Design science research towards resilient cyber-physical eHealth systems

Most eHealth systems are cyber-physical systems (CPSs) making safety-critical decisions based on information from other systems not known during development. In this design science research, a conceptual resilience governance framework for eHealth CPSs is built utilizing 1) cybersecurity initiatives, standards and frameworks, 2) science of design for software-intensive systems and 3) empowering cyber trust and resilience. According to our study, a resilient CPS consists of two sub-systems: the proper resilient system and the situational awareness system. In a system of CPSs, three networks are composed: platform, software and social network. The resilient platform network is the basis on which information sharing between stakeholders could be created via software layers. However, the trust inside social networks quantifies the pieces of information that will be shared - and with whom. From citizens’ point of view, eHealth is wholeness in which requirements of information security hold true. Present procedures emphasize confidentiality at the expense of integrity and availability, and regulations/instructions are used as an excuse not to change even vital information. The mental-picture of cybersecurity should turn from “threat, crime, attack” to “trust” and “resilience”. Creating confidence in safe digital future is truly needed in the integration of the digital and physical world’s leading to a new digital revolution. The precondition for the exchange of information “trust” must be systematically built at every CPS’ level. In health sector, increasingly interconnected social, technical and economic networks create large complex CPSs, and risk assessment of many individual components becomes cost and time prohibitive. When no-one can control all aspects of CPSs, protection-based risk management is not enough to help prepare for and prevent consequences of foreseeable events, but resilience must be built into systems to help them quickly recover and adapt when adverse events do occur.Most eHealth systems are cyber-physical systems (CPSs) making safety-critical decisions based on information from other systems not known during development. In this design science research, a conceptual resilience governance framework for eHealth CPSs is built utilizing 1) cybersecurity initiatives, standards and frameworks, 2) science of design for software-intensive systems and 3) empowering cyber trust and resilience. According to our study, a resilient CPS consists of two sub-systems: the proper resilient system and the situational awareness system. In a system of CPSs, three networks are composed: platform, software and social network. The resilient platform network is the basis on which information sharing between stakeholders could be created via software layers. However, the trust inside social networks quantifies the pieces of information that will be shared - and with whom. From citizens’ point of view, eHealth is wholeness in which requirements of information security hold true. Present procedures emphasize confidentiality at the expense of integrity and availability, and regulations/instructions are used as an excuse not to change even vital information. The mental-picture of cybersecurity should turn from “threat, crime, attack” to “trust” and “resilience”. Creating confidence in safe digital future is truly needed in the integration of the digital and physical world’s leading to a new digital revolution. The precondition for the exchange of information “trust” must be systematically built at every CPS’ level. In health sector, increasingly interconnected social, technical and economic networks create large complex CPSs, and risk assessment of many individual components becomes cost and time prohibitive. When no-one can control all aspects of CPSs, protection-based risk management is not enough to help prepare for and prevent consequences of foreseeable events, but resilience must be built into systems to help them quickly recover and adapt when adverse events do occur

An Implementation Process of Interoperability: A Case-Study of Health Information Systems (HIS)

Several advances have been made towards health information systems (HIS) use and implementations. However, these advances have not been matched by equal advances in HIS interoperability implementations. Current challenges in this domain are partly due to lack of implementation knowledge hence resulting into a number of failed HIS interoperability implementations. To gain substantive implementation knowledge on HIS interoperability projects, we have carried out interviews through an interpretive case-study approach to investigate a successful HIS interoperability project. Through this approach we propose an initial set of HIS interoperability implementation best practices comprising of these key processes: discovering interoperability need, projecting outcome, managing change and adopting an appropriate interoperability strategy which together depict a contingence management relationship. We conclude that this initial set of best practices contributes substantive knowledge that can guide future HIS interoperability implementations

Developing an infrastructure for secure patient summary exchange in the EU context: Lessons learned from the KONFIDO project:

Background: The increase of healthcare digitalization comes along with potential information security risks. Thus, the EU H2020 KONFIDO project aimed to provide a toolkit supporting secure cross-border health data exchange. Methods: KONFIDO focused on the so-called "User Goals", while also identifying barriers and facilitators regarding eHealth acceptance. Key user scenarios were elaborated both in terms of threat analysis and legal challenges. Moreover, KONFIDO developed a toolkit aiming to enhance the security of OpenNCP, the reference implementation framework. Results: The main project outcomes are highlighted and the "Lessons Learned," the technical challenges and the EU context are detailed. Conclusions: The main "Lessons Learned" are summarized and a set of recommendations is provided, presenting the position of the KONFIDO consortium toward a robust EU-wide health data exchange infrastructure. To this end, the lack of infrastructure and technical capacity is highlighted, legal and policy challenges are identified and the need to focus on usability and semantic interoperability is emphasized. Regarding technical issues, an emphasis on transparent and standards-based development processes is recommended, especially for landmark software projects. Finally, promoting mentality change and knowledge dissemination is also identified as key step toward the development of secure cross-border health data exchange services

