Nurses’ and Doctors’ Experiences of Transferring Adolescents or Young Adults With Long-Term Health Conditions From Pediatric to Adult Care: A Metasynthesis

The transfer of adolescents and young adults (AYA) with long-term health conditions from pediatric to adult care is a multidisciplinary enterprise where nurses and doctors play an important role. This review aimed to identify and synthesize evidence from qualitative primary reports on how nurses and doctors experience the transfer of AYA aged 13 to 24 years with long-term health conditions to an adult hospital setting. We systematically searched seven electronic databases for reports published between January 2005 and November 2021 and reporting nurses’ and doctors’ experiences. We meta-summarized data from 13 reports derived from 11 studies published worldwide. Using qualitative content analysis, we metasynthesized nurses’ and doctors’ experiences into the theme “being boosters.” Boosting AYA’s transfer was characterized by supporting AYA’s and their parents’ changing roles, smoothening AYA’s transition from pediatric to adult care, and handling AYA’s encounters with a different care culture.publishedVersio

Parents’ experiences of transitioning to home with a very-low-birthweight infant: A meta-ethnography

Medical-technological advances and neurodevelopmental care have improved the survival of extremely- and very-low-birthweight infants born before 32 weeks’ gestation. After months in neonatal care, the infants are discharged, and parents exited but full of anxiety. This review is designed as a meta-ethnography, addressing parents’ discharge experiences to comprehend the synthesised research, which includes 12 eligible studies. From the analysis, we constructed three themes: ‘approaching discharge with both uncertainty and confidence’; ‘discharge as a longed-for though disordering turning point’; and ‘facing joys, worries and multiple challenges when at home’. The overarching interpretation was ‘discharge as double-edged sword’. We conclude that bringing home very-low-birthweight infants is a joyful event, yet parents also experience discharge as never- endingly worrying, as a time filled with challenges to which parents must adapt and as necessitating contin- uous support from knowledgeable providers.publishedVersio

Being cross pressured-parents' experiences of the transfer from paediatric to adult care services for their young people with long term conditions:A systematic review and qualitative research synthesis

Background: Family members of young people (13–24 years) with long-term conditions tend to experi- ence multiple challenges when their children transfer from paediatric to adult care, as do the patients themselves. Objectives: To identify, interpret and theoretically conceptualise the meaning of parents’ experiences of the transfer from paediatric to adult care of their young people with long-term conditions. Design: A qualitative research synthesis. Data sources: We obtained articles from Medline, CINAHL, PsycINFO, EMBASE, Scopus, and Web of Science. Unpublished theses and dissertations were searched for using Google Scholar, Mednar, and ProQuest Dis- sertations and Theses. Review methods: Based on a previously published protocol, we followed the guidelines from the Joanna Briggs Institute. Sandelowski and Barroso’s qualitative research synthesis approach guided the metasyn- thesis. Articles published between 1999 and March 2019 were systematically searched for. Findings: Twenty-three reports from seven Western countries representing 454 parents including signif- icant others such as aunts and grandparents of 462 young people with various diagnoses contributed to the review. ‘Being cross-pressured’ was the metasynthesis found to reflect parents’ experiences of the transfer from paediatric to adult care of their young people with long-term conditions. The metasynthesis comprised four themes: ‘Fluctuating between parental roles’, ‘Navigating contrasting healthcare contexts’, ‘Making decisions in the face of inner conflict’, and ‘Trusting their child’s self-management ability’. Conclusions: Our metasynthesis finding of parents’ experiences of being cross-pressured provides a new way of thinking about the study phenomena which is supported by transitions theory holding that mul- tiple transitions can take place simultaneously involving myriads of concurrent and conflicting demands. The cross pressure may overwhelm parents. The clinical implications are to recognise parents’ experi- ences and distress in healthcare planning to promote safe and predicable transfers of their young peo- ple. Provision of healthcare to parents during transfer needs to be tailored to a collaborative decision- making process between parents, their young people, and involved practitioners across paediatric and adult healthcare services.publishedVersio

Brugen af vejlederbrev til universitetsstuderende – en diskussion af dets betydning i vejledningsprocessen

Siden 2008 har deltagere på Aarhus Universitets (AU) vejledningskurser udarbejdet individuelle vejlederbreve, som de kan anvende i vejledningsprocessen. I artiklen præsenteres en kvantitativ undersøgelse af hvor mange, der anvender vejlederbrevet. Endvidere diskuteres vejlederbrevets potentiale til at fremme relationen i vejledningsprocessen, herunder om vejlederbrevet kan tydeliggøre sammenhænge mellem læringsmål, vurderingskriterier og studerendes læringsaktiviteter

Parents' experiences of the transfer from pediatric to adult care for their adolescent or young adult children with chronic conditions : a systematic review protocol

Published version of an article in the journal: JBI Database of Systematic Reviews and Implementation Reports. Also available from the publisher at: http://dx.doi.org/10.11124/jbisrir-2014-1565 Open AccessReview question/objective: The objective of this systematic review is to identify parents' experiences of adolescents and young adults (AYA) health care transfer from pediatric to adult care. 1. How do parents experience being prepared for the transfer from pediatric to adult care of their AYA with a chronic condition? 2. How do parents experience the event of transfer? 3. How does the type of chronic condition influence parents' experiences of AYAs' transfer from pediatric to adult care? Inclusion criteria: Types of participants: This review will consider studies that include parents of AYAs (adolescents aged 13-18 years and young adults aged 19-24 years) living with a chronic condition. No limit considering the AYA's type of chronic condition, as long the AYA it not under residential accommodation or institutionalized care. Phenomena of interest: This review will consider studies that investigate how parents of AYAs with chronic conditions experience and manage the AYA's transfer from pediatric to adult care. Context: Transfer from pediatric to adult care for AYAs

Significant others’ experience of hospitalized patients’ transfer to home : a systematic review protocol

Published version of an article in the journal: JBI Database of Systematic Reviews and Implementation Reports. Also available from the publisher at: http://dx.doi.org/10.11124/jbisrir-2014-1539 Open AccessReview question/objective: The objective of this review is to identify, appraise and synthesize the best available evidence exploring significant others’ experiences of the discharge/transfer of patients after hospitalization. More specifically, the review questions are: What is the significant other(s) experience of hospital/discharge transfer of patients; in particular, experiences relating to transitions concerning organizational, psychosocial and existential issues? How do significant others experience their preparedness for bringing the patient(s) home? How do significant others experience the planning of discharge