What can clinicians do to improve outcomes across psychiatric treatments: a conceptual review of non-specific components.

AIMS: Psychiatric treatments have specific and non-specific components. The latter has been addressed in an extensive literature on the placebo-effect in pharmacology and on common factors in psychotherapy. In the practice of mental health care, pharmacological, psychotherapeutic and social treatments are combined in complex interventions. This paper aims to review non-specific components across diverse psychiatric treatments and consider implications for practice and research. METHODS: We conducted a non-systematic review of non-specific components across psychiatric treatments, their impact on treatment processes and outcomes, and interventions to improve them. RESULTS: The identified research is heterogeneous, both in design and quality. All non-specific components capture aspects of how clinicians communicate with patients. They are grouped into general verbal communication - focusing on initial contacts, empathy, clarity of communication, and detecting cues about unspoken concerns - non-verbal communication, the framing of treatments and decision-making. The evidence is stronger for the impact of these components on process measures - i.e. therapeutic relationship, treatment satisfaction and adherence than on clinical outcomes - i.e. symptoms and relapse. A small number of trials suggest that brief training courses and simple methods for structuring parts of clinical consultations can improve communication and subsequently clinical outcomes. CONCLUSIONS: Methodologically, rigorous research advancing current understandings of non-specific components may increase effectiveness across different treatments, potentially benefitting large numbers of patients. Brief training for clinicians and structuring clinical communication should be used more widely in practice

The potential of alternatives to face-to-face consultation in general practice, and the impact on different patient groups: a mixed-methods case study

Background: There is international interest in the potential role of different forms of communicationtechnology to provide an alternative to face-to-face consultations in health care. There has beenconsiderable rhetoric about the need for general practices to offer consultations by telephone, e-mail orinternet video. However, little is understood about how, under what conditions, for which patients and inwhat ways these approaches may offer benefits to patients and practitioners in general practice.Objectives: Our objectives were to review existing evidence about alternatives to face-to-face consultation;conduct a scoping exercise to identify the ways in which general practices currently provide these alternatives;recruit eight general practices as case studies for focused ethnographic research, exploring how practicecontext, patient characteristics, type of technology and the purpose of the consultation interact to determinethe impact of these alternatives; and synthesise the findings in order to develop a website resource about theimplementation of alternatives to face-to-face consultations and a framework for subsequent evaluation.Design: Mixed-methods case study.Setting: General practices in England and Scotland with varied experience of implementing alternatives toface-to-face consultations.Participants: Patients and practice staff.Interventions: Alternatives to face-to-face consultations include telephone consultations, e-mail,e-consultations and internet video.Main outcome measures: How context influenced the implementation and impact of alternatives to theface-to-face consultation; the rationale for practices to introduce alternatives; the use of different forms ofconsultation by different patient groups; and the intended benefits/outcomes.Review methods: The conceptual review used an approach informed by realist review, a method forsynthesising research evidence regarding complex interventions.Results: Alternatives to the face-to-face consultation are not in mainstream use in general practice, withlow uptake in our case study practices. We identified the underlying rationales for the use of thesealternatives and have shown that different stakeholders have different perspectives on what they hope toachieve through the use of alternatives to the face-to-face consultation. Through the observation of real-lifeuse of different forms of alternative, we have a clearer understanding of how, under what circumstancesand for which patients alternatives might have a range of intended benefits and potential unintendedadverse consequences. We have also developed a framework for future evaluation.Limitations: The low uptake of alternatives to the face-to-face consultation means that our researchparticipants might be deemed to be early adopters. The case study approach provides an in-depthexamination of a small number of sites, each using alternatives in different ways. The findings aretherefore hypothesis-generating, rather than hypothesis-testing.Conclusions: The current low uptake of alternatives, lack of clarity about purpose and limited evidence ofbenefit may be at odds with current policy, which encourages the use of alternatives. We have highlightedkey issues for practices and policy-makers to consider and have made recommendations about priorities forfurther research to be conducted, before or alongside the future roll-out of alternatives to the face-to-faceconsultation, such as telephone consulting, e-consultation, e-mail and video consulting.Future work: We have synthesised our findings to develop a framework and recommendations aboutfuture evaluation of the use of alternatives to face-to-face consultations.Funding details: The National Institute for Health Research Health Services and DeliveryResearch programme.ABSTRACTNIH

