Rhetorics of Invitation and Refusal in Terry Tempest Williams\u27s The Open Space of Democracy

This essay aims to break through an impasse in scholarship about the uses and limits of invitational rhetoric for social change. After analyzing the arguments about invitational approaches to communication, the essay focuses on a case (concerning freedom of expression after September 11) wherein invitations to listen have been refused. In examining the refusal stage of the invitational encounter, I find that what interlocutors chose to do after being refused is as important as the gesture of invitation itself. The choice to publicize refusals to listen, for example, reveals previously unconsidered ways that invitational rhetoric succeeds in getting marginalized points of view heard, and reinvigorating democratic practice. Using the example of Terry Tempest Williams\u27s book The Open Space of Democracy, the online journal she kept during her book tour, and student activism surrounding her campus visit at Florida Gulf State University, I examine ways out of binary constructions of rhetorical modes in their conceptual, isolated forms, and into studying the dynamic ecologies of modes like invitational rhetoric

Online Personal Data Processing and EU Data Protection Reform. CEPS Task Force Report, April 2013

This report sheds light on the fundamental questions and underlying tensions between current policy objectives, compliance strategies and global trends in online personal data processing, assessing the existing and future framework in terms of effective regulation and public policy. Based on the discussions among the members of the CEPS Digital Forum and independent research carried out by the rapporteurs, policy conclusions are derived with the aim of making EU data protection policy more fit for purpose in today’s online technological context. This report constructively engages with the EU data protection framework, but does not provide a textual analysis of the EU data protection reform proposal as such

Technology, governance, and a sustainability model for small and medium-sized towns in Europe

New and cutting-edge technologies causing deep changes in societies, playing the role of game modifiers, and having a significant impact on global markets in small and medium-sized towns in Europe (SMSTEs) are the focus of this research. In this context, an analysis was carried out to identify the main dimensions of a model for promoting innovation in SMSTEs. The literature review on the main dimensions boosting the innovation in SMSTEs and the methodological approach was the application of a survey directed to experts on this issue. The findings from the literature review reflect that technologies, governance, and sustainability dimensions are enablers of SMSTEs’ innovation, and based on the results of the survey, a model was implemented to boost innovation, being this the major add-on of this research.info:eu-repo/semantics/publishedVersio

Design Challenges for GDPR RegTech

The Accountability Principle of the GDPR requires that an organisation can demonstrate compliance with the regulations. A survey of GDPR compliance software solutions shows significant gaps in their ability to demonstrate compliance. In contrast, RegTech has recently brought great success to financial compliance, resulting in reduced risk, cost saving and enhanced financial regulatory compliance. It is shown that many GDPR solutions lack interoperability features such as standard APIs, meta-data or reports and they are not supported by published methodologies or evidence to support their validity or even utility. A proof of concept prototype was explored using a regulator based self-assessment checklist to establish if RegTech best practice could improve the demonstration of GDPR compliance. The application of a RegTech approach provides opportunities for demonstrable and validated GDPR compliance, notwithstanding the risk reductions and cost savings that RegTech can deliver. This paper demonstrates a RegTech approach to GDPR compliance can facilitate an organisation meeting its accountability obligations

Privacy and Accountability in Black-Box Medicine

Black-box medicine—the use of big data and sophisticated machine learning techniques for health-care applications—could be the future of personalized medicine. Black-box medicine promises to make it easier to diagnose rare diseases and conditions, identify the most promising treatments, and allocate scarce resources among different patients. But to succeed, it must overcome two separate, but related, problems: patient privacy and algorithmic accountability. Privacy is a problem because researchers need access to huge amounts of patient health information to generate useful medical predictions. And accountability is a problem because black-box algorithms must be verified by outsiders to ensure they are accurate and unbiased, but this means giving outsiders access to this health information. This article examines the tension between the twin goals of privacy and accountability and develops a framework for balancing that tension. It proposes three pillars for an effective system of privacy-preserving accountability: substantive limitations on the collection, use, and disclosure of patient information; independent gatekeepers regulating information sharing between those developing and verifying black-box algorithms; and information-security requirements to prevent unintentional disclosures of patient information. The article examines and draws on a similar debate in the field of clinical trials, where disclosing information from past trials can lead to new treatments but also threatens patient privacy

RoboChain: A Secure Data-Sharing Framework for Human-Robot Interaction

Robots have potential to revolutionize the way we interact with the world around us. One of their largest potentials is in the domain of mobile health where they can be used to facilitate clinical interventions. However, to accomplish this, robots need to have access to our private data in order to learn from these data and improve their interaction capabilities. Furthermore, to enhance this learning process, the knowledge sharing among multiple robot units is the natural step forward. However, to date, there is no well-established framework which allows for such data sharing while preserving the privacy of the users (e.g., the hospital patients). To this end, we introduce RoboChain - the first learning framework for secure, decentralized and computationally efficient data and model sharing among multiple robot units installed at multiple sites (e.g., hospitals). RoboChain builds upon and combines the latest advances in open data access and blockchain technologies, as well as machine learning. We illustrate this framework using the example of a clinical intervention conducted in a private network of hospitals. Specifically, we lay down the system architecture that allows multiple robot units, conducting the interventions at different hospitals, to perform efficient learning without compromising the data privacy.Comment: 7 pages, 6 figure

The Precautionary Principle in a World of Digital Dependencies

As organizations become deperimeterized, a new paradigm in software engineering ethics becomes necessary. We can no longer rely on an ethics of consequences, but might instead rely on the precautionary principle, which lets software engineers focus on creating a more extensive moral framework.\u

A case study in open source innovation: developing the Tidepool Platform for interoperability in type 1 diabetes management.

OBJECTIVE:Develop a device-agnostic cloud platform to host diabetes device data and catalyze an ecosystem of software innovation for type 1 diabetes (T1D) management. MATERIALS AND METHODS:An interdisciplinary team decided to establish a nonprofit company, Tidepool, and build open-source software. RESULTS:Through a user-centered design process, the authors created a software platform, the Tidepool Platform, to upload and host T1D device data in an integrated, device-agnostic fashion, as well as an application ("app"), Blip, to visualize the data. Tidepool's software utilizes the principles of modular components, modern web design including REST APIs and JavaScript, cloud computing, agile development methodology, and robust privacy and security. DISCUSSION:By consolidating the currently scattered and siloed T1D device data ecosystem into one open platform, Tidepool can improve access to the data and enable new possibilities and efficiencies in T1D clinical care and research. The Tidepool Platform decouples diabetes apps from diabetes devices, allowing software developers to build innovative apps without requiring them to design a unique back-end (e.g., database and security) or unique ways of ingesting device data. It allows people with T1D to choose to use any preferred app regardless of which device(s) they use. CONCLUSION:The authors believe that the Tidepool Platform can solve two current problems in the T1D device landscape: 1) limited access to T1D device data and 2) poor interoperability of data from different devices. If proven effective, Tidepool's open source, cloud model for health data interoperability is applicable to other healthcare use cases