From Theory to Practice: Creating a Toolkit for Engaged Design

Researchers and designers alike have called for more inclusive and participatory approaches to be used within design. By first exploring the work of researchers designing with older adults living with dementia and expanding to a more robust literature review surrounding inclusion in design, I found that the literature not only suggests that design could benefit from an integration of interdisciplinary knowledge, critical reflection of methods and intentional interaction with users, but also presents theories for doing so. This project condenses four of those theories into key principles, and uses them to present a framework of Engaged Design, a mindset intended to helps designers prioritize critical reflection of their processes in order to interact more meaningfully with their users.Master of ScienceInformation, School ofUniversity of Michiganhttp://deepblue.lib.umich.edu/bitstream/2027.42/162557/1/Broderick_Brianna_Final_MTOP_Thesis_20200501.pd

Ageing playfully:a story of forgetting and remembering

An increasing interest in exploring how digital innovation could support dementia care has been a leading research responding to e-health movements, from caregiving and medical perspectives. Little research has included perspectives of people with dementia; even fewer are concerned with the emotional side of the research experience per se. The aim of this case study is to open a space for a discussion of the impact that this process has on design researchers engaging in the area of dementia. Grounded in these two overlapping creative spaces, a methodology emerged that focused on adding design value to outcomes and to all stakeholders involved along the process. The Ageing Playfully project explored, through a series of playful workshops, the opportunities available for people with dementia to catalyse imagination and social interaction through co-design. Participating in Ageing Playfully were 12 co-designers with dementia, 2 healthcarers and 4 researchers from Lancaster University working in the areas of design, computer science and health studies. This paper recounts the experience of the design researchers as part of the team and constructs a narrative in which emerging methods together with personal experience are protagonists; a story that offers memories within the forgetful corners of the investigation

ASA - APLICATIVO DE SUPORTE AO ALUNO DESENVOLVIDO COM PESSOAS COM PARALISIA CEREBRAL UTILIZANDO MÉTODO DADPA

Dispositivos móveis podem trazer facilidades para o cotidiano e qualidade de vida para pessoas com deficiência. A partir dessa premissa, foi desenvolvido um aplicativo para acompanhamento de alunos com paralisia cerebral na sala de aula. Neste trabalho foi utilizado o método DADPA, ele é baseado na abordagem de Design Participativo, tendo como objetivo principal a criação de aplicativos com a participação de pessoas com deficiência no processo de construção. Participaram do desenvolvimento pessoas com paralisia cerebral com diferentes níveis de comprometimento. Ao final do projeto, os participantes construíram de forma participativa o Aplicativo de Suporte ao Aluno – ASA com a finalidade de ser utilizado na sala de aula, auxiliando sua interação com os professores

Can artificial intelligence separate the wheat from the chaff in systematic reviews of health economic articles?

The aim of this analysis was to investigate the performance of ASReview for screening titles and abstracts when performing a systematic literature review of health economic evaluations. To do this, the simulation function within ASReview was used to determine the order in which articles were presented to the reviewer. Moreover, two types of stopping rules were applied on screening with ASReview, and the accuracy and efficiency were determined using retrospective analysis. The analyis is described in detail in: Oude Wolcherink MJ, Pouwels XGLV, van Dijk SHB, Doggen CJM, Koffijberg H. Health Economic Research Can artificial intelligence separate the wheat from the chaff in systematic reviews of health economic articles? Expert Review of Pharmacoeconomics & Outcomes Research. Augustus 2023 doi: 10.1080/14737167.2023.2234639. The zip.file includes data used for the analysis described above and scripts to run the analysis to generate the figures shown in the article above. You are also able to adapt the scripts to perform your own analysis on your own data. Please, read the README file careful and follow the steps indicated there

DemYouth: Co-Designing and Enacting Tools to Support Young People’s Engagement with People with Dementia