Adherence to antihypertensive medication in the UAE

Background: Poor adherence to medication is a major problem in healthcare services, particularly with chronic illness. In the United Arab Emirates, non-adherence to medication among hypertensive patients is believed to be a major barrier to the appropriate management of the disease. However, there are gaps in our understanding about the extent of nonadherence and reasons for not taking medication as prescribed in this population Aims: 1) To explore barriers to adherence to medications and other self-care behaviours among Emirati hypertensive participants. 2) To assess the extent and predictive factors of non-adherence to antihypertensive medications in the UAE in order to recommend potential interventions needed for improving adherence. Methods: A qualitative exploratory study using semi-structured interviews with 20 patients and a cross-sectional quantitative survey with 391 patients randomly selected from all seven Emirates of the UAE. Results: Qualitative interviews revealed issues that may affect antihypertensive medication adherence among Emirati patients, including: a) Beliefs about illness and medicines, b) Social support, c) Healthcare providers and system issues, and d) Perceptions of herbal medicines. Most of the participants reported non-adherence to medication, but adherence to exercise and diet was often even lower. The quantitative survey showed that approximately 66% of Emirati hypertensive patients were non-adherent to their medications. Four variables significantly predicted patients' non-adherence to medications in the logistic regression model. The model suggested that hypertensive patients with uncontrolled blood pressure who live in rural areas and who doubted the ability of the treatment to control their hypertension and had more concerns about their medicines were more likely to be non-adherent to their medication. Conclusion: This thesis showed that barriers to medication adherence in the UAE were complex and often interlinked, suggesting that multiple, tailored interventions may be needed to improve antihypertensive medication adherence and patient outcomes

What do patients complain about online: A systematic review and taxonomy framework based on patient centeredness

© 2019 Journal of Medical Internet Research. All rights reserved. Background: Complaints made online by patients about their health care experiences are becoming prevalent because of widespread worldwide internet connectivity. An a priori framework, based on patient centeredness, may be useful in identifying the types of issues patients complain about online across multiple settings. It may also assist in examining whether the determinants of patient-centered care (PCC) mirror the determinants of patient experiences. Objective: The objective of our study was to develop a taxonomy framework for patient complaints online based on patient centeredness and to examine whether the determinants of PCC mirror the determinants of patient experiences. Methods: First, the best fit framework synthesis technique was applied to develop the proposed a priori framework. Second, electronic databases, including Web of Science, Scopus, and PubMed, were searched for articles published between 2000 and June 2018. Studies were only included if they collected primary quantitative data on patients' online complaints. Third, a deductive and inductive thematic analysis approach was adopted to code the themes of recognized complaints into the framework. Results: In total, 17 studies from 5 countries were included in this study. Patient complaint online taxonomies and theme terms varied. According to our framework, patients expressed most dissatisfaction with patient-centered processes (101,586/204,363, 49.71%), followed by prerequisites (appropriate skills and knowledge of physicians; 50,563, 24.74%) and the care environment (48,563/204,363, 23.76%). The least dissatisfied theme was expected outcomes (3651/204,363, 1.79%). People expressed little dissatisfaction with expanded PCC dimensions, such as involvement of family and friends (591/204,363, 0.29%). Variation in the concerns across different countries' patients were also observed. Conclusions: Online complaints made by patients are of major value to health care providers, regulatory bodies, and patients themselves. Our PCC framework can be applied to analyze them under a wide range of conditions, treatments, and countries. This review has shown significant heterogeneity of patients' online complaints across different countries

An 8 year-old-boy with fever, severe bilateral calf pain and toe-walking

Benign acute childhood myositis (BACM) is rare. It has been regarded as a dramatic complication of viral respiratory tract infection, particularly influenza B, whose clinical resolution is spontaneous, favourable and equally dramatic. This case report describes a clinical presentation which is consistent with the literature and offers an approach to ruling out sinister differential diagnoses. Awareness of this condition may help front-line clinicians to consider a selective approach to pursuing investigations.published_or_final_versio

Development of a digital toolkit to improve quality of life of patients with systemic lupus erythematosus

OBJECTIVE: The purpose of this manuscript is to detail development and initial usability testing of an e-toolkit designed to provide skills and knowledge around self-management behaviors for individuals living with systemic lupus erythematosus. METHODS: Researchers worked with a steering committee of patients and providers to (1) develop a clickable prototype of an e-toolkit and (2) conduct alpha (individuals not affiliated with an academic clinic as patient or provider) and beta (individual patients with systemic lupus erythematosus as well as members of the clinic healthcare team and individuals who work in patient advocacy organizations) usability testing through semistructured interviews. RESULTS: During the review of the e-toolkit, the feedback provided by participants in both alpha and beta groups centered on two overarching themes: (1) improving user interface and materials and (2) integration of information and supports between toolkit and clinical personnel. CONCLUSION: Digital approaches that are tailored to individual symptom variation and integrated with a clinical system have the opportunity to enhance ongoing clinical care. These findings support movement toward integrated, team-based care models, tailored digital resources, and use of expanded virtual interaction options to ensure on-going engagement between healthcare providers and systemic lupus erythematosus patients

Activating chronic kidney disease patients and family members through the Internet to promote integration of care

