TOWARDS EXPLAINING THE WILLINGNESS TO DISCLOSE PERSONAL SELF-TRACKING DATA TO SERVICE PROVIDERS

Users of digital self-tracking devices increasingly benefit from multiple services related to their self-tracking data. Simultaneously, service providers are dependent from these data to offer such services. Thereby, the willingness of users to provide such personal data heavily depends on benefits and risks associated with the disclosure. In this regard, the aim of our research is to investigate the factors influencing the willingness to disclose personal self-tracking data to service providers. So far, IS re-search has largely focused on private information disclosure in social media and little in the health and behavior context. To advance research in this area, we develop a conceptual model based on the privacy calculus by building on established information disclosure and privacy theories. With our re-search, we aim at contributing to both a better theoretical understanding in the fields of privacy and information disclosure and giving practical implications for service provider

Three Research Essays on Propensity to Disclose Medical Information Through Formal and Social Information Technologies

Abstract This dissertation, which is comprised of three essays, examined disclosure propensity of healthcare providers from the US and Thailand and disclosure of personal health problems of healthcare consumers in social media context. Essay 1: A Deterrence Approach in Medical Data Misuse among Healthcare Providers Information and communication technology (ICT) have long been available for use in health care. With the potential to improve the quality, safety, and efficiency of health care, the diffusion of these technologies has steadily increased in the health care industry. With the adoption of electronic health records, personal electronics devices, internet connections and social network connections, comes the increased risk of medical data breaches. Due to the sensitivity of the information involved, and the existence of laws governing the use of this data, the responsibilities of a healthcare provider after a data breach remain a concern. Based on previous breach reports, institutional insiders were among the leading causes of medical data breaches. The causes were related to unawareness of institutional information security policies and system misuse. Thus it has become important to understand how to reduce such behaviors. Previous studies suggested deterrence theory that relies on security countermeasures can deter individuals\u27 misuse behaviors by increasing the perceived threat of punishment. Thus our model posits that security countermeasures decrease medical data misuse through the two mediators; perceived certainty of sanctions and perceived severity of sanctions. This model was tested by 176 healthcare providers from different institutions across the US. The results suggested that perceived severity of sanctions has more effect in reducing medical data misuse than perceived certainty of sanctions. Hospital information security policies and HIPAA has stronger effect on perceived severity of sanctions than perceived certainty of sanctions whereas EHR monitoring and auditing has stronger effect on perceived certainty of sanctions than perceived severity of sanctions. Results of the study and implications for the research are discussed. Essay 2: Propensity to Misuse Medical Data in an International Context - Deterrence and Cultural Values As information abuse by healthcare providers is a problem that is faced around the globe, our study examined the effect of deterrence within two cultures; Asian and American (Thailand and the US). The reason to compare these two countries is because the foundation of the structures of the laws and the hospital policies for medical data protection of these two countries are similar. Thus others confounding factors are minimized. In terms of cultural influences, Hofstede\u27s cultural dimensions that describe the effects of society\u27s culture on the values to its members are considered as factors that can have an interaction effect with deterrence. Four Hofstede\u27s cultural values were used; individualism-collectivism (IDV); uncertainty avoidance (UAI); power distance (PD); and long-term orientation (LTO). Also, social norms and morality were included. This study employed espoused values of Hofstede\u27s cultural values, since all individuals from a country will not have identical values. In this study, we examined 1) the effect of espoused cultural values on deterrence, and 2) the effect of Hofstede\u27s national cultural values on deterrence in two different healthcare cultures. Our model was tested by 613 healthcare providers; 437 from Thailand and 176 from the US. The results suggested that technical countermeasures had stronger effect on certainty and severity perception for both Thai and US cases, whereas procedural countermeasures had uncertain effect on sanctions perception for both cultures. The young generation of Thais was found more individualized and tended to have the same perception on sanctions as the Westerners. Social norms played an important role in reducing medical data misuse for Thai providers, whereas moral beliefs were more important for the US providers. Individuals who espoused different cultural values had different responses on medical data misuse. Results of the study and implications for the research are discussed. Essay 3: Intention to self-disclose personal health information in social media context In recent years social media is quickly becoming a large part of people\u27s everyday lives. With the availability of smartphones and tablets, coupled with a slew of apps for these devices, people now have ubiquitous access to social media. Virtual social media application encourages people to meet, and share information. Health problems represent one aspect that is shared in a social media context. Benefits and risks of self-disclosure are two main factors that determine social media users\u27 intention to share their sensitive information on social network. This paper integrates social exchange theory, a theory that focuses on gains and losses of building a relationship, and the social penetration theory, a theory that explains human\u27s self-disclosure, to construct the model for investigating self-disclosure intention on personal health problems of social medial users. In addition, we included factors that affect self-disclosure intention including ease of use of social media, social influence, and nature of health problems. Through an online survey, we examined factors that determine self-posting in social media account with 374 social media users across the US. The results suggested that individual and social benefits of self- disclosure outweighed the risks and have significant effect on self-disclosure intention on personal health problems. The individual risks and social risks had little negative effect on self-posting about health problems. In addition, social influence, and social networking experiences were factors that encouraged social media users to reveal their personal health problems