Developing an infrastructure for secure patient summary exchange in the EU context: Lessons learned from the KONFIDO project

Background: The increase of healthcare digitalization comes along with potential information security risks. Thus, the EU H2020 KONFIDO project aimed to provide a toolkit supporting secure cross-border health data exchange. Methods: KONFIDO focused on the so-called “User Goals”, while also identifying barriers and facilitators regarding eHealth acceptance. Key user scenarios were elaborated both in terms of threat analysis and legal challenges. Moreover, KONFIDO developed a toolkit aiming to enhance the security of OpenNCP, the reference implementation framework. Results: The main project outcomes are highlighted and the “Lessons Learned,” the technical challenges and the EU context are detailed. Conclusions: The main “Lessons Learned” are summarized and a set of recommendations is provided, presenting the position of the KONFIDO consortium toward a robust EU-wide health data exchange infrastructure. To this end, the lack of infrastructure and technical capacity is highlighted, legal and policy challenges are identified and the need to focus on usability and semantic interoperability is emphasized. Regarding technical issues, an emphasis on transparent and standards-based development processes is recommended, especially for landmark software projects. Finally, promoting mentality change and knowledge dissemination is also identified as key step toward the development of secure cross-border health data exchange services

Proceedings of the seventh international conference on well-being in the information society : fighting inequalities (WIS 2018)

This publication contains selected and reviewed abstracts that were presentded at the Well-Being In the Information Society - WIS 2018 conference, which took place in Turku in Finland, during 27-29 August, 2018. The conference, which started in 2006, is a biannual event that is now being held for the seventh time. The conference is multidisciplinary in nature. It brings together scientist and practitioners from several academic disciplines and professional specializations from around the world who share their current expertise and experiences, and exchange their views on the latest developments within the field. The focal point of the WIS conference has from the beginning been the use of information technology to promote equality in well-being. This, together with the main theme of the conference this year, ‘fighting inequalities’, is reflected in the content and emphasis in the publication. We would like to express our gratitude to all of those who have contributed to the WIS 2018 conference. We owe our special thanks to the Federation of Finnish Learned Societies, the Foundation for Economic Education and Åbo Akademi University Foundation. Without the financial support received from it, the event could not have taken place. The Programme Committee and the Programme Chairs also deserve appreciations for their work and the time that they committed to ensure that the conference became successful. We would also like to take this opportunity to acknowledge the work of the authors and thank them for participating in this publication, as well the external reviewers to helped to ensure the quality of it. It is our great pleasure and honour to introduce this issue of the TUCS Lecture Notes to the readers. We hope that it will stimulate the interest for further research about fighting inequality in well-being

Assessing the mental health and wellbeing of the Emergency Responder community in the UK

Those working in emergency responder (ER) roles may be at an increased risk of adverse mental health and wellbeing outcomes. The ER group, sometimes referred to as ‘First Responders’, is a broad category that includes those in the traditional ‘blue light’ emergency services and in volunteer organisations, such as Search and Rescue and the Royal National Lifeboat Institute (RNLI). Regardless of the role type, the increased risk to mental health and wellbeing may be due to the nature of their work, which involves frequent exposure to potentially distressing situations, accident scenes, and threats to safety for themselves and others. These high stress activities may be compounded by intense workplace stressors, such as excessive workloads, staffing cuts, unpredictable work, inadequate support and increasing social accountability. Initial scoping work by Mind looked at wellbeing across ERs and reported a potential elevated risk of psychological issues compared to the general population, alongside a reluctance to seek support for their symptoms. However, there is a general dearth of research in this area. There is a lack of collated data concerning ERs mental health and wellbeing, and little is known about the nature and effectiveness of mental health and wellbeing support that is available to ERs and their families. This project addresses these concerns by identifying mental health and wellbeing research (completed and ongoing) across the emergency services, volunteer roles and their families, through a systematic review of UK, international and grey literature. In tandem, a comprehensive landscape review was conducted to assess the current mental health and wellbeing-related service provision and practice across the UK through stakeholder interviews and desktop-based research which investigated information available on the internet

Generating Cross-domain Knowledge about Connecting Work Analysis and Interaction Design

Proceedings of Workshop at INTERACT 2013 – 14th IFIP TC13 Conference on Human-Computer Interaction, Cape Town, South Africa, September 201

Design revolutions: IASDR 2019 Conference Proceedings. Volume 4: Learning, Technology, Thinking

In September 2019 Manchester School of Art at Manchester Metropolitan University was honoured to host the bi-annual conference of the International Association of Societies of Design Research (IASDR) under the unifying theme of DESIGN REVOLUTIONS. This was the first time the conference had been held in the UK. Through key research themes across nine conference tracks – Change, Learning, Living, Making, People, Technology, Thinking, Value and Voices – the conference opened up compelling, meaningful and radical dialogue of the role of design in addressing societal and organisational challenges. This Volume 4 includes papers from Learning, Technology and Thinking tracks of the conference