PURPOSE: To describe the potential role of the Internet as a vehicle for improving integration of care through activating chronic kidney disease patients and their family members. Also, to describe how that potential is being developed through a website sponsored by the Medicare program in the United States. BACKGROUND: The Internet is expanding at a rapid rate, and health-related websites are one of its most popular features. Efforts to promote integration of care have focused mainly on providers up to now, and more emphasis is needed on the potential roles of patients. Chronically ill patients have particular needs for improved education about their conditions and enhanced involvement in care planning and treatment decisions. Medicare developed the Dialysis Facility Compare website to serve those goals for people with chronic kidney disease. METHODS: We conducted qualitative research with 140 chronic kidney disease patients and family members, and 130 renal care professionals to evaluate and improve the Dialysis Facility Compare website. A series of 19 focus groups, 13 triads (small focus groups), and 56 individual interviews were conducted in four regions of the United States and by telephone. RESULTS: We found that the Dialysis Facility Compare website has the potential to improve integration of care for people with chronic kidney disease in at least three ways. First: by expanding the roles of patients as members of the multi-disciplinary team of caregivers treating their disease. Second: through better integration of the informal care provided in the home and community with the formal care provided by health professionals. Third: by improving coordination of between care provided in the pre-dialysis and dialysis phases of the disease. DISCUSSION: We developed recommendations for revising and enhancing the Dialysis Facility Compare website in a number of ways to better promote patient activation and integration of care. The unique features of the Internet, such as its different dimensions of interactivity, and applications of behavioural theories for website design should also be further explored

Examining the Impact of Design Features of Electronic Health Records Patient Portals on the Usability and Information Communication for Shared Decision Making

The use of the Electronic Health Records (EHR) patient portal has been shown to be effective in generating positive outcomes in patients’ healthcare, improving patient engagement and patient-provider communication. Government legislation also required proof of its meaningful use among patients by healthcare providers. Typical patient portals also include features such as health information and patient education materials. However, little research has examined the specific use of patient portals related to individuals with specific diseases such as inflammatory bowel diseases (IBDs). IBDs are life-long, not curable, chronic diseases that can impact the whole population. Individuals with IBDs may have higher needs to acquire health information from their EHR portals to properly self-manage their health conditions. The research aims of the present dissertation are to understand the online health information-seeking behaviors of a target group (IBDs) of patients, the use of EHR patient portals, and the impact of design features of EHR patient portals on the usability and information communication for shared decision making. Through this dissertation, I conducted four studies to address the above research aims. First, I identified how individuals with inflammatory bowel disease (IBD) used the internet for health information seeking, the factors impacting their use of the internet to obtain health information, and how they used the internet for health-related tasks. The purpose of this study is to get a general understanding of the online health information-seeking behaviors and to guide the study of health information presentation of EHR portals in the following research. Second, I examined what factors influenced an EHR patient portal user to believe that the portal is a valuable part of their health care. This part of the dissertation aimed to reveal the critical design factors that help design an EHR portal perceived as valuable in managing health. Third, I looked at how patients used EHR patient portals, what features of the portals facilitated their use and encouraged Shared Decision Making (SDM) and engagement in health management and what features acted as barriers to SDM and their engagement in health management. This part of my dissertation focused on a broad understanding of EHR portals usage by introducing more specific factors such as features of EHR portals. Fourth, I conducted an eye-tracking study to examine how information presentation methods and chatbots impact the use and effect of patient portals. This part of my dissertation built on the other studies within my dissertation and deepened the understanding of the influence of different EHR portal designs on their effectiveness and people’s willingness to participate in SDM. The results of this dissertation contribute to the literature of understanding the information-seeking behaviors of IBD patients and the use of portals, as well as the design considerations of how to make a suitable EHR portal to support the information-seeking needs of IBD patients. The results of this dissertation can be used to guide building proper patient education materials to support their health information needs of their specific health condition, especially for individuals with chronic diseases that require a certain amount of self-management. Meanwhile, examining artificial intelligence (AI) based chatbots use in EHR portals reveals a potential path of AI use in healthcare, such as information acquisition and patient education. Designing good usable EHR may also facilitate the process of informing patients of the advantages and disadvantages of treatment plans for their disease and, therefore, may increase their willingness to participate in SDM

GPs are from Mars, Administrators are from Venus: The Role of Misaligned Occupational Dispositions in Inhibiting Mandated Role Change

Research on mandated occupational role change focuses on jurisdictional conflict to explain change failure. Our study of the English National Health Service highlights the role of occupational dispositions in shaping how mandated role change is implemented by members of multiple occupational groups. We find that tension stemming from misaligned dispositions may emerge as members of different occupations interact during their role change implementation efforts. Depending on dispositional responses to tension, change may fail as members of the different occupations avoid interactions. This suggests that effective role change can be elusive even in the initial absence of conflicting occupational interests

Digital Healthcare and Expertise

This open access book explores how expertise about bipolar disorder is performed on American and French digital platforms by combining insights from STS, medical sociology and media studies. It addresses topical questions, including: How do different stakeholders engage with online technologies to perform expertise about bipolar disorder? How does the use of the internet for processes of knowledge evaluation and production allow for people diagnosed with bipolar disorder to reposition themselves in relation to medical professionals? How do cultural markers shape the online performance of expertise about bipolar disorder? And what individualizing or collectivity-generating effects does the internet have in relation to the performance of expertise? The book constitutes a critical and nuanced intervention into dominant discourses which approach the internet either as a quick technological fix or as a postmodern version of Pandora’s box, sowing distrust among people and threatening unified conceptualizations and organized forms of knowledge