, because it signifies that a woman becomes 'baligh' (adult). Previous research shows that girls feel scared and unprepared when menarche, and limited information about family support for children. The purpose of this study was to examine the readiness of children and the roles of Muslim parents in dealing with menarche. This study applied a quantitative descriptive approach, the samples were selected using the purposive sampling technique, 176 students and parents from SDIT Imam Bukhari school involved in this study. The instrument was a questionnaire that assesses children's readiness and parents’ roles in assisting menarche. Data were analyzed using a frequency distribution.More than half of girls have good readiness (54.5%), and other children in the category moderate or poor. Parents as educators have a good role in preparing girls (52.3%) in component needs, motives, and goals. Most children are ready in dealing with menarche and getting support from parents. Providing menarche information at school would help children readiness especially who are in categories moderate and poor

DESCRIPTION OF PARENTING STYLES ON ADOLESCENTS WITH RISK BEHAVIOR IN VOCATIONAL HIGH SCHOOL “X†PANGANDARAN REGENCY: Gambaran Pola Asuh Orang Tua pada Remaja dengan Perilaku Berisiko di SMK“X†Kabupaten Pangandaran

Adolescence is a vulnerable period of risky behaviors. Properparenng style is needed so that adolescents do not engage inrisky behaviors such as smoking, drinking alcoholic beverages,abusing drugs, and engaging in premarital sexual relaons. Thestudy aimed to describe parenng styles in adolescents with riskbehaviors. This was a descripve quantave research with across-seconal approach. The populaon was parents ofstudents with risk behaviors in a Vocaonal High School totaling213 people. The sampling technique was used as a proporonatestrafied random sampling. The number of samples was 139people. Data collecon was performed by using a QuesonnaireParenng Style and Dimensions instrument which had beentested for validity test with a result (.423-.748)) and reliability test(>.70). The collected data was analyzed by using a univariate test.The result showed that almost half of respondents (38.12%) onsmoker's adolescents and (33.33%) of smokers also drinkeradolescents used authoritarian parenng. Whereas, respondentson adolescents who smoked also drunk alcohol and used drugsand respondents on an adolescent who engages in premarital sexall of the respondents (100%) used permissive parenng. Besidesthat, all of the respondents (100%) used authoritarian parenngon adolescents who engage in premarital sex also smoked andused drugs. Therefore, a proper parenng style is very muchneeded by the parent to be able to minimize the level of riskbehavior occurrence in adolescents. Keywords : Adolescent, family, parenng and risk behavior.Adolescence is a period that is vulnerable to risky behaviors. Proper parenting style is needed so that adolescents do not engage in risky behaviors such as smoking, drinking alcoholic beverages, abusing drugs, and engaging in premarital sexual relations. The study aimed to describe parenting styles in adolescents with risk behaviors. This research used a descriptive quantitative method with a cross-sectional approach. The population was all parents of students with risk behaviors in Vocational High School "X" totaling 213 people. The sampling technique in this study was proportionate stratified random sampling. The number of samples in this study was 139 people. Data collection was performed by using a Questionnaire Parenting Style and Dimensions instrument which had been tested for validity test with a result (.423-.748)) and realilibily test (>.70). The collected data was analyzed by using a univariate test. The result showed that almost half of respondents (38.12%) on smokers adolescents and (33.33%) on smokers also drinker adolescents used authoritarian parenting. Whereas, respondents on adolescents who smoked also drunk alcohol and used drugs and respondents on adolescent who engage on premarital sex all of respondents (100%) used permissive parenting. Beside that, all of respondents (100%) used authoritarian parenting on adolescents who egange on premarital sex also smoked and used drugs. Therefore, a proper parenting style is very much needed by parent to be able to minimize the level of risk behavior occurrence on adolescents

THE CORRELATION BETWEEN FAMILY FUNCTIONING AND QUALITY OF LIFE OF CAREGIVER OF CHILDREN WITH LEUKEMIA

Background: Quality of life of caregiver of children with leukemia is important because it can affect the quality of care provided and can affect the health of children and the caregiver themselves. One of the factors that influence the caregiver’s quality of life is the family functioning. However, a few number of research on the correlation of family functioning in the caregiver's situation. Objective: The aim of the study was to analyze the correlation between family functioning and the caregiver’s quality of life of children with leukemia. Methods: This study used a Quality of Life Family Version questionnaire and a Family Assessment Device questionnaire. The populations in this study were all parents (father or mother) who were the primary caregiver of children with leukemia aged 0-15 years and were being treated at a referral hospital in West Java, Indonesia. Thirty-two respondents were determined by a total sampling technique. The data analysis used frequency distribution and chi-square. Results: The results showed that the family functioning and quality of life of the caregiver had the same results, 50% good and 50% poor. Correlation test in this study showed a negative value with p value > 0.05 (0.480), which indicated that there was no correlation between family functioning and the quality of life of the caregiver. Conclusion: The correlation between family functioning and caregiver's quality of life was not significant. This is likely due to the variable family functioning and the caregiver’s quality of life having balanced results. The results of this study need to be followed up by providing nursing care holistically not only to children, but also to families, especially who are directly involved in child care

THE LEVEL OF DEPRESSION AMONG PARENTS OF AUTISM CHILDREN: A QUANTITATIVE STUDY

ABSTRACTBackground: Caring for a child with autism in the family is a long-term challenge for the parents that impact physical and psychological health. Negative psychological problems that occur continuously will result in depression to the parents.Objective: The purpose of this study is to determine the level of depression in parents who have children with autism at four schools of special needs children (SLB Risantya, SLB Autis Prananda, SLB Jatis Hurip, and SLB D YPAC at Great Bandung Region.Methods: This study used a quantitative descriptive design with a cross-sectional approach. The sampling method used was total sampling, and 39 respondents were obtained. The instrument used was Beck Depression Inventory-II (BDI-II) standard instrument in the Indonesian version.Result: This study showed that 76,9% of parents who have children with autism had minimal depression/normal, 12,8%  of mild depression,  7,7% of moderate depression, and 2,6% of severe depression.Conclusion: The Conclusions of this study indicate that many parents who have children with autism were at minimal/normal depression. However, there were still 2.6% of respondents in severe depression. Nurses needed to provide nursing care that focuses on families, such as counselling and sustainably doing depression screening to parents who have children with autism

Upaya Pencegahan Penularan TB Dari Dewasa Terhadap Anak

Tuberculosis (TB) in children reflects the continuing TB transmission in the population. The transmission rate of TB in children cannot be separated from adult TB patients who live near the children and are a major source of transmission. The behavior of adult patients has a big influence on the increasing number of pediatric TB patients because TB is a disease that is easily transmitted through air. The purpose of this study was to describe the prevention of TB transmission from adults to children in the area around Puskesmas (Primay Health Clinic) DTP Rancaekek. This research used quantitative descriptive method with 54 respondents collected using total sampling technique. Data were collected by distributing questionnaires developed from J. Gordon theory which contained matters concerning the environment, treatment compliance, preventing transmission, and nutritional status using Guttman scale. Data were analysed with descriptive quantitative method using the frequency distribution. The study was conducted at the region of Puskesmas DTP Rancaekek. The results of the study showed that all 54 respondents (100%) did not support the prevention of tuberculosis transmission from adults to children around the region of Puskesmas DTP Rancaekek. Previously there have been health education sessions carried out by the Puskesmas DTP Rancaekek. However, researchers suggest evaluating the methods of health education in order to find the right TB prevention techniques and effectively implement DOTS strategy