A mixed methods examination of the antecedents of user self-disclosure on digital health platforms

Digital health platforms (DHPs) present the opportunity for individuals to manage their personal health more effectively through seeking and obtaining health advice. However, little is known about the factors that influence self-disclosure on these platforms and are therefore critical for their success. This research proposes that self-disclosure on a DHP is influenced by trust in health platforms (THP) and health information privacy concerns (HIPC) across different cultures and personalities. Using data from Ireland and the United States, it develops a framework that harnesses social exchange theory (SET) and social penetration theory (SPT) as a lens to understand self-disclosure on DHPs. It examines the factors that generate THP and HIPC. It then determines the influence of THP and HIPC on self-disclosure. Finally, the model offers a unique look at the role of personality traits and the influence they have on likelihood to self-disclose. A two-stage mixed-methods data collection approach was employed to explore these propositions. Quantitative surveys were used to collect data from 300 participants in Ireland and America. 20 qualitative research interviews were then conducted with Irish and American participants. The quantitative and qualitative findings were then integrated and evaluated in the context of the hypothesised relationships. The integrated findings show THP is the critical pathway to self-disclosure. THP is shaped by social influence, perceived reciprocity and privacy risk beliefs. HIPC is shown to reduce THP. Personality traits also influence self-disclosure. This study extends SET and SPT to a digital health platform context. The findings provide actionable insights, which can assist policy makers who wish to protect citizen health data and health technology vendors who seek to develop trustworthy platforms

Disposition toward privacy and information disclosure in the context of emerging health technologies.

ObjectiveWe sought to present a model of privacy disposition and its development based on qualitative research on privacy considerations in the context of emerging health technologies.Materials and methodsWe spoke to 108 participants across 44 interviews and 9 focus groups to understand the range of ways in which individuals value (or do not value) control over their health information. Transcripts of interviews and focus groups were systematically coded and analyzed in ATLAS.ti for privacy considerations expressed by respondents.ResultsThree key findings from the qualitative data suggest a model of privacy disposition. First, participants described privacy related behavior as both contextual and habitual. Second, there are motivations for and deterrents to sharing personal information that do not fit into the analytical categories of risks and benefits. Third, philosophies of privacy, often described as attitudes toward privacy, should be classified as a subtype of motivation or deterrent.DiscussionThis qualitative analysis suggests a simple but potentially powerful conceptual model of privacy disposition, or what makes a person more or less private. Components of privacy disposition are identifiable and measurable through self-report and therefore amenable to operationalization and further quantitative inquiry.ConclusionsWe propose this model as the basis for a psychometric instrument that can be used to identify types of privacy dispositions, with potential applications in research, clinical practice, system design, and policy

Development and Maintenance of Self-Disclosure on Facebook: The Role of Personality Traits

