Ubiquitous computing and ambient intelligence: New challenges for computing

The IST Advisory Group (ISTAG) of the European Union had a vision of "Ambient Intelligence" (AmI) in 1999. It refers to "an exciting new paradigm of information technology, in which people are empowered through a digital environment that is aware of their presence and context sensitive, adaptive and responsive to their needs, habits, gestures and emotions". In AmI the technology will become invisible, embedded, present whenever we need it, enabled by simple interactions, attuned to all our senses and adaptive to users and contexts (Scenarios for Ambient Intelligence). AmI proposes a shift in computing from the traditional computer to a whole set of devices placed around us providing users with an intelligent background

A multi-site study on walkability, data sharing and privacy perception using mobile sensing data gathered from the mk-sense platform

Walking is a fundamental part of a physically active lifestyle, it is one of everyday activities that positively impacts health and wellbeing. In this paper we describe the challenges and experiences of conducting a sensing campaign in the wild. We make use of mk-sense; a software platform to facilitate the deployment of collaborative sensing campaigns. We elaborate on two cross-cultural studies conducted in four different countries (Mexico, Turkey, Spain, and Switzerland) with a total of 77 participants. We present a detailed description of the data collected from one of the studies aimed at measuring walkability around three different university campuses. The analysis of the data shows that walkability can be assessed using information from the sensors in the smartphones and results from surveys answered by participants. In addition, we analyze issues about data sharing and privacy awareness

Exploring the Role of Contextual Integrity in Electronic Medical Record (EMR) System Workaround Decisions: An Information Security and Privacy Perspective

Many healthcare providers in the US are seeking increased efficiency and effectiveness by rapidly adopting information technology (IT) solutions such as electronic medical record (EMR) systems. Legislation such as the Health Information Technology for Economic and Clinical Health Act (HITECH), which codified the adoption and “meaningful use” of electronic records in the US, has further spurred the industry-wide adoption of EMR. However, despite what are often large investments in EMR, studies indicate that the healthcare industry maintains a culture of system workarounds. Though perhaps not uncommon, the creation of informal workflows among healthcare workers is problematic for assuring information security and patient privacy, particularly when involving decisions of information management (e.g., information storage, retrieval, and/or transmission). Drawing on the framework of contextual integrity, we assert that one can often explain workarounds involving information transmissions in terms of trade-offs informed by context-specific informational norms. We surveyed healthcare workers and analyzed their willingness to engage in a series of EMR workaround scenarios. Our results indicate that contextual integrity provides a useful framework for understanding information transmission and workaround decisions in the health sector. Armed with these findings, managers and system designers should be better able to anticipate healthcare workers’ information transmission principles (e.g., privacy norms) and workaround patterns (e.g., usage norms). We present our findings and discuss their significance for research and practice

Ethics of the health-related internet of things: a narrative review

The internet of things is increasingly spreading into the domain of medical and social care. Internet-enabled devices for monitoring and managing the health and well-being of users outside of traditional medical institutions have rapidly become common tools to support healthcare. Health-related internet of things (H-IoT) technologies increasingly play a key role in health management, for purposes including disease prevention, real-time tele-monitoring of patient’s functions, testing of treatments, fitness and well-being monitoring, medication dispensation, and health research data collection. H-IoT promises many benefits for health and healthcare. However, it also raises a host of ethical problems stemming from the inherent risks of Internet enabled devices, the sensitivity of health-related data, and their impact on the delivery of healthcare. This paper maps the main ethical problems that have been identified by the relevant literature and identifies key themes in the on-going debate on ethical problems concerning H-IoT

Quality of Privacy (QoP) for the Design of Ubiquitous Healthcare Applications

Privacy is a complex social process that will persist in one form or another as a fundamental feature of the substrate into which ubiquitous computing (ubicomp) is threaded. Hospitals are natural candidates for the deployment of ubicomp technology while at the same time face significant privacy requirements. To better understand the privacy issues related to the use of ubicomp we place our efforts in understanding the contextual information relevant to privacy and how its interplay shapes the perception of privacy in a hospital. The results indicate that hospital workers tend to manage privacy by assessing the value of the services provided by a ubicomp application and the amount of privacy they are willing to concede. For ubicomp applications to better deal with this issue we introduce the concept of Quality of Privacy (QoP) which allows balancing this trade-off in a similar way as that of Quality of Service (QoS) does for networking applications. We propose an architecture that allows designers to identify different levels of QoP based on the user's context. Finally, we identify the main privacy risks of a location-aware application and we extend its architecture exemplifying the use of QoP to manage those risks

On the Ethical Implications of Personal Health Monitoring

Recent years have seen an influx of medical technologies capable of remotely monitoring the health and behaviours of individuals to detect, manage and prevent health problems. Known collectively as personal health monitoring (PHM), these systems are intended to supplement medical care with health monitoring outside traditional care environments such as hospitals, ranging in complexity from mobile devices to complex networks of sensors measuring physiological parameters and behaviours. This research project assesses the potential ethical implications of PHM as an emerging medical technology, amenable to anticipatory action intended to prevent or mitigate problematic ethical issues in the future. PHM fundamentally changes how medical care can be delivered: patients can be monitored and consulted at a distance, eliminating opportunities for face-to-face actions and potentially undermining the importance of social, emotional and psychological aspects of medical care. The norms evident in this movement may clash with existing standards of ‘good’ medical practice from the perspective of patients, clinicians and institutions. By relating utilitarianism, virtue ethics and theories of surveillance to Habermas’ concept of colonisation of the lifeworld, a conceptual framework is created which can explain how PHM may be allowed to change medicine as a practice in an ethically problematic way. The framework relates the inhibition of virtuous behaviour among practitioners of medicine, understood as a moral practice, to the movement in medicine towards remote monitoring. To assess the explanatory power of the conceptual framework and expand its borders, a qualitative interview empirical study with potential users of PHM in England is carried out. Recognising that the inherent uncertainty of the future undermines the validity of empirical research, a novel epistemological framework based in Habermas’ discourse ethics is created to justify the empirical study. By developing Habermas’ concept of translation into a procedure for assessing the credibility of uncertain normative claims about the future, a novel methodology for empirical ethical assessment of emerging technologies is created and tested. Various methods of analysis are employed, including review of academic discourses, empirical and theoretical analyses of the moral potential of PHM. Recommendations are made concerning ethical issues in the deployment and design of PHM systems, analysis and application of PHM data, and the shortcomings of existing research and protection mechanisms in responding to potential ethical implications of the technology.he research described in this thesis was sponsored and funded by the Centre for Computing and Social Responsibility of De Montfort University, and was linked to the research carried out in FP7 research projects PHM-Ethics (GA 230602) and ETICA (Ethical Issues of Emerging ICT Applications, GA 230318)