There is a growing body of research examining the role of technology in supporting the care of—and relationships surrounding—people with dementia, yet little attention has been given to how this relates to younger family members. We conducted a qualitative study based on a series of 6 codesign workshops conducted with 14 young people who had personal experience with dementia. Initially, our workshops focused on understanding the difficulties that young people face when engaging, interacting and being with people with dementia. Initial analysis of workshop data informed the design of three digital tool concepts that were used as the basis for user enactment workshops. Our findings highlight the young people's desire to be more involved in their family discussions around dementia and a need for them to find new ways to connect with their loved ones with dementia. We offer a set of design considerations for future systems that support these needs and reflect on some of the complexities we faced around engaging young people in this difficult topic of discussion

The Games for Older Adults Active Life (GOAL) Project for People With Mild Cognitive Impairment and Vascular Cognitive Impairment: A Study Protocol for a Randomized Controlled Trial

Background: People living with Mild Cognitive Impairment (MCI) and Vascular Cognitive Impairment (VCI) are persons who do not fulfill a diagnosis of dementia, but who have a high risk of progressing to a dementia disorder. The most recent guidelines to counteract cognitive decline in MCI/VCI subjects suggest a multidimensional and multi-domain interventions combining cognitive, physical, and social activities. The purpose of this study is to test an innovative service that provides a multi-dimensional tele-rehabilitation program through a user-friendly web application. The latter has been developed through a participatory design involving MCI specialists, patients, and their caregivers. Particularly, the proposed tele-rehabilitation program includes cognitive, physical, and caregiver-supported social activities. The goal is to promote and preserve an active life style and counteract cognitive decline in people living with MCI/VCI.Methods:The study is a randomized controlled trial. Sixty subjects will be randomly assigned to the experimental group, who will receive the tele-rehabilitation program, or the control group, who will not receive any treatment. The trial protocol comprises three steps of assessment for the experimental group: at the baseline (T_0), after tele-rehabilitation program (T_1) and at follow-up after 12-months (T_2). Differently, the control group will be assessed twice: at the baseline and at 12-months follow-up. Both the experimental and the control group will be assessed with a multidimensional evaluation battery, including cognitive functioning, behavioral, functional, and quality of life measures. The tele-rehabilitation program lasts 8 weeks and includes cognitive exercises 3 days a week, physical activities 2 days a week, and social activities once a week. In addition, group will be given an actigraph (GENEActiv, Activisinghts Ltd., Cambridgshire, UK) to track physical and sleep activity.Discussion:Results of this study will inform on the efficacy of the proposed tele-rehabilitation to prevent or delay further cognitive decline in MCI/VCI subjects. The expected outcome is to counteract cognitive decline and improve both physical functioning and quality of life.Ethics and Dissemination:The study is approved by the Local Ethics Committee and registered in https://clinicaltrials.gov (NCT03383549). Dissemination will include submission to a peer-reviewed journal, patients, and healthcare magazines and congress presentations.Trial Registration: ClinicalTrials.gov ID: NCT03383549 (registration date: 26/dec/2017)Trial Funding: Bando FAS Salute 2014 Regione ToscanaVersion Identifier: ver 5—16/11/201

Assistive Technology Ecosystem for Effective Self-Care: Application to Alzheimer’s and Related Dementia

People living with Alzheimer’s disease and related dementias (PwADRD)experience declined memory, language, problem-solving and other cognitive functions caused by the disease. They face major challenges in self-care and assistive living, including equitable access to assistive technology and care, the right to choose where to live, protection of privacy and security, and the preserving their personhood and social connections. Fast advances in telecommunication, Internet of Things (IoT) technology, and artificial intelligence make it possible to devise an assistive technology ecosystem to address these challenges. This chapter presents an assistive technology ecosystem that enables autonomy, independence and interdependence among PwADRD, their circle of care and society. Participatory action research and design methodology underpin this ecosystem’s design and implementation. We also discuss funding policy and health system changes needed to facilitate the affordability and sustainability of such an ecosystem and, ultimately, to empower PwADRD and their caregivers to have a meaningful quality of life