This study explored the relationships between Facebook self-disclosure and personality traits in a sample of Italian users. The aim was to analyze the predictive role of Big Five personality traits on different parameters of breadth and depth of selfdisclosed behaviors online. Facebook users, aged between 18 and 64 years of age (Mage = 25.3 years, SD = 6.8; N = 958), of which 51% were female, voluntarily completed an online survey assessing personality traits and Facebook self-disclosure. Results at a series of hierarchical regression analyses significantly corroborated the hypotheses that high extroverted and openness people tend to disclose on Facebook a significant amount of personal information, whereas high consciousness and agreeableness users are less inclined to do it. Furthermore, more extroverts and agreeableness people develop less intimacy on Facebook, differently from those with high levels of openness. Results also corroborated the hypothesis of a full mediation of time usage in the relationship between personality factors such as extroversion and conscientiousness with breadth of Facebook self-disclosure. Overall, according to the findings of the current study, personality traits and Facebook self-disclosure become central both as predictive variables for depicting the different profiles of potential addicted and as variables to help educators, teachers, and clinicians to develop training or therapeutic programs aimed at preventing the risk of Internet addiction. Limitations of the study are discussed, and directions for future research are suggested

Parenting Practices, Life Satisfaction, and the Role of Self-Esteem in Adolescents

Introduction: Studies have shown significant associations between parenting practices, life satisfaction, and self-esteem, and the role of parenting practices in adolescent adjustment, emphasizing its influence on wellbeing. Objectives: To analyze the relationships between parenting practices, self-esteem, and life satisfaction, and test the mediating effect of self-esteem on the relationship between the different parenting practices and life satisfaction of adolescents. Method: The sample came to a total of 742 adolescents, with an average age of 15.63 (SD = 1.24; range 13–19). The Parenting Style Scale, the Rosenberg Self-Esteem Scale, and the Satisfaction with Life Scale were used. Results: Perception by adolescents of high levels of affect and communication, self-disclosure, and a sense of humor related to their parents, as well as low levels of psychological control, explained the life satisfaction of the adolescents. Self-esteem exerted a partial mediating effect on the relationship between parenting practices and satisfaction with the life of the adolescent. Finally, self-esteem also appeared to be a moderator variable, specifically in the effect of self-disclosure on the life satisfaction of the adolescent. Conclusions: The results reinforce the role of personal variables, especially self-esteem, in parent-child interaction and in the improved subjective wellbeing of the adolescent

A study of occupational health : disclosing homosexuality in the workplace

In this study, the associations among disclosing homosexuality, discrimination and occupational health was examined, as well as the associations among disclosing homosexuality, workplace sexual identity management strategies and occupational health. It is aimed to investigating whether discrimination serves as a moderator between disclosing homosexuality and occupational health, plus whether workplace sexual identity management strategies serves as a mediator between disclosing homosexuality and occupational health. In total, 225 gays and lesbians full-time workers in Hong Kong were participated in this study through completing an online questionnaire. Results showed that discrimination serves as a moderator between disclosure and job satisfaction, and workplace sexual identity management strategies serves as a mediator between disclosure and emotional exhaustion as well as depressive symptoms. Implications and limitations of this study were discussed

Responding sensitively to survivors of child sexual abuse: an evidence review

This report summarises what the evidence tells us about the characteristics of adults who were sexually abused as children and how to most effectively support them.

Patients\u27 Rights to Access their Medical Records: An Argument for Uniform Recognition of a Right of Access in the United States and Australia

This Note addresses the issue of a patient\u27s right to access her own medical records in the United States and Australia. Part I discusses the background of a right of patient access to medical records through case law in the United States. Part I gives a historical perspective on US and Australian legislation regarding access to medical records. Part II reviews commentary both for and against access in the United States and in Australia. Part II focuses on legal arguments from the recent decision concerning patient access to medical records by the Australian courts in Breen v. Williams. Further, Part II also briefly examines jurisprudence with respect to access rights in Canada and the United Kingdom. Part III argues that the United States and Australia should follow the international trend and grant access to medical records through legislation. Finally, this Note concludes that a right of access would not only be fairer to patients and improve the physician-patient relationship, but also would facilitate transnational legal actions where medical records are required but the countries\u27 laws differ on the right of access. Australia and the United States, either on the federal level or uniformly on the state level, should adopt legislation providing for a right of patient access